Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 I can't speak for everyone, but, I had my surgery 44 years ago (I was 4) and I still have balance problems, mostly when I am recovering from a cold (like now). You might check with your doctor to see if maybe you have fluid build up or something. It's even worse if I take benadryl! Walter On Jan 3, 2008 2:06 PM, fuzzysam79 <fuzzysam79@...> wrote: Hello i am new here and need some of your help and opinions.I had surgery just over a year ago now on a c-toma in my right ear and all went well at the time and i continue to go to check ups.I also have another c-toma in my left ear and was told they will not do surgery right now as it wasn't causing a problem to me at present but may need it at some point in the future, but i have been feeling unbalanced occasionally through the year when turning my head quickly for example, this i can handle. But over christmas i have had and am still having horrible feelings of unbalancedness and generally everything looking weird lightheaded dreamy like state and other things too, i have also had real problems with anxiety through this year and am a bit of a mess right now, is this all to do with my c-toma? does anyone else have these problems? your help is much appreciated. -- Remember: If you light a man a fire, you warm him for the night. If you light a man ON fire, you warm him for the rest of his life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 > > > Hello i am new here and need some of your help and opinions. > > > > I had surgery just over a year ago now on a c-toma in my right ear and > > all went well at the time and i continue to go to check ups.I also have > > another c-toma in my left ear and was told they will not do surgery > > right now as it wasn't causing a problem to me at present but may need > > it at some point in the future, but i have been feeling unbalanced > > occasionally through the year when turning my head quickly for example, > > this i can handle. But over christmas i have had and am still having > > horrible feelings of unbalancedness and generally everything looking > > weird lightheaded dreamy like state and other things too, i have also > > had real problems with anxiety through this year and am a bit of a mess > > right now, is this all to do with my c-toma? does anyone else have > > these problems? your help is much appreciated. > > > > > > > > > > -- > Remember: If you light a man a fire, you warm him for the night. > > If you light a man ON fire, you warm him for the rest of his life. > Thanks for your reply, i am due to go back to the hospital soon so hopefully they will help me. I think you could be right i may have a cold or virus of some kind thats made these feelings worse than usual, i find these strange feelings really quite scary though and find it hard to function properly with work and things. Again thanks for your help Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 My 10 year old son has had severe anxiety every since about the time the cholesteatoma was growing (a year before his actual surgery or us discovering he had it). I often wonder if it is associated in any way. I'd be interested to hear if other people with cholesteatoma have anxiety? Warmly, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Actally I have had alot of anxiety ever since I got diagnosed I wonder too If it associated. Simply because I just start feeling anxious out of the blue for no reason.I had never been like this before. Re: unbalanced problem My 10 year old son has had severe anxiety every since about the time the cholesteatoma was growing (a year before his actual surgery or us discovering he had it). I often wonder if it is associated in any way. I'd be interested to hear if other people with cholesteatoma have anxiety?Warmly, Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I don't remember having any anxiety when I was young. My parents were much more worried than I was. I was 8 or 9 before I could go swimming without a swim cap because my Mom didn't want me to get my ear wet. If it is the ctoma that is causing his anxiety, just assure him that there are many people that have had this problem and some have grown up to be perfectly normal humans. The rest of us are still odd, but, we survive. Mine certainly hasn't slowed me down. I even get to ride the 'More Intense' side of Mission Space at EPCOT without any problems. Good Luck! Walter On Jan 4, 2008 11:02 AM, Gallardo <andaluz1@...> wrote: My 10 year old son has had severe anxiety every since about the time the cholesteatoma was growing (a year before his actual surgery or us discovering he had it). I often wonder if it is associated in any way. I'd be interested to hear if other people with cholesteatoma have anxiety?Warmly, -- Remember: If you light a man a fire, you warm him for the night. If you light a man ON fire, you warm him for the rest of his life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 > > My 10 year old son has had severe anxiety every since about the time > the cholesteatoma was growing (a year before his actual surgery or us > discovering he had it). I often wonder if it is associated in any > way. I'd be interested to hear if other people with cholesteatoma > have anxiety? > Warmly, > > I have been looking around the net and from what i can gather their is serious research going in to this connection between ears (not nessicerally cholesteatoma's) and anxiety. When you think about it the symptoms of ear problems like imbalance etc are very similar to anxiety symptoms. I know i have real problems with anxiety wether this is to do with my ears or not i really dont know, i guess research and time will tell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 I just found out in July that I have a cholesteatoma. What sent me to the doctor was the dizziness/disequalibrium. I sound just like you I am already a anxious/nervous type person and have been for years - these weird feelings do not work well with my personality - however I don't have much of a