Re: Find a new doc

[Guest guest]

FROM FILE:

When life hands you lemons, it's time to make lemonade! And my friend,

your doctor's nonsupport is a blessing in disguise. This is now your

opportunity to find a doctor who won't look in your child's ear and say " yep

there's some redness, here's some antibiotics " and the myriad of other

dangerous practices the orthodoxy performs. The following is a copy from my

file of sources to locate natural or open-minded doctors. I personally use a

naturopath who happens to also be a chiropractor. By the way, it was

chiropractic that cured my baby's ear pain!

A little something to think about when weighing orthodox against alternative:

<A HREF= " http://immunebasics.com/the_third_leading_cause_of_death.htm " >Doctors

Are The Third Leading Cause of Death in the US</A>

http://immunebasics.com/the_third_leading_cause_of_death.htm

AND

Ten Things Your Pediatrician Won't Tell You

(an article which appeared in Smart Money Magazine)

<A HREF= " http://www.vaclib.org/basic/tenpedi.htm " >Vacination Liberation

Information</A>

http://www.vaclib.org/basic/tenpedi.htm

AND

A tidbit from the New Zealand Herald:

Many Medical Treatments 'Unproven'

21.02.2002

By ANGELA GREGORY

More than half mainstream medicine is " unproven " and that exposes a double

standard in attitudes to alternative healing, a doctor has told a

medico-legal conference. Dr Tane said the term " unproven " was used to

describe alternative and complementary medicines, but the same term could

apply to more than 50 per cent of what was commonly known as mainstream

medicine.

Yet in general practice, 53 per cent of what doctors did had not been

substantiated by randomised, controlled trials.

Okay, I've kept you waiting long enough...

From file:

Using a homeopath is a great idea. I hear of alot of parents who are using

homeopaths as their primary physicians.

For info on homeopathy:

<A

HREF= " http://www.nccn.net/~wwithin/homeo.htm " >http://www.nccn.net/~wwithin/homeo\

..htm</A>

For a list of classical homeopaths:

<A

HREF= " http://www.nccn.net/~wwithin/STEVELIST.htm " >http://www.nccn.net/~wwithin/S\

TEVELIST.htm</A>

Also a list of homeopaths, but not necessarily classical (meaning that's ALL

they do):

<A

HREF= " http://www.wholehealthnow.com/homeopathy_info/ " >http://www.wholehealthnow.\

com/homeopathy_info/</A>

And you've probably already seen this, but I hate to miss an opportunity to

advertise that natural docs CAN be found. First of all, lemme state my

mantra, " Remember, naturopaths are pediatricians too! "

Okay, now that that is done, you can also ask at your local health food

stores for recommendations. (That's how I found an alternative Internal

Medicine MD)

You can ask for recommendations from direct entry midwives. Don't know that I

would set much stock in any recommendations from a CNM because they tend to

be more medically oriented. Just gotta know your CNM's beliefs and practices.

And now on to the websites where you can search for docs:

<A HREF= " http://www.acam.org/ " >http://www.acam.org/</A>

<A HREF= " http://www.naturopathic.org/ " >http://www.naturopathic.org/</A>

<A

HREF= " http://www.alternativemedicine.com/ " >http://www.alternativemedicine.com/</\

A>

<A

HREF= " http://www.alternative-medicine-and-health.com/ " >http://www.alternative-me\

dicine-and-health.com/</A>

<A HREF= " http://www.healthy.net/ " >http://www.healthy.net/</A>

<A HREF= " http://www.healthmall.com/ " >http://www.healthmall.com/</A>

In a message dated 4/19/2002 2:59:20 PM Central Daylight Time,

maxx-susan@... writes:

> I think I'm in the market for a new ped.

[Guest guest]

Hi,

I think Matt has a link. For my last surgery, I ended up getting the recommendation of another surgeon whose opinion I trusted. I would never trust the stated opinion of the physician themselves, since many ham fisted buffoons seem to have the delusion that they are competent.

