Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 hello i had my ear surgery on january 25. everything went fine. but is it normal to have tenderness where the scar is also the top of my ear feels a little numb it doesnt feel like the other one tell me if this is normal Hi Because the wound is healing and the sensation is starting to return you notice that it is sore. The soreness will wear off but the numbness of the top of the ear may not. It could stay that way permanently. Evenso, I don't think you'll find there's any great disadvantage in having a slightly numb ear, it's something you just forget about. Phil Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2005 Report Share Posted March 10, 2005 Hello, I had my surgery 02/15. Only the top half of my ear remains numb. I will ask my dr tomorrow at my post op visit. And yes, I have tenderness at the top (and behind) the ear. Bettie > > hello i had my ear surgery on january 25. everything went fine. but > is it normal to have tenderness where the scar is also the top of my > ear feels a little numb it doesnt feel like the other one tell me if > this is normal > > Hi > > Because the wound is healing and the sensation is starting to return you notice that it is sore. The soreness will wear off but the numbness of the top of the ear may not. It could stay that way permanently. Evenso, I don't think you'll find there's any great disadvantage in having a slightly numb ear, it's something you just forget about. > > Phil > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 > > Hi, having surgery to remove a Cholesteatoma in my right ear, > never had surgery before for anything.Just curious and very > concerned about vertigo and post opt problems after surgery. > Don't have it now, would just like to know the staight facts from > someone that has been through it and to know what to expect.. > Any info would be greatly appreciated > > , B.C. Canada hey aaron- everyone's differnet in the way they heal, and obviously a lot has to do with the surgeon, but after my surgery, i would say i wasn't 'diizy' or off balance, but more felt like i just got off a coaster. a bit nauseous. it came and went for all of 3 days. i was given something for it and it helped, but again, i only needed it for about 3 days, if that, than it was gone. let's see, what else..... the pain lasted about 2wks. it wasn't pain like as in 'PAIN', but sore and uncomfortable. the heavy draining from the ear lasted about 4wks, and i'm now 6wks post op (first surgery ever as well) and my ear is fine. it drains once in a blue moon, mainly when i use my boric acid powder after showering, i can hear, and if i had to guess, the hearing in that ear is about 65-70%. All the packing is out, except for behind the eardrum, and i believe that has to dissolve on it's own. once that is done, i'm sure the hearing will be much better. I went back to work 2wks later and did fine. the worst is trying to wash my hair, but than again, i have long hair. it's a pain in the a**! Other than that, the CWD surgery wasn't bad at all. I was very scared and concerend, but after hearing from everyone here, it really was " Fine " ;-) So the first week and a half is the pits, but if you get through that, your out of it! Good luck. jenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 Thanks for the note Jenn. Makes me feel better to hear from someone that has been through this and lived. From what i''d read on line until i found this site i was really dreading this surgery. Actually post-poned it once,as my hear is not that affected all the time just sometimes to read some of those horror stories out there scares the#$% out of me. Thanks for the note ______________________________________________________________________ Post your free ad now! http://personals..ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 , I had CWU seven weeks ago. They removed one and a half of my hearing bones. I only took two pain pills during my entire recovery - Tylonol did fine for handling the pain. As for vertigo and post op problems - so far, none. I was pretty much out of it for a week; I think it was the anesthesia. I was back to work 10 calendar days after surgery and felt fine. It took about 6 weeks before I felt comfortable sleeping on my operated ear. I go back for a check up and hearing test in weeks. My re-construction surgery will be in about another 5 months. Missy > > Hi, having surgery to remove a Cholesteatoma in my right ear, > never had surgery before for anything.Just curious and very > concerned about vertigo and post opt problems after surgery. > Don't have it now, would just like to know the staight facts from > someone that has been through it and to know what to expect.. > Any info would be greatly appreciated > > , B.C. Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hi Great to see some success stories, they do exist ! My husband was diagnosed about three months ago, and after three months of worry, the OP is now over and my biggest worry is trying to slow him down ! He is 57. Just like Missy, they removed some of the key hearing bones, but managed to reconstruct them during the surgery. The growth was fairly large and took almost 7 hours to remove. However just two headache tablets later, and two weeks on, apart from some discomfort he is back to normal. He even bought me a cup of tea in bed the day after surgery, I was an emotional wreck having bottled up any fears for three months !! He has bounced back without any reaction to the anesthesia, except a few naps in the afternoon (normal behaviour !) gardening, painting and enjoying some time of work. I would never have believed it. He has another small op in a year, to check that the growth has not reappeared. Our surgeon says that this precaution is worth its weight in gold, but is not something they do readily in the US. (He does not know why !) Hope this helps family and sufferers that there is hope ! Best wishes to all catweaken <catweaken@...