RE: pregnant and just diagnosed

[Guest guest]

I don't know about pushing but you really don't have a choice, you know what I mean? I have these lovely tumors in BOTH ears and have only had ONE surgery It has been SO LONG since I had that ONE surgery and I haven't had health insurance since. My ears ring SO loud now it is absolutely annoying. I say it would be up to you on whether you wait or not, but if the doctor recommends you go in ASAP I would do it? Your life isn't ruined honey, you just learn to either accept what you have or you let it control you. Just take it one day at a time. HUGS

> cholesteatoma > From: janelleschnulle@...> Date: Sat, 29 Jan 2011 01:41:17 +0000> Subject: pregnant and just diagnosed> > hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.> > > > ------------------------------------> >

[Guest guest]

I can assure u, there will be no problem due to pregnancy or in pregnancy due to C Toma

On Sat, Jan 29, 2011 at 10:29 AM, ph <faithfuljsj778@...> wrote:

 

I don't know about pushing but you really don't have a choice, you know what I mean? I have these lovely tumors in BOTH ears and have only had ONE surgery It has been SO LONG since I had that ONE surgery and I haven't had health insurance since. My ears ring SO loud now it is absolutely annoying. I say it would be up to you on whether you wait or not, but if the doctor recommends you go in ASAP I would do it? Your life isn't ruined honey, you just learn to either accept what you have or you let it control you. Just take it one day at a time. HUGS

  > cholesteatoma > From: janelleschnulle@...

> Date: Sat, 29 Jan 2011 01:41:17 +0000> Subject: pregnant and just diagnosed> > hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.

> > > > ------------------------------------> >

[Guest guest]

Dear Janelle,I think your doctor has given you some good advice - to wait a couple of months after the baby arrives and then go ahead with the surgery.  I've had six CT operations (three per side) and two more for BAHA hearing implants.  The longest I was ever laid up was a few (3)days.  Once your new baby is a couple of months old it will do you good to stay in bed for a few days and have someone take care of YOU.  It's a hassle but it's not going to ruin your life by any stretch.  Following my last surgery I discovered that I was allergic to codeine (made me itchy) and I couldn't get in a different prescription over the weekend - so I took regular Tylenol and did just fine.  

JDOn Fri, Jan 28, 2011 at 5:41 PM, janelleschnulle <janelleschnulle@...> wrote:

 

hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.

-- Note New Email Address:jamie.davis1958@...cell: 780-203-3371Office: 250-756-2225

[Guest guest]

Please keep us posted on what happens! I had eight of these surgeries in my 20s and my last one was 15 years ago. I actually have a blog if you’d like to read my story at

http://lisaceardisease.blogspot.com my story will show how even after 8 surgeries I have a really great normal life and that the few results of me having the cholesteatoma in both ears, such as hearing aids

, biannual ear cleanings, and a bit of motion sickness in certain situations is not going to take over my life! I wish you the best of luck with your pregnancy and new birth. You can’t worry about the surgery and think the worst, because you don’t know the

extent of the surgery until it’s over and they tell you what they found and got out. The recovery will be as difficult as if you had any other surgery with a newborn and four other children at home. People will have to help you a great deal for the first week

of recovery or so because having surgery and recovering is tiring. But, some people don’t have much pain after surgery if they keep up with the pain meds, and others actually feel better after the surgery than they did before. Everyone is different so the

best thing to do is try to keep a positive attitude. The BEST part of the whole thing is having it taken care of through surgery because you DON’T want to leave cholesteatoma in there! Please keep in touch with the people in this group as we are a huge assortment

of cholesteatoma sufferers with a ton of experience and you are not alone!

Take care,

IDQ Companies

[Guest guest]

Hi there - Let me 1st apologize for the extensive email. The condition is as extensive as the stories

