Re: Digest Number 306

[Guest guest]

.. By some of the side

> effects of Celebrex I mean the lower intestinal pains, Sinus

> inflammation and upper respiratory problems.

Hi.

Are you allergic to sulph? Anyone that is allergic to sulpha shouldn't take

celebrex. That may explain the sinus and URT infections and problems you are

speaking of.

[Guest guest]

,

I hope only the best for your darling baby, it so heart breaking when

are kid's are in any kind of health danger.

My prayer's are with you and alway's have since he's been born. Best

wish's for all of you, we'll be waiting for the good new's that Evan is

home and sleeping in his own bed.

Kate.S (mom of 16 month old )

also Achondroplasia

[Guest guest]

>From: candidiasisonelist

>Reply-candidiasisonelist

>candidiasisonelist

>Subject: Digest Number 306

>Date: 25 Mar 2000 08:09:14 -0000

>

1. In regards to Anke/Spain's question -- " can children get Candidiasis? "

You bet! My daughter has it, too (she's 4 y/o, and has had it for years --

it's a real battle). We're working on it, though..

2. In response to the " aspartame " article -- thank you for the info -- glad

you posted it.

3. In response the person who responded to my original statement of " I wish

it worked faster " -- maybe you're not in the beginning/acute stages of your

candida clearance program anymore, and have forgotten that depression is one

of the many symptoms of chronic candidiasis? I have moderate-extreme ups

and downs, have been on anti-depressants for 4 years (which have helped

tremendously), but it still exists -- and it will until my body returns to

" homeostasis " .

I'm also very well aware of people who've had to make drastic

lifestyle(food) changes related to MI's, IDDM/NIDDM, HTN, cancer, etc... And

it's a change for a lifetime. At the beginning stages, they ARE DEFINITELY

in denial and in a depression (I haven't met a patient who wasn't). Habits

are tough to break, and our food choices became a habit over the years...

I'm very thankful that I DO have this condition, and not HTN, diabetes, or

others. I don't have a problem with being on this program for as long as it

takes to get rid of the yeastie beasties -- there are moments, however, when

I look back and wish there had been a medical professional years ago who'd

recognized all of my symptoms. But, that is a problem with the American

Medical Association -- it is not a recognized disease.

4. In response to : I saw you had a score of 213 on Dr. Crook's

scale? Wow! That's great! Mine was 280! My symptoms are CHRONIC vag.

yeast, that won't go away with treatment, rectal itching/burning/skin tears

in that area, bloating, gas, tender stomach when palpated; also

dermatologically -- PRURITIS (itching all over); depression, extreme

fatigue, weight gain, etc...etc...

I've eliminated sugars, breads, mushrooms, cold cheeses, anything fermented.

Basically sticking with the basic candida diet. I'm getting use to it,

except I really miss my daily scone...

5. In response to the weight gain issue from Margaret -- what programs do

you know of?

6. Also, do you know much about the ParaGone intestinal cleanser? I'd be

glad to try an intestinal cleanser..

Cris

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com

[Guest guest]

In a message dated 06/27/2000 5:00:58 AM Eastern Daylight Time,

egroups writes:

<< Does anybody know the SAP values for Grapeseed oil and Cottonseed oil? >>

This is from " Soapmaking for Fun and Profit " by Given Nerius:

Cottonseed Oil : 0.138

Grapeseed Oil : 0.123 - 0.135 (varies widely)

I have no idea how you find out where your Grapeseed oil falls in that range.

If you bought it from a soapmaking supply vendor, perhaps they can tell you.

HTH,

na

[Guest guest]

Message: 10

Date: Thu, 28 Sep 2000 18:21:40 -0400

From: " " <suejacks@...>

Subject: Liver Explanation Help!

Hi,

I went to the docs today and he had my report. If someone can explain, I

would appreciate it.

Abdomen is soft and non tender. (Good and just clarifies there are no

abnormalities, such as a tumor, or intestinal problem. It should have

also said something like, positive bowel sounds, no tenderness, guarding

or mass, no rebound, in all quadrants-meaning if you divided the abdomen

into 4 sections, it would then state what, if any abnormality was heard,

felt or seen).

