Re: chelation

[Guest guest]

> Donna and Ray wrote:

>

> My doctor wants to test me for heavy metals (not the band, I'm a

> country music fan) and do a full blown chelation therapy on me. She

>Hi I did it 6-7 mos ago. I only took a pill and then collected my urine for

about 12 hours.

Cooky

[Guest guest]

Hi Donna! Geoff Crenshaw here.

> Donna and Ray wrote:

>

> My doctor wants to test me for heavy metals (not the band, I'm a

> country music fan) and do a full blown chelation therapy on me. She

> thinks I may have an underlying toxic condition that is interferring

> with my antibiotic therapy and immune system. It's costly and I need

> to do some homework on it. The test itself is done by taking

> something orally and then chelating it out by IV to send to the lab.

> If it comes back high in mercury, lead etc.......I would start the

> chelation therapy.

You don't have to do it this way. You can get a hair analysis with much

less pain - and cost - and get the same data.

> Anyone have this done recently??

I did 9/97

> I tried the first EDTA...I think that is how you spell it...and I felt

> absolutley exhausted after. I layed on the couch for the entire

> afternoon on my return. They would have to reduce the dose.

Why were you chelated without the preliminary testing to determine

necessity? I'd be shy about this...

As to your reaction, that's pretty normal. You really have to be careful

to eat and drink lots of water. Many people undergoing routine chelation

therapy here for heart problems (hint: read the book Bypassing Bypass)

snack lightly while getting the infusion, then eat afterwards. You may

also want to find out what carrier they use (saline/HoH/sugar water) and

if they give a vitamin booster at the end (B complex is commonly given

during the last 10-15 minutes of the drip ... chelation drips last about

2-1/2 hrs for those not familiar with the therapy.)

You'd also have to be careful about spacing out the treatments, being

well rested, well fed and keeping a clear mind so as not to succomb to

stress-related flaring from the therapy.

--

Regards,

Geoff Crenshaw, ACC ----------------------

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Captain Cook's Cruise Center ----------------------

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geoff@...

" Behold now, Behemoth, which I made as well as you; He eats grass like

an ox. Behold now, his strength in his loins, and his power in the

muscles of his belly. He bends his tail like a cedar; The sinews of his

thighs are knit together. His bones are tubes of bronze; His limbs are

like bars of iron. He is the first of the ways of God. "

JOB 40:15

[Guest guest]

Yes, I did 6 mons of chelation early in my illness. It did nothing for me,

but a friend uses that to control her RA. It's a very individual

matter--finding what works for you. And $$$$.

Laney

In a message dated 99-04-08 09:09:50 EDT, donray@... writes:

<< .I would start the chelation therapy. Anyone have this done recently??

>>

[Guest guest]

In a message dated 7/31/00 10:43:59 AM Central Daylight Time,

felicia.ward@... writes:

<< I am new to the group. Can the chelation(detox)program be done

without a doctor?>>

I would recommend against doing it without having a doc you could call if you

start seeing problems and also who could do the lab tests to see what is

coming out and to ensure that there aren't harmful effects on the kidneys and

liver. I know of some docs in your area who could help with this. If you

want to e-mail me privately, I'll give you their numbers.

<<Have there been many positive results afterward? >>

Yes

Gaylen

[Guest guest]

<< << I am new to the group. Can the chelation(detox)program be done

without a doctor?>>

I would recommend against doing it without having a doc >>

A good answer. It CAN be, but if you can find a reasonable doc to work with

you then you are much better off.

Andy

[Guest guest]

In a message dated 7/31/00 6:56:29 PM Central Daylight Time,

durkin@... writes:

<< A chem screen with Co2 >>

what does that check for and where would one order it?

Gaylen

[Guest guest]

> << << I am new to the group. Can the chelation(detox)program be done

> without a doctor?>>

>

> I would recommend against doing it without having a doc >>

>

> A good answer. It CAN be, but if you can find a reasonable doc to

work with

> you then you are much better off.