I have been following and reading these post for quite sometime and this is the first time I feel I should respond and tell my story. It is so similiar to yours!! I had complained of earaches, fullness, dizziness for most of my teenage years - Multiple docs throughout the years diagnosing me with everything from MVP, hypoglecemia, stress ( you name it )... I started working as an office manager for an ENT in 2000 that I had known for some time and at the time I was 5 months preg. with my 2nd child ( and celebrating my oldest daughters 1st bday ) I had always knew something was wrong but I could just not figure out what it was... After the birth of my 2nd daughter ( while on maternity leave ) I as walking through the mall ( with both babies in a stroller ) and almost passed out. It felt like my vision went black.. It scared me so bad I called the ENT I worked for on his cellphone crying and told him "something is wrong"... He told me to

come in right away and as soon as he looked in my ear he could not believe - He said " you have a huge cholesteatoma and we need to do immediate surgery ".. 2 days later I was in preop with the same fears you are currently having, will I be ok? Can I take care of the babies? How bad will the pain be? etc etc.. Rest assured ~ You will be FINE!! This tumor had wrapped around my facial nerve, destroyed all of the bones in my ear - My ENT was my angel - He went in behind my ear- removed the tumor and stapled me up. The surgery took approx 4 hours and I was in recovery for an hour or two then sent home. It is important to rest and take good care of the packing - within 3-5 days you should be able to return to semi normal... I know with a baby nothing is normal.. I kept the baby in a high pack n play so I did not have to lean over and thankfully my oldest was mastering climbing on the couch to sit with me my while I fed the

baby.. I know it seems ovewhelming right now but please know- It will all work out )

In 2002 I was back in for my 2nd surgery because my eardrum collapsed - I had moved and let a different ENT do this surgery ( big mistake ) he placed a TE tube and removed some residue of a tumor..

2004 - I knew something was going on ( it was so strange, my body just knew ) I thought I better go back to the 1st ENT - No matter how far I need to drive! He was not happy with me because after your 1st surgery you SHOULD go back within the next year for an explotitory to see how things look ( which I neglected to do ).. I will not lie, I dreaded doing that surgery again and hoped the problem would just go away!!

It didn't and I sincerely regret not following his instrustions ~ The tumor was back for a 3rd time and just as bad as the 1st. This time was another 4 hour surgery - however this time I had to stay in the hospital one night. Mind you - I did not know the extend so when I went under the ENT was just doing a simple exploritory surgery and I woke up in a room with a head full of terrible pain.... This time canal wall down, removal of the tumor ( facial nerve again ) and he opened the canal just a little for easier access to the mastoid for cleaning.The recover was not to bad, I had the kids ( 4 & 3 ) and my husband had to go back to work after 2 days so I was left alone. He made up lunches and drinks and put them on the bottom shelf of the frig and the girls grabbed them while I layed on the couch and watched over things..Within a week I was again, functioning as normal. I did not take pain meds for either surgery they made me feel to loppy

and with the kids I did not want to be out of it.. So I just took motrin / tylenol. I can honestly say, I do not remember the pain being to much to handle. The doc did give me dipositories for nausea and I only used them the DAY of my surgery, he also gave volium for the dizziness - I am a whimp so 2 mg was all I could handle and I only took one at bedtime - They do help and to this day if I get a dizzy spell he recommends taking until it subsides.

If I had to give you advice - Find a GREAT doc ( not a good one!! ) Do your research - My ENT was an Otolartngologist/neurologist and my hearing is perfectly fine ( there are a few tones that I have a hard time hearing ) overall my hearing is great. When I have hearing tests now they can hardly believe I have had all of these surgeries! This is a condition that you will always contend with so educate yourself because the docs do not know how YOU will heal or respond. I have spoke with many ENT's on the subject - I do not let water in this ear at all, I use a plug to shower and swim. That is a small price to pay - Also, you have to stay active to maintain your balance - My ENT gave me some vestibular exercises to do - I do recommend them as they do help OR I use the balance board for the WII.

In 2009 I finally had my sinus surgery ( that was always on the list ) to help with the ear as well - Last month I insisted on a CT scan to see how things were going and all is clear ;O) My ENT officially told me -YOU ARE DONE, Stop worrying ( but I still do, and always will )

Keep your head up and stay strong ;o)!!! All will work out and this site is fantastic to listen to the stories and know that you are not alone ! To my fellow cholesteaoma friends - God bless!!

Email me if you need additional support - graves7@...

From: janelleschnulle <janelleschnulle@...>cholesteatoma Sent: Fri, January 28, 2011 8:41:17 PMSubject: pregnant and just diagnosed

hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I

wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.

