Guest guest Posted June 6, 2011 Report Share Posted June 6, 2011 Hi. I know what you are going through. I just had my 2nd surgery for cholesteatoma removal and just had a canal wall down on march 1st. I highly recommend s hopkins. They have been voted #1 for their ENT doctors and I love it there. I have been a patient there for almost 4 years and I see Dr. Limb. He specializes in this area and is very well known. If you would like any more information please let me know I can try to help the best I can and will send you his receptionists number if you like. On Mon Jun 6th, 2011 5:50 PM EDT MattS wrote: >Hi everyone, >I was recently tentatively diagnosed by my local ENT with a cholesteatoma in my left ear. I am going for a CAT scan in two weeks to confirm. My ENT doesn't handle cholesteatomas and told me I would have to see an ENT who specializes in this type of surgery. I have already had 2 surgeries in my left ear (both tympanoplasties). > >My question is... who is the top doctor in the mid-atlantic (DC/VA/MD/PA/NJ etc) for cholesteatoma surgeries? I am only 1.5 hours from s Hopkins or University of Pennsylvania so those are my top two academic hospitals. Has anyone had experience with surgeons at these hospitals? > >I really want this to be taken care of correctly and completely to avoid any more surgeries and try to preserve my haering. I am sure many of you have been through this, so any advice is appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 Hi Matt, I had 2 surgeries (one in each ear) at University of Penn (one was a CWD). Dr. Bigelow performed both surgeries. I highly recommend him. Here is his info: http://www.pennmedicine.org/wagform/MainPage.aspx?config=provider & P=PP & ID=853 Let me know if you have any other questions. Have a wonderful afternoon. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 My son had surgery at CHOP and had Dr Bigelow. He came highly recommended by our local ENT.Ask me any questions, and I will help if I can.My best,DianeOn Tue, Jun 7, 2011 at 3:24 PM, megsalladino <megoslee@...> wrote: Hi Matt, I had 2 surgeries (one in each ear) at University of Penn (one was a CWD). Dr. Bigelow performed both surgeries. I highly recommend him. Here is his info: http://www.pennmedicine.org/wagform/MainPage.aspx?config=provider & P=PP & ID=853 Let me know if you have any other questions. Have a wonderful afternoon. Meg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2011 Report Share Posted June 7, 2011 Matt, I am a patient at JHU under Micheal Holliday. I have had only one surgery, in April 2007. I just had a follow up and still am c-toma free. I would HIGHLY recommend contacting his office to get an appointment. I too drive 1.5-2 hours to see him, I live in NoVA. Worth the drive.500 -Nate From: MattS <mshow81@...>cholesteatoma Sent: Mon, June 6, 2011 5:50:35 PMSubject: Recommend surgeon at s Hopkins? Or University of PA? Hi everyone, I was recently tentatively diagnosed by my local ENT with a cholesteatoma in my left ear. I am going for a CAT scan in two weeks to confirm. My ENT doesn't handle cholesteatomas and told me I would have to see an ENT who specializes in this type of surgery. I have already had 2 surgeries in my left ear (both tympanoplasties).My question is... who is the top doctor in the mid-atlantic (DC/VA/MD/PA/NJ etc) for cholesteatoma surgeries? I am only 1.5 hours from s Hopkins or University of Pennsylvania so those are my top two academic hospitals. Has anyone had experience with surgeons at these hospitals? I really want this to be taken care of correctly and completely to avoid any more surgeries and try to preserve my haering. I am sure many of you have been through this, so any advice is appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 Could you provid the phone and address of Dr. Holliday? Thanks ruth From: Wann <nwann_2000@...>cholesteatoma Sent: Wed, June 8, 2011 3:29:02 AMSubject: Re: Recommend surgeon at s Hopkins? Or University of PA? Matt, I am a patient at JHU under Micheal Holliday. I have had only one surgery, in April 2007. I just had a follow up and still am c-toma free. I would HIGHLY recommend contacting his office to get an appointment. I too drive 1.5-2 hours to see him, I live in NoVA. Worth the drive.500 -Nate From: MattS <mshow81@...>cholesteatoma Sent: Mon, June 6, 2011 5:50:35 PMSubject: Recommend surgeon at s Hopkins? Or University of PA? Hi everyone, I was recently tentatively diagnosed by my local ENT with a cholesteatoma in my left ear. I am going for a CAT scan in two weeks to confirm. My ENT doesn't handle cholesteatomas and told me I would have to see an ENT who specializes in this type of surgery. I have already had 2 surgeries in my left ear (both tympanoplasties).My question is... who is the top doctor in the mid-atlantic (DC/VA/MD/PA/NJ etc) for cholesteatoma surgeries? I am only 1.5 hours from s Hopkins or University of Pennsylvania so those are my top two academic hospitals. Has anyone had experience with surgeons at these hospitals? I really want this to be taken care of correctly and completely to avoid any more surgeries and try to preserve my haering. I am sure many of you have been through this, so any advice is appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2011 Report Share Posted June 9, 2011 http://www.hopkinsmedicine.org/otolaryngology/our_team/faculty/holliday.html From: Ruth Silver <amitai7129@...>; To: <cholesteatoma >; Subject: Re: Recommend surgeon at s Hopkins? Or University of PA? Sent: Thu, Jun 9, 2011 7:31:58 PM Could you provid the phone and address of Dr. Holliday? Thanks ruth From: Wann <nwann_2000@...>cholesteatoma Sent: Wed, June 8, 2011 3:29:02 AMSubject: Re: Recommend surgeon at s Hopkins? Or University of PA? Matt, I am a patient at JHU under Micheal Holliday. I have had only one surgery, in April 2007. I just had a follow up and still am c-toma free. I would HIGHLY recommend contacting his office to get an appointment. I too drive 1.5-2 hours to see him, I live in NoVA. Worth the drive.500 -Nate From: MattS <mshow81@...>cholesteatoma Sent: Mon, June 6, 2011 5:50:35 PMSubject: Recommend surgeon at s Hopkins? Or University of PA? Hi everyone, I was recently tentatively diagnosed by my local ENT with a cholesteatoma in my left ear. I am going for a CAT scan in two weeks to confirm. My ENT doesn't handle cholesteatomas and told me I would have to see an ENT who specializes in this type of surgery. I have already had 2 surgeries in my left ear (both tympanoplasties).My question is... who is the top doctor in the mid-atlantic (DC/VA/MD/PA/NJ etc) for cholesteatoma surgeries? I am only 1.5 hours from s Hopkins or University of Pennsylvania so those are my top two academic hospitals. Has anyone had experience with surgeons at these hospitals? I really want this to be taken care of correctly and completely to avoid any more surgeries and try to preserve my haering. I am sure many of you have been through this, so any advice is appreciated. Quote Link to comment Share on other sites More sharing options...
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