choice - I am hoping when I have my c- toma removed next week Sept. 25, 2008 that I won't feel this way anymore. Were you dizzy after your first surgery? Are you doing better with all your strange feelings? > > Hello i am new here and need some of your help and opinions. > > I had surgery just over a year ago now on a c-toma in my right ear and > all went well at the time and i continue to go to check ups.I also have > another c-toma in my left ear and was told they will not do surgery > right now as it wasn't causing a problem to me at present but may need > it at some point in the future, but i have been feeling unbalanced > occasionally through the year when turning my head quickly for example, > this i can handle. But over christmas i have had and am still having > horrible feelings of unbalancedness and generally everything looking > weird lightheaded dreamy like state and other things too, i have also > had real problems with anxiety through this year and am a bit of a mess > right now, is this all to do with my c-toma? does anyone else have > these problems? your help is much appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 I just found out in July that I have a cholesteatoma. What sent me to the doctor was the dizziness/disequalibrium. I sound just like you I am already a anxious/nervous type person and have been for years - these weird feelings do not work well with my personality - however I don't have much of a choice - I am hoping when I have my c- toma removed next week Sept. 25, 2008 that I won't feel this way anymore. Were you dizzy after your first surgery? Are you doing better with all your strange feelings? > > Hello i am new here and need some of your help and opinions. > > I had surgery just over a year ago now on a c-toma in my right ear and > all went well at the time and i continue to go to check ups.I also have > another c-toma in my left ear and was told they will not do surgery > right now as it wasn't causing a problem to me at present but may need > it at some point in the future, but i have been feeling unbalanced > occasionally through the year when turning my head quickly for example, > this i can handle. But over christmas i have had and am still having > horrible feelings of unbalancedness and generally everything looking > weird lightheaded dreamy like state and other things too, i have also > had real problems with anxiety through this year and am a bit of a mess > right now, is this all to do with my c-toma? does anyone else have > these problems? your help is much appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 I had some terrible vertigo before I had my cholesteatoma removed. Mine was compounded by the eustachian tube dysfunction that I have always had. I'd get the inverted ear drum and a feeling of fullness and then with ANY change in elevation - even a couple hundred feet, I'd be spinning like I was drunk and completely unable to cope. Before I was diagnosed with cholesteatoma, I went through three docs and two sets of CAT scans with no solution. Finally, one of the old docs who was retiring suggested a tube in my ear. And it worked! The only reason I found out I had a cholesteatoma was that my tube came out and I had the vertigo again and a CT scan finally showed the mass. My surgeon told me that he could not see anything at all in the geography of the interior of my ear that would indicate a problem with vertigo - but I can tell you that I had it and had it bad! I don't know what the link is, but I wish you luck! From: captaindefinder <captaindefinder@...>Subject: Re: unbalanced problemcholesteatoma Date: Friday, September 19, 2008, 2:26 PM I just found out in July that I have a cholesteatoma. What sent me to the doctor was the dizziness/disequali brium. I sound just like you I am already a anxious/nervous type person and have been for years - these weird feelings do not work well with my personality - however I don't have much of a choice - I am hoping when I have my c-toma removed next week Sept. 25, 2008 that I won't feel this way anymore. Were you dizzy after your first surgery? Are you doing better with all your strange feelings?>> Hello i am new here and need some of your help and opinions.> > I had surgery just over a year ago now on a c-toma in my right ear and > all went well at the time and i continue to go to check ups.I also have > another c-toma in my left ear and was told they will not do surgery > right now as it wasn't causing a problem to me at present but may need > it at some point in the future, but i have been feeling unbalanced > occasionally through the year when turning my head quickly for example, > this i can handle. But over christmas i have had and am still having > horrible feelings of unbalancedness and generally everything looking > weird lightheaded dreamy like state and other things too, i have also > had real problems with anxiety through this year and am a bit of a mess > right now, is this all to do with my c-toma? does anyone else have > these problems? your help is much appreciated.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Once the cholesteatoma was removed did your vertigo go away? I am very nervous about having the surgery wondering if I am going to wake up with the world spinning, ect. I have heard it is hard to eat after surgery and I am a very thin person already. I have never had any kind of surgery - now I am having ear surgery with a repair at the base of my skull (near brain surgery - sounds a little scary). > > > > Hello i am new here and need some of your help and opinions. > > > > I had surgery just over a year ago now on a c-toma in my right ear > and > > all went well at the time and i continue to go to check ups.I also > have > > another c-toma in my left ear and was told they will not do > surgery > > right now as it wasn't causing a problem to me at present but may > need > > it at some point in the future, but i have been feeling unbalanced > > occasionally through the year when turning my head quickly for > example, > > this i can handle. But over christmas i have had and am still > having > > horrible feelings of unbalancedness and generally everything > looking > > weird lightheaded dreamy like state and other things too, i have > also > > had real problems with anxiety through this year and am a bit of a > mess > > right now, is this all to do with my c-toma? does anyone else have > > these problems? your help is much appreciated. