Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 , Let Chloe know we are praying for her. Masie went for her checkup yesterday and hearing test and we schedule her next surgery for between February and April- my pick as the doctor said. So I need to think on it. We will be thinking of you all today, Pam Pamela Waling " smile, it confuses people... " > From: thequeen.christine <thequeen.christine@...> > Subject: Chloe's surgery > cholesteatoma > Date: Wednesday, December 17, 2008, 6:25 AM > Hi everyone! Just wanted to let you know that Chloe is > having her 11th > surgery in a couple of hours. This is the " second > look " LOL from the > last typanomastoidectomy she had in July. He is definitely > going to > open up the mastoid and make sure there is no ctoma > anywhere, since it > was poor visibility this summer due to the mastoiditis and > bone > infection. If all is well, she will get a new titanium > prosthesis, as > the last one was removed in June during her emergency > mastoidectomy. > If not, you all know the drill. > > I think it's amazing that she has had so many surgeries > and is still > happy to go try it again. She is such a doll! Have a great > day > everyone! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 , I wanted to let you know I was thinking about Chloe this morning not knowing it was her big day. I wish you all the best and I am so glad she has a positive attitude, it makes all the difference. Let us know how it goes. I'll say a prayer right now. Chloe's surgery Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 - We are all thinking of you. As always you are in my thoughts and prayers. (Hailey's mom) From: thequeen.christine <thequeen.christine@...>Subject: Chloe's surgerycholesteatoma Date: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Hi guys. I have a quick update, and I can't tell you how much it means to share this with people who know what it's all about. Chloe was in surgery for four and a half hours plus a couple more in the pacu. The mastoid was completely full of ctoma again, as well as a good amount in the middle ear. Our surgeon, who is excellent, was very concerned that some small amount may be hiding in the corner between the mastoid and middle ear. He may do a canal wall down in 6 months. Hers is just very aggressive, so no newbies freaking out ok???? Anyway, thanks for everything!!!! On 12/17/08, Neer <neermom@...> wrote: - We are all thinking of you. As always you are in my thoughts and prayers. (Hailey's mom) From: thequeen.christine <thequeen.christine@...> Subject: Chloe's surgerycholesteatoma Date: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the " second look " LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 - Sorry to hear it's been so aggressive. She's one tuff girl. I'll be thinking of you. Lots of prayers. Keep us posted at her follow up. From: thequeen.christine <thequeen.christine@ gmail.com>Subject: Chloe's surgerycholesteatomaDate: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Glad she came thru the surgery okay and sorry to hear that it was back again!! Wishing her a speedy recovery!! JO From: thequeen.christine <thequeen.christine@ gmail.com>Subject: Chloe's surgerycholesteatomaDate: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 , i am sorry to hear itwas back again. I will pray that this time they got it all and no more it won't come back. From: thequeen.christine <thequeen.christine@ gmail.com>Subject: Chloe's surgerycholesteatomaDate: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Poor baby... tell her we hope she feels better soon. And we are praying for her and for you to get through this. Pam Pamela Waling " smile, it confuses people... " > > > > From: thequeen.christine > <thequeen.christine@...> > > Subject: Chloe's surgery > > cholesteatoma > > Date: Wednesday, December 17, 2008, 6:25 AM > > > > Hi everyone! Just wanted to let you know that Chloe > is having her 11th > > surgery in a couple of hours. This is the " second > look " LOL from the > > last typanomastoidectomy she had in July. He is > definitely going to > > open up the mastoid and make sure there is no ctoma > anywhere, since it > > was poor visibility this summer due to the mastoiditis > and bone > > infection. If all is well, she will get a new titanium > prosthesis, as > > the last one was removed in June during her emergency > mastoidectomy. > > If not, you all know the drill. > > > > I think it's amazing that she has had so many > surgeries and is still > > happy to go try it again. She is such a doll! Have a > great day > > everyone! > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 , You are blessed with the gift of patients and I want to thank you for being so calm about your situation and for your concern about everyone else affected with this condition. God gave Chloe the right Mom who will make sure she pulls through this. Hugs, Chloe's surgerycholesteatomaDate: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Glad to hear Chloe is doing well. I feel so sorry for such a young child to have so many surgeries. Does the doctor ever feel like the growth of the cholesteatomas will ever calm down for her? Chloe is on the top of my prayer list. Take Care. From: s <thequeen.christine@...