>

> Andy

The reason you want to work with a Doctor is that you want to do labs

before and after. Heavy metals are excreted thru the kidneys so you

want to make sure they are functioning well before dumping alot of

metal through them. You never want to assume they are fine. On my

adult clients i encourage them to do a creatine clearance.

A chem screen with Co2 and urinalysis is what you need. I always try

to throw some more lab tests in while I can though.

Find a Doc who is open minded who will work with you. Many if you

give them a protocal with literature to read they will approve it. If

they dismiss your needs GET ANOTHER DOC!!!!

Maureen D.

Maureen D.

[Guest guest]

In a message dated 8/1/00 12:11:52 AM Central Daylight Time,

triciayen1@... writes:

<< There is a doctor very close to where you live.

His name is C.A. Kotsanis

His phone number is 817-481-6342. >>

I would not use this doctor for chelation of heavy metals. Anyone who is

considering him for this and wants details, please e-mail me privately.

Gaylen

[Guest guest]

--- Felicia Ward <felicia.ward@...> wrote:

> I am new to the group. Can the

> chelation(detox)program be done

> without

> a doctor? Have there been many positive results

> afterward?

> Does or has anybody used SSRIs for their child's

> behavior?

>

> I live in the Dallas area(close to the airport). I

> have been here 2

> years. I know a good OT and speech therapist. And

> the Tomatis

> Institute has an office here. But because of the

> heavy traffice here,

> getting to these places becomes unrealistic. So, if

> you are definite

> about the Plano area, then I won't be of much help.

> The schools are

> up

> there though.

>

> Felicia

>

>Felicia,

There is a doctor very close to where you live.

His name is C.A. Kotsanis

His phone number is 817-481-6342.

>

>

>

>

[Guest guest]

Yes, you do need a prescription for the DMSA. Thimeresol is beginning to be

taken out of vaccines, but it is certainly still in many of them. I don't

know how many of the children's vaccines are thimerosol-free at this point,

but I know it is still in the flu vaccines and many other vaxes for

adolescents and adults. Ask first!

Barb

[ ] Chelation

>

>Hi, I was wondering how do you get chelated minerals to detoxify

>mercury posioning. Do you have to have a prescription? I am sure my

>doc. will drag her feet on this one too. Also, I was told by a

>pediatrian that termosal is no longer in vacines, is this true?

> thanx, Little deb

>

>

>

[Guest guest]

I did it every 12 hours for 3 days and off for 4 days a week. My

Doctor now feels it best to dose it once at a higher amount and do it

every 3 wwks with a lot of mineral supplements inbetween. He also

gives a injection of DMPS just before we take the DMSA. This

continues for months and is most easily tolerated as DMSA makes some

people feel bad. We do not have that problem but are dosing once

with DMSA and DMPS with a long break to supplement. We also use

melatonin to protect the brain from redeposite problems. Seems to

work fine for us. Beverly

> I have read a few times about Chelation every 4 hours. I was

instructed to

> do Chemet every 8 hours for 3 days and then 11 days off. Has

anyone done it

> this way?

[Guest guest]

I was told that was the protocol Dr. Amy was using at first (correct me if

I'm wrong??) but eventually was changed to longer cycles. I suppose it

depends on how your child is doing. A longer cycle will accomplish more, but

you need at least an equal number of days off. (Some people are doing 7.

There is some question about every 7 days not being good for the immune

system, so I suppose you could do 6.) I've also read that some people use

shorter cycles in the beginning, when mercury levels are higher, and

lengthen them as more mercury comes out.

If you are using the sustained release version of Chemet, then you give it

every 8 hours, otherwise, every 4. Chemet is used for lead detox also, and

in that case, the packaging says every 8. I believe Andy said at about 6

hours people begin to experience side effects, so it makes good sense to do

the 4 hours. It's really not that bad once you get into the routine.

Later on, after adding the LA, cycles are shorter since you are moving

mercury out of the brain.