I would start by saying your city, and asking on this forum if anyone knows a good surgeon in that area.

Best of luck!

From: amber krasny <am81576@...>Subject: Find a new doccholesteatoma Date: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

I am looking for a doctor in Rochester, NY or even Syracuse NY... i have exhausted all efforts with docs in Buffalo NY where i live and I cannot ask anyone here for a referral. I have been seeing a doc in NY but he is turning 81 and I just cannot do the 6 hour each way drive anymore.. especially since he promised he would be able to get my hearing back and now 6 surgeries later I am hearing still at 50db..very upsetting :-(

From: amber krasny <am81576 (DOT) com>Subject: Find a new doccholesteatomaDate: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

I know there's definitely a few folks here who can recommend NYC docs - me included (let me know if you want my suggestion there).

Hopefully someone here has good experiences with someone upstate??

From: amber krasny <am81576 (DOT) com>Subject: Find a new doccholesteatomaDate: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

No BODY can be perfect, specially in Medical Science.

Physic ans are a human being among people, not extra ordinary, they do no decent from other planet

Arun(India)

On 8/25/08, daniel skempton <dskempton@...> wrote:

Hi,

I think Matt has a link. For my last surgery, I ended up getting the recommendation of another surgeon whose opinion I trusted. I would never trust the stated opinion of the physician themselves, since many ham fisted buffoons seem to have the delusion that they are competent.

I would start by saying your city, and asking on this forum if anyone knows a good surgeon in that area.

Best of luck!

From: amber krasny <am81576@...>Subject: Find a new doc

cholesteatoma Date: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

I understand that nobody is perfect. I am just a difficult case and I understand that after 16 total surgeries my middle ear space just does not want to work. After each of those surgeries to try and repair my hearing it was always a nother mechanical breakdown (prosthesis not staying in place, ear drum not moving). I just want to find a doctor somewhere within the area of my home because financially we cannot drive all that way anymore and I know I will need to see a doctor for the rest of my life. I would love to get my hearing back as my nerves are still great but right now I just want someone that has some experience to see me on a regular basis and follow up with:-(

From: amber krasny <am81576 (DOT) com>Subject: Find a new doccholesteatomaDate: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

Amber,

To start out with I typically just read the messages posted and respond very little, but for you I'll keep you in my prayers....

After 5 yrs of waiting and working to find an otologist, my husband finally had surgery to repair his right ear again....he's fortunate in that his issues are minor compared to everyone else, and this last surgery turned out far better than he expected. I believe it had a lot to do with the fact that his surgeon really listened to him - even though he's not 's primary ENT... The surgeon decided before the surgery to wait and see what the inside looked like before he made any decisions and was able to do some reconstrcution....

Something else I believe is that 's main ENT-Otologist is a head ENT specialist at the University of Kansas Medical Center up in Kansas City. Because it is a teaching hospital each student doctor does seem to bring in a fresh perspective on what each patients situation is and new ways to handle it. You might consider seeking out a teaching hospital if there's one near your location.

In the meantime I'll pray for you.....and your healing

Find a new doccholesteatomaDate: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

Please review my original statement:

I did NOT say that all physicians were ham fisted buffoons. I said that some ham fisted buffoons had high opinions of themselves. With surgery as anything else, it is "buyer beware". There are some phenomenal surgeons out there, I just know that where my inner ear is concerned, I only want someone who is top notch poking around in there with sharp instruments.

No offence was intended, and I'm sure you'll agree that people should be selective when it comes to choosing their surgeon.

Regards

From: amber krasny <am81576 (DOT) com>Subject: Find a new doccholesteatomaDate: Sunday, August 24, 2008, 9:04 PM

--- How do I go about finding a new doctor in the US. I cannot find that post with the link for docs and what does everyone do just call around and ask if they specailize in c-toma?

