Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Aloha all,I am 2 days post op after a tympano mastoidectomy on my left ear for an acquired cholesteatoma. I am feeling better but I have a lot of pain in my ear. I am on some heavy pain meds. I have a few things to say about this group. #1, this board has been good for information and advice at times. However, some of your comments, posts, and info is very negative. Everyone's ear, and case are different. I have learned that no matter how much you read and prepare yourself the best is to have positive vibes and positive expectations. Reading some of your posts really scared me, and disillusioned me about the possible outcomes of this operation. Now after coming out of it and handling this new aspect of my life, I have come to believe that yes, this will be a lifelong challenge, and some people have it harder than others. Just please, for the sake of this board and yourselves, please try and stay positive. That is the best way to tackle these challenges. The secret of life is the law of attraction and if you manifest negativity then your perspective, and recovery will be negative. Stay positive, stay hopeful for the best and you will achieve your goals. Thank you for your support and hope, I know that they got all of the disease and I am a candidate for a reconstruction 6 to 8 months from now. I will probably have more questions down the road but for now, thank you and stay up. Aloha.Dancholesteatoma From: drarunjind@...Date: Sat, 24 May 2008 21:29:10 +0530Subject: Re: Re: dropping in with a quick question It is a kind of neuralgia. Try Carbemazepinie (Tegretol) Arun On 5/24/08, fiddlepaintingca <fiddlepaintingca > wrote: Hey Cheryl,Thanks for the reply, no mine are not like that. They feel like a knife stabbing me above my right eye and at the temple of my right eye. Once this knife goes in, it's like it's slowly turning then it pulls out. It stops me dead in my tracks I grab my face in that area close my eyes tight and wait it out. Once it's out the pain is vanished, it only last for about maybe 10-20 seconds at a time. > > I had the first one a couple months after surgery while grocery > shopping with my 2 yr old. I had to leave him at the store( till a > family member took him) as I went to the hosp by ambulance... It > began as I looked up at the ceiling lights cuz there was a bird in > the store. They would last about 30 min. not so much a headache but > peripheral vision, like looking through a tunnel. Oh, I dont miss > those!!! E-mail for the greater good. Join the i’m Initiative from Microsoft. Quote Link to comment Share on other sites More sharing options...
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