The liver edge is palpable 3.0 cm below

the right costal margin with quite a prominent Ridel's lobe. (The liver

is felt in the " upper right quadrant " , which would be the area on your

right side, under your ribs, and is usually measured in " finger

breaths " , or how many fingers could be placed from the lower edge of the

liver to your lower rib. Normal is usually around 2-3.)

It was firm and somewhat tender but not pulsatile. (Firm is normal, and

the tenderness usually comes from any liver enlargement, or, if there

were a " mass " it would push up, or displace where the liver is expected

to be felt. The " not pulsatile " is referring to any abnormal blood

vessels either coming from, over or under the liver area.)

I also felt the spleen tip approx.5.0 cm below the left costal margin.

(This just refers to the fact your spleen is able to be felt, and

appears to be in the correct location and size, that is expected. If

someone has fluid in the abdomen, a mass, or abnormality, was obese,

etc., it may be hard to feel these areas, as well as to identify the

names given to certain locations in the body, and more specifically,

parts of different organs.)

I also have esophageal varices.

My next stop is a hematologist. There is also 4 pages of blood work, too

much to list here.

Thanks,

Sue

suejacks@...

Hope this helps. Marty

[Guest guest]

Vicki and Alana, you both have very nice webpages, keep up the good work. Its

alot of fun isn't it? Here's mine (which is in terrible need of updating)

http://douglashayes.tripod.com

Doug

[Guest guest]

Hi Doug...You and Vickie make me want to work on my sight more. Thanks for

sharing!

Alana

At 04:27 PM 2/26/03 -0500, you wrote:

>Vicki and Alana, you both have very nice webpages, keep up the good work.

>Its alot of fun isn't it? Here's mine (which is in terrible need of

>updating) http://douglashayes.tripod.com

>Doug

>

[Guest guest]

--Do you think she might have had static electricity in her hair? Is it possible she had a problem with her skin? Would it matter if the skin was dry or tough?

Might you get a result if you would press on the electrode momentarily, and then release it?

Message: 6 Date: Wed, 19 Mar 2003 08:07:44 -0600 From: <gmartin@...>Subject: Signal quality problems.I just saw a client for the first time last night and had a problem I have never encountered before. As part of the initial intro to NFB I offer to hook people up so they can see what it is like. I could not get a good signal on her. I started out with my usual saline electrode setup and got lots of interference. re prepped very carefully on ears and scalp with no improvement in signal quality. Prepped again and used 10/20 paste, still a poor signal. With the clients consent I tried a third time at a different site. Still no good. I had trained several people just prior to her coming in and several people after her with no problems at all.Any ideas out there about what might be the problem or possible solutions?Thanks

[Guest guest]

________________________________________________________________________________________________________________________________________________

Hello--

--I'm wondering if it is possible to compare signal strength between people. When I try to train up lobeta, I seem to hit a wall at 2.1 miv no matter how many times I try. I wonder if that is low, or how to decide what is low. Would it be useful to compare it to the other frequencies?

I read that kids tend to put out higher signals. I have had exactly one kid, and his numbers on nearly everything were around 4, 5 and 6. I wonder what would be a typical ballpark for adults, or if there is any such thing?

Also, I seem to get different numbers when I switch from brainmaster to animation pro, with the numbers becoming about double for nearly everything. I also notice that the cutoff numbers for artifact rejection are different in the two programs, and that confuses me. The AP numbers seem to work in the neighborhood of 60 or 70, while the BM numbers are preset at 240, and start breaking into the progress a lot at anything below 200.

It seems like BM had a setting to increase the size of the wave display, but I've never used it to see what it would do.

Thanks,

Gene

Message: 8 Date: Wed, 19 Mar 2003 09:51:22 -0500 From: " E. Myer, Sr." <damyer@...>Subject: Re: Signal quality problems.Here's a thought, :I always consider my own head a good challenge in terms of getting signals on the screen. The reason is that even with good prep and careful technique . . . there just ain't much to see. I don't remember ever seeing a signal larger than 1.5 - 2.0 microvolts. On a BMr, the spectrum display is a multicolored flat line, with only a couple of little humps to save it from being almost perfectly flat.On some of our clients, I see more heart beat artifact than I see EEG from my own head. On the QEEG machine, my "alpha" peak is almost the only feature that sticks up noticeably above the baseline.Jay Gunkelman refers to such "normal variants" as the "low, fast type." Low, meaning amplitude; fast referring to frequencies involved. Not much theta or delta; fair (relatively) amount of alpha, beta, gamma.My mother used to encourage me by telling me how thick my skull was. It may be true. Either that or my low amplitude signals can be used to explain a rather long inventory of my other shortcomings.Dave MyerBoston Neurofeedback

[Guest guest]

Hello--

Can you tell me the name of the test(s) for ADHD and where I can get them?