> wrote: ,I had CWU seven weeks ago. They removed one and a half of my hearing bones. I only took two pain pills during my entire recovery - Tylonol did fine for handling the pain. As for vertigo and post op problems - so far, none. I was pretty much out of it for a week; I think it was the anesthesia. I was back to work 10 calendar days after surgery and felt fine. It took about 6 weeks before I felt comfortable sleeping on my operated ear. I go back for a check up and hearing test in weeks. My re-construction surgery will be in about another 5 months.Missy > > Hi, having surgery to remove a Cholesteatoma in my right ear, > never had surgery before for anything.Just curious and very > concerned about vertigo and post opt problems after surgery. > Don't have it now, would just like to know the staight facts from > someone that has been through it and to know what to expect.. > Any info would be greatly appreciated> > , B.C. Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Hi , I had my first cholesteatoma in 02/2005. I had CWU. I was petrified of the upcoming surgery, but did a lot of research and asked alot of questions on this board. The success rate for CWU and no recurrence is promising. The surgery went very well, about 3 1/2 hours. I have all three hearing bones intact, altho the middle one is in pretty bad shape (erosion from the ctoma). Post op was trying, but bearable. The first week was exhausting. The second week I was up and about. I am due for a 2nd look surgery (in thru the canal) in 09/2005 and if all is clear, DR will replace middle bone at that time. I think most Docs will opt for the least invasive surgery/best outcome for each individual patient based on what they find when they go in. I am glad that I only needed a CWU, and am very optimistic about staying clean (no recurrence). In my opinion, those who remain on this board are the patients who suffer recurrence issues, or who are pending 2nd/3rd look surgeries. I believe the patients who have total recovery from the disease move on and dont check back. It would be interesting if we could find out if my suspicion is correct . Perhaps our Moderator knows, ? Welcome to the group and good luck. Keep us posted! Bettie > > Hi, having surgery to remove a Cholesteatoma in my right ear, > never had surgery before for anything.Just curious and very > concerned about vertigo and post opt problems after surgery. > Don't have it now, would just like to know the staight facts from > someone that has been through it and to know what to expect.. > Any info would be greatly appreciated > > , B.C. Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 Bettie and , I just had my 2nd look through the ear canal and it went great. I was in and out in 3 1/2 hrs. I was working within 3 days. Right now I am waiting to go back and remove packing. All said the side effects and recovery time is few and fast. I have a few symptoms to date but they are becoming less noticeable. I had off balance feeling, tinnitus, and itchiness of course. Sometimes when I swallow the eustacian tube pops pretty loud. We'll see on Monday when they take the packing out how I'm doing. --- bettiejlew <bjl1105@...> wrote: > Hi , > > I had my first cholesteatoma in 02/2005. I had CWU. > I was > petrified of the upcoming surgery, but did a lot of > research and > asked alot of questions on this board. The success > rate for CWU and > no recurrence is promising. The surgery went very > well, about 3 1/2 > hours. I have all three hearing bones intact, altho > the middle one > is in pretty bad shape (erosion from the ctoma). > Post op was > trying, but bearable. The first week was > exhausting. The second > week I was up and about. I am due for a 2nd look > surgery (in thru > the canal) in 09/2005 and if all is clear, DR will > replace middle > bone at that time. I think most Docs will opt for > the least > invasive surgery/best outcome for each individual > patient based on > what they find when they go in. I am glad that I > only needed a > CWU, and am very optimistic about staying clean (no > recurrence). In > my opinion, those who remain on this board are the > patients who > suffer recurrence issues, or who are pending 2nd/3rd > look > surgeries. I believe the patients who have total > recovery from the > disease move on and dont check back. It would be > interesting if we > could find out if my suspicion is correct . > Perhaps our Moderator > knows, ? Welcome to the group and good > luck. Keep us > posted! > > Bettie > > > > > > > > > Hi, having surgery to remove a Cholesteatoma in my > right ear, > > never had surgery before for anything.Just curious > and very > > concerned about vertigo and post opt problems > after surgery. > > Don't have it now, would just like to know the > staight facts from > > someone that has been through it and to know what > to expect.. > > Any info would be greatly appreciated > > > > , B.C. Canada > > > Stay connected, organized, and protected. Take the tour: http://tour.mail./mailtour.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2005 Report Share Posted May 10, 2005 , I think most Dr.'s here in the U.S. go in for a second look surgery? Maybe I'm wrong, but I know mine has. --- amanda short <mannie_short@...> wrote: > > Hi > > Great to see some success stories, they do exist ! > > My husband was diagnosed about three months ago, and > after three months of worry, the OP is now over and > my biggest worry is trying to slow him down ! He is > 57. > > Just like Missy, they removed some of the key > hearing bones, but managed to reconstruct them > during the surgery. The growth was fairly large and > took almost 7 hours to remove. However just two > headache tablets later, and two weeks on, apart from > some discomfort he is back to normal. He even bought > me a cup of tea in bed the day after surgery, I was > an emotional wreck having bottled up any fears for > three months !! > > He has bounced back without any reaction to the > anesthesia, except a few naps in the afternoon > (normal behaviour !) gardening, painting and > enjoying some time of work. I would never have > believed it. > > He has another small op in a year, to check that the > growth has not reappeared. Our surgeon says that > this precaution is worth its weight in gold, but is > not something they do readily in the US. (He does > not know why !) > > Hope this helps family and sufferers that there is > hope ! > > Best wishes to all > > > > > catweaken <catweaken@...