Re: cholesteatoma questions please help

[Guest guest]

The sac of CT is touching the Artery (near the middle ear) so, the heart sound gets conducted

Dr. Arun, India,ENT Surgeon

On 12/26/08, sandra_david1 <sandra_david1@...> wrote:

i was dignosed in 2004 with a cholesteatoma i my right ear i seen it it looked like a little greenish pea the only symptoms i had was some hearing lose and noise in my ear he said he didn't think i would need

any surgery at that point to come back for a check up in 6 months which i accully forgot due to my grandmother dieing with cancer.this past aug 2008 i started have trouble with my ear severe pain in the side of my head down my neck i had several test by my

autolerinoligest so he check my ear and he seen something tryed to cut out a piece but it was to painfull so he sent me to the main ent in the office the tumor in my middle ear is black now and hes not sure how big it is cause he said it was in a pocket and hidden the ct only

showed it to be small but according to him (the ent) i have severe hearing lose and im in really severe pain my ear burns really bad and i have a really bad pressure in my ear and my head it even goes up in my temple they have me on nuroten and hydrcoden and i have to put ice

on it to relive the pain i cant stand to bend over cause the noise in my ear and pressure hurts so bad it sounds like my heart beats in my ear. so to someone who has had a cholesteatoma do you have any of these symptoms or is this something different please help i am

supposed to have surgery in january thanks so much.

[Guest guest]

Thanks doc! I always wondered about that before my first surgery. The

heartbeat used to keep me awake. I was just glad that it went away

after the surgery.

Matt

Arun Gupta wrote:

> The sac of CT is touching the Artery (near the middle ear) so, the

> heart sound gets conducted

> Dr. Arun, India,ENT Surgeon

>

>

> On 12/26/08, *sandra_david1* <sandra_david1@...

> <mailto:sandra_david1@...>> wrote:

>

> i was dignosed in 2004 with a cholesteatoma i my right ear i seen it

> it looked like a little greenish pea the only symptoms i had was some

> hearing lose and noise in my ear he said he didn't think i would need

> any surgery at that point to come back for a check up in 6 months

> which i accully forgot due to my grandmother dieing with cancer.

> this past aug 2008 i started have trouble with my ear severe pain in

> the side of my head down my neck i had several test by my

> autolerinoligest so he check my ear and he seen something tryed to

> cut

> out a piece but it was to painfull so he sent me to the main ent in

> the office the tumor in my middle ear is black now and hes not sure

> how big it is cause he said it was in a pocket and hidden the ct only

> showed it to be small but according to him (the ent) i have severe

> hearing lose and im in really severe pain my ear burns really bad and

> i have a really bad pressure in my ear and my head it even goes up in

> my temple they have me on nuroten and hydrcoden and i have to put ice

> on it to relive the pain i cant stand to bend over cause the noise in

> my ear and pressure hurts so bad it sounds like my heart beats in my

> ear. so to someone who has had a cholesteatoma do you have any of

> these symptoms or is this something different please help i am

> supposed to have surgery in january thanks so much.

>

>

>

--

[Guest guest]

,

I had some of the same symptoms. My ear always had pressure, but the

pain was never too bad. I had discomfort for many years that would be

temporarily relieved by antibiotics. Then my hearing dropped off in the

ear. After two more weeks with yet another antibiotic, my primary care

physician sent me to an ENT that she went to med school with. That lady

finally diagnosed me correctly after what was at least 14 years of bad

diagnoses.

It's important to note that cholesteatomas can grow in different ways

and the damage that they cause can be somewhat different. This will

result in symptoms that vary from patient to patient.

I think and truly hope that you'll quickly feel better after your

January surgery, so hang in there as best you can. Hopefully they'll be

able to do something for your hearing, but your doctor's primary goal

will be to establish a clean and dry ear. That should hurt a lot less.

Try to do some things that help you to take your mind off of your ear

for now. May it be an early January surgery!

All the best,

Matt

sandra_david1 wrote:

>

> i was dignosed in 2004 with a cholesteatoma i my right ear i seen it

> it looked like a little greenish pea the only symptoms i had was some

> hearing lose and noise in my ear he said he didn't think i would need

> any surgery at that point to come back for a check up in 6 months

> which i accully forgot due to my grandmother dieing with cancer.

> this past aug 2008 i started have trouble with my ear severe pain in

> the side of my head down my neck i had several test by my

> autolerinoligest so he check my ear and he seen something tryed to cut

> out a piece but it was to painfull so he sent me to the main ent in

> the office the tumor in my middle ear is black now and hes not sure

> how big it is cause he said it was in a pocket and hidden the ct only

> showed it to be small but according to him (the ent) i have severe

> hearing lose and im in really severe pain my ear burns really bad and

> i have a really bad pressure in my ear and my head it even goes up in

> my temple they have me on nuroten and hydrcoden and i have to put ice

> on it to relive the pain i cant stand to bend over cause the noise in

> my ear and pressure hurts so bad it sounds like my heart beats in my

> ear. so to someone who has had a cholesteatoma do you have any of

> these symptoms or is this something different please help i am

> supposed to have surgery in january thanks so much.

>

>

--

[Guest guest]

thanks for your help. my pain can get so bad i cant do anything sometimes i cant even sleep on that side of my head and i have never had any antibiotics for it. question for ya did yours change colors?? mine was a greenish color at first now its black and my dr is dr stephen wetmore in morgantown wv maybe u heard of him i really like him..my surg date is the 27 i wish it was sooner even though i heard it was painfull.

