Re: Re: Hearing loss after Mastoidectomy/Tympanoplasty

[Guest guest]

I agree, it is concerning. I'd get a second opinion as kfoskett5 suggested. Where are you in NC now? I could suggest a few.Good luck, Sent on the Sprint® Now Network from my BlackBerry®From: "kfoskett5" <kfoskett5@...>Sender: cholesteatoma Date: Wed, 02 Mar 2011 22:05:39 -0000<cholesteatoma >Reply cholesteatoma Subject: Re: Hearing loss after Mastoidectomy/Tympanoplasty That would concern me. I would get a second opinion.> > >   > > > > > > My husband has had several surgeries on both ears because of cholesteatoma.  He finally had a canal wall down surgery this past summer.  He has lost much of his hearing from both ears and wears a BAHA on his right side.  It seems like what little hearing he has continues to get worse.  > > > > > > > From: seftonmichelle <seftonmichelle@...>> cholesteatoma > > > Sent: Tue, March 1, 2011 3:48:40 PM> Subject: Hearing loss after Mastoidectomy/Tympanoplasty> > >   > > I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar experience??> > > > > > y>

[Guest guest]

You are lucky. My insurance does not cover hearing aids. I guess they figure they are not "medically" necessary....From: Christenson, <lisa.christenson@...>Subject: Re: Hearing loss after Mastoidectomy/Tympanoplasty"cholesteatoma " <cholesteatoma >Date: Thursday, March 3, 2011, 1:50 PM

In my case, my over the ear hearing aids were mostly covered by insurance, They were $1,500 each, and while my insurance would pay only $100 per ear, my husband’s insurance

would pay $1,000 per ear.

IDQ Companies

[Guest guest]

I live in Cary, NC near Raleigh. If you could recommend someone that would be great! The person I saw was in and out quickly and said everything looked great. Forgot to ask why my hearing is getting worse, and why my noneffected ear was losing hearing. She recommended a hearing aid consult.From: Teague <kbteague@...>Subject: Re: Re: Hearing loss after Mastoidectomy/Tympanoplastycholesteatoma Date: Wednesday, March 2, 2011, 10:59 PM

I agree, it is concerning. I'd get a second opinion as kfoskett5 suggested. Where are you in NC now? I could suggest a few.Good luck, Sent on the Sprint® Now Network from my BlackBerry®From: "kfoskett5" <kfoskett5@...>

Sender: cholesteatoma

Date: Wed, 02 Mar 2011 22:05:39 -0000<cholesteatoma >Reply cholesteatoma

Subject: Re: Hearing loss after Mastoidectomy/Tympanoplasty

That would concern me. I would get a second opinion.

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> My husband has had several surgeries on both ears because of cholesteatoma. He finally had a canal wall down surgery this past summer. He has lost much of his hearing from both ears and wears a BAHA on his right side. It seems like what little hearing he has continues to get worse.Â

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> From: seftonmichelle <seftonmichelle@...>

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> I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar experience??

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[Guest guest]

Dr Pillisbury at Chapel Hill or any of the dr's in the group are excellent if you look up UNC Hospitals then ENT and\or neuorotologist on the site it will take you to a list of their drs. There is another in Raleigh/Durham, that a friend of mine used. I'll get his name or name of his office.Good Luck!Sent on the Sprint® Now Network from my BlackBerry®From: Sefton <seftonmichelle@...>Sender: cholesteatoma Date: Thu, 3 Mar 2011 15:28:36 -0800 (PST)<cholesteatoma >Reply cholesteatoma Subject: Re: Re: Hearing loss after Mastoidectomy/Tympanoplasty I live in Cary, NC near Raleigh. If you could recommend someone that would be great! The person I saw was in and out quickly and said everything looked great. Forgot to ask why my hearing is getting worse, and why my noneffected ear was losing hearing. She recommended a hearing aid consult.From: Teague <kbteague@...>Subject: Re: Re: Hearing loss after Mastoidectomy/Tympanoplastycholesteatoma Date: Wednesday, March 2, 2011, 10:59 PM I agree, it is concerning. I'd get a second opinion as kfoskett5 suggested. Where are you in NC now? I could suggest a few.Good luck, Sent on the Sprint® Now Network from my BlackBerry®From: "kfoskett5" <kfoskett5@...>Sender: cholesteatoma Date: Wed, 02 Mar 2011 22:05:39 -0000<cholesteatoma >Reply cholesteatoma Subject: Re: Hearing loss after Mastoidectomy/Tympanoplasty That would concern me. I would get a second opinion.> > >  > > > > > > My husband has had several surgeries on both ears because of cholesteatoma. He finally had a canal wall down surgery this past summer. He has lost much of his hearing from both ears and wears a BAHA on his right side. It seems like what little hearing he has continues to get worse. > > > > > > > From: seftonmichelle <seftonmichelle@...>> cholesteatoma > > > Sent: Tue, March 1, 2011 3:48:40 PM> Subject: Hearing loss after Mastoidectomy/Tympanoplasty> > >  > > I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar experience??> > > > > > y>

