Re: chelation

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From: MMacGregor@...

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Date: Sun, 25 Mar 2001 09:38:30 EST

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Subject: [ ] Chelation

Hi Margaret,

It would be really interesting to me if someone DOES know how many

kids have been helped by chelation. I ceratinly don't,

but I agree that I've heard enough progress that I am VERY convinced

there is a connection. One place you can read (if you haven't already) is:

/files/ChelationSurveyFeb2001

This is a short writeup on the results of a survey that was done of members

of this list--- topic was chelation. The response was 28 people, which is

hardly thousands--- but more than one or two.

I have also started to save posts about children's progress with chelation.

I just started recently, so I don't have a lot of them. I also started to

reread some of the archives looking for progress reports. (It is AMAZING

how long it takes to go through a month of posts, whew!) I'm not sure

how far I will get with this project, but am generally thinking of putting

some of the info together into a collection of stuff. Please note I would

ONLY do this WITH THE WRITER'S PERMISSION, so please, don't anyone

be concerned about that.

Actually, (even though the vast majority of posts to the lists are about

problems, questions, news, and theories) there are quite a good number

of (sometimes short) mentions of progress of kids with chelation. Some of

them are quite impressive (actually ALL of them are impressive to me.)

I don't know what will move your DH. Different things work for different

people, and it can be hard to predict. Just as an interesting story, I

have a friend who has no experience with merc poisoning (except hearing

me ramble on about my amalgam replacements and my vision improvements.)

I gave her the file:

/files/KennysProgressReportsFrom

to read, basically as an interesting piece of writing. She later told me

that she has advised a friend not to have their child immunized. (Go, !)

Sometimes one real experience, with enough detail to be tangible, is worth

as much as a lot of studies. Depends who you are talking to. (I'm not saying

studies aren't good too.)

Perhaps you could ask DH to try to " make a case " for why you SHOULDN'T

chelate.

best,

Moria

==================================================================

RESPONDING TO:

In a message dated 3/24/01 11:33:12 PM Pacific Standard Time, lwo@...

writes:

I have seen enough reports of children getting better on chelation to

convince me that metal toxicity played a BIG part in those children

Anyone know about how many? I'm trying to find out so I can make a

case to DH that we should chelate DD. She has the regressive type of

autism, starting at around 18months when she lost eye contact.

Margaret

[Guest guest]

Hi Becky,

This paper on Mercury Detox was very helpful to me when I began chelation on

my son.

http://www.autism.com/ari/

It is written in such a way that it is easy to understand. Some of the

parents on this list are using the DAN protocol set up by the Autism Research

Institute. We follow the DAN protocol. My own son was diagnosed as autistic

and hyperlexic at 3.11 yrs. At the time, he was 89 on the ATEC. The ATEC is

a test (the website is: http://www.autism.com/ari/atec.html ) that a

parent (or teacher) can use to determine if an intervention is helping. The

scores go from 180 (if I remember right) to 0. 180 being extremely

autistic, 0 being non-autistic. My son is now 0 on the ATEC.

Mom to Austin (recovered from pdd) and (nt)

5 yr old twins

In a message dated 6/24/01 3:30:37 PM Pacific Daylight Time,

becgins2000@... writes:

> Subj:[ ] Chelation

> Date:6/24/01 3:30:37 PM Pacific Daylight Time

> From: becgins2000@... (Becky Ginsberg)

> Reply-to: <A

HREF= " mailto: " > </A>

>

>

>

>

>

> Hello,

> My name is Becky and I am a special education teacher

> that has just recently signed onto this list serv. I

> am ver interrested in chelation, what it means, what

> it does, etc. I have student who has recently been to

> see someone about his mercury levels and they have

> suggested for him to start chelation. If anyone has

> any good websites and/ or any books on this please let

> me know. Thank you.

>

> -Becky

>

> __________________________________________________

>

[Guest guest]

Hey ,

I was just curious how old Austin was when you started chelation? Can you

also tell me how your son got the Hyperlexic label? I still wonder if my son

is Hyperlexic and wonder what would qualify him as such. Thanks for any info.

Jo (South Carolina)

[Guest guest]

In a message dated 6/24/01 4:24:14 PM Pacific Daylight Time, JPiker@...

writes:

>I was just curious how old Austin was when you started chelation?

