Re: T-shirt Idea

[Guest guest]

12 dozen white shirts with colored print is $5.50 per shirt

12 dozen colored shirts with white print is $6.50 per shirt

She says it takes 7 to 10 days to complete. She would ship it for additional

costs...prefers to ship more than 1 shirt so if you only want a few I would be

willing to ship it for you. She did say there was additional costs for shirts

larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a

wonderful idea you had. I am would like to place an order here soon. Let me know

if you are in and want to order.

Jenni

>

> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt

company who does customized shirts. If I can get an idea of colors and how many

I can get a price quote and see if that is something we all want to do. We can

have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or

whatever...I know my family and several friends want to get shirts. So this is

start...just thought I would throw the idea out there. If you are interested let

me know. We could do possibly get shirts in different colors as well...I will

call today and see what the good price break is and if they do shipping. If not

I would be willing to ship them I am in Oregon as long as you pay the shipping

costs.

>

[Guest guest]

I am interested in a T-Shirt

From: <moonshadow2447@...>Subject: T-shirt Ideacholesteatoma Date: Thursday, April 21, 2011, 2:16 PM

I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say "I survived Cholesteatoma" and "I hate Cholesteatoma" or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.------------------------------------

[Guest guest]

I would love to buy one in a girls size 10. Wood On Thu, Apr 21, 2011 at 7:33 AM, <moonshadow2447@...> wrote:

 

12 dozen white shirts with colored print is $5.50 per shirt

12 dozen colored shirts with white print is $6.50 per shirt

She says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order.

Jenni

>

> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.

>

-- Wood

[Guest guest]

How about 'Cholesteatoma is a pain in the ears!'Or 'I'm not ignoring you I have Cholesteatoma'On 21 April 2011 18:37, Teague <kbteague@...> wrote:

 

I am interested and will pay for shipping, I'm in NC and will send my address once we see there is enough interest to order. For shipping, you could do the flat rate small boxes. I've no preference on color, etc.

Thanks for getting this together!Sent on the Sprint® Now Network from my BlackBerry®From: " " <moonshadow2447@...>

Sender: cholesteatoma

Date: Thu, 21 Apr 2011 14:33:49 -0000<cholesteatoma >Reply cholesteatoma

Subject: Re: T-shirt Idea

 

12 dozen white shirts with colored print is $5.50 per shirt

12 dozen colored shirts with white print is $6.50 per shirt

She says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order.

Jenni

>

> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.

>

[Guest guest]

I like the "...pain in the ears!"Sent on the Sprint® Now Network from my BlackBerry®From: Jane Fraser <janefraser101@...>Sender: cholesteatoma Date: Thu, 21 Apr 2011 19:29:39 +0200<cholesteatoma >Reply cholesteatoma Subject: Re: Re: T-shirt Idea How about 'Cholesteatoma is a pain in the ears!'Or 'I'm not ignoring you I have Cholesteatoma'On 21 April 2011 18:37, Teague <kbteague@...> wrote: I am interested and will pay for shipping, I'm in NC and will send my address once we see there is enough interest to order. For shipping, you could do the flat rate small boxes. I've no preference on color, etc.Thanks for getting this together!Sent on the Sprint® Now Network from my BlackBerry®From: " " <moonshadow2447@...>Sender: cholesteatoma Date: Thu, 21 Apr 2011 14:33:49 -0000<cholesteatoma >Reply cholesteatoma Subject: Re: T-shirt Idea 12 dozen white shirts with colored print is $5.50 per shirt12 dozen colored shirts with white print is $6.50 per shirtShe says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order. Jenni>> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.>

[Guest guest]

I hadn't thought of that...so true!! I got a nice chuckle out of

" Cholesteatoma is a pain in the ears " !! We could also design our shirts. Who

knows this might end up being a big hit. We basically need 144 to get the good

price break. I posted it to my Facebook as well because I have friends who are

also battling with cholesteatoma. Hopefully we can get something put together

here. Then for future orders she said they keep the screen and all you have to

do is call up and order more...she even asked me what it was and talked to me

about the group. I thought that was really cool and personable. Jenni

> > >

> > > I know Matt had mentioned a t-shirt of some sort and I have a local

> > t-shirt company who does customized shirts. If I can get an idea of colors

> > and how many I can get a price quote and see if that is something we all

> > want to do. We can have some say " I survived Cholesteatoma " and " I hate

> > Cholesteatoma " or whatever...I know my family and several friends want to

> > get shirts. So this is start...just thought I would throw the idea out

> > there. If you are interested let me know. We could do possibly get shirts in

> > different colors as well...I will call today and see what the good price

> > break is and if they do shipping. If not I would be willing to ship them I

> > am in Oregon as long as you pay the shipping costs.

