Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Andy that same surgery to repair the hearing bones and ear drum is what I had .. Please be careful not to bump your head afterwards even 4 yrs down the road cause Mine shifted and now they have to replace it again. Patti USA -- Ipswich UK my son is scheduled for surgery in the next few weeks, he was diagnosed with cholesteatoma in 2005 and had a mastoidectomy but now (after seeing a new consultant!) he is planning on 'filling this boney cavity', repairing the ear drum and possibly replacing the damaged hearing bone/s. i have read many emails on this site but haven't noticed any that mention this treatment, (although the consultant has been treating cholesteatoma for 20 years and has done this type of surgery for at least 10 years), can anyone offer any advice? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hello Ipswich, we are in Dorset. My daughter will have her 2nd mastiodectomy in early March because of recurring aquired cholesteatoma. Her consultant has talked about filling the hole because her eardrum has become 'retracted'. I think they are going to do this using some of her own bone. Not sure where they are going to get it from. I don't know if that is the same as 'filling a boney cavity'. She has been left with a hole in her eardrum and he has talked about repairing it with a skin graph. We have not talked about repairing the damaged hearing bones because her hearing is still quite good on that side, but of course that might change when she has the 2nd mastiodectomy. Getting rid of the cholesteatoma is primary of course and the rest he will do if he can. I got the impression that he won't know what is needed until he is in there. My daughter is 8 now and her first cholesteatoma was diagnosed when she was just 4. I hope this helps. Best wishes to you and your son. > > my son is scheduled for surgery in the next few weeks, he was > diagnosed with cholesteatoma in 2005 and had a mastoidectomy but now > (after seeing a new consultant!) he is planning on 'filling this boney > cavity', repairing the ear drum and possibly replacing the damaged > hearing bone/s. i have read many emails on this site but haven't > noticed any that mention this treatment, (although the consultant has > been treating cholesteatoma for 20 years and has done this type of > surgery for at least 10 years), can anyone offer any advice? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 > > my son is scheduled for surgery in the next few weeks, he was > diagnosed with cholesteatoma in 2005 and had a mastoidectomy but now > (after seeing a new consultant!) he is planning on 'filling this boney > cavity', repairing the ear drum and possibly replacing the damaged > hearing bone/s. i have read many emails on this site but haven't > noticed any that mention this treatment, (although the consultant has > been treating cholesteatoma for 20 years and has done this type of > surgery for at least 10 years), can anyone offer any advice? > Hello from darkest Buckinghamshire, If your son's consultant has been treating Cholesteatoma for 20 years then it sounds as though you have found exactly the right surgeon. However no matter how good they are they don't always explain themselves clearly to the patient or the patient's concerned parents ! It might be easier to ask the man exactly what he is talking about before you sign the consent form - talk of " filling the boney cavity " is a little vague unless you happen to be looking through the same microscope that he is...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2008 Report Share Posted January 17, 2008 my son is scheduled for surgery in the next few weeks, he was diagnosed with cholesteatoma in 2005 and had a mastoidectomy but now (after seeing a new consultant!) he is planning on 'filling this boney cavity', repairing the ear drum and possibly replacing the damaged hearing bone/s. i have read many emails on this site but haven't noticed any that mention this treatment, (although the consultant has been treating cholesteatoma for 20 years and has done this type of surgery for at least 10 years), can anyone offer any advice? Andy What you are describing sounds like "Mastoid Obliteration". No doubt you can find lots of information under that title on the web. I've never come across it very often but I'm sure there must be some people in this group who have had it. I think the main aim of it would be to try and prevent future infection of the mastoid which, following a mastoidectomy is usually just left as an empty cavity. I guess, if this is what the surgeon is planning, you would want to know what the success rate of it is and if there are any potential drawbacks. Phil Quote Link to comment Share on other sites More sharing options...
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