>Can you also tell me how your son got the Hyperlexic label?

Hi Jo,

Austin is just going through his 4th round of chelation. I really gave it a

lot of thought before we started chelation because he was already zero on the

ATEC before we started chelation. He still had some concerns though. His

verbal IQ testing results were all in the average range but his non-verbal

testing scores were all in the superior range. I am definetely seeing

improvements -- so I'm glad we are going forward with it. Prior to

chelation, he couldn't stand on one foot longer than 2-3 seconds. Last night

he stood on one foot for a full 15 seconds!!! I am positive it is a result of

the chelation. He tells me that the medicine is making him feel better.

There is an excellent web-site on hyperlexia. If you are interested, I will

see if I can find it for you. There is a paper there that gave me hope when

we first got the dx. It said that with hyperlexia, once language skills

develop, autistic features go away.

Austin was reading at 15 months. By 24 months, he was sounding out written

words. It was quite shocking. I am told that with hyperlexia, there is no

comprehension. I have always disagreed with this. When he was 3.11, they

tested his reading ability as though he were a 5 yr old. They stopped

scoring him at 157. The psycholgist said, there's no reason continuing with

the testing. He now reads at a college level and his comprehension level is

beyond a 3rd grade level.

There is also a hyperlexia group. I think it is with Not

all hyperlexic children are as 'extreme' as Austin.

Let me know if you'd like more info.

[Guest guest]

I'm sooo glad to see a teacher that is interested in learning more

about this. I wish my little one's teacher was so open minded. I just

get the sympathy looks. I even send his teachers info. on everything

I do, and they still show no interest. There should be more like you

Becky.

Sincerely,

Kaye

> Hello,

> My name is Becky and I am a special education teacher

> that has just recently signed onto this list serv. I

> am ver interrested in chelation, what it means, what

> it does, etc. I have student who has recently been to

> see someone about his mercury levels and they have

> suggested for him to start chelation. If anyone has

> any good websites and/ or any books on this please let

> me know. Thank you.

>

> -Becky

>

> __________________________________________________

>

[Guest guest]

Hi Becky,

I like the overview about merc poisoning that is here:

(it is a 2 part article:)

http://www.vrpcentral.net/scripts/MoreNews.asp?ART=461

http://www.vrpcentral.net/scripts/MoreNews.asp?ART=471

Actually, you should ignore their advice about how to use

DMSA and how to do chelation. Other than that it is a good

very general introduction.

You can read Andy's book about mercury poisoning

and chelation: http://hometown.aol.com/noamalgam

This book has more about CHELATION than any other

that I know of. There are other books that do a

good job with describing merc poisoning, and amalgam

as a source of merc poisoning. (I like " Mercury Free "

by Hardy if you want a book on merc posioning and how

it relates to amalgam.)

regards,

Moria

At 03:29 PM 6/24/2001 -0700, you wrote:

>Hello,

>My name is Becky and I am a special education teacher

>that has just recently signed onto this list serv. I

>am ver interrested in chelation, what it means, what

>it does, etc. I have student who has recently been to

>see someone about his mercury levels and they have

>suggested for him to start chelation. If anyone has

>any good websites and/ or any books on this please let

>me know. Thank you.

>

>-Becky

[Guest guest]

> Hello,

> My name is Becky and I am a special education teacher

> that has just recently signed onto this list serv. I

> am ver interrested in chelation, what it means, what

> it does, etc. I have student who has recently been to

> see someone about his mercury levels and they have

> suggested for him to start chelation. If anyone has

> any good websites and/ or any books on this please let

> me know.

My book on the subject is described at

http://hometown.aol.com/noamalgam.

>Thank you.

>

> -Becky

>

> __________________________________________________

>

[Guest guest]

Hi Becky,

Welcome to the list! I think your best way of learning is to join this list

and the abmd list and just lurk for a while. There are lots of us on here

that are chelating our kids, and we can share a lot about the protocol,

process, side effects, and changes we have seen and are seeing. There are

even some on this list who have completed chelation, and can tell you about

that. And the kids are all different ages, so you get a good idea about

changes for different ages, speed of change, etc. When we first looked into

this, I just lurked on the list for quite a few months, and then began

chelation, with the support and help of so many knowledgeable people.

