Liam Larrow passes on :( . He had Hurler Syndrome

[Guest guest]

I felt this little guy deserved his own post and remembrance.

He had Hurler syndrome, and he unfortunately lost his battle with it

due to complications that arose from a bone marrow transplant that

many if not all(?) need to stay alive and thrive.

He was 1 years old.

http://www.theledger.com/article/20080927/news/809270346 & tc=

Once on news article, check out his family's own website for Liam,

it is beautiful, informative and of course now, sad.

Or click from here as well:

http://www.caringbridge.org/visit/liamlarrow

One of the characteristics is short stature, depending on the severity

of the one who has this condition. I do know that a few or many(?)

with it, including the (ap) parents, are also members of

this group and.or of the LPA.

Hurler Syndrome MPS I and its definition here:

http://rarediseases.about.com/od/rarediseasesh/a/hurler.htm

luv, and rip Liam, grady