> > >

> >

> >

> >

>

[Guest guest]

OK I am keeping track of everyone who wants shirts and quantities and will email when we get close to 144 shirts. Does everyone like the Cholesteatoma is a pain in the ear...idea? On Thu, Apr 21, 2011 at 9:06 AM, Wood <amandawood03@...> wrote:

 

I would love to buy one in a girls size 10. Wood On Thu, Apr 21, 2011 at 7:33 AM, <moonshadow2447@...> wrote:

 

12 dozen white shirts with colored print is $5.50 per shirt

12 dozen colored shirts with white print is $6.50 per shirt

She says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order.

Jenni

>

> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.

>

-- Wood

[Guest guest]

I liked cholesteatoma sucks the best. WoodOn Thu, Apr 21, 2011 at 12:02 PM, Jenni <moonshadow2447@...> wrote:

 

OK I am keeping track of everyone who wants shirts and quantities and will email when we get close to 144 shirts. Does everyone like the Cholesteatoma is a pain in the ear...idea? 

On Thu, Apr 21, 2011 at 9:06 AM, Wood <amandawood03@...> wrote:

 

I would love to buy one in a girls size 10. Wood On Thu, Apr 21, 2011 at 7:33 AM, <moonshadow2447@...> wrote:

 

12 dozen white shirts with colored print is $5.50 per shirt

12 dozen colored shirts with white print is $6.50 per shirt

She says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order.

Jenni

>

> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.

>

-- Wood

-- Wood

[Guest guest]

" Cholesteatoma sucks! " matches my personality better, but I wouldn't

mind " ... is a pain in the ear " as an alternative.

I just had my doctor visit this morning and got the word that he'll see

me NEXT April! Whew! I even got to watch on a TV screen while my left

ear while the resident vacuumed it - that was somehow less scary

although my prosthesis is in the right ear.

I would be interested in getting two size XL and I'll ask around ... my

wife certainly thought this was a pain in the 'ear' ... just not quite

in the same way.

Matt

Jenni wrote:

>

>

> OK I am keeping track of everyone who wants shirts and quantities and

> will email when we get close to 144 shirts. Does everyone like the

> Cholesteatoma is a pain in the ear...idea?

>

> On Thu, Apr 21, 2011 at 9:06 AM, Wood <amandawood03@...

> <mailto:amandawood03@...>> wrote:

>

>

>

> I would love to buy one in a girls size 10.

> Wood

>

> On Thu, Apr 21, 2011 at 7:33 AM,

> <moonshadow2447@... <mailto:moonshadow2447@...>> wrote:

>

>

>

> 12 dozen white shirts with colored print is $5.50 per shirt

> 12 dozen colored shirts with white print is $6.50 per shirt

>

> She says it takes 7 to 10 days to complete. She would ship it

> for additional costs...prefers to ship more than 1 shirt so if

> you only want a few I would be willing to ship it for you. She

> did say there was additional costs for shirts larger than XL.

> $2.00 per shirt.

>

> If you want a shirt that says " Cholesteatoma Sucks " let me

> know. Matt this is a wonderful idea you had. I am would like

> to place an order here soon. Let me know if you are in and

> want to order.

>

> Jenni

>

>

>

>

> >

> > I know Matt had mentioned a t-shirt of some sort and I have

> a local t-shirt company who does customized shirts. If I can

> get an idea of colors and how many I can get a price quote and

> see if that is something we all want to do. We can have some

> say " I survived Cholesteatoma " and " I hate Cholesteatoma " or

> whatever...I know my family and several friends want to get

> shirts. So this is start...just thought I would throw the idea

> out there. If you are interested let me know. We could do

> possibly get shirts in different colors as well...I will call

> today and see what the good price break is and if they do

> shipping. If not I would be willing to ship them I am in

> Oregon as long as you pay the shipping costs.

> >

>

>

>

>

> --

> * Wood *

>

>

>

--

[Guest guest]

You mean because she had to listen to you complain?

On Thu, Apr 21, 2011 at 5:10 PM,

[Guest guest]

Well there was that ... and rescuing me from our tomcat who attacked me

.... and letting myself get dehydrated and putting myself into a four or

five day bout with nausea ... that I suppose could have been avoided.

