Re: new on here, son dianosed at 3 months, when will it start getting better?

[Guest guest]

Anita, what type of dwarfism does your family have already?

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From: Anita <anitavarrassi@...>

dwarfism

Sent: Thu, April 21, 2011 10:43:45 AM

Subject: new on here, son dianosed at 3 months, when will it start

getting better?

 

during my entire pregnancy I kept tell the doc something is wrong, this was my

2nd preg and was just told that everyones different. didnt feel him kick until I

was 25 weeks; kept doing sonos/stress tests because he was just so lathargic,

and small. docs didnt know why and had me coming in every week. at 35 weeks i

didnt feel him move and just knew something was wrong went to doc, and they

thought he was just sleeping or something. did stress test at hospital after

getting fluids and he failed didnt move enough. so they gave me shots and

delivered me in the morning which made me 36 weeks. he was small when born 6.8

lbs but only 16 " and 12 cm head. in the hospital he went to 6 lbs 3 days after

he got out was to 5lbs and was hospitalized again. my family all said that they

thought he was going to be a dwarf. (my mom, grandma, and 3 aunts are dwarfs) he

is gaining weight weighs 9 lbs now but hes not growing taller now 19 " at 4

months he is still in the less than 1% (doc looked it up) because of that doc

has predianosed him with dwarfism but wants to wait until 6 months to do test to

know for sure.

now this is the part that i need help with:

he can do everything a 4 month old can except push up when on his tummy or grab

things he plays with everything tight fisted. but he loves to sit up in your lap

or in the carts at the store. but when we do that then everyone just stares; i

even had people come up to me and tell me that I was abusing my newborn (ne one

that spends time with him can tell that hes no newborn) even after I tell them

he has dwarfism then they are just mean and act like im lieing. I even had

someone call the COPS on me in the grocery store. even when i told the cops then

they had to call my doc to make sure. what should i do in those situations?

also should i not have him ride in the shopping cart anymore? even though he

loves it. we have tried the stroller but if i sit it up i have the same thing

happen.

plz just any advice would help.

thanks

anita