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I am a new member to the group and glad to have found something like

this. I have a 9 yr old girl that suffers from c-toma we have had 3

surgeries to date and was just refered to a new doctor for continued

care. We have had the c-toma come back 2 times and have damaged the

surgeries that have been done in the past. We have put 2 grafts in

place and the last is still holding as this surgery was during

Thanksgiving this year. I have just learned that I may be suffering

from the same condition and will be having surgery the first of the

year to make that finding. I look forward to reading what is in the

forum.

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