I recall seeing one that was a series of letters on a video screen. One hits the space bar if a certain letter follows a certain other.

Thanks,

Gene

[Guest guest]

Gene

Greasey skin and poor hygene were contributers I think, but even

at fp1 and fp2 with no hair in the way and intense nuprep application

the signal was lousey. No static issues there. But the

problem was worse on the scalp so static in the hair may be a

problem. If I mist her hair a bit that might recduse the problwm

a bit.

--Do you

think she might have had static electricity in her hair? Is it

possible she had a problem with her skin? Would it matter if the

skin was dry or tough?

Might you

get a result if you would press on the electrode momentarily, and then

release it?

Message: 6

Date: Wed, 19 Mar 2003 08:07:44 -0600

From: <gmartin@...>

Subject: Signal quality problems.

I just saw a client for the first time last night and had a problem

I

have never encountered before. As part of the initial

intro to NFB

I offer to hook people up so they can see what it is like.

I could

not get a good signal on her. I started out with my usual

saline

electrode setup and got lots of interference. re prepped

very

carefully on ears and scalp with no improvement in signal quality.

Prepped again and used 10/20 paste, still a poor signal. With

the

clients consent I tried a third time at a different site. Still

no

good. I had trained several people just prior to her

coming in and

several people after her with no problems at all.

Any ideas out there about what might be the problem or possible

solutions?

Thanks

Groups Sponsor

ADVERTISEMENT

[Guest guest]

This sounds like what I downloaded, but I cannot find the website

for it. The test is East3 CPT, and you push space bar when you see X

after A.

Debi

> Hello--

>

> Can you tell me the name of the test(s) for ADHD and where I can

get them?

>

> I recall seeing one that was a series of letters on a video

screen. One hits the space bar if a certain letter follows a

certain other.

>

> Thanks,

> Gene

[Guest guest]

Hi Sherry,

My brother, who has cerebral palsy, just had a hip replacement at the end of February and he also has part of his lumbar spine fused for a different reason than mine. He is doing fantastic! He is in a power-chair but before surgery, he could not walk more than 1-2 steps because of the pain and now he can walk about 30 steps, and he was quite mobile before the arthritis/degeneration of the hip (without chair). He was in rehab about a month longer than usual. He still has some pain and spasms but nothing like he did before surgery. I've been told that I will eventually need a hip replacement myself and given my brother's experience, I have no real concern. Just be sure that your medical team knows about your fusion and the rest of your situation so that you receive the proper care and rehab. I know my brother's situation isn't like yours but I hope his experience helps answer some questions. Good luck in your decision and let us know how things are going.

Llweyn in BC

-----Original Message-----From: ka1kpm@... [mailto:ka1kpm@...]Sent: May 25, 2003 8:49 AM Subject: Re: Digest Number 306I have been lurking for a while. I had a spinal fusion for scoliosis in 1967 and was fused T-9 to L-3. All my own bone, no instrumentation, tibial graft. Done in Children's Hospital in Boston by the late T. Green. I do not remember the degree of my curvature, but it was a satisfactory correction and I had about 6 painfree years during which I finished nursing school and went to work.When I went to work in the hospital setting, I blew out the discs underneath. Was finally fused L4-S1 in 1978. Chronic pain an issue for years, but variable, and I have managed with overall good quality life (good thing I am basically cerebral by nature, though).I have been reading about revision surgery, and honestly do not see myself going through with it in any hurry. The last time I made the rounds of MDs, about 10 years ago, no one was eager to touch me surgically anyway. The main issue now is that I was told I need a right total hip replacement when I'm ready to schedule it. My big fears around this surgery relate to the back pain in recovery and any impact the back has on the hip and vice versa. Any words of recommendation would be welcome.I do not see that I qualify for flatback syndrome, but honestly, this board is the closest I have found anywhere to my situation.Warm regards to all,Sherry in NHSupport for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products.