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 I can't speak to the vertigo issue because I've been lucky enough not to have any problems with that. However, I can speak to eating after surgery because I've screwed it up enough. If the vertigo does disappear after surgery, you'll only have the anesthetic to deal with. You may be a bit nauseous from that, but that will be gone after a very brief period. At that point, start drinking a lot of water because you'll be dehydrated from the ordeal. I finally asked a doctor to quantify what that was and he suggested 8 ounces an hour for every hour I was awake. That will certainly keep you well hydrated and busy going to the bathroom. That's okay though, the trips will help work out the anesthetic anyway. It will take the anesthetic 3 or 4 days to wear off, so for at least the first two they recommend the " BRAT " diet - bananas-rice-applesauce-toast. By the third day, you'll probably want something more substantial. Give it a try, but go easy ... small meals. Keep up the water intake. If you let yourself get dehydrated, trust me ... you will feel really awful and sick to your stomach. Don't let that happen. Keep in mind that the water should keep you feeling good. It will be okay to mix in other drinks with taste, but make sure that a lot is water and you should do fine. For the food, eat when you feel like it. Just eat light at first like I indicated above. Remember, the body can typically go without food for close to a month! There's no need to panic. All the best, Matt captaindefinder wrote: > > Once the cholesteatoma was removed did your vertigo go away? I am > very nervous about having the surgery wondering if I am going to > wake up with the world spinning, ect. I have heard it is hard to > eat after surgery and I am a very thin person already. I have never > had any kind of surgery - now I am having ear surgery with a repair > at the base of my skull (near brain surgery - sounds a little scary). > > > > > > > > Hello i am new here and need some of your help and opinions. > > > > > > I had surgery just over a year ago now on a c-toma in my right > ear > > and > > > all went well at the time and i continue to go to check ups.I > also > > have > > > another c-toma in my left ear and was told they will not do > > surgery > > > right now as it wasn't causing a problem to me at present but > may > > need > > > it at some point in the future, but i have been feeling > unbalanced > > > occasionally through the year when turning my head quickly for > > example, > > > this i can handle. But over christmas i have had and am still > > having > > > horrible feelings of unbalancedness and generally everything > > looking > > > weird lightheaded dreamy like state and other things too, i have > > also > > > had real problems with anxiety through this year and am a bit of > a > > mess > > > right now, is this all to do with my c-toma? does anyone else > have > > > these problems? your help is much appreciated. > > > > > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2008 Report Share Posted September 20, 2008 Hi Well, its hard to say, because my surgeon put in a more permanent tube "just in case". I did not suffer any vertigo post-surgery, and did not have any facial paralysis or loss of taste or headache or anything. I actually felt pretty good after surgery and the most noticeable side effect for me was fatigue. I "go go go" and have a toddler, so I really notice when my energy is depleted. I would highly recommend not overestimating your body's ability to cope and have help on hand in the event that you need it. I went back to work a week after the surgery and was OK, but it was sure nice having someone help me out in the evenings with the household stuff, meals, and whatnot so that I could just rest. This group has been a great resource for me. I am looking forward to my second stage surgery next year and the possibility of hearing restoration. I was really freaked out with the first surgery, but now I find it a great benefit to the alternative of continued discomfort without any good answer. Good luck to you. From: captaindefinder <captaindefinder@...>Subject: Re: unbalanced problemcholesteatoma Date: Saturday, September 20, 2008, 9:59 AM Once the cholesteatoma was removed did your vertigo go away? I am very nervous about having the surgery wondering if I am going to wake up with the world spinning, ect. I have heard it is hard to eat after surgery and I am a very thin person already. I have never had any kind of surgery - now I am having ear surgery with a repair at the base of my skull (near brain surgery - sounds a little scary).> >> > Hello i am new here and need some of your help and opinions.> > > > I had surgery just over a year ago now on a c-toma in my right ear > and > > all went well at the time and i continue to go to check ups.I also > have > > another c-toma in my left ear and was told they will not do > surgery > > right now as it wasn't causing a problem to me at present but may > need > > it at some point in the future, but i have been feeling unbalanced > > occasionally through the year when turning my head quickly for > example, > > this i can handle. But over christmas i have had and am still > having > > horrible feelings of unbalancedness and generally everything > looking > > weird lightheaded dreamy like state and other things too, i have > also > > had real problems with anxiety through this year and am a bit of a > mess > > right now, is this all to do with my c-toma? does anyone else have > > these problems? your help is much appreciated.> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.