[Guest guest]

Amber,

Here is the link:

http://www.entnet.org/

The is a little module kind of in the center of the page now where you

can start your search. Best wishes with finding someone good up in that

part of the country. If Pittsburgh isn't too far of a drive from

Buffalo, Dr. Hirsch is fantastic at the Eye & Ear Institute of

Pittsburgh. He does have more of a 'clean dry ear' approach to things

though. Hearing recovery was always a secondary goal. Mine is pretty

much as good as it can get.

September 3 is getting closer ... time to visit the Credit Union!

Pricey little devils those hearing aids are! Do the new BTE's stay on

your ear well? It looks like the crazy thing just rests on the top of

your ear.

Matt

daniel skempton wrote:

>

> Hi,

>

> I think Matt has a link. For my last surgery, I ended up getting the

> recommendation of another surgeon whose opinion I trusted. I would

> never trust the stated opinion of the physician themselves, since many

> ham fisted buffoons seem to have the delusion that they are competent.

>

> I would start by saying your city, and asking on this forum if anyone

> knows a good surgeon in that area.

>

> Best of luck!

>

>

>

> From: amber krasny <am81576@...>

> Subject: Find a new doc

> cholesteatoma

> Date: Sunday, August 24, 2008, 9:04 PM

>

>

>

> --- How do I go about finding a new doctor in the US. I cannot

> find that post with the link for docs and what does everyone do

> just call around and ask if they specailize in c-toma?

>

>

>

>

--

[Guest guest]

Finding my doc: I called the local ENT office associated with our

university hospital and asked the person at the desk who was the most

experienced surgeon for handling c-toma. It ended up being the director

of the department at the hospital. I had to wait 3 months to get an

appointment with him, but it was worth it.

Jan

[Guest guest]

Finding a good doctor can be very hard. I actually got refered to my Otologist by my ENT. When my scans showed a c-toma he sent me to the doctor that did both my surgeries. Even though he culd have done them and has in th epast he suggested i pay him a visit becuase he wanted the absolute best care for me. Im glad he took that approach and knew when to send a patient to the next level , he knew what i had in my right war was bad and may have been out of his league so to speak. You may want to try asking some ENT's who the best Otoligist in the area is and go from there.

Id rever my Otologist to you but he's in Boston, MA. On 8/25/08, Jan <clarkdq@...> wrote:

Finding my doc: I called the local ENT office associated with our university hospital and asked the person at the desk who was the most experienced surgeon for handling c-toma. It ended up being the director

of the department at the hospital. I had to wait 3 months to get an appointment with him, but it was worth it. Jan

[Guest guest]

I wish I could do that but all the doctors in Buffalo say they can handle the cases/surgery. They see maybe 1 a year of c-toma and are not experienced. They do not want to send you out because they like to practice on you which is why i refuse to go to any of my local docs...sorry to be so blunt but I have a really bad history with the docs locally.

Finding my doc: I called the local ENT office associated with our university hospital and asked the person at the desk who was the most experienced surgeon for handling c-toma. It ended up being the director of the department at the hospital. I had to wait 3 months to get an appointment with him, but it was worth it.Jan

[Guest guest]

Hey Jim,

Where do you go in Boston? We are so lucky here to have so many great surgeons!

On Mon, Aug 25, 2008 at 9:34 AM, amber krasny <am81576@...> wrote:

I wish I could do that but all the doctors in Buffalo say they can handle the cases/surgery. They see maybe 1 a year of c-toma and are not experienced. They do not want to send you out because they like to practice on you which is why i refuse to go to any of my local docs...sorry to be so blunt but I have a really bad history with the docs locally.

Finding my doc: I called the local ENT office associated with our university hospital and asked the person at the desk who was the most experienced surgeon for handling c-toma. It ended up being the director

of the department at the hospital. I had to wait 3 months to get an appointment with him, but it was worth it.Jan

[Guest guest]

,

I see Dr. Lee, what he has done for me has been just amazing in

my opinion. He was originally the Otology director at Umass in

Worcester. As of June he now practices at Mass Eye And Ear in Boston.

