Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 I also worry about this, if my son became sick from chelation and we sought help from our regular medical group (military) would they question our methods. Has this ever happened to anyone? Maddie > > > Anyway, my question is this. If I'm striking out when it comes to finding > a > > doctor to help, how on earth will I get help to chelate? I know I can buy > > the DMSA myself, but I'd feel better if I was supported by a doctor, > > assuming we would need to chelate my son. How have others gone about > doing > > this? > > I'm a nurse and we are considering this route. I would order periodic blood > tests through Direct Labs, a CMP( comprehensive metabolic panel) maybe after > each round, it includes kidney and liver function tests. The only thing I > would worry about is if something went wrong and you had to seek treatment > by a physician, I'm not so sure they couldn't press some weird charges on > the parent... <sigh> > > We have a compounding pharmacy here, they won't even do vitamins without a > dr. rx... > > Trish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 > -----Original Message----- > From: Max Salinas [mailto:msalinas@...] > > You can't practice medicine without a license, but I > think this means you can't practice on others. Where > do your children fit in? I don't know for sure, but > the law seems to give a lot of lattitude to parents in > determining the care of their children. > > Max The law gives a lot of latitude on this in general. Have you ever pulled out a splinter, or cleaned out a cut then put a bandage on it for someone? Suggested that someone take an aspirin (or acetaminophen or ibuprofen) for a headache? Has anyone done these things for you? All of these examples are technically practicing medicine. There is also other things that we as human beings are *expected* to do for our fellow humans that qualifies as practicing medicine. In some cases, charges can be pressed for not rendering aid when needed. Interesting conflict of law, don't you think? Tana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 > So can you legally chelate yourself with legally > acquired agents? I would imagine so. Can you do the > same for your minor children? Probably. The problem may lie in the fact that DMSA, while available without a prescription online, IS a prescription medication, which you are obtaining without a prescription, so there is some question as to the legality of that. Perhaps there could be medical neglect or something? Which would be in the case of someone chelating on their own and then being *afraid* to seek (and not seeking treatment) if something went wrong? I'm a nurse and I'm just not willing to risk doing this without a doctor, and not for the above reason. I'm just not so sure that I would know if something was amiss, even with blood tests and I don't want to do further damage. Forutuneately I have a sympathetic doctor, BUT he isn't doing the protocols that I've heard of. I STILL have yet to find out anything about D-pennacillamine and if is safe or effective in chelation. I wish someone would chime in about that, so I could decided to pursue or not. Also, my doctor is not using Doctor's Data for the hair test (he's using Great Smokies), nor the counting rules (which make sense to me), so for now we are going by the Doctor's Data hair testing, which I've ordered kits for my dd and myself, will look at those with Andy's counting rules, then take this info to the doctor and a printed version of Andy's protocol and the counting rules and see if I can educate him! LOL! It's a shame you can't just get a doctor on the phone to discuss stuff any more, they are just too darned busy! > I've only chimed in because I thought it an > interesting question, and I was afraid it might drop > on the floor... I " m glad you did! Now, do you know anything about D-pennicillamine??? :-) Trish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 > The law gives a lot of latitude on this in general. Have you ever pulled out a splinter, or cleaned out a cut then put a bandage on it for someone? Suggested that someone take an aspirin (or acetaminophen or ibuprofen) for a headache? Has anyone done these things for you?>> Yes, but most of these things are NOT potentially harmful, and or if they are (i.e. some one has an allergic reaction to Ibuprofen) the person was an adult and had a choice to follow your advice or not. In the instance of chelation with DMSA a potentially harmful (and controlled MOSTLY by prescription) substance is being given to a child that can not decided or consent to or not to take it. (I'm not trying to start a conflict here, just playing the Devil's Advocate) << All of these examples are technically practicing medicine. There is also other things that we as human beings are *expected* to do for our fellow humans that qualifies as practicing medicine. In some cases, charges can be pressed for not rendering aid when needed. Interesting conflict of law, don't you think? And in SOME cases you can be prosecuted for rendering aid above the level of your expertise. The law protects me as a nurse in rendering aid only if I render aid in the scope of my knowledge as a nurse, if I cross that line (say preforming an emergency tracheotomy with the tubing from a ballpoint pen) I could be prosecuted for that, even if it saved the person's life, because it is not in the scope of my practice as a nurse to preform tracheotomy's. Trish Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 Trish, under search c/o British anti-lewis. It will lead to info on detoxing with d-penicillian. