Re: @nd surgery/

[Guest guest]

Hi -

My son, n who is now 8, had also developed immune problems after

his titanium implant surgery in Nov. 2006. For the past 2 years we have

seen 12 doctors regarding the dermatitis, allergies, overgrowth of

bacteria & yeast, failure to absorb nutrients and immune problems he

developed after his surgery. We questioned if he had a titanium allergy

as I had posted before. Last week we took him to the Mayo Clinic in

Rochester, MN and consulted with 4 doctors (allergist, ENT,

dermatologist, and a GI doctor) and he had more blood, urine and stool

tests. They think that he has atopic dermatitis. They were not sure if

it was triggered by surgery as he did NOT have this before or any of the

other problems.

The ENT doctor suggested that he was over treated with medications - 6 -

7 antibiotics in a few months, oral steroids & 3 steroid creams that he

was allergic to for over a year, and Benadryl which caused side effects

and the other conditions of the overgrowth of bacteria & yeast causing

poor absorption of nutrients in stomach, diarrhea, upset stomach, not

feeling well, immune problems, and not being able to fight off

infections. One doctor felt that he could have a sensitivity to wheat,

dairy and eggs and one said it was not a reliable test.

- If Katy was on several antibiotics for the infection she may

have an imbalance of good/ bad bacteria or yeast in her stomach.

n was sick a lot when he was going through the antibiotic period

and he was just not feeling well until we treated his stomach issues.

He is now on nystatin, probiotics and nutritional supplements and is

doing much better, although still breaks out in rash, but it is more

controlled.

- Would you consider taking Chloe to the Mayo Clinic - it is

really state of the art medical treatment and we are so very glad we

took n! I would recommend Dr. Driscolle - he was wonderful with

n.

Dr. Arun - Thank you for your help in the past!

I haven't received the bill for care at the Mayo Clinic yet, but it has

cost probably close to $100,000 for his surgeries and medical care for

the past 3 years - thankfully we have excellent insurance! As Matt and

others have said this could be a life long issue/ expense, as n's

local doctor has told us he will probably always have medical concerns.

Thankfully, they did not feel that his titanium implant was the cause of

the problem so he will not have it removed.

Have a peaceful healthy holiday everyone! Judy

Inderrieden wrote:

>

> Hi gang,

> Katy had another ear infection this week. That makes 7 since June.

> She has been on IV thearpy 2 times now trying to get rid of the

> infection but no go so far. Now they are telling me that we need to

> look at her immune system and see if there is a problem. Has anyone

> else had constant ear infections? It is not even in just her left ear

> (C-toma Ear) but also her right ear. They have made changes to her 2nd

> look surgery now. On the 30th of Dec. she will be having both ears

> done.The left ear, 2nd look the other for tube removal and ear drum

> repair. They also saw something on her voice box (could be a wart or

> nodes) that he is going to remove. So she will be having double ear

> and throat surgery. I am freaking out. What with the possable immune

> problem, both ears and voice box I m terrified. I am so afraid she

> will come out of surgery not hearing and unable to talk. She just

> turned 4 in october and is suh a trooper. No complaining even through

> all the painful infections she has had. I just wish I could do this

> for you as I am sure all you moms and dads feel thanks for letting me

> vent. I love this group, you have put my mind at ease many a time.

> Inderrieden

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