On 8/25/08, s <thequeen.christine@...> wrote:

> Hey Jim,

> Where do you go in Boston? We are so lucky here to have so many great

> surgeons!

>

>

> On Mon, Aug 25, 2008 at 9:34 AM, amber krasny <am81576@...> wrote:

>

>> I wish I could do that but all the doctors in Buffalo say they can

>> handle the cases/surgery. They see maybe 1 a year of c-toma and are not

>> experienced. They do not want to send you out because they like to

>> practice

>> on you which is why i refuse to go to any of my local docs...sorry to be

>> so

>> blunt but I have a really bad history with the docs locally.

>>

>>

>>

>>

>>>

>>> Finding my doc: I called the local ENT office associated with our

>>> university hospital and asked the person at the desk who was the most

>>> experienced surgeon for handling c-toma. It ended up being the director

>>> of the department at the hospital. I had to wait 3 months to get an

>>> appointment with him, but it was worth it.

>>> Jan

>>>

>>

>>

>>

>>

>

--

Sent from my mobile device

[Guest guest]

Hi Jim,

Were you able to get rid of your c-toma and get your hearing back?

>>>>>> Finding my doc: I called the local ENT office associated with our>>> university hospital and asked the person at the desk who was the most>>> experienced surgeon

for handling c-toma. It ended up being the director>>> of the department at the hospital. I had to wait 3 months to get an>>> appointment with him, but it was worth it.>>> Jan>>>>>>>>>>>>-- Sent from my mobile device

[Guest guest]

Amber,

So far so good for me. I have had two surgeries. one CWD on my right ear two years ago and a cwu on my left last nov. So far on the right which was by far the worst it has not come back, my hearing in that ear went from lmost none to about 70% of normal with my original hearing bones. While they were damaged he wanted to try to leave them intact and see if the results would work. So far its great. My left ear i developed one in the laqst year or so and he got it out before it caused any major damage. I did have a little hearing bone damage but not as bad as the right. I havent had my post op hearing test yet( that comes in sept) but id say im at about 90% on that side. So for me its been so far so good and the resilts have been better then i ever could have hoped for.

On Mon, Aug 25, 2008 at 5:56 PM, amber krasny <am81576@...> wrote:

Hi Jim,

Were you able to get rid of your c-toma and get your hearing back?

>>>>>> Finding my doc: I called the local ENT office associated with our>>> university hospital and asked the person at the desk who was the most>>> experienced surgeon for handling c-toma. It ended up being the director

>>> of the department at the hospital. I had to wait 3 months to get an>>> appointment with him, but it was worth it.>>> Jan>>>>>>>>>>>

>-- Sent from my mobile device

[Guest guest]

Jim,

We are also at MEEI. We have had such a good experience there! I wondered when you said Boston because there is nothing else like them in this area. We are so blessed to be close enough to travel easily.

On Mon, Aug 25, 2008 at 6:06 PM, Jim B <poopship14@...> wrote:

Amber,

So far so good for me. I have had two surgeries. one CWD on my right ear two years ago and a cwu on my left last nov. So far on the right which was by far the worst it has not come back, my hearing in that ear went from lmost none to about 70% of normal with my original hearing bones. While they were damaged he wanted to try to leave them intact and see if the results would work. So far its great. My left ear i developed one in the laqst year or so and he got it out before it caused any major damage. I did have a little hearing bone damage but not as bad as the right. I havent had my post op hearing test yet( that comes in sept) but id say im at about 90% on that side. So for me its been so far so good and the resilts have been better then i ever could have hoped for.

On Mon, Aug 25, 2008 at 5:56 PM, amber krasny <am81576@...> wrote:

Hi Jim,

Were you able to get rid of your c-toma and get your hearing back?