Barb

[ ] Chelation

>

>I have read a few times about Chelation every 4 hours. I was instructed to

>do Chemet every 8 hours for 3 days and then 11 days off. Has anyone done

it

>this way?

>

>

[Guest guest]

Flick2Bev@... wrote:

> agressively get the metals out. We have not only mercury here, but

> lead and tin. My kids levels were very much the same, but my

> daughter chelates out twice the amount of metals than my son. She

> seemed to recover faster and first too. Not even twins with the same

> enviornment are the same. Beverly

Beverly - if you don't mind my asking, are both twins on the spectrum?

Is that why you're pursuing chelation for both? Thanks, nne

[Guest guest]

Yes they both had autism and it was considered high functioning. We

did alot of the nutritional and biologic interventions until they

plateaued and were labeled as severe auditory processing disorder and

moderate coordination disorder. Since chelating and one ALA set back

they are " recoved. " My daughter is typical for her age. She is not

hyperactive but is " high energy " . My son is within range for his

age, low normal end for verbal comprehension and math, These

charistics got worse with ala, and are improving again with

chelation. They got the DMPS and Chemet in the morning yesterday and

by dinner time showed significant improvement. Today, the

improvements were sustained. They do well for a couple of days after

chelation, plateau and regress a bit by day 4 off. It is so obvious

that their problems are from the metal and so clear chelation is the

reason they are on track. Beverly

> > agressively get the metals out. We have not only mercury here,

but

> > lead and tin. My kids levels were very much the same, but my

> > daughter chelates out twice the amount of metals than my son. She

> > seemed to recover faster and first too. Not even twins with the

same

> > enviornment are the same. Beverly

>

> Beverly - if you don't mind my asking, are both twins on the

spectrum?

> Is that why you're pursuing chelation for both? Thanks, nne

[Guest guest]

You know, Moria, you're right about being confused about the administration

schedule of when to give the DMSA or ALA. I thought I was clear after

reading protocols from June 2000 and prior / and listening to Dr. Holmes at

the DAN conference. But then the proposed protocol of " dose 3 times a day "

threw me off a little.

Our decision was to stick with the total recommended dosage in a day but to

go with every 3 hours for both

as recommended by Cutler.

As for doctors willing to supervise, it wasn't easy getting our neurologist

to read all the material and we finally had to do our own hair test a

doctors data. Then, the doctor was agreable. From all the signs of mercury

toxicity, we are convinced this is our son's problem. Best of luck to you.

Aly

Re: on to the next phase

>

> Moria,

>

> Why did you choose to go this " natural " way

> of Detox?

> I read every single archieve of Dr. Holmes and Andy Cutler on this list.

> Both seem to conclude that DMSA and then DMSA plus Alpha Lipoic Acid was

the

> best route with the least side effects. I'm certainly no expert in Detox

> of mercury or heavy metals, but over the past 5 weeks of giving my son:

DMSA

> and ALA plus supporting

> vitamins such as C, Milk thistle, Q-10, E, Borage oil,

> Co Enzyme B, Zinc, Magnesium Malate, Citramin II, E,

> EPA/DHA, nicinimide and melatonin at night has resulted in such amazing

> changes in him. We give him the DMSA & ALA on an every 3 hour interval

for

> 3 days - then rest for 4 days. When you heard parents talking about a

" brain

> fog " that is lifting ----that's exactly what we are seeing plus more

> appropriate casual conversation. Bad side effects are: more inattentive

on

> off days, and some anxiety on the 3rd and 4th off day. We are trying some

> vitamins to help these side effects - but still evaluating him.

> Dr. Holmes also did some methods of natural detox with her son but

stated

> that she felt it was wasting precious time that her son needed in order to

> detox the heavy metals. She also tried various methods of administration

of

> DMSA and ALA....so I guess we all

> are doing our best to help ourselves and our kids.

> Best of Luck. Aly

> Aly

>

>

>

>

>

[Guest guest]

Is anyone still using Dr. Boris on Long Island? Could you please email me

privately and let me know if you are happy with him. Thanks so much.