[Guest guest]

Everyone's experience is different though. I was on the couch for two weeks straight and only got up to use the bathroom due to excessive pain. I came home after surgery but ended up back in the hospital for 2 nights for IV pain meds because the pain was absolutely unbelievable. Althought I believe the ENT doctor I had didn't know what he was doing and messed me up. That is why I will have an Otologist do it next time. Not trying to scare you but everyone's situation IS different.

cholesteatoma From: jamie.davis1958@...Date: Fri, 28 Jan 2011 22:29:36 -0800Subject: Re: pregnant and just diagnosed

Dear Janelle,

I think your doctor has given you some good advice - to wait a couple of months after the baby arrives and then go ahead with the surgery. I've had six CT operations (three per side) and two more for BAHA hearing implants. The longest I was ever laid up was a few (3)days. Once your new baby is a couple of months old it will do you good to stay in bed for a few days and have someone take care of YOU. It's a hassle but it's not going to ruin your life by any stretch. Following my last surgery I discovered that I was allergic to codeine (made me itchy) and I couldn't get in a different prescription over the weekend - so I took regular Tylenol and did just fine.

JD

On Fri, Jan 28, 2011 at 5:41 PM, janelleschnulle <janelleschnulle@...> wrote:

hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.

-- Note New Email Address:jamie.davis1958@...cell: 780-203-3371Office: 250-756-2225

[Guest guest]

If pain is so persistent, there can be some thing serious.

ENT doctor always knows what he did. Perhaps there is retained pus, waiting for drainage??

Good luck.

Any headache or vomiting?

Dr. Arun

On Sun, Jan 30, 2011 at 8:47 AM, ph <faithfuljsj778@...> wrote:

 

Everyone's experience is different though. I was on the couch for two weeks straight and only got up to use the bathroom due to excessive pain. I came home after surgery but ended up back in the hospital for 2 nights for IV pain meds because the pain was absolutely unbelievable. Althought I believe the ENT doctor I had didn't know what he was doing and messed me up. That is why I will have an Otologist do it next time. Not trying to scare you but everyone's situation IS different.

 

cholesteatoma From: jamie.davis1958@...Date: Fri, 28 Jan 2011 22:29:36 -0800

Subject: Re: pregnant and just diagnosedDear Janelle, I think your doctor has given you some good advice - to wait a couple of months after the baby arrives and then go ahead with the surgery.  I've had six CT operations (three per side) and two more for BAHA hearing implants.  The longest I was ever laid up was a few (3)days.  Once your new baby is a couple of months old it will do you good to stay in bed for a few days and have someone take care of YOU.  It's a hassle but it's not going to ruin your life by any stretch.  Following my last surgery I discovered that I was allergic to codeine (made me itchy) and I couldn't get in a different prescription over the weekend - so I took regular Tylenol and did just fine.  

JD

On Fri, Jan 28, 2011 at 5:41 PM, janelleschnulle <janelleschnulle@...> wrote:

 

hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.

-- Note New Email Address:jamie.davis1958@...

cell: 780-203-3371Office: 250-756-2225

[Guest guest]

Just to add to what the other's have said I would strongly advise against an early induction of labour (I am a certified doula), as this is very likely to result ina  failed induction and require a Caesarian which is not going to help your situation.

Unless your c-toma requires very urgent attention rather wait till after baby is born and breastfeeding is well established and you can express a couple of day's feeds and then do the surgery. With some help for baby and you for a few days you should be fine.

On 30 January 2011 08:17, Arun Gupta <drarunjind@...> wrote:

 

If pain is so persistent, there can be some thing serious.

ENT doctor always knows what he did. Perhaps there is retained pus, waiting for drainage??

Good luck.

Any headache or vomiting?

Dr. Arun

On Sun, Jan 30, 2011 at 8:47 AM, ph <faithfuljsj778@...> wrote:

 

Everyone's experience is different though. I was on the couch for two weeks straight and only got up to use the bathroom due to excessive pain. I came home after surgery but ended up back in the hospital for 2 nights for IV pain meds because the pain was absolutely unbelievable. Althought I believe the ENT doctor I had didn't know what he was doing and messed me up. That is why I will have an Otologist do it next time. Not trying to scare you but everyone's situation IS different.

 

cholesteatoma From: jamie.davis1958@...Date: Fri, 28 Jan 2011 22:29:36 -0800

Subject: Re: pregnant and just diagnosedDear Janelle, I think your doctor has given you some good advice - to wait a couple of months after the baby arrives and then go ahead with the surgery.  I've had six CT operations (three per side) and two more for BAHA hearing implants.  The longest I was ever laid up was a few (3)days.  Once your new baby is a couple of months old it will do you good to stay in bed for a few days and have someone take care of YOU.  It's a hassle but it's not going to ruin your life by any stretch.  Following my last surgery I discovered that I was allergic to codeine (made me itchy) and I couldn't get in a different prescription over the weekend - so I took regular Tylenol and did just fine.  