> wrote:, > > I had CWU seven weeks ago. They removed one and a > half of my hearing > bones. I only took two pain pills during my entire > recovery - Tylonol > did fine for handling the pain. As for vertigo and > post op problems - > so far, none. I was pretty much out of it for a > week; I think it was > the anesthesia. I was back to work 10 calendar days > after surgery and > felt fine. It took about 6 weeks before I felt > comfortable sleeping > on my operated ear. I go back for a check up and > hearing test in > weeks. My re-construction surgery will be in about > another 5 months. > > Missy > > > > > > Hi, having surgery to remove a Cholesteatoma in my > right ear, > > never had surgery before for anything.Just curious > and very > > concerned about vertigo and post opt problems > after surgery. > > Don't have it now, would just like to know the > staight facts from > > someone that has been through it and to know what > to expect.. > > Any info would be greatly appreciated > > > > , B.C. Canada > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 , I had a CWU in 2000, " second look " surgery in 2001. I didn't have any nausea after either operation, only needed one dose of painkillers and that was because the stitches were sore rather than the ear hurting. Nor did I have any drainage either time, or any trouble sleeping on that ear. I was a bit dopey for a day or two, but three hours under a general anaesthetic does have that effect. Like most things, it's no big deal if you understand why it's happening. According to one of my doctors the c-toma was " extensive " , so I guess I was lucky to have so little reaction. (Milton Keynes, UK) Signup to supanet at https://signup.supanet.com/cgi-bin/signup?_origin=sigwebmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2005 Report Share Posted May 11, 2005 Hi , I am at home recovering from CWD surgery last Friday. I have had two prior CWU surgeries over the last two years that didn't work out (as far a re-occurrence anyway). From what I can tell everyone and every surgery is different from a recovery perspective. After my first surgery, I was out pretty uncomfortable with a bit of vertigo for a couple of days, gradually got better and went back to work after about a week and a half. My second surgery was a bit tougher. My middle ear was exposed and I was really "goofed up" with a lot of vertigo, being out of it and miserable for about a week. I was out of work a good two weeks. After my latest surgery last Friday, I'm a bit off balance with little or no vertigo. Provided my recovery continues at the current pace I will probably return work next Monday. I thought that since the CWD surgery was more involved, I was going to be out of commission for quite a while. Turns out it has been the easiest of the bunch. If you do indeed have a C-toma it's not going to get any smaller and waiting too long to take care of it can have complications. As soon as I found out I had a re-occurrence I tried to schedule it ASAP, hoping to have an easier surgery. Do to scheduling, I still had to wait close to two months, but as I said, this one was the easiest. I too was apprehensive about my surgeries, but am quite glad now that it is done. In general the pain isn't that bad. I haven't taken anything stronger that Tylenol every once and a while. Regards, Rich From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of HookSent: Monday, May 09, 2005 4:47 PMcholesteatoma Subject: Re: Re: Cholesteatoma Surgery Thanks for the note Jenn.Makes me feel better to hear from someone that hasbeen through this and lived. From what i''d read online until i found this site i was really dreadingthis surgery. Actually post-poned it once,as my hearis not that affected all the time just sometimes toread some of those horror stories out there scaresthe#$% out of me.Thanks for the note ______________________________________________________________________ Post your free ad now! http://personals..ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 I recommend you contact your ear doctor. He/she may want to see you sooner than July. Missy > hello i had my first surgery january 05 i think everything is ok but > could anyone tell me what to expect after the surgery i was just > curious all the signs and systems of the cholesteatoma returning i have > had a small drainage out of my ear nothing that runs to the outside > just i can feel it in my ear when i clean it the color is like light > brown i go back in july for a follow up. thank you all. there is no > smell to it or anything Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2005 Report Share Posted May 29, 2005 > hello i had my first surgery january 05 i think everything is ok but > could anyone tell me what to expect after the surgery i was just > curious all the signs and systems of the cholesteatoma returning i have > had a small drainage out of my ear nothing that runs to the outside > just i can feel it in my ear when i clean it the color is like light > brown i go back in july for a follow up. thank you all. there is no > smell to it or anything I had my first surgery 12/04 ( cwd) and had a nightly discharge until my second surgery 2 weeks ago. My was just slightly discolored with no blood tinge and no odor. Scared me. It only happened whenI lay down at night. My Dr. was not concerned....I was convinced it was a signal for a re-growth ( wrong). Don't worry yourself, ask your Dr. Several people have complained about a ' wet ear ' feeling post surgery. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2005 Report Share Posted May 30, 2005 I am 6 weeks post canal wall down and still have drainage. It doesn't smell anymore, though it did the first 2 weeks, and it really only shows up in the morning. My doctor is not concerned at all. My biggest annoyance is the " fullness " feeling which I still have and which my doctor says is granulated tissue in the healing area. He cleans it up every 3 weeks and I get a little relief for a week or so, then it comes back. I desperately hope it goes away. It seems like a minor thing, but the constant fullness has caused a fair amount of depression. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 well had my first surgery yesterday and it was much better than expected. I will soon download pictures to you tube when I get it figured out. Quote Link to comment Share on other sites More sharing options...
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