Beth

[Guest guest]

Hi Beth

I'm going to dr Boris so far so good I don't have any completes

we started chelation in aug. we started out on small dose and increased to 200 mg 3xs a day after dan conf. I'm going tomorrow to Boris. kim

[Guest guest]

Hey Kim,

Just thought I'd let you know, you sent this post to me instead of Beth. Hope

you are well, these guys are all sick again, now with the GI bug!! Talk to

you next week maybe, if everyone gets healthy and goes to school! Val

PS Is the Darcy thing next monday?

[Guest guest]

Trina,

I'm curious why you feel there is a toxicity problem? I looked at the

website you linked and I can't find any tests on there that would show this.

Alot of our kids have the types of abnormalities listed, alot of adults

also. I would really think twice before doing a potentially dangerous

procedure. As an adult with CFS, etc. I can validate what doctor G. has

discussed. The same things were going on in the CFS community, years ago,

all these people thinking they had mercury poisoning, removing fillings,

chelation, etc. There is the risk of making your child sicker, it happened

to some of the adults. I have a feeling that some of these kids are

allergic to metals, I am. That is not the same as being toxic.

Cheryl

Subject: chelation

> Hey all,

>

> I am interested in doing chelation for mercury toxicity for my autistic

son. Yes, we are patients of Goldberg, but also want to pursue this. Have

any other Goldberg pts done this with their children? If you haven't

already, check out this website,

http://www.healing-arts.org/children/holmes.htm

>

> Trina

>

>

>

[Guest guest]

I THINK ANYONE WHO DOES THE CHELATION IS ABSOLUTELY CRAZY!! THERE IS NO

EVIDENCE THAT THIS WILL HELP. THERE IS NO HARD, SOLID,

SCIENTIFIC FACTS, INCLUDING ANY SUCCESS STORIES, ACTUALLY JUST THE OPPOSITE.

DOCTORS ARE JUST WANTING TO MAKE $$$, THINK ABOUT IT.

isoaa@...

[Guest guest]

which? you said " the " chelation. There are many. Which one are you talking

about?

.........laurie

Re: chelation

I THINK ANYONE WHO DOES THE CHELATION IS ABSOLUTELY CRAZY!! THERE IS NO

>EVIDENCE THAT THIS WILL HELP. THERE IS NO HARD, SOLID,

>SCIENTIFIC FACTS, INCLUDING ANY SUCCESS STORIES, ACTUALLY JUST THE

OPPOSITE.

>

> DOCTORS ARE JUST WANTING TO MAKE $$$, THINK ABOUT IT.

>

>isoaa@...

>

>

>Responsibility for the content of this message lies strictly with

>the original author, and is not necessarily endorsed by or the

>opinion of the Research Institute.

>

>

[Guest guest]

Hi. I'm curious as to your reasoning behind your statement below,

other than there's no evidence it helps. I've been lurking on the

Mercury-Autism group and see parents ridding their children of

mercury using specific protocols with tremendous recovery results, as

well as how not to chelate. Not trying to start something, just

interested in all sides. Please reply--I'm really interested in

this. To me informed is armed. Thanks!

Carol in Florida

>

>

> I THINK ANYONE WHO DOES THE CHELATION IS ABSOLUTELY CRAZY!!

THERE IS NO

> EVIDENCE THAT THIS WILL HELP. THERE IS NO HARD, SOLID,

> SCIENTIFIC FACTS, INCLUDING ANY SUCCESS STORIES, ACTUALLY JUST THE

OPPOSITE.

>

> DOCTORS ARE JUST WANTING TO MAKE $$$, THINK ABOUT IT.

>

> isoaa@a...

[Guest guest]

Actually, there are many " success " stories regarding chelation therapy

in autism. There may not be " evidence " as yet available in peer

reviewed literature, but neither is there any such " evidence "

regarding the protocol. All information for both

interventions is purely anectdotal. The constant " contempt prior to

investigation " that is fostered on this list is tragic. I am not

chelating my son, but I know a number of children who have made

remarkable improvements because of chelation. I thank God for all the

interventions that help our children.