[Guest guest]

Much of what you have written reminds me of my husband. He has had balanced and vertigo problems for some time now. Matter-of-fact, they did find out he had a fistula and repaired it. This did decrease his vertigo but it hasn't gone away totally. He presently isn't working and we aren't sure if he will be able to go back to work.

From: dave705727 <gingertosser2010@...>cholesteatoma Sent: Thu, March 3, 2011 4:33:14 PMSubject: Re: Hearing loss after Mastoidectomy/Tympanoplasty

Iam in the same positon, i had 2 ops last year, one in Jan which didn't destroy much of hearing but some of c-toma was left behind, i had a 2nd op in may which it was all removed, my hearing dropped, but i woke up one morning some 2 weeks after the op to find i had little hearing, being already severly deaf in left, i had nothing at all, profoundly in right now, my balance is bad as my balance organ was damamged, i am constantly off balance, dizzy, worse in cold weather, I am waiting for a BAHA desicion as well. I am finding a quite difficult adjusting to the hearing loss and balance issues, and yes it is hard work, i work full time and trying to do my job to my best and cope with both hearing loss and balance issues is difficult, i keep getting infections in my right ear, got one now, 2nd one in a month, that really drags me down.>> I had a similar problem to yours. I had surgery about 14 months ago in my left > ear. The cholesteatoma was quite extensive and had damaged a lot of the middle > ear and invaded part of the semi-circular canal. After surgery my consultant was > quite surprised that I still had any hearing and although less than > before, I was confident that a hearing aid would help. Then one morning 6 months > after surgery I woke up and had no hearing at all in the damaged ear. Subsequent > audiograms confirmed I had severe sensorineural hearing loss. My consultant told > me the likely cause for this set back was probably related to me becoming more > active and the delicate state of my hearing couldn't be sustained. I am now

in > the process of having a BAHA fitted to help me hear on the left side.> > If all that was not bad enough, the damage to the semi-circular canal left me > very dizzy and even now, after 14 months I am still suffering although to a much > lesser extent.> > Suffering hearing loss at this level is not easy to cope with both mentally and > physically, so I know what you are going through. I really hope your situation > improves.> > > > > ________________________________> From: seftonmichelle <seftonmichelle@...>> cholesteatoma > Sent: Tue, 1 March, 2011 21:48:40> Subject: Hearing loss after Mastoidectomy/Tympanoplasty> > Â > I had

surgery to remove a cholesteatoma about 18 months ago. I had been going to > my surgeon for regular checkups and everything was going well. I did have > hearing loss after the surgery but was told everything looked good. Then we > moved to North Carolina so I had to find a new doctor here, and I went for a > checkup. They did a hearing test and my hearing has gotten worse in both ears. > This doctor told me I have moderate to severe sensorineural hearing loss in my > right ear (the one I had surgery on) and mild to moderate sensorineural hearing > loss in my left ear (never had surgery). My question is, did the surgery cause > this hearing loss? And why am I losing hearing in my other ear?? This new doctor > said she would recommend hearing aids. This is the first time I heard that I > have inner ear hearing loss- I thought it was conductive hearing loss due to the > damage to

the hearing bones by the cholesteatoma. Has anyone else had a similar > experience??> > >

[Guest guest]

I had my sixth c-toma operation just over a month ago.  My hearing is almost zero and I've had BAHA conductive hearing on both sides for close to ten years (they are excellent).  Vertigo problems are something I've had to deal with from time to time.  The vertigo I suffered was caused by temperature change - wind, etc. and I've always been able to treat it by putting cotton in my ear when necessary.

