Canal Wall Down

[Guest guest]

Hi all,

I just wanted to say something about my experience

with the CWD procedure. It has been six months now, I

went from severe hearing loss to moderate/mild hearing

loss. I was told before the surgery that the doc would

be going in behind the ear and when he got in if it

was bad enough he would also need to go in through the

ear canal. It was bad. The c-toma was completely

wrapped around my facial nerve, all of my bones were

taken, and it had gone through the temporal bone and

my brain was falling into my mastoid cavity. I'm glad

they did whatever they had to do to make me better. At

first I was very freaked out over the size of my ear

canal, but now I can't tell and neither can anyone

else. I, like every other human on this planet, am my

own worse critic. My ear was not widened for cleaning

purposes, as far as cosmetic reasons go no one can

tell, I work with people of all ages, boys and girls,

more young than old, I own a comic book store and

sometimes I show them to gross them out and they can't

even tell, they do however think that the scar behind

my ear is cool.

If it is a procedure that is needed why worry about

what your ear canal of all things will look like

afterwards? YOU can't even see it by looking in the

mirror normally. Worry about the important things like

hearing your loved ones say 'I love you' or your

favorite song, living, you know the things that really

matter.

Those are just my thoughts on the subject,

Mancie Beck

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[Guest guest]

,

I don't blame you for thinking that a "meatoplasty" would cause your ear to be "unattractive"... If I had seen that picture in that link prior to my surgery, I think I would have "flipped".... Lucky for me I went in to surgery in total ignorance. I only found this group afterward... I was like a lamb going to the "slaughter" so to speak... My surgeon told me what he was going to do... but it was a little overwhelming at the time, and figured he knew what he was doing. And he did... I don't think that arguing about CWU and CWD and Meatoplasty prior to surgery would have mattered much... Most surgeons will only do what is needed. CWU is the preferred method, but sometimes it is not the right procedure for some patients. Anyway, I think CWD is usually accompanied by meatoplasty! My ear looks almost the same as before. I didn't even know I had a meatoplasty till I read my OR report... I even posted questions about what meatoplasty is. I think in most cases it is barely noticeable, and is probably a small compromise for the increased security it gives.

The only problem I have with the meatoplasty is knowing that there is an opening into my middle ear area, and I have to always be cautious about water. I'd like to someday have the opening closed if my ear stays clean and dry and no evidence of c-toma is ever found.

Lynn

Re: Canal Wall Down

In a message dated 9/10/2002 3:30:22 PM US Eastern Standard Time, mance8936@... writes:

If it is a procedure that is needed why worry aboutwhat your ear canal of all things will look likeafterwards? YOU can't even see it by looking in themirror normally. Worry about the important things likehearing your loved ones say 'I love you' or yourfavorite song, living, you know the things that reallymatter.Let me apologize if I offended anyone who has had CWD procedure. I'm didn't mean to cause offense. In my case the procedure widen the canal wasn't necessary, but my old doctor wanted to do it anyway. In this position I had to make a decision based on the information I had and this was long before I found this board. Based upon my interpretation of his description of what my ear would look like I decided not to have the procedure. The in/out procedure to widen the canal would have only made it easier to clean for him. After that I didn't even go to an ear doctor for 6 years. Only recently have I gone back to a new doctor.Again if I gave offense I apologize. I perhaps was just being a little too honest and not giving thought to those who might have had the procedure.

[Guest guest]

Hi ,

You didn't offend anyone. Everyone's experience is different and different docs like to do different things. As long as you are doing ok now, that is what is important.

Michele

Let me apologize if I offended anyone who has had CWD procedure. I'm didn't mean to cause offense. In my case the procedure widen the canal wasn't necessary, but my old doctor wanted to do it anyway. In this position I had to make a decision based on the information I had and this was long before I found this board. Based upon my interpretation of his description of what my ear would look like I decided not to have the procedure. The in/out procedure to widen the canal would have only made it easier to clean for him. After that I didn't even go to an ear doctor for 6 years. Only recently have I gone back to a new doctor.Again if I gave offense I apologize. I perhaps was just being a little too honest and not giving thought to those who might have had the procedure.

[Guest guest]

By the way, her ENT said one of the big benefits of a CWD is a returning

Cholesteatoma will show up easier on a CT-Scan. But it all appears so open now,

seems like I can almost see her BRAIN!

Donna DeBoer

[Guest guest]

whatFrom: Donna <Donna_is@...>cholesteatoma Sent: Thursday, June 2, 2011 3:18 PMSubject: Re: Canal Wall Down

You'd think after about 20 surgeries, I would be relaxed about all of this but this time, I am especially emotional. Surgery ALWAYS seems to run late. So far it has been an hour longer than predicted. So I wait. I know after so many surgeries, they know what works for her & what doesn't but still I worry. HURRY UP!!!!

Donna DeBoer

>

> > My 8 year old daughter is in surgery right now. She is getting a

> > canal wall down. I hate that surgery for how exposed she looks

> > afterward. Looks like the Roto-rooter man came calling. Looks like

> > birds could fly in there. SO scary. Love this surgery cause it kind

> > of puts an end to the on-going surgery nightmare. Easier to see in

> > there. Easier to clean things out. She has had WAY too many

> > surgeries for such a little thing.

> >

> > I'm feeling lonely this surgery. She has had close to 20 surgeries.

> > I should be the trooper she is. I'm in Seattle. The rest of the

> > family is back home in Alaska. My daughters at home are crying cause

> > they miss me while the one in surgery probably won't shed a tear.

> > Bleh!

> > Donna DeBoer

> >

> >

> >

>

[Guest guest]

In my last surgery I went 2hrs over but it was because I struggled waking up and

was so sick from the anesthesia they kept me in recovery till I was more alert.