Barb

[ ] Chelation

>Hello,

>My name is Becky and I am a special education teacher

>that has just recently signed onto this list serv. I

>am ver interrested in chelation, what it means, what

>it does, etc. I have student who has recently been to

>see someone about his mercury levels and they have

>suggested for him to start chelation. If anyone has

>any good websites and/ or any books on this please let

>me know. Thank you.

>

>-Becky

>

>__________________________________________________

>

[Guest guest]

> We're getting our son tested for metals at Pffeiffer Clinic

> (spelling?) next week. If his metals are high, I assume they'll

> suggest chelation. I know nothing about chelation. Can you suggest

> any sources or info I can read.

My book Amalgam Illness: Diagnosis and Treatment, described at

http://hometown.aol.com/noamalgam may be of interest.

Andy

>

> Please e-mail me directly. Thanks.

>

> Janet in Illinoi

[Guest guest]

Hi Ciara,

I am so sorry I took so long to respond. I will type in answers in all caps.

>

> Hi , I have been reading your posts on both the GFCF website

> and the mercury one. Thanks for the info. on Chelation. Is there a

> way I can test my daughter Ciara for mercury? Or, do we just do

> chelation.

OUR DAN DOCTOR DID A HAIR ANALYSIS. I WAS REALLY NERVOUS ABOUT DOING

CHELATION. AUSTIN IS RECOVERED AND I DIDN'T WANT TO TAKE ANY CHANCES.

Who prescribes it? Are there any negative side effects?

I AM GOING TO INCLUDE A WEB-SITE HERE

http://www.autism.com/ari/mercurydetox.html THAT TALKS ABOUT THE WHOLE

PROCESS. IT REALLY HELPED ME WHEN I WAS TRYING TO DECIDE WHAT TO DO. AUSTIN

HAS NEVER EXPERIENCED ANY SERIOUS SIDE AFFECTS. WITH THE FIRST ROUND HE HAD

SOME NAUSEA AND SPIT UP A LITTLE. HE GETS A LITTLE COUGH WITH EACH ROUND. I

AM TOLD THAT THE REASON FOR THIS IS THE LUNGS GET A LOT OF BLOOD FLOW AND THE

METALS ARE BEING COUGHED OUT. (THE ORIGINAL EXPLANATION WAS MORE WORDY AND

TECHNICAL -- BUT BASICALLY THAT'S HOW I UNDERSTOOD IT)

> My daughter Ciara is 3.9 months and has been " undiagnosed " . I guess

> that means she has recovered from PDD. >> of

>> symptoms from time to time like she is a litle spacey and can have

>> a hard time transitioning if she is very involoved with something.

CONGRATULATIONS!!! IT IS SUCH A WONDERFUL FEELING. AUSTIN STILL HAD/HAS

LINGERING ISSUES. HIS PROBLEMS ARE NO LONGER PDD -- NOW IT'S MORE ADD -- AND

EVEN THAT IS MINOR. ALSO, HE MAY HAVE A CENTRAL AUDITORY PROCESSING CONCERN.

>

> They aren't big problems, but they are still there. The one thing

> that really struck me was the standing on one foot thing. Ciara has

> the same thing!

I AM TOLD THAT AUSTIN WILL DO WELL IN KINDERGARTEN BY THE PPI TEACHER IN THE

PUBLIC SCHOOL AND BY THE SPECIAL ED TEACHER AT THE PRIVATE SCHOOL THAT HAS

BEEN WORKING WITH HIM FOR THE LAST YEAR. I THINK THEY ARE RIGHT -- BUT OUR

DAN DOCTOR TELLS ME THAT WE NEEDED TO DO THE CHELATION BECAUSE THESE METALS

SHOULDN'T BE IN OUR CHILDREN -- THE DAMAGE COULD COME OUT IN OTHER WAYS LATER

ON IN THEIR LIFE -- PERHAPS AS DEPRESSION. WE ARE PULLING OUT A LOT OF

ANTIMONY, ARSENIC AND CADMIUM NOW. WE HAVEN'T GOTTEN ANY MERCURY YET. ABOUT

THE BALANCE ISSUE, I STILL CAN'T BELIEVE WHAT I AM SEEING -- IT TRULY IS

AMAZING. ONE YEAR AGO, AUSTIN COULDN'T EVEN WALK ON THE CURB WITHOUT FALLING

OVER!! NOW HE CAN GO 15 SECONDS ON ONE FOOT.