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2002 Report Share Posted May 2, 2002 > -----Original Message----- > From: troupefamily [mailto:kianasmom@...] > > << Interesting conflict of law, don't you think? > > And in SOME cases you can be prosecuted for rendering aid above the > level of your expertise. The law protects me as a nurse in rendering > aid only if I render aid in the scope of my knowledge as a nurse, if > I cross that line (say preforming an emergency tracheotomy with the > tubing from a ballpoint pen) I could be prosecuted for that, even if > it saved the person's life, because it is not in the scope of my > practice as a nurse to preform tracheotomy's. > > Trish Yes, that was actually why I didn't bring up CPR, one is supposed to be currently certified to perform it. If one's certification expired the day before perfuming it, the person could be *easily* prosecuted for a rib breaking during the procedure. However, they can still be prosecuted if the certification is up to date. Could the person have a wrongful death case brought against them by a family member of the deceased if it was known that the person knew CPR but didn't perform it because the certification *just* expired? Yes, it could be, and it is possible that the family member of the deceased could win. That is part of what I mean by conflict of law. Tana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi Margaret, My understanding is that Dr. Goldberg is opposed to chelation, although I do not know the reason. You might want to call the support line (on the website, I believe) and ask for information. I have a friend who is currently chelating her son and also wants to take him to see Dr. G. After calling the support line, she decided to wait until after her son is finished chelating before starting the protocol. Donna Chelation Hi Is anyone out there chelating as well as following the protocol? The whole autoimmune connection is interesting but we've just started chelation and were wondering if, for any reason, you CAN'T do the two together - is it dangerous, do the different drugs cancel each other out .... Also, is there anyone whose child has an immune system that seems to work overtime - ie, the child is NEVER sick? Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Our daughter is never sick. But, if she gets sick it's something significant like bronchitis, which she's had 3 times in her 4 years. ----- Original Message ----- From: MMacGregor@... Also, is there anyone whose child has an immune system that seems to work overtime - ie, the child is NEVER sick? Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Hi My son never run fever, got the flu, coughed ... He would have ear infections and we would not know about it. 5 years into the protocol, his immune system is responding the way it is supposed to. Since my son is non-verbal and can't tell me when he is not well, the fever alerts me to his sickness and I can ease up his pain. As for chelation, it is a very dangerous procedure. I understand that Houston Medical is the the best in the country for chelation and they do it only if the child really really needs it. MMacGregor@... wrote: >Hi > >Is anyone out there chelating as well as following the protocol? The >whole >autoimmune connection is interesting but we've just started chelation and were >wondering if, for any reason, you CAN'T do the two together - is it dangerous, >do the different drugs cancel each other out .... > >Also, is there anyone whose child has an immune system that seems to work >overtime - ie, the child is NEVER sick? > >Margaret > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Nearly all medical procedures are technique sensitive and have an a certain level of risk, therefore can be " dangerous " if not supervised by an experienced and knowledgeable doctor. Chelation requires very careful monitoring of blood, liver and kidney function throughout the process. As far as the best and most experienced, Dr. Amy Holmes and Dr. Jane El-Dahr in Louisiana seem to be considered to be among the top practitioners in mercury chelation with autistics. A lot of children have shown remarkable improvement with this intervention. Unfortunately, their waiting lists are REALLY long. I called Dr. Holmes' office and the next