.... oh, and we can't forget removing icky bandages ... ah, and she had

to run the snowthrower when I had osscicular reconstruction in the dead

of winter. Yeah ... pain ...

s wrote:

>

> You mean because she had to listen to you complain?

>

> On Thu, Apr 21, 2011 at 5:10 PM,

[Guest guest]

I can get shirts that either of the sayings so if you want I will put you down

for cholesteatoma sucks and if your wife wants a shirt with the other saying I

can do that too.

"

[Guest guest]

I like "pain in the ear" shirt... Sign me up for two of them

12 dozen white shirts with colored print is $5.50 per shirt12 dozen colored shirts with white print is $6.50 per shirtShe says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.If you want a shirt that says "Cholesteatoma Sucks" let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order. Jenni

>> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say "I survived Cholesteatoma" and "I hate Cholesteatoma" or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay

the shipping costs.>

-- Wood

[Guest guest]

OK got your order in. We are getting closer. I just ordered bracelets (those rubber kinds) and my kids are going to pass them out at school...hey every little thing helps. What a great idea Matt started and he didn't even realize it. Thanks Matt.

On Thu, Apr 21, 2011 at 3:57 PM, Bradford Burt <bradford_burt08@...> wrote:

 

I like " pain in the ear " shirt... Sign me up for two of them

 

12 dozen white shirts with colored print is $5.50 per shirt12 dozen colored shirts with white print is $6.50 per shirtShe says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order. Jenni

>> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay

the shipping costs.>

-- Wood

[Guest guest]

Oooh, I want some of those rubberband wrist things. Have they been ordered yet?

What color are they?

Maybe we should make them the same color as the nasty stuff that comes out of our ears? Maybe we should make them smell like the nasty stuff that comes out of our ears. Just kidding about the smell part....

Which brings back a memory. I have an office picture of myself and all my office team mates. In the picture, everyone has a big smile on their face...including me. BUT! I have this big stain on my ear lobe. The stain, which I did not know was there, is drainage from my ear. It is sooo embarssing! I'm sure everyone else saw the stuff on my ear lobe except for me.

Brad

12 dozen white shirts with colored print is $5.50 per shirt12 dozen colored shirts with white print is $6.50 per shirtShe says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.If you want a shirt that says "Cholesteatoma Sucks" let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order. Jenni

>> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say "I survived Cholesteatoma" and "I hate Cholesteatoma" or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.>

-- Wood

[Guest guest]

I too like the "...pain in the ear" idea, along with a link to this forum.

I am thinking of buying a few and will let you know how many next week.

-Nate

From: <moonshadow2447@...>cholesteatoma Sent: Thu, April 21, 2011 10:33:49 AMSubject: Re: T-shirt Idea

12 dozen white shirts with colored print is $5.50 per shirt12 dozen colored shirts with white print is $6.50 per shirtShe says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.If you want a shirt that says "Cholesteatoma Sucks" let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order. Jenni>> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I

can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say "I survived Cholesteatoma" and "I hate Cholesteatoma" or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.>

[Guest guest]

I would like a shirt (pain in the ear)- and couple of wristbands too!Great ideaJanet Sent from my Verizon Wireless BlackBerryFrom: "" <moonshadow2447@...>Sender: cholesteatoma Date: Thu, 21 Apr 2011 14:16:56 -0000<cholesteatoma >Reply cholesteatoma Subject: T-shirt Idea I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.

[Guest guest]

Wow...both ears?? I couldn't even imagine. Bless your heart. I have read others who had them in both ears too. Horrible disease that just has no leniency seriously. How is your hearing??Jenni

On Thu, Apr 21, 2011 at 8:00 PM, Ilona Sadler <ilonasadler@...> wrote:

 

I am very interested in the t-shirts and the wrist bands!   I would like at least 2 shirts, one with each saying.   I think I have overlooked what the wrist bands are going to be??  

I have had Cholesteatoma in both ears and have had a canal wall down in both ears.  So it has been a pain for me and I also think it sucks!!   :-)

Thanks!

Ilona

From: Jenni - <moonshadow2447@...>Subject: Re: Re: T-shirt Idea

cholesteatoma Date: Thursday, April 21, 2011, 4:54 PM

 

I can get shirts that either of the sayings so if you want I will put you down for cholesteatoma sucks and if your wife wants a shirt with the other saying I can do that too.