> PS - Ciara scored a 2 on the Atec (down from 38 a year ago).

>

WOW -- THAT IS GREAT.

I FEEL LIKE IF I ACCOMPLISH NOTHING ELSE IN MY LIFE BUT TO HAVE HELPED

AUSTIN, I WILL HAVE ACCOMPLISHED EVERYTHING I COULD HAVE PRAYED FOR. THESE

KIDS ARE SO SPECIAL.

AGAIN, I APOLOGIZE FOR THE DELAY IN RESPONDING. I WANTED TO GIVE MY RESPONSE

MY FULL ATTENTION -- AND THINGS ARE SO HECTIC AROUND HERE MOST OF THE TIME.

WISHING YOU CONTINUED SUCCESS.

EVELYN

[Guest guest]

,

Chelation is the name of the process for removing mercury and other toxic

metals from your child's body. It is a little bit controversial. Several

parents report seeing dramatic improvements, and even full recoveries from

autism, after undergoing chelation.

For more info, visit the autism treatment group at . . . they have a

frequently-asked-questions file which explains the procedure, results, risks,

etc.

-BJ

[Guest guest]

I will ask again........

> OK, I am new at this. What is chelation?

>

>

>

> karen

> Calhoun GA

> Mom to 10 and Mathew 3

>

> I can't complain.... (but sometimes I still do)

> Life's been good to me, so far.

> Find the best deals on the web at AltaVista Shopping!

> http://www.shopping.altavista.com

[Guest guest]

" Chelation therapy is a medical treatment that improves metabolic and

circulatory function by removing toxic metals (such as lead and cadmium) and

abnormally located nutritional metallic ions (such as iron) from the body. This

is accomplished by administering an amino acid, ethylene-diamine-tetra-acetic

acid (EDTA), by an intravenous infusion using a small 25-gauge needle. "

[Guest guest]

Not sure but I think it is the removal of toxins for example lead or

mercury.

> I will ask again........

>

>

>

> > OK, I am new at this. What is chelation?

> >

> >

> >

> > karen

> > Calhoun GA

> > Mom to 10 and Mathew 3

> >

> > I can't complain.... (but sometimes I still do)

> > Life's been good to me, so far.

> > Find the best deals on the web at AltaVista Shopping!

> > http://www.shopping.altavista.com

[Guest guest]

Regarding an earlier explanation of chelation, to my knowledge there

are no injections involved in mercury removal, there is a product

that comes in a capsule called DMSA which removes loose mercury and

other metals in the body. After a few rounds of DMSA alone, another

substance called lipoic acid (ALA) is introduced orally as well. This

substance actually crosses the blood-brain barrier and draws the

mercury out of the cells where it is more tightly-bound.

Frequent tests of stool, urine and sometimes hair and/or blood are

taken at regular intervals to monitor what toxins are leaving the

child's body, at what rates, and to determine when to implement phase

II which is the addition of the lipoic acid. Testing to make sure

blood counts, liver function, kidney function and minerals are ok

during treatment is also done on a regular basis.

One of the many benefits of mercury chelation, according to Dr. Amy

Holmes of Louisiana (a nationally reknowned M.D. who has been

supervising chelation on autistic children probably longer than any

other doctor) is that improvements noted include the disappearance of

apraxia, and increases in receptive and expressive language skills.

Some parents have even claimed that mercury chelation was the final

key to " recovery " of their autistic child.

We will be starting chelation on my 4-year-old son very soon. I have

been studying the subject for two years now . . .

-BJ

[Guest guest]

Here is the address to the group that I mentioned earlier:

Shortcut URL:

Answers to common questions: (may have to cut and paste)

/files/Mercury-Autism%

20FAQ

Also, interested parents should do an internet search for Dr. Amy

Holmes, she has a website which gives a ton of good info out in

layman's terms.

-BJ

[Guest guest]

>

> Hi, please could someone forward details of where you can get this

chelation treatment done. We live in London, but are willing to

travel.

> Thank you kindly.