>cholesteatoma Sent: Wednesday, December 17, 2008 7:20:18 PMSubject: Re: Chloe's surgery Hi guys. I have a quick update, and I can't tell you how much it means to share this with people who know what it's all about. Chloe was in surgery for four and a half hours plus a couple more in the pacu. The mastoid was completely full of ctoma again, as well as a good amount in the middle ear. Our surgeon, who is excellent, was very concerned that some small amount may be hiding in the corner between the mastoid and middle ear. He may do a canal wall down in 6 months. Hers is just very aggressive, so no newbies freaking out ok???? Anyway, thanks for everything!! !! On 12/17/08, Neer <neermom (DOT) com> wrote: - We are all thinking of you. As always you are in my thoughts and prayers. (Hailey's mom) From: thequeen.christine <thequeen.christine@ gmail.com>Subject: Chloe's surgerycholesteatomaDate: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 Hey , So sorry to hear about Chloe's ctoma return. I hope he got it all out. Hope she is feeling ok. What a long time under for such a young girl. You are in my prayers. From: thequeen.christine <thequeen.christine@ gmail.com>Subject: Chloe's surgerycholesteatomaDate: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the "second look" LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 Chloe is doing really well, altough she is more sore than usual. I took off the large dressing today, and she wanted to go to see Dr. Jen (the chiropractor). She always feels way better after that first adustment! She also went to the library to get movies. There are some blessings in this. At least I know she'll be fine to go back to school after the holiday and not worry about a prosthesis. I am starting to feel the gravity of this continual recurrance and hoping it will go better in June! Her doctor is involved in a collaboration of ear specialists and mentioned that he may involve some other people at this point to get their ideas. So, a question: what is the most number of ctoma removal surgeries you've heard of people having. The most I had personally heard of before now was 11, but now that we are headed for a 12th, I need a new benchmark. Blessings! On 12/18/08, lauren giessinger <lagiessi@...> wrote: Hey , So sorry to hear about Chloe's ctoma return. I hope he got it all out. Hope she is feeling ok. What a long time under for such a young girl. You are in my prayers. From: thequeen.christine <thequeen.christine@ gmail.com> Subject: Chloe's surgerycholesteatoma Date: Wednesday, December 17, 2008, 6:25 AM Hi everyone! Just wanted to let you know that Chloe is having her 11th surgery in a couple of hours. This is the " second look " LOL from the last typanomastoidectomy she had in July. He is definitely going to open up the mastoid and make sure there is no ctoma anywhere, since it was poor visibility this summer due to the mastoiditis and bone infection. If all is well, she will get a new titanium prosthesis, as the last one was removed in June during her emergency mastoidectomy. If not, you all know the drill.I think it's amazing that she has had so many surgeries and is still happy to go try it again. She is such a doll! Have a great day everyone! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2008 Report Share Posted December 19, 2008 So sorry to hear about all the surgeries! And here I was thinking my son had had the most of any kid around. He had his 6th in early November and actually, FINALLY, the c-toma had not recurred so unless something else goes wrong, I guess the 6th time's a charm. You have us beat by a lot (I'm sorry)!! Here's hoping Chloe heals well and that her recurrences will stop. Maybe at some point the c-toma will go into a less aggressive mode. Happened for my son, it could happen for her, too. All the best to you ... Alice > >> > >> From: thequeen.christine <thequeen.christine@ gmail.com<thequeen.christine@...> > >> > > >> Subject: Chloe's surgery > >> cholesteatoma <cholesteatoma > > >> Date: Wednesday, December 17, 2008, 6:25 AM > >> > >> Hi everyone! Just wanted to let you know that Chloe is having her 11th > >> surgery in a couple of hours. This is the " second look " LOL from the > >> last typanomastoidectomy she had in July. He is definitely going to > >> open up the mastoid and make sure there is no ctoma anywhere, since it > >> was poor visibility this summer due to the mastoiditis and bone > >> infection. If all is well, she will get a new titanium prosthesis, as > >> the last one was removed in June during her emergency mastoidectomy. > >> If not, you all know the drill. > >> > >> I think it's amazing that she has had so many surgeries and is still > >> happy to go try it again. She is such a doll! Have a great day > >> everyone! > >> > >> > >> > >> > >> > >> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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