available appointment is in April 2003. We're seeing Jaquelyn McCandless who practices near Dr. Goldberg. In fact, she mentioned his theories to me and that's why I'm lurking on this list. Dr. McCandless tests and treats her patients for autoimmune disorders, but also does chelation. However I don't know enough about , to say she's following this protocol. Regarding treating an autoimmune disorder and chelating simultaneously, as I recall she said that we would have to first treat the autoimmunity problem then consider whether chelation is still necessary. We just did the blood tests today, so I don't even know yet if autoimmunity is the problem anyway. In McCandless' recently released book, " Children with Starving Brains; A Medical Treatment Guide for Autism Spectrum Disorder, " she mentions that a lot of parents comment that their autistic child never gets sick. She suggests that it might be because they have an ongoing low-grade chronic infection that keeps the immune system on hyper alert. HTH, Lynne > As for chelation, it is a very dangerous procedure. I understand that > Houston Medical is the the best in the country for chelation and they do > it only if the child really really needs it. > > > MMacGregor@... wrote: > >> Hi >> >> Is anyone out there chelating as well as following the protocol? The >> whole >> autoimmune connection is interesting but we've just started chelation and >> were >> wondering if, for any reason, you CAN'T do the two together - is it >> dangerous, >> do the different drugs cancel each other out .... >> >> Also, is there anyone whose child has an immune system that seems to work >> overtime - ie, the child is NEVER sick? >> >> Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Dr. Goldberg won't treat a child who is being chelated. I'm not sure if he will treat a child who was chelated in the past either. He believes it is largely unnecessary except in rare cases and believes it is highly dangerous. He says that chelation can have a very destructive effect on a child and says that it can cause serious and perhaps even irreversible damage. He says true heavy metal poisoning is very rare and should only be chelated if diagnosed and recommended by a teaching hospital. So please beware unless you are absolutely sure of what you are doing. Stefanie Chelation Hi Is anyone out there chelating as well as following the protocol? The whole autoimmune connection is interesting but we've just started chelation and were wondering if, for any reason, you CAN'T do the two together - is it dangerous, do the different drugs cancel each other out .... Also, is there anyone whose child has an immune system that seems to work overtime - ie, the child is NEVER sick? Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2002 Report Share Posted July 10, 2002 Dear Margaret, I almost hated to post this (see quotes below) as it will probably be quite a shock to you, but I know you would like to know what Dr. Goldberg thinks. You can read a lot about his opinions on chelation by going to his web site, then to the conference area. You must register there (it's free) and then you can view the " conference " area. Select " Ask Dr. Goldberg " and then " search " and you can search for the word " chelation " . You can then view all of the questions people have posted to Dr. Goldberg and his replies (click " show entire topic " to see both the question and the answer at the same time.) I heard him say somewhere that he has had trouble getting the kids who have been chelated to respond to his treatment because he thinks the chelation may have done permanent damage to those children's brains. He calls chelation a " disaster " for 99.9% of our kids. Please review his comments. My child has had amazing results since seeing Dr. G for the first time in January. I still can't quite believe the progress... and Dr. Goldberg will NEVER do anything that he thinks could possibly harm your child. We all want so desperately to help our children... it's so hard to know what is right. Best of luck. Caroline QUOTE FROM DR GOLDBERG... " As I have stated many times, metal issues are NOT the primary problem in these children, I have never advocated chelation, and in fact (see recent postings, obtain audio tape from Long Beach talk in July via .net website) chelation attempts are likely increasing brain toxicities for these children, killing off brain cells, etc. The immune system is the key, viruses, yeast, metal (??) and other metabolic issues are secondary factors, NOT primary (again please obtain detailed, long discussion from audio tape). I do not agree with Dr. Holmes - ?? how many ³normalized² children are out there from chelation. . . ?? how many children are being harmed long term from chelation, Secretin (please check recent patient comments that Becks child and others who have done Secretin are now ³disasters²), etc. There is no more logic supporting the role of heavy metals in your children, than all