Dear Milti,

I'm sorry to say that it may not be that simple. Or it might,

I guess it depends upon your approach.

I think you best chance of finding an MD who knows about this

stuff is to start with the DAN list. DAN's website is:

http://www.autism.com/ari/

Look for link about " practitioner's list " .

However, from what I've heard, this is a list of people who

have attended conferences or training with DAN, which is NOT

the same as people who are experienced with chelation. But,

at least they may have heard of it. <laughter>

I think it is safe to say that Dr. Amy Holmes is the " favorite

physician " on the autism treatment list. The opinions I've

heard range from wonderful to walks-on-water. You can find

her phone number in the FAQ:

/files/Mercury-Autism%20FA

Q

The big drwaback (sorry) is that she has a waiting list that

is measured in MONTHS (I am NOT exaggerating). I think it

is several months-- but call and ask if you are interested.

She is in Baton Rouge Louisiana US. She has LOTS of patients

who travel to see her, so that should be no issue. Her practice

is entirely kids with ASD. Really, I've heard nothing

but rave reviews, and from the TINY bit of exposure I've had

to her (indirect) I must agree. (I have ordered some DAN

conference tapes of her but haven't received them yet.)

Another thing to love about Dr. Amy, is that she has put

her results on the web.

http://www.healing-arts.org/children/holmes.htm#results

(That is in the middle of some other material of hers.)

She practices with Dr. Cave, author of the

new (and fabulous) book " What Your Doctor May NOT Tell

You About Children's Vaccinations " .

You could also ask on the list autism treatment-biomed-UK

(on groups). I lurk there from time to time--- I don't

recall anyone recommending a physician. More along the

lines of frustration about it (which is also true on

the autism treatment list!) But, you could certainly ask.

For the record, you could also do chelation without finding

a doctor who knows how to do it. This is not uncommon.

AND, please note, finding a doctor who does chelation is

NOT equal to finding a doctor who can do it safely. No

matter who you go to, I think it is a good idea to read

up on the whole area.

When I started reading about mercury I thought it was all

WAY too complex for me, and I wanted to just go to someone

who could tell me what to do. As I learned more, I realized

this was not the answer (for me). Too many issues, and

I felt I had to sort my own way through it anyhow. (In case

it makes a difference to you, I'm doing chelation on mySELF,

not a kid. I have no children, ASD or NT.) I've ended

up with self-directed chelation. I have an accupunturist

(anyway) who I see regularly. For many people, this sort

of arrangement is NOT an option. For others it works fine.

Gee, perhaps I should mention that chelation takes a long

time. It is a continuing treatment. Takes --oh-- 6 months

to 3 years? Something like that. Younger kids seem to

respond faster.

best,

Moria

[Guest guest]

>>Wow what an interesting article- I am really interested in this

chaletion

method. Do you live in England- if so where did you go for this

treatment,

if not has anyone on the list had successful chelation treatment

anywhere in

England,preferably London.

Thank you for this hope

Hello again. I live in California, but here are some ideas for you.

It is generally safer to do chelation with a doctor supervision, but I

do not do so, I am doing it without any physician at all, because I

have no other choice. But if you have a choice, that is what I would

recommend.

Moria gave you some good info, here is more. If you have a good

family or pediatric physician that you like, you can obtain a few

chelation protocols and discuss them with your doctor. Here are links

for a few informative sites, one of the links is long so you have to

be sure it ends with the letters FAQ, just type the missing letters

into your browser, or copy/paste.

http://www.autism.com/ari/mercurylong.html

http://www.autism.com/ari/mercurydetox.html

/files/Mercury-Autism%20FA

Q

http://www.healing-arts.org/children/holmes.htm

I hope that helps. Good luck to you.