Ricci

isoaa@a... wrote:

>

>

> I THINK ANYONE WHO DOES THE CHELATION IS ABSOLUTELY CRAZY!!

THERE IS NO

> EVIDENCE THAT THIS WILL HELP. THERE IS NO HARD, SOLID,

> SCIENTIFIC FACTS, INCLUDING ANY SUCCESS STORIES, ACTUALLY JUST THE

OPPOSITE.

>

> DOCTORS ARE JUST WANTING TO MAKE $$$, THINK ABOUT IT.

>

> isoaa@a...

[Guest guest]

Dear Carol:

First I would like to say as a mother of a girl diagnosed with Autism

back in 1995, I tried everything to help her. I did extreme diet(s),

supplements ... every manufacturing company claiming to heal...,

secretin, vitamins, Dolphin-Human therapy in the Keys, ABA discrete

trials, and other forms of education. I would have to say that about

99% of the children being diagnosed with PDD/Autism are not in

any way Autistic. I can sit here and write a book as to the findings,

but I am going to ask that you read everything there is to read on this

particular website: neuroimmunedr.com

There is a wealth of information that is logical, factual, and all treat-

ment plans are effective and successful. This man named Dr. Goldberg

is a Medical Doctor who found that our children can be treated and in

fact cured because he cured a family member with this exact problem.

He does not put a child on any medication that has not proven to be

Safe, Yet Effective.

We ALL have traces of Mercury in our bodies. If it was Mercury causing

this epidemic it WOULD HAVE HAPPENED MUCH SOONER !!!! Also,

if you try to rid the body of this little bit of Mercury the chances of it

spreading and doing more harm is far greater than the actual removal

of Mercury. The child can and most probably will be far worse off. And

that would scare the hell out of me. It would literally be a sin !!!

As a very concerned and dedicated ------------------

Parent trying to help my child reach her potential and live a normal life,

I can honestly tell you that Dr. Goldberg has changed our lives (My

daughter and I). She has only been treated for less than a year and I

see wonderful things occurring. First and Most Important is the fact

that she is NO LONGER IN ANY PAIN AND DOES NOT SCREAM

AND HIT HER HEAD TO KNOCK OUT THE PAIN ... (SHE USE TO FEEL).

THIS HAS BEEN COMPLETELY

ELIMINATED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

We, as parents, can no longer panic and try all these different things

that claim to cure/help our children. We have to start looking at the

science behind this. Why is this becoming an epidemic? Why are

so many children faced with autism, ADD, ADHD, Chronic Fatigue

Syndrome? I will tell you why... this is a condition. This has

to do with Neuro Imune Dysfunction. And there are many, many

reasons it is becoming an epidemic. The primary reason is that some

people carry .......

a genetic predisposition to a condition. And the secondary

reasons could be from: environment (ozone layer), foods we eat

that do not agree with us or we are allergic to, and since we already

may have a genetic predisposition we will be negatively affected by

any harmful thing injected, inhaled, etc.. (vaccinations, pollutants)

Our systems are more sensitive than other people. But more and

more people are becoming susceptible to this problem and therefore

we are seeing this tragic epidemic. It will only get worse!! Unless

scientific facts come forward and our society looks at this problem

from a Medical perspective. Meaning what is working, what is NOT

(pseudo-) working? Read the website ... neuroimmunedr. com...

This information must be passed on for the sake of these children.

We can literally lose an entire generation of children that could

be treated and cured !! Dr. Goldberg stands behind logic, science

and facts. Just the fact that he can use NeuroSpect Scans to show

why these children have a disease not a developmental condition

says all there is to say. Please start looking at the facts, not

claims that are BS.

Michele C. Davies

isoaa@...

[Guest guest]

The logic behind chelation has always escaped me. To accept it you have to

adopt some premises that don't make sense in light of the course of the

disease. Kathy Northern New York