Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 In all honesty, I didn't put a whole lot of faith in the doctor who told us this. He was the same dr. that did nothing about my son's chronic ear infections, which turned out to be a c-toma. I believe that there are many chronic inflammatory diseases and this is a general title that diseases such as Rheumatoid Arthritis and Inflammatory bowel disease and many others fall under. I think he was just looking for a reason for all of his problems. I truly believe all the things that have went on with my son for the past 2-3 years have been because of his c-toma. Since the surgery he has not experienced the problems that caused us to have those tests ran in the first place. So, hopefully we have now found a dr who we can trust and I pray that you are able to do the same for your daughter. Thanks, Athena Hubbert Sue <sueand_chloe@...> wrote: > Hi All, Hope you are all good. Some of you members may remember me > posting last year, hello again and hello to all new members.> Chloe my daughter was diagnosed last august with a c.toma and has > finally got an operation date for 29th Feb.> Really starting to get worried now, and could really do with some > advise, we are in the U.K so under the NHS, an ENT surgeon is > performing her operation.> We go to see her on the 7th Feb for a check and pre-op, can some one > please help me with what questions I need to be asking her, do I need > to be asking her how experienced she is with this type of operation?> Also can someone help me with what risks there can be with it.> Chloe also keeps getting swollen glands in her neck on a regular basic > and then they go down again, has anyone else had this.> > Thanks in advance.> Sue and Chloe> > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.>Hi Athena, Thankyou very much for your reply and advice, have started writing my list ready for next week, everytime I go I forget something to ask.The ENT dr did say last time we saw her in november thaty she thinks Chloe has had the c.toma for years, but did'nt say a definate on that or not and that 2 of the bones were damaged but I need to refresh on all this when we go on the 7th.Can you tell me is this a rare disease as no one has heard of it before?Thanks againSue and Chloe Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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