[Guest guest]

Sherry in NH, welcome from Sharon in NH. :^)

It's always interesting to meet a fellow New England scoliosis patient. I

too was a patient of Dr. Green at Children's, and I nearly had a fusion

there in '67! I was only 9 at the time, and thankfully they took some more

x-rays and determined that I did not need it yet. Since I was born with

scoliosis (congenital), the Children's outpatient clinic was my second home

for years. I remember the interminable waits in the waiting room, the big

wooden doll houses, the sounds of plaster saws and babies crying. Mrs.

Shroeder with the rubber thimble and the big lollipops. (Or was that

before your time?) You and I may very well have passed each other in those

long, antiseptic corridors.

Interesting how many of us became nurses. I wanted to, but actually

changed my mind after my surgery. I didn't have it done at Children's, but

at Shriners in Springfield. Nothing against the nurses; I just wasn't

turned on to the glamour of bedpans and thermometers.

I'm sorry to hear about your continuing back problems, and now the hip.

You'll surely find that people here relate to your problems. You may have

gathered by now that the list's owner, Eliana, had her revision surgery in

Boston with Dr. Rand, so we do have one very capable adult scoliosis

specialist. (I'm dragging my heels about seeing him. I really don't want

to be told I need surgery again.)

I wish you the best in your self-care journey.

Sharon in southern New Hampshire :^)

Congenital scoliosis w/ spina bifida and other vertebral anomalies

1971 fusion T5 to L4 w/ single Harrington rod

Flatback, congenital thoracolumbar kyphosis, L5-S1 degeneration, etc.

At 11:49 AM 5/25/03 EDT, you wrote:

>

I have been lurking for a while. I had a spinal fusion for scoliosis in 1967

and was fused T-9 to L-3. All my own bone, no instrumentation, tibial graft.

Done in Children's Hospital in Boston by the late T. Green. I do

not remember the degree of my curvature, but it was a satisfactory correction

and I had about 6 painfree years during which I finished nursing school and

went

to work.

When I went to work in the hospital setting, I blew out the discs underneath.

Was finally fused L4-S1 in 1978. Chronic pain an issue for years, but

variable, and I have managed with overall good quality life (good thing I am

basically cerebral by nature, though).

I have been reading about revision surgery, and honestly do not see myself

going through with it in any hurry. The last time I made the rounds of MDs,

about 10 years ago, no one was eager to touch me surgically anyway.

The main issue now is that I was told I need a right total hip replacement

when I'm ready to schedule it. My big fears around this surgery relate to

the

back pain in recovery and any impact the back has on the hip and vice versa.

Any words of recommendation would be welcome.

I do not see that I qualify for flatback syndrome, but honestly, this board

is the closest I have found anywhere to my situation.

Warm regards to all,

Sherry in NH

[Guest guest]

Sherry,

Welcome. I'm glad you "spoke up."

Do you have hardware of any kind since your 1978 surgery? Most of the people at this list do suffer specifically from Harrington rod deformities ("flatback"), but we all have in common that we were surgically fused for scoliosis in the past, the vast majority of us with some kind of instrumentation. It's beginning to look as though later, segmental instrumentation systems (circa mid-1980s or later?) have potential drawbacks of their own.

I must say I have been overwhelmed by all the strenuous and even athletic exploits so often reported, between operations, by individuals who have scoliosis coupled with a highly gung-ho attitude. So, thank you sincerely for speaking up on behalf of the more cerebral among us! Let's hear it for the bookworms!

Yup, I think that even in my "active years," at age 13, I was better able to put up with long-term incarceration in a spinal cast than were some of my more gymnastic or sports-crazy peers. Not to start a riot or anything. (OK, folks, take it easy -- Yes, I know a bunch of you are already inputting outraged replies to this post, to inform me of just which strenuous feats you excelled at, and how many medals you were consequently awarded, DURING your time in that 30-pound Risser jacket extending to your right hip and your left knee. But let's face it, not all of us can or will be inspired by your awesome example! May I be so rude and uncool as to say that some of us are actually sort of peeved to keep hearing about your outstanding prowess at 8.5 different exceedingly demanding careers and hobbies requiring utmost musculoskeletal fitness and extreme endurance! Go tell it to your equally aerobic and phenomenally weight-bearing physical therapist while working out with her on your lunch break from the pole-vaulting-off-high-dive event sponsored by the Society of Maniacal Overachievers with Scolioisis Who Are Currently Eight Months Pregnant! Thank you kindly -- "No offense, Maynard.")

