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Hi all,

I had my operation last week to remove the ctoma and try to reconstruct,

I was in surgery for 4 hours is this normal?

I do not know the outcome as yet as the surgeon was not available

afterwards and I am awaiting the notes to get to my GP as Im being told

that I will need more surgery.

As a teenager I had many operations on my ears but these were for

gromits etc and now in my late 40's I find I needed this. I was and am

90%deaf in the ear they operated on and need an aid in the other as my

hearing is minimal in that as well.

I have been reading some of the messages from other members ref their

children etc,If it is any help it scared the life out of me and my wife

so god knows what it must be like for a child, the only thing I will

say is that the pain after the operation is nothing compared to the

pain of all the infections.

It's good to know that others out there are in the same boat as me but

willing to support others.

The main thing that concerns me is the lack of info after the op from

the surgeons until a follow up appointment in about 6 weeks is this the

same for all of us?

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