the attempts to blame heavy metals for CFS / CFIDS in adults, and many other ³unexplained² disorders in adults (and children). This continues to be a very sad continuation of misinformation for all of you Take care, MJG this also from Dr. Goldberg... " Note: IF chelation created a healthy child, able to now handle yeast, secondary viruses, etc. there should be ³normal² children out there from chelation  I have heard of some children ³functioning better² (sadly in most a false, short term improvement)  I have not seen any significant presentation or discussion of ³normalized² children. Rather, as I have stated, science and clinical logic says chelation is more likely to kill-off healthy brain cells, and my clinical experience is those children (who have done chelation) and children who have done IV Secretin is generally very negative. " >On 7/9/02 6:17 PM, " MMacGregor@... " <MMacGregor@...> wrote: > Hi > > Is anyone out there chelating as well as following the protocol? The > whole > autoimmune connection is interesting but we've just started chelation and were > wondering if, for any reason, you CAN'T do the two together - is it dangerous, > do the different drugs cancel each other out .... > > Also, is there anyone whose child has an immune system that seems to work > overtime - ie, the child is NEVER sick? > > Margaret > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Chelation is very important if you have a child who has ingested lead. Other than that there are no medical indications. It does not compliment the protocol and in fact is potentially harmful. For parents that are being told to consider chelation my first question would be is what are you being told that you are removing? Kathy -NNY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 , This is a re-post of something I posted a while ago... I almost hated to post this (see quotes below) as it may be quite a shock to you, but I know you would like to know what Dr. Goldberg thinks. You can read a lot about his opinions on chelation by going to his web site, then to the conference area. You must register there (it's free) and then you can view the " conference " area. Select " Ask Dr. Goldberg " and then " search " and you can search for the word " chelation " . You can then view all of the questions people have posted to Dr. Goldberg and his replies (click " show entire topic " to see both the question and the answer at the same time.) I heard him say somewhere that he has had trouble getting the kids who have been chelated to respond to his treatment because he thinks the chelation may have done permanent damage to those children's brains. He calls chelation a " disaster " for 99.9% of our kids. Please review his comments. My child has had amazing results since seeing Dr. G for the first time in January. I still can't quite believe the progress... and Dr. Goldberg will NEVER do anything that he thinks could possibly harm your child. We all want so desperately to help our children... it's so hard to know what is right. Best of luck. Caroline QUOTE FROM DR GOLDBERG... " As I have stated many times, metal issues are NOT the primary problem in these children, I have never advocated chelation, and in fact (see recent postings, obtain audio tape from Long Beach talk in July via .net website) chelation attempts are likely increasing brain toxicities for these children, killing off brain cells, etc. The immune system is the key, viruses, yeast, metal (??) and other metabolic issues are secondary factors, NOT primary (again please obtain detailed, long discussion from audio tape). I do not agree with Dr. Holmes - ?? how many ³normalized² children are out there from chelation. . . ?? how many children are being harmed long term from chelation, Secretin (please check recent patient comments that Becks child and others who have done Secretin are now ³disasters²), etc. There is no more logic supporting the role of heavy metals in your children, than all the attempts to blame heavy metals for CFS / CFIDS in adults, and many other ³unexplained² disorders in adults (and children). This continues to be a very sad continuation of misinformation for all of you. Take care, MJG this also from Dr. Goldberg... " Note: IF chelation created a healthy child, able to now handle yeast, secondary viruses, etc. there should be ³normal² children out there from chelation  I have heard of some children ³functioning better² (sadly in most a false, short term improvement)  I have not seen any significant presentation or discussion of ³normalized² children. Rather, as I have stated, science and clinical logic says chelation is more likely to kill-off healthy brain cells, and my clinical experience is those children (who have done chelation) and children who have done IV Secretin is generally very negative. " >On 9/20/02 11:08 PM, " Fry " <mfry1@...