As far as losing hearing in both ears goes, I was originally diagnosed with a c-toma in my right ear and I could hear fine with my left ear until my doctor discovered that a c-toma had disguised itself, and was working as, an eardrum on my left side.  When the c-toma on my left side was removed I lost 100% of my hearing on that side. 

Chronic infections and regular cleaning and treatments are the norm - get used to it.     On Fri, Mar 4, 2011 at 3:46 AM, Christy Dozier <savemoredo@...> wrote:

 

Much of what you have written reminds me of my husband.  He has had balanced and vertigo problems for some time now.  Matter-of-fact, they did find out he had a fistula and repaired it.  This did decrease his vertigo but it hasn't gone away totally.  He presently isn't working and we aren't sure if he will be able to go back to work. 

From: dave705727 <gingertosser2010@...>cholesteatoma

Sent: Thu, March 3, 2011 4:33:14 PMSubject: Re: Hearing loss after Mastoidectomy/Tympanoplasty 

Iam in the same positon, i had 2 ops last year, one in Jan which didn't destroy much of hearing but some of c-toma was left behind, i had a 2nd op in may which it was all removed, my hearing dropped, but i woke up one morning some 2 weeks after the op to find i had little hearing, being already severly deaf in left, i had nothing at all, profoundly in right now, my balance is bad as my balance organ was damamged, i am constantly off balance, dizzy, worse in cold weather, I am waiting for a BAHA desicion as well.

I am finding a quite difficult adjusting to the hearing loss and balance issues, and yes it is hard work, i work full time and trying to do my job to my best and cope with both hearing loss and balance issues is difficult, i keep getting infections in my right ear, got one now, 2nd one in a month, that really drags me down.

>> I had a similar problem to yours. I had surgery about 14 months ago in my left

> ear. The cholesteatoma was quite extensive and had damaged a lot of the middle > ear and invaded part of the semi-circular canal. After surgery my consultant was > quite surprised that I still had any hearing and although less than

> before, I was confident that a hearing aid would help. Then one morning 6 months > after surgery I woke up and had no hearing at all in the damaged ear. Subsequent > audiograms confirmed I had severe sensorineural hearing loss. My consultant told

> me the likely cause for this set back was probably related to me becoming more > active and the delicate state of my hearing couldn't be sustained. I am now

in > the process of having a BAHA fitted to help me hear on the left side.> > If all that was not bad enough, the damage to the semi-circular canal left me > very dizzy and even now, after 14 months I am still suffering although to a much

> lesser extent.> > Suffering hearing loss at this level is not easy to cope with both mentally and > physically, so I know what you are going through. I really hope your situation > improves.

> > > > > ________________________________> From: seftonmichelle <seftonmichelle@...>> cholesteatoma

> Sent: Tue, 1 March, 2011 21:48:40> Subject: Hearing loss after Mastoidectomy/Tympanoplasty> >   > I had

surgery to remove a cholesteatoma about 18 months ago. I had been going to > my surgeon for regular checkups and everything was going well. I did have > hearing loss after the surgery but was told everything looked good. Then we

> moved to North Carolina so I had to find a new doctor here, and I went for a > checkup. They did a hearing test and my hearing has gotten worse in both ears. > This doctor told me I have moderate to severe sensorineural hearing loss in my

> right ear (the one I had surgery on) and mild to moderate sensorineural hearing > loss in my left ear (never had surgery). My question is, did the surgery cause > this hearing loss? And why am I losing hearing in my other ear?? This new doctor

> said she would recommend hearing aids. This is the first time I heard that I > have inner ear hearing loss- I thought it was conductive hearing loss due to the > damage to

the hearing bones by the cholesteatoma. Has anyone else had a similar > experience??> > >

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