Dana

[Guest guest]

hi everyone! I haven't posted in a while but I have been lurking.I have a

question for you all.I have a friend who has a 7 year old daughter who has

Aspergers.She said when Hanna was a toddler she would put everything that wa

smetal in her mouth.I asked her if she has ever had a hair test done and she

said no.i talked to her about chelation and I do know a little but not a

lot.Are there any good web addresses she can go to to find out about

chelation.How it works,the protocols,how you do it,the benefits,success

stories,etc?Thanks ne

[Guest guest]

> Are there any good web addresses she can go to to find out about

> chelation.How it works,the protocols,how you do it,the

benefits,success

> stories,etc?Thanks ne

>

Well there is my page LOL, I give a general overview and links to

other information, including places from this autism treatment site.

http://www.autismchannel.net/dana/chelate.htm

Dana

[Guest guest]

>hi everyone! I haven't posted in a while but I have been lurking.I have a

>question for you all.I have a friend who has a 7 year old daughter who has

>Aspergers.She said when Hanna was a toddler she would put everything that wa

>smetal in her mouth.I asked her if she has ever had a hair test done and she

>said no.i talked to her about chelation and I do know a little but not a

>lot.Are there any good web addresses she can go to to find out about

>chelation.How it works,the protocols,how you do it,the benefits,success

>stories,etc?Thanks ne

well, here are some that should get her far. lots to read.

about chelation:

/files/Mercury-Autism%20FAQ

/files/ANDY_INDEX

/messages

http://www.autismchannel.net/dana/parent3.htm#chelation

http://www.autismchannel.net/dana/chelate.htm

http://www.healing-arts.org/children/holmes.htm

about protocols:

/files/Andy_dose_sched

/files/ANDY_INDEX

http://www.autism.com/ari/mercuryconsensus.html

benefits and success stories

/files/LOVE_LETTERS

(this includes a few links to other sites)

You didn't ask for books, but:

book: Amalgam Illness by Hall Cutler http://www.noamalgam.com

best wishes,

Moria

[Guest guest]

HI-- I can only help with the hair part-- I think it is better to use

the hair that is currently on his head...mainly--the directions are

to cut from the back of the head, near the nape of the neck, and get

as close to the skin as possible. (I did my son's and it was not too

bad. One haircut later and you can't even tell it was done. I don't

suggest thinning shears as they seem to pull and my son did NOT like

that. I just snipped here and there.).

ANYWAY--the reason is that you want to get a current representation

of your son's toxicity. For instance, you said you have the 18 month

baby hair-- for one, the hair probably was not cut close to the skin,

and also, that represents toxicity back then...you want to know what

is the toxicity level NOW. Perhaps mercury was the toxic metal back

then, but now, because the mercury is settled in the tissue, and the

child's system isn't excreting OTHER substances well, NOW the hair

analysis may show toxicity in several OTHER metals, as well as

disordered nutrient transport. So go ahead and use his current hair

sample.

As far as getting a doctor to help with chelation, maybe other people

have other ideas, but I know a mom who called Kirkman Labs and asked

them for a list of docs near us.

W

> Ok, so far I'm striking out when it comes to finding a doctor to

help order

> the elemental hair test through DDI. > a - Peoria IL

>

[Guest guest]

> Anyway, my question is this. If I'm striking out when it comes to finding

a

> doctor to help, how on earth will I get help to chelate? I know I can buy

> the DMSA myself, but I'd feel better if I was supported by a doctor,

> assuming we would need to chelate my son. How have others gone about

doing

> this?

I'm a nurse and we are considering this route. I would order periodic blood

tests through Direct Labs, a CMP( comprehensive metabolic panel) maybe after

each round, it includes kidney and liver function tests. The only thing I

would worry about is if something went wrong and you had to seek treatment

by a physician, I'm not so sure they couldn't press some weird charges on

the parent... <sigh>

We have a compounding pharmacy here, they won't even do vitamins without a

dr. rx...

Trish

[Guest guest]

> by a physician, I'm not so sure they couldn't press some weird

charges on

> the parent... <sigh>

>

This is a big worry to me. Is it illegal to do chelation without a Dr?

[Guest guest]

--- joan111582 <Joan111582@...> wrote:

> > by a physician, I'm not so sure they couldn't

> press some weird

> charges on

> > the parent... <sigh>

> >

>

> This is a big worry to me. Is it illegal to do

> chelation without a Dr?

>

You can't practice medicine without a license, but I

think this means you can't practice on others. Where

do your children fit in? I don't know for sure, but

the law seems to give a lot of lattitude to parents in

determining the care of their children.

So can you legally chelate yourself with legally

acquired agents? I would imagine so. Can you do the

same for your minor children? Probably.

I've only chimed in because I thought it an

interesting question, and I was afraid it might drop

on the floor...

Max

__________________________________________________