Hope everything went well today. Jenni

Bassett <brandonlee712@...> wrote:

>what

>

>

>From: Donna <Donna_is@...>

>cholesteatoma

>Sent: Thursday, June 2, 2011 3:18 PM

>Subject: Re: Canal Wall Down

>

>

>  

>

>You'd think after about 20 surgeries, I would be relaxed about all of this but

this time, I am especially emotional. Surgery ALWAYS seems to run late. So far

it has been an hour longer than predicted. So I wait. I know after so many

surgeries, they know what works for her & what doesn't but still I worry. HURRY

UP!!!!

>Donna DeBoer

>

>

>>

>> > My 8 year old daughter is in surgery right now. She is getting a

>> > canal wall down. I hate that surgery for how exposed she looks

>> > afterward. Looks like the Roto-rooter man came calling. Looks like

>> > birds could fly in there. SO scary. Love this surgery cause it kind

>> > of puts an end to the on-going surgery nightmare. Easier to see in

>> > there. Easier to clean things out. She has had WAY too many

>> > surgeries for such a little thing.

>> >

>> > I'm feeling lonely this surgery. She has had close to 20 surgeries.

>> > I should be the trooper she is. I'm in Seattle. The rest of the

>> > family is back home in Alaska. My daughters at home are crying cause

>> > they miss me while the one in surgery probably won't shed a tear.

>> > Bleh!

>> > Donna DeBoer

>> >

>> >

>> >

>>

>

>

>

[Guest guest]

Our first surgery was meant to be 2-3 hours but was 4 hours and the second was meant to be 1-2 hours but was 5!On 3 June 2011 07:41, Jenni - <moonshadow2447@...> wrote:

 

In my last surgery I went 2hrs over but it was because I struggled waking up and was so sick from the anesthesia they kept me in recovery till I was more alert. Hope everything went well today. Jenni

Bassett <brandonlee712@...> wrote:

>what

>

>

>From: Donna <Donna_is@...>

>cholesteatoma

>Sent: Thursday, June 2, 2011 3:18 PM

>Subject: Re: Canal Wall Down

>

>

>  

>

>You'd think after about 20 surgeries, I would be relaxed about all of this but this time, I am especially emotional. Surgery ALWAYS seems to run late. So far it has been an hour longer than predicted. So I wait. I know after so many surgeries, they know what works for her & what doesn't but still I worry. HURRY UP!!!!

>Donna DeBoer

>

>

>>

>> > My 8 year old daughter is in surgery right now. She is getting a

>> > canal wall down. I hate that surgery for how exposed she looks

>> > afterward. Looks like the Roto-rooter man came calling. Looks like

>> > birds could fly in there. SO scary. Love this surgery cause it kind

>> > of puts an end to the on-going surgery nightmare. Easier to see in

>> > there. Easier to clean things out. She has had WAY too many

>> > surgeries for such a little thing.

>> >

>> > I'm feeling lonely this surgery. She has had close to 20 surgeries.

>> > I should be the trooper she is. I'm in Seattle. The rest of the

>> > family is back home in Alaska. My daughters at home are crying cause

>> > they miss me while the one in surgery probably won't shed a tear.

>> > Bleh!

>> > Donna DeBoer

>> >

>> >

>> >

>>

>

>

>

[Guest guest]

My first surgery went 7 hrs over but I chalk that up to my surgeon 17yrs ago who

wasn't very knowledgeable with ctoma. He is now but after my surgery he said

that I was his first ctoma patient! At 15 you don't want to hear things like

that. What type of surgeries is she having? Are they all re-growths? Jenni

Jane Fraser <janefraser101@...> wrote:

>Our first surgery was meant to be 2-3 hours but was 4 hours and the second

>was meant to be 1-2 hours but was 5!

>

>On 3 June 2011 07:41, Jenni - <moonshadow2447@...> wrote:

>

>>

>>

>> In my last surgery I went 2hrs over but it was because I struggled waking

>> up and was so sick from the anesthesia they kept me in recovery till I was

>> more alert. Hope everything went well today. Jenni

>>

>> Bassett <brandonlee712@...> wrote:

>>

>> >what

>> >

>> >

>> >From: Donna <Donna_is@...>

>> >cholesteatoma

>> >Sent: Thursday, June 2, 2011 3:18 PM

>> >Subject: Re: Canal Wall Down

>> >

>> >

>> >

>> >

>> >You'd think after about 20 surgeries, I would be relaxed about all of this

>> but this time, I am especially emotional. Surgery ALWAYS seems to run late.

>> So far it has been an hour longer than predicted. So I wait. I know after so

>> many surgeries, they know what works for her & what doesn't but still I

>> worry. HURRY UP!!!!

>> >Donna DeBoer

>> >

>> >

>> >>

>> >> > My 8 year old daughter is in surgery right now. She is getting a

>> >> > canal wall down. I hate that surgery for how exposed she looks

>> >> > afterward. Looks like the Roto-rooter man came calling. Looks like

>> >> > birds could fly in there. SO scary. Love this surgery cause it kind

>> >> > of puts an end to the on-going surgery nightmare. Easier to see in

>> >> > there. Easier to clean things out. She has had WAY too many

>> >> > surgeries for such a little thing.

>> >> >

>> >> > I'm feeling lonely this surgery. She has had close to 20 surgeries.

>> >> > I should be the trooper she is. I'm in Seattle. The rest of the

>> >> > family is back home in Alaska. My daughters at home are crying cause

>> >> > they miss me while the one in surgery probably won't shed a tear.

>> >> > Bleh!

>> >> > Donna DeBoer

>> >> >

>> >> >

>> >> >

>> >>

>> >

>> >

>> >

>>

>>