Re: Single Sided Deafness

[Guest guest]

Hi Sue,

Sorry to hear what you are going through. My husband has zero hearing in one ear and very little in the other. He had a BAHA implant last year, which helped some. Now that his hearing has decreased in left ear, it's not working as well. He has vertigo and balance issues often and has had them for a long time. I even notice when he is driving, he has a difficult time when he turns his head. This was never an issue until he had so many surgeries--mastoidectomy and canal wall down. He has had cholosteaotoma's in both ears. He also had a fistula in one ear which caused extreme vertigo. It took many months to figure out this problem. He hasn't worked in over one year.

From: Sue Bundy <sue_bndy@...>cholesteatoma Sent: Sun, March 6, 2011 9:52:13 AMSubject: Single Sided Deafness

After my mastoidectomy op recently done I have zero hearing on one side. I was told to expect some balance issues but have found that I feel almost sick as well as a feeling of being 'not quite here' I find it hard to explain that feeling of being in a cloud almost.I'm finding it hard to locate where a person is when they talk to me if they are not in eyesight and having farm animals it's all proving quite a challange.Does anyone know if this strange feeling will improve or is this it? Will I get to feel normal again? I'm getting worried and a bit depressed at my slow progress back to full health.Sue.

[Guest guest]

Hi, sue,

My daughter has no conductive hearing on one side and the problems we have are what you describe. She cannot locate the sound unless she is seeing the source, ie moving cars, etc...she also has a very hard time if there is a lot of background noise. We got her a hearing aid, and that makes a huge difference. Her nerves are all still good, so the amplification of sound is just what she needs. Your hearing is not likely to come back on its own, but if it is only conductive loss, there are some good results from the titanium implant that will replace missing ossicles. She did very well with this, but two were removed because of unrelated ctoma regrowth, and the last one never really took off.

 

Best wishes,

On Sun, Mar 6, 2011 at 3:25 PM, Christy Dozier <savemoredo@...> wrote:

Hi Sue,

 

Sorry to hear what you are going through.  My husband has zero hearing in one ear and very little in the other.  He had a BAHA implant last year, which helped some.  Now that his hearing has decreased in left ear, it's not working as well.  He has vertigo and balance issues often and has had them for a long time.  I even notice when he is driving, he has a difficult time when he turns his head.  This was never an issue until he had so many surgeries--mastoidectomy and canal wall down.  He has had cholosteaotoma's in both ears.  He also had a fistula in one ear which caused extreme vertigo.  It took many months to figure out this problem.  He hasn't worked in over one year. 

From: Sue Bundy <sue_bndy@...>cholesteatoma

Sent: Sun, March 6, 2011 9:52:13 AMSubject: Single Sided Deafness

 

After my mastoidectomy op recently done I have zero hearing on one side. I was told to expect some balance issues but have found that I feel almost sick as well as a feeling of being 'not quite here' I find it hard to explain that feeling of being in a cloud almost.

I'm finding it hard to locate where a person is when they talk to me if they are not in eyesight and having farm animals it's all proving quite a challange.Does anyone know if this strange feeling will improve or is this it?

Will I get to feel normal again? I'm getting worried and a bit depressed at my slow progress back to full health.Sue.

[Guest guest]

>

> >

> >

> > Hi Sue,

> >

> > Sorry to hear what you are going through. My husband has zero hearing in

> > one ear and very little in the other. He had a BAHA implant last year,

> > which helped some. Now that his hearing has decreased in left ear, it's not

> > working as well. He has vertigo and balance issues often and has had them

> > for a long time. I even notice when he is driving, he has a difficult time

> > when he turns his head. This was never an issue until he had so many

> > surgeries--mastoidectomy and canal wall down. He has had cholosteaotoma's

> > in both ears. He also had a fistula in one ear which caused extreme

> > vertigo. It took many months to figure out this problem. He hasn't worked

> > in over one year.

> >

> > ------------------------------

> >

Oh dear, it sounds like it's pretty much it then. I have no chance of any

repair work to get my hearing back in that ear, it was such a mess inside when

they did the mastoidectomy, previously I had a C/Toma removed and had some

hearing in that ear but really notice the difference now of no hearing, such a

difference too.

I guess I will have to adjust my life to suit this then.

I take a drug called Cyclizine which helps the nausia, I am beginning to lose my

confidence about everyday life at the moment. How anyone could contemplate work

feeling like this is beyond me, I haven't even tried to drive since my op 3

weeks ago.

Thanks for you input it all helps build a picture.

Sue

[Guest guest]

If you are only three weeks out, don't give up hope yet. Sometimes there is packing inside that affects hearing. I imagine that you will have an audiogram at some point that will show exactly what your hearing loss is. Many people lose the dizziness and nasuea over time, too. Give your body time to heal a little more before you get too stressed!

On Sun, Mar 6, 2011 at 4:24 PM, Sue Bundy <sue_bndy@...> wrote:

>> >> >> >  Hi Sue,> >> > Sorry to hear what you are going through.  My husband has zero hearing in

> > one ear and very little in the other.  He had a BAHA implant last year,> > which helped some.  Now that his hearing has decreased in left ear, it's not> > working as well.  He has vertigo and balance issues often and has had them

> > for a long time.  I even notice when he is driving, he has a difficult time> > when he turns his head.  This was never an issue until he had so many> > surgeries--mastoidectomy and canal wall down.  He has had cholosteaotoma's

> > in both ears.  He also had a fistula in one ear which caused extreme> > vertigo.  It took many months to figure out this problem.  He hasn't worked> > in over one year.> >

> >  ------------------------------> >Oh dear, it sounds like it's pretty much it then.  I have no chance of any repair work to get my hearing back in that ear, it was such a mess inside when they did the mastoidectomy, previously I had a C/Toma removed and had some hearing in that ear but really notice the difference now of no hearing, such a difference too.

I guess I will have to adjust my life to suit this then.I take a drug called Cyclizine which helps the nausia, I am beginning to lose my confidence about everyday life at the moment. How anyone could contemplate work feeling like this is beyond me, I haven't even tried to drive since my op 3 weeks ago.

Thanks for you input it all helps build a picture.Sue------------------------------------

[Guest guest]

>

> If you are only three weeks out, don't give up hope yet. Sometimes there is

> packing inside that affects hearing. I imagine that you will have an

> audiogram at some point that will show exactly what your hearing loss is.

> Many people lose the dizziness and nasuea over time, too. Give your body

> time to heal a little more before you get too stressed!

>

>

Thanks I am trying not to get too upset! I knew I would lose all hearing on that

side the surgeon did warn me. Only I was quite brave before the op and had no

idea what an effect of absolute no hearing, rather than just a little hearing

from that side would make.

My last op was nothing like this one and I recovered quite quickly, this time

it's been really quite bad for nausia and this feeling of not connecting

anywhere.

I will give myself more time obviously, but hadn't quite realized the impact of

no hearing at all on one side.