> wrote: > You can order the test through ImmunoSciences Lab through your doctor (our DAN > doctor did this as part of a study). My daughter, very HFA, possibly > Asperger's and darn near typical at this point, tested excessively positive > even though she has been GFCF for over two years. DAN doctor wanted to chelate > with DMSA, we decided instead to work on metallatheion (sp) processing to see > if correcting a zinc/copper imbalance would help first. After that, we will > clean up any residual metals with a short course of chelation and then go for > a course of antivirals once her system has been cleaned up. (At least that's > our plan so far). > > I figure we'll be going to doctors for YEARS and eventually will see everyone > from DAN to to Pfeiffer and who knows who else. Any advice anyone? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2002 Report Share Posted October 2, 2002 I'm sort of amazed at how the term chelation has been bandied about and I can only think that there are a lot of misconceptions about what it actually is. When you chelate you are parentally adding a chemical magnet, in a sense, to the blood stream. The idea is that you are trying to attract the positive ions of the substance to the positive ions of what you are using to form a new substance which will precipitate out and excreted out through the kidneys. Unfortunately you are risking kidney damage, and the excretion of other electrolytes that are essential to normal body functioning. Calcium is one of the bigger concerns. Most people think of calcium in terms of its role in the skeletal system but it is also is essential in the transmission of nerve impulses, regulates muscle contraction (normal heartbeat), blood clotting, enzyme activation, and other chemical reactions. Seizures are not an uncommon risk with chelation. Sudden death is also a risk. Chelation is a procedure that requires careful monitoring of the electrolyte levels and is done in settings where the appropriate kind of laboratory, and emergency supports are readily available. Tragically Dr. Goldberg has found that children who have undergone chelation do not have as positive a response to the protocol as children who have not had it. Kathy on -NNY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2002 Report Share Posted October 3, 2002 Hello Kathy, > Seizures are not > an uncommon risk with chelation. Sudden death is also a risk. Chelation is a > procedure that requires careful monitoring of the electrolyte levels and is > done in settings where the appropriate kind of laboratory, and emergency > supports are readily available. I'm not sure where you are getting this information from. I think you are talking about " theoretical " risks, and are not in contact with people undergoing chelation. I DO think there are risks to chelation, and that the risks are MUCH greater depending upon the methods (dose and schedule) used. And one must use appropriate chelation agents, and eliminate current exposures, and so on. But let me get to the point: the common negative effects of chelation in ASD kids are stuff like yeast flare-ups, runny noses, and some increase in ASD symptoms [at **some** parts of the chelation cycle]. Some COMMON positive effects are reduced ASD symptoms, increased in social relating, increase in language & understanding. We are discussing a therapy that has made a substantial positive difference for MANY children (and adults FWIW). best wishes, Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Jerri, My recent post " neuroimmune discussion " had plenty of supporting info, here is another recently published study: Curr Med Chem. 2003 Aug;10(16):1581-91. Related Articles, Links Interferon-gamma-induced conversion of tryptophan: immunologic and neuropsychiatric aspects. Wirleitner B, Neurauter G, Schrocksnadel K, Frick B, Fuchs D. Institute of Medical Chemistry and Biochemistry, University of Innsbruck, and Ludwig Boltzmann Institute of AIDS Research, Fritz-Pregl-Strasse 3, A-6020 Innsbruck, Austria. Tryptophan is an essential amino acid and the least abundant constituent of proteins. In parallel it represents a source for two important biochemical pathways: the generation of neurotransmitter 5-hydroxytryptamine (serotonin) by the tetrahydrobiopterin-dependent tryptophan 5-hydroxylase, and the formation of kynurenine derivatives and nicotinamide adenine dinucleotides initiated by the enzymes tryptophan pyrrolase (tryptophan 2,3-dioxygenase, TDO) and indoleamine 2,3-dioxygenase (IDO). Whereas TDO is located in the liver cells, IDO is expressed in a large variety of cells and is inducible by the cytokine interferon-gamma. Therefore, accelerated tryptophan degradation is observed in diseases and disorders concomitant with cellular immune activation, e. g. infectious, autoimmune, and malignant diseases, as well as during pregnancy. According to the cytostatic and antiproliferative properties of tryptophan-depletion on T lymphocytes, activated T-helper type 1 (Th-1) cells may down-regulate immune response via degradation of tryptophan. Especially