Also, I am quite sure you are not the only person here to have hip-problems or concerns, Sherry. I trust you will get some helpful replies from people who share your own particular "issues."

Re: Digest Number 306

I have been lurking for a while. I had a spinal fusion for scoliosis in 1967 and was fused T-9 to L-3. All my own bone, no instrumentation, tibial graft. Done in Children's Hospital in Boston by the late T. Green. I do not remember the degree of my curvature, but it was a satisfactory correction and I had about 6 painfree years during which I finished nursing school and went to work.When I went to work in the hospital setting, I blew out the discs underneath. Was finally fused L4-S1 in 1978. Chronic pain an issue for years, but variable, and I have managed with overall good quality life (good thing I am basically cerebral by nature, though).I have been reading about revision surgery, and honestly do not see myself going through with it in any hurry. The last time I made the rounds of MDs, about 10 years ago, no one was eager to touch me surgically anyway. The main issue now is that I was told I need a right total hip replacement when I'm ready to schedule it. My big fears around this surgery relate to the back pain in recovery and any impact the back has on the hip and vice versa. Any words of recommendation would be welcome.I do not see that I qualify for flatback syndrome, but honestly, this board is the closest I have found anywhere to my situation.Warm regards to all,Sherry in NHSupport for scoliosis-surgery veterans with Harrington Rod Malalignment Syndrome. Not medical advice. Group does not control ads or endorse any advertised products.

[Guest guest]

OK, , I'm duly amused and tickled, and I totally relate to what

you're saying. I too was fortunate enough to be a pretty cerebral kid at

age 13, and didn't become a worker-outer until fibromyalgia or some damn

good facsimile thereof put me in the position where I have to work out and

hurt, or not work out and hurt more. (In fact, well into my 20's my idea

of exercise was 15 minutes of piano scales followed by 2 to 4 hours of

intense practice, until my hands rebelled, that is.)

Yup, I'm lucky (or stupid, depending on who you ask) to still be working

out, swimming, sailing, gardening, etc., and I hope and pray I don't get to

where I CAN'T work out and hurt.

Your semi-hunched but still pumpin' pal,

Sharon

At 02:13 PM 5/26/03 -0500, you wrote:

(OK, folks, take it easy -- Yes, I know a bunch of you are already

inputting outraged replies to this post, to inform me of just which

strenuous feats you excelled at, and how many medals you were consequently

awarded, DURING your time in that 30-pound Risser jacket extending to your

right hip and your left knee. But let's face it, not all of us can or will

be inspired by your awesome example! May I be so rude and uncool as to say

that some of us are actually sort of peeved to keep hearing about your

outstanding prowess at 8.5 different exceedingly demanding careers and

hobbies requiring utmost musculoskeletal fitness and extreme endurance! Go

tell it to your equally aerobic and phenomenally weight-bearing physical

therapist while working out with her on your lunch break from the

pole-vaulting-off-high-dive event sponsored by the Society of Maniacal

Overachievers with Scolioisis Who Are Currently Eight Months Pregnant!

Thank you kindly -- " No offense, Maynard. " )

[Guest guest]

Hi, Sharon,

I'm just switching from digest to single messages and lost your original post

somehow. But yes, I remember Children's Hospital outpatient clinic. I

remember the ladies in the plaster room, as I had orthotics made for my shoes as

well. The inpatient unit was a home away from home for me. No support groups

in those days, so it was the only time I really ever encountered other people

being treated for scoliosis.

I'm sure I became a nurse because I liked and admired the nurses who took

care of me and found anything medical really fascinating. But I gave up the

bedpans when I washed out of hospital work. Came in again through the back

door,

teaching, homecare, and back to school to be a psychiatric nurse practitioner.

That is what I do now, nothing physical, all working with my mind, heart and

spirit. I think the importance of taking care of my spirit and enjoying what

I can has led to my letting go of a lot of chores, yard work, etc. My house

is messy but we have a lot of fun as a family much of the time.

I admire your life of relative physical activity, outside work, workouts,

etc. I try to balance some of it, love my seated martial arts program, do my

stretches. But I think if I gave up work now and stayed home, I would get too

depressed.

Anyway, so good to see someone else from NH...,

Sherry