SANDY SMALL--- On Fri, 12/26/08,

[Guest guest]

I have heard of Dr. Wetmore. His training and background are very

similar to Dr. Hirsch at the University of Pittsburgh, so I think you're

in good hands. Honestly, my surgery didn't involve much pain. It's

different for everyone, but many of us don't have a lot of pain. Most

of my pain came from the stupid bandage that they put on your ear for

the first day (you get to cut it off on day two). They always manage to

pinch my outer ear with the bandage! By day two I wasn't even using

Tylenol. My bigger problem was with nausea, but that's because I was an

idiot and let myself get dehydrated. Once I started drinking more

fluids I was fine.

I have no clue what color mine were - I had no interest in keeping them

in a jar or anything like that!. They could have been sky blue pink as

long as the doc got them the heck out of there! I just know they did a

lot of damage to my hearing. Thankfully a lot of that has been restored

and with hearing aids I often hear more than I want to!

Matt

Small wrote:

>

> thanks for your help. my pain can get so bad i cant do anything

> sometimes i cant even sleep on that side of my head and i have never

> had any antibiotics for it. question for ya did yours change colors??

> mine was a greenish color at first now its black and my dr is dr

> stephen wetmore in morgantown wv maybe u heard of him i really like

> him..my surg date is the 27 i wish it was sooner even though i heard

> it was painfull.

>

> **SANDY SMALL

>

> --- On *Fri, 12/26/08,

[Guest guest]

before my surgery i had pain behind my ear and it went up into my temple area - you will feel much better after your surgery in January - take care!

From: sandra_david1 <sandra_david1@...>cholesteatoma Sent: Thursday, December 25, 2008 10:14:02 PMSubject: cholesteatoma questions please help

i was dignosed in 2004 with a cholesteatoma i my right ear i seen it it looked like a little greenish pea the only symptoms i had was some hearing lose and noise in my ear he said he didn't think i would need any surgery at that point to come back for a check up in 6 months which i accully forgot due to my grandmother dieing with cancer.this past aug 2008 i started have trouble with my ear severe pain in the side of my head down my neck i had several test by my autolerinoligest so he check my ear and he seen something tryed to cut out a piece but it was to painfull so he sent me to the main ent in the office the tumor in my middle ear is black now and hes not sure how big it is cause he said it was in a pocket and hidden the ct only showed it to be small but according to him (the ent) i have severe hearing lose and im in really severe pain my ear burns really bad and i have a really bad pressure in

my ear and my head it even goes up in my temple they have me on nuroten and hydrcoden and i have to put ice on it to relive the pain i cant stand to bend over cause the noise in my ear and pressure hurts so bad it sounds like my heart beats in my ear. so to someone who has had a cholesteatoma do you have any of these symptoms or is this something different please help i am supposed to have surgery in january thanks so much.

[Guest guest]

what changed colors? is it draining from your ear? is it a scab on your eardrum?

From: Small <sandra_david1@...>cholesteatoma Sent: Friday, December 26, 2008 1:16:03 AMSubject: Re: cholesteatoma questions please help

thanks for your help. my pain can get so bad i cant do anything sometimes i cant even sleep on that side of my head and i have never had any antibiotics for it. question for ya did yours change colors?? mine was a greenish color at first now its black and my dr is dr stephen wetmore in morgantown wv maybe u heard of him i really like him..my surg date is the 27 i wish it was sooner even though i heard it was painfull.

SANDY SMALL--- On Fri, 12/26/08,

[Guest guest]

the tumor is self changed colors in 2004 they showed it to my on the microscope and it looked like a flap of skin and was a greenish color this time when he showed it to me it us black and i have never had any drainage at all.

SANDY SMALL

From: Captain Definder <captaindefinder@...>Subject: Re: cholesteatoma questions please helpcholesteatoma Date: Friday, December 26, 2008, 9:36 AM

what changed colors? is it draining from your ear? is it a scab on your eardrum?

From: Small <sandra_david1@...>cholesteatoma Sent: Friday, December 26, 2008 1:16:03 AMSubject: Re: cholesteatoma questions please help

thanks for your help. my pain can get so bad i cant do anything sometimes i cant even sleep on that side of my head and i have never had any antibiotics for it. question for ya did yours change colors?? mine was a greenish color at first now its black and my dr is dr stephen wetmore in morgantown wv maybe u heard of him i really like him..my surg date is the 27 i wish it was sooner even though i heard it was painfull.

SANDY SMALL--- On Fri, 12/26/08,

[Guest guest]

interesting - i didn't know that it could change colors - i thought all cholesteatomas are white (but not positively sure on that) - you will feel much better after your surgery - my first surgery was not painful so hopefully yours will be better than you expect.

From: Small <sandra_david1@...>cholesteatoma Sent: Friday, December 26, 2008 1:05:27 PMSubject: Re: cholesteatoma questions please help

the tumor is self changed colors in 2004 they showed it to my on the microscope and it looked like a flap of skin and was a greenish color this time when he showed it to me it us black and i have never had any drainage at all.

SANDY SMALL

From: Captain Definder <captaindefinder>Subject: Re: cholesteatoma questions please helpcholesteatomaDate: Friday, December 26, 2008, 9:36 AM

what changed colors? is it draining from your ear? is it a scab on your eardrum?

From: Small <sandra_david1>cholesteatomaSent: Friday, December 26, 2008 1:16:03 AMSubject: Re: cholesteatoma questions please help

thanks for your help. my pain can get so bad i cant do anything sometimes i cant even sleep on that side of my head and i have never had any antibiotics for it. question for ya did yours change colors?? mine was a greenish color at first now its black and my dr is dr stephen wetmore in morgantown wv maybe u heard of him i really like him..my surg date is the 27 i wish it was sooner even though i heard it was painfull.

SANDY SMALL--- On Fri, 12/26/08,