JD

On Fri, Jan 28, 2011 at 5:41 PM, janelleschnulle <janelleschnulle@...> wrote:

 

hi everyone, I was just diagnosed this past tuesday after problems with hearing loss/ fullness, and recently very bad earache. The dr pulled what looked like a jagged tooth out of my eardrum in his office, and told me I needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant). Two days later he inserted a tube for (hopefully) temporary relief of pain and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing its been growing since then. I am having the CT day after I deliver baby. He said I could wait a few months after baby is born unless I still continue to have pain- then I need it asap after baby. My husband and family think I should go ahead and get the surgery over with asap after baby born either way. Any advice? My concern is being able to breastfeed and care for a newborn, wake up every few hours, etc... AND deal with the pain and other issues from surgery. (although I will have family help at home.) If I wait until baby is 3 months old, it'll then be almost summer, and the two children I have in school part time will also be at home full time. I have 4 YOUNG children and another that'll be here in a few weeks. This really sucks. I'm trying not to be depressed, but feel like this is just gonna ruin my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to see if baby's lungs are mature enough for me to be induced then. (since I'm not sleeping much due to the pain, etc..) Does anyone know if I can even push during labor? sigh......... thanks in advance, glad there is a group like this.

-- Note New Email Address:jamie.davis1958@...

cell: 780-203-3371Office: 250-756-2225

[Guest guest]

Thanks Dr Arun. The pain is better since the tube was put in, it mainly only

bothers me at night now. No headache or vomiting, mainly just fullness, some

dizziness, nausea and it sounds like there is a locust in my ear- soft high

pitch ringing combined with ocean waves. The thing I don't understand is why it

seems I am the only one who NEVER had any drainage that is supposed to be the

tell-tell sign of this disease. My eardrum perforation was 10 years ago, so its

probably been growing that long. (and was perforated again when he pulled some

out of the eardrum)

> >

> >

> > hi everyone, I was just diagnosed this past tuesday after problems with

> > hearing loss/ fullness, and recently very bad earache. The dr pulled what

> > looked like a jagged tooth out of my eardrum in his office, and told me I

> > needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant).

> > Two days later he inserted a tube for (hopefully) temporary relief of pain

> > and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing

> > its been growing since then. I am having the CT day after I deliver baby. He

> > said I could wait a few months after baby is born unless I still continue to

> > have pain- then I need it asap after baby. My husband and family think I

> > should go ahead and get the surgery over with asap after baby born either

> > way. Any advice? My concern is being able to breastfeed and care for a

> > newborn, wake up every few hours, etc... AND deal with the pain and other

> > issues from surgery. (although I will have family help at home.) If I wait

> > until baby is 3 months old, it'll then be almost summer, and the two

> > children I have in school part time will also be at home full time. I have 4

> > YOUNG children and another that'll be here in a few weeks. This really

> > sucks. I'm trying not to be depressed, but feel like this is just gonna ruin

> > my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to

> > see if baby's lungs are mature enough for me to be induced then. (since I'm

> > not sleeping much due to the pain, etc..) Does anyone know if I can even

> > push during labor? sigh......... thanks in advance, glad there is a group

> > like this.

> >

> >

> >

> >

> >

> > --

> >

> > Note New Email Address:

> > jamie.davis1958@...

> > cell: 780-203-3371

> > Office: 250-756-2225

> >

> >

> >

> >

>

[Guest guest]

I also had no drainage. My eardrum was perforated for

approximately 20 years before the c-toma was found. When the perforation first

occurred I was sent to see an ear specialist and he said nothing could be done

about the perforation, as he figured surgery would not work. He didn’t

warn me that it could lead to c-toma in the future. I wish I had known

then…….