in states of persistent immune activation availability of free serum tryptophan is diminished and as a consequence of reduced serotonin production, serotonergic functions may as well be affected. Accumulation of neuroactive kynurenine metabolites such as quinolinic acid may contribute to the development of neurologic/psychiatric disorders. Thus, IDO seems to represent a link between the immunological network and neuroendocrine functions with far reaching consequences in regard to the psychological status of patients. These observations provide a basis for the better understanding of mood disorder and related symptoms in chronic diseases. PMID: 12871129 [PubMed - in process] Jon. Chelation I don't know if you guys read the ME-LIST, an email group discussing ABA, but they have been discussing the amazing benefits from Chelation. I remember reading here that sometimes people see benefits from some form of help to the immune system. I wanted to post this info. to the me-list. And maybe infor about Dr. G again. Some posters did refer people to quackwatch.com but I know if people are seeing benefits they don't care about the distractors, so if I could show them the plausible reason for the success and tell them about Goldberg. Does anyone know where the info was on that/ Thanks, Jerri ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2003 Report Share Posted September 3, 2003 Jerri, I found this one from Cheryl... was that it (see below) ? ---------- Hi , Succimer is DMSA, which many are using for what they feel is a mercury problem. ALA is something else that's in use, although I saw at least one study that seemed to indicate it could actually make a non-toxic mercury level, toxic. The second abstract raised the question of a problem with chelating itself. That's the concern that I've heard expressed before. What is interesting, is that many other disorders that were thought to be caused by metals, are now being connected with viral, retroviral, inflammation, autoimmunity and certain genetic susceptabilities. Levels could increase due to the metabolic processes that decrease when there's immune activation. Don't forget that certain HLA types are connected with immune/autoimmune disorders and autism has been connected to some of the same HLA genes. There's also the neurotrophins that were elevated at birth, prior to any immunizations. The evidence seems to be pointing more towards the immune system, rather than one specific trigger or immune stressor. Cheryl ----Original Message Follows---- From: " LucyLynn " <lucylynn@...> Reply- < > Subject: Chealating for mercury (Cheryl Date: Wed, 19 Mar 2003 18:17:13 -0800 >Hi Cheryl, >Thanks for responding. Do you know if the drug SUCCMIR is specific to lead >chelating or is that the only method of chelating available. Would there be >a different method for the mercury they are suspecting might be the problem >with many of the kids? >I found it interesting that mercury causes immune dysfunction and many of >the symptoms we see in our kids. Are there any studies anyone knows of >where they have dealt with therimerisol (sp?) toxicity? Just curious. >Thanks, > ============ On 9/3/03 1:31 PM, " Jerri and Nick Gann " <njgann@...> wrote: > I don't know if you guys read the ME-LIST, an email group discussing > ABA, but they have been discussing the amazing benefits from Chelation. > I remember reading here that sometimes people see benefits from some > form of help to the immune system. I wanted to post this info. to the > me-list. And maybe infor about Dr. G again. > > Some posters did refer people to quackwatch.com but I know if people are > seeing benefits they don't care about the distractors, so if I could show them > the plausible reason for the success and tell them about Goldberg. Does anyone > know > where the info was on that/ Thanks, Jerri ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. `````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Some kids regress without chelating. Just a point. Kathy chelation Thanks Caroline I posted this on the Me-list. I hope it helps some people. I think Dr. Rimland is a great person but his organization is sure pointing everyone towards chelating. I keep hearing the improvements only work for a little while, which makes sense if this is a regressive disease and you have not addressed the main problem. ____________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 Exactly--- how can chelation work in the long term if you don't improve the body's ability to self-detox in the first place? Lets face it, we live in a toxic world, we're all exposed to metals and chemicals our entire lives-- what keeps chelated kids from accumulating the same toxins all over again??? I've always wondered the thinking behind this...... Becky Re: Chelation > > Jerri, > > I found this one from Cheryl... was that it (see below) ? > > ---------- > _________________________________________________________________ > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 Jerri, Glad to help... I hope the post helps someone too (thanks, Cheryl!). I just wanted to comment that although we have seen some great " AHA! " improvements with 2 meds (Celexa and Nizoral), the other meds have given us slow, steady progress. It has been fascinating watching my son move through developmental phases at ages 6, 7, and 8 that I am watching his younger brother move through at ages 2 and 3. The first year and a half on the protocol was full of ups and downs as we moved through the different meds... working through the SSRIs was the most trying part. Now that we have tried all four SSRIs, we are still making other adjustments, but this year we are to the point where my son is VERY stable. He is not recovered yet and we have more meds to try, but he is doing pretty well. The " off " days are basically gone. I was so thrilled the other day when his teacher was telling me that he really does well in class most of the time, then gave me a funny look and said " It (meaning the PDD) must be REALLY mild! " . Oh, I could tell her some stories... but I don't think I will. Best of luck! Caroline > On 9/5/03 11:45 AM, " Jerri and Nick Gann " <njgann@...> wrote: > Thanks Caroline I posted this on the Me-list. I hope it helps some people. I > think Dr. Rimland is a great person but his organization is sure pointing > everyone towards chelating. I keep hearing the improvements only work for a > little while, which makes sense if this is a regressive disease and you have > not addressed the main problem. I am so thankful to have found Dr. G before > doing any of the other things I was reading about. I was a little disappointed > at first in not seeing great improvements (with Dr. G)but also realized how > great it was to not have regression. He is really coming a long way. We have > ten steps forward and five back sometimes but he has never gotten worse nor > lost skills. Anyway thanks again. I really enjoy reading everyone posts on > this list. respond. Thanks to all of you that consistantly do that. Jerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 In a message dated 9/5/03 11:59:19 AM Central Daylight Time, njgann@... writes: > I keep hearing the improvements only work for a little while>> Where, besides from Dr. G, have you heard this? Just curious. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 In a message dated 9/5/03 8:33:56 PM Central Daylight Time, beckeric@... writes: > how can chelation work in the long term if you don't improve the > body's ability to self-detox in the first place? >> Good question and one that could also be asked for many of the other immune system aggravators that seem to be affecting so many kids. If you just address one area, you do help the overall body but then when the treatment is removed and the body isn't better balanced, you could relapse. However, I would imagine that as you address several aggravators, the body's burden is lifted and thus can function better on its own (including fighting viruses and other pathogens, detoxifying, absorbing nutrition, etc). > Lets face it, we live in a toxic world, we're all exposed to metals and > chemicals our entire lives-- what keeps chelated kids from accumulating the same > toxins all over again??? > Along the same lines, what keeps a viral affected kid from having the same or another virus attack his body all over again if you remove the viral supressors? Just wondering . Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2003 Report Share Posted September 7, 2003 Bill Walsh at the Preiffer treatment centre is a firm believer in mercury toxicity in autism (when last I looked) but is not a proponent of chelation; his approach is to try to promote the natural toxic metal binding metallothionein biosynthesis. His intention is that the results can be better sustained by this method. I'm not pushing it but responding the point made below. Jon. > how can chelation work in the long term if you don't improve the > body's ability to self-detox in the first place? >> ______________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 Dear Jon, Would you mind explaining to me what the following means? >>>his approach is to try to promote the natural toxic metal binding metallothionein biosynthesis.<<< How would one go about doing this? Thank you, Re: chelation Bill Walsh at the Preiffer treatment centre is a firm believer in mercury toxicity in autism (when last I looked) but is not a proponent of chelation; his approach is to try to promote the natural toxic metal binding metallothionein biosynthesis. His intention is that the results can be better sustained by this method. I'm not pushing it but responding the point made below. Jon. > how can chelation work in the long term if you don't improve the > body's ability to self-detox in the first place? >> ______________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
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