>>>>>> Finding my doc: I called the local ENT office associated with our>>> university hospital and asked the person at the desk who was the most>>> experienced surgeon for handling c-toma. It ended up being the director

>>> of the department at the hospital. I had to wait 3 months to get an>>> appointment with him, but it was worth it.>>> Jan>>>>>>>>>>>

>-- Sent from my mobile device

[Guest guest]

Be sure you look for an otologist, not a regular ENT. Look in the

files section of this group for some helpful articles.

Jan

I wish I could do that but all the doctors in Buffalo say they

can

handle the cases/surgery. They see maybe 1 a year of c-toma and are not

experienced. They do not want to send you out because they like to

practice on you which is why i refuse to go to any of my local

docs...sorry to be so blunt but I have a really bad history with the

docs locally.

From: Jim B <poopship14gmail (DOT)

com>

Subject: Re: Find a new doc

cholesteatoma

Date: Monday, August 25, 2008, 8:50 AM

Finding a good doctor can be very hard. I actually got refered

to my Otologist by my ENT.

Finding a good doctor can be very hard. I

actually got refered to my Otologist by my ENT.

[Guest guest]

,

I actually haven't been to MEEI yet. My doctor just moved to there

from UMASS in Worcester in June. My first visit will be in a couple

weeks.

From what I gather my doc was doing his research at MEEI so it only

made sense for him to move there full time. The switch works out well

for me since I work in Boston.

On 8/26/08, Jan <clarkdq@...> wrote:

> Be sure you look for an otologist, not a regular ENT. Look in the files

> section of this group for some helpful articles.

>

> Jan

>

>> I wish I could do that but all the doctors in Buffalo say they can handle

>> the cases/surgery. They see maybe 1 a year of c-toma and are not

>> experienced. They do not want to send you out because they like to

>> practice on you which is why i refuse to go to any of my local

>> docs...sorry to be so blunt but I have a really bad history with the docs

>> locally.

>>

>>

>>

>>

>> From: Jim B <poopship14gmail (DOT)

>>>

>>> com>

>>> Subject: Re: Find a new doc

>>> cholesteatoma

>>> Date: Monday, August 25, 2008, 8:50 AM

>>>

>>> Finding a good doctor can be very hard. I actually got refered to my

>>> Otologist by my ENT.

>

>

>> Finding a good doctor can be very hard. I actually got refered to my

>> Otologist by my ENT.

>

>

--

Sent from my mobile device

[Guest guest]

Jim,

We have had nine of Chloe's ten surgeries there, and it has been just one good experience after another (as good as that kind of thing can be LOL!). We don't love surgery, but it is so helpful to know we are having it there! I hope you don't need any more, but if you do, may you have as positive a time as we have!

On Thu, Aug 28, 2008 at 9:39 AM, Jim B <poopship14@...> wrote:

,I actually haven't been to MEEI yet. My doctor just moved to therefrom UMASS in Worcester in June. My first visit will be in a couple

weeks.From what I gather my doc was doing his research at MEEI so it onlymade sense for him to move there full time. The switch works out wellfor me since I work in Boston.

On 8/26/08, Jan <clarkdq@...> wrote:> Be sure you look for an otologist, not a regular ENT. Look in the files> section of this group for some helpful articles.

>> Jan>>> I wish I could do that but all the doctors in Buffalo say they can handle>> the cases/surgery. They see maybe 1 a year of c-toma and are not>> experienced. They do not want to send you out because they like to

>> practice on you which is why i refuse to go to any of my local>> docs...sorry to be so blunt but I have a really bad history with the docs>> locally.>>>>>>>>

>> From: Jim B <poopship14gmail (DOT) >>>>>> com>>>> Subject: Re: Find a new doc>>> cholesteatoma

>>> Date: Monday, August 25, 2008, 8:50 AM>>>>>> Finding a good doctor can be very hard. I actually got refered to my>>> Otologist by my ENT.>>>> Finding a good doctor can be very hard. I actually got refered to my

>> Otologist by my ENT.>>

--Sent from my mobile device

------------------------------------