[Guest guest]

You aren't the only one...my 7-year old daughter has had a perfed eardrum for close to 2 years and is having cholesteatoma surgery in April. We only found out about it because her annual hearing test was markedly worse than last year's, then CT confirmed the reason. Other than that, no symptoms at all. On Feb 15, 2011, at 2:52 PM, janelleschnulle wrote:Thanks Dr Arun. The pain is better since the tube was put in, it mainly only bothers me at night now. No headache or vomiting, mainly just fullness, some dizziness, nausea and it sounds like there is a locust in my ear- soft high pitch ringing combined with ocean waves. The thing I don't understand is why it seems I am the only one who NEVER had any drainage that is supposed to be the tell-tell sign of this disease. My eardrum perforation was 10 years ago, so its probably been growing that long. (and was perforated again when he pulled some out of the eardrum)> >> >> > hi everyone, I was just diagnosed this past tuesday after problems with> > hearing loss/ fullness, and recently very bad earache. The dr pulled what> > looked like a jagged tooth out of my eardrum in his office, and told me I> > needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant).> > Two days later he inserted a tube for (hopefully) temporary relief of pain> > and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing> > its been growing since then. I am having the CT day after I deliver baby. He> > said I could wait a few months after baby is born unless I still continue to> > have pain- then I need it asap after baby. My husband and family think I> > should go ahead and get the surgery over with asap after baby born either> > way. Any advice? My concern is being able to breastfeed and care for a> > newborn, wake up every few hours, etc... AND deal with the pain and other> > issues from surgery. (although I will have family help at home.) If I wait> > until baby is 3 months old, it'll then be almost summer, and the two> > children I have in school part time will also be at home full time. I have 4> > YOUNG children and another that'll be here in a few weeks. This really> > sucks. I'm trying not to be depressed, but feel like this is just gonna ruin> > my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to> > see if baby's lungs are mature enough for me to be induced then. (since I'm> > not sleeping much due to the pain, etc..) Does anyone know if I can even> > push during labor? sigh......... thanks in advance, glad there is a group> > like this.> >> >> >> >> >> > --> > > > Note New Email Address:> > jamie.davis1958@...> > cell: 780-203-3371> > Office: 250-756-2225> >> >> > > >>

[Guest guest]

Hi Janelle,

I didn't have drainage from my ear either. In fact, I went for a follow up visit to a new doctor because my excellent doctor moved to Stanford in California - the new doctor said I only need to come back if I have drainage from my ear or lose hearing . . . guess what . . . he will never see me again - I didn't have either symptom before the cholesteatoma was discovered what makes him think I will now. It would be nice if doctors would read your chart before they start blabbering words. Hope you are getting better every day!

From: janelleschnulle <janelleschnulle@...>cholesteatoma Sent: Tue, February 15, 2011 1:52:29 PMSubject: Re: pregnant and just diagnosed

Thanks Dr Arun. The pain is better since the tube was put in, it mainly only bothers me at night now. No headache or vomiting, mainly just fullness, some dizziness, nausea and it sounds like there is a locust in my ear- soft high pitch ringing combined with ocean waves. The thing I don't understand is why it seems I am the only one who NEVER had any drainage that is supposed to be the tell-tell sign of this disease. My eardrum perforation was 10 years ago, so its probably been growing that long. (and was perforated again when he pulled some out of the eardrum)> >> >> > hi everyone, I was just diagnosed this past tuesday after problems with> > hearing loss/ fullness, and recently very bad earache. The dr pulled what> > looked like a jagged tooth out of my eardrum in his office, and told me I> > needed a CT and surgery after delivery of my baby. (I am 35 weeks pregnant).> > Two days later he inserted a tube for (hopefully) temporary relief of pain> > and fluid. I had a severe perforation of eardrum 10 yrs ago so I'm guessing> > its been growing since then. I am having the CT day after I deliver baby. He> > said I could

wait a few months after baby is born unless I still continue to> > have pain- then I need it asap after baby. My husband and family think I> > should go ahead and get the surgery over with asap after baby born either> > way. Any advice? My concern is being able to breastfeed and care for a> > newborn, wake up every few hours, etc... AND deal with the pain and other> > issues from surgery. (although I will have family help at home.) If I wait> > until baby is 3 months old, it'll then be almost summer, and the two> > children I have in school part time will also be at home full time. I have 4> > YOUNG children and another that'll be here in a few weeks. This really> > sucks. I'm trying not to be depressed, but feel like this is just gonna ruin> > my life, and my poor kids' lives. My OB wants to do an amnio at 37 weeks to> > see if baby's lungs are

mature enough for me to be induced then. (since I'm> > not sleeping much due to the pain, etc..) Does anyone know if I can even> > push during labor? sigh......... thanks in advance, glad there is a group> > like this.> >> >> >> >> >> > --> > > > Note New Email Address:> > jamie.davis1958@...> > cell: 780-203-3371> > Office: 250-756-2225> >> >> > > >>