"

[Guest guest]

Ok sounds like a plan. Thank you.On Thu, Apr 21, 2011 at 5:22 PM, Wann <nwann_2000@...> wrote:

 

I too like the " ...pain in the ear " idea, along with a link to this forum.

 

I am thinking of buying a few and will let you know how many next week.

 

-Nate

From: <moonshadow2447@...>cholesteatoma

Sent: Thu, April 21, 2011 10:33:49 AMSubject: Re: T-shirt Idea 

12 dozen white shirts with colored print is $5.50 per shirt12 dozen colored shirts with white print is $6.50 per shirtShe says it takes 7 to 10 days to complete. She would ship it for additional costs...prefers to ship more than 1 shirt so if you only want a few I would be willing to ship it for you. She did say there was additional costs for shirts larger than XL. $2.00 per shirt.

If you want a shirt that says " Cholesteatoma Sucks " let me know. Matt this is a wonderful idea you had. I am would like to place an order here soon. Let me know if you are in and want to order. Jenni

>> I know Matt had mentioned a t-shirt of some sort and I have a local t-shirt company who does customized shirts. If I

can get an idea of colors and how many I can get a price quote and see if that is something we all want to do. We can have some say " I survived Cholesteatoma " and " I hate Cholesteatoma " or whatever...I know my family and several friends want to get shirts. So this is start...just thought I would throw the idea out there. If you are interested let me know. We could do possibly get shirts in different colors as well...I will call today and see what the good price break is and if they do shipping. If not I would be willing to ship them I am in Oregon as long as you pay the shipping costs.

>

[Guest guest]

My hearing is very minimal. "regular" hearing aids just are not powerful enough for me so I have opted for the BAHA ( bone anchored hearing aid ) for both ears. I can hear relatively well with those. It is a life long process that started when I was about 8 or 9 yrs old and continues today as I reach the 50 mark !!! :-)

From: Jenni - <moonshadow2447@...>Subject: Re: Re: T-shirt Idea

cholesteatoma Date: Thursday, April 21, 2011, 4:54 PM

I can get shirts that either of the sayings so if you want I will put you down for cholesteatoma sucks and if your wife wants a shirt with the other saying I can do that too.

"

[Guest guest]

Hi I'd be interested in the T-shirt too

ps I have ETD and have just been battling with a sore throat, hoarse voice and a

sore and swollen neck (latter has recently gone down a little). Frustrated with

my doc who isn't taking this seriously.

Left ear tympanoplasty 9/2009

[Guest guest]

I'd definitely be interested in the " .....pain in the ears " t-shirt, XXL

in my case. But I am in the UK so I realise that might disqualify me !

:-)

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[Guest guest]

,I am with you! I have been suffering from ETD for about 4 years now. When I had my c-toma removed I was hopeful that the plugged up feeling would go away, but no such luck. I'm tired of hearing, "there is nothing we can do for ETD". When I asked the doctor if the ETD is what caused my cholesteatoma, and we don't do anything to fix the negative pressure in my ear, then what stops a new c-toma from forming?? She said that is why we are monitoring you closely. So when it comes back they can take care of it? Why not solve the problem?? She pushed me off to an allergist and said maybe they can help you. And come back in 9 months for a check up. I am so frustrated, I know how you feel!!From: AJ <amandajlear@...>Subject: Re: T-shirt Ideacholesteatoma Date: Saturday, April 23, 2011, 4:43 PM

Hi I'd be interested in the T-shirt too

ps I have ETD and have just been battling with a sore throat, hoarse voice and a sore and swollen neck (latter has recently gone down a little). Frustrated with my doc who isn't taking this seriously.

Left ear tympanoplasty 9/2009

[Guest guest]

That is a terrific idea Nate about the link to this forum. I have also been working on another forum Cholesteatoma - The Hidden Disease Should be going within a few daysSome people like this group and the way the messages are sent/received but yet some are confused and prefer the facebook page. Some complain about the facebook group, having to scroll down to far to view messages. On the forum, all you'll need to do is click new posts ) I hope it will be just as successful as our & facebook group and look forward to seeing many of you there.It makes me so happy to see all the interaction and friendships formed and the bonds that we share dealing with this hidden disease!!! Thanks to each & everyone one of you that helps make this support group so terrific!!!>> I too like the "...pain in the ear" idea, along with a link to this forum.> > I am thinking of buying a few and will let you know how many next week.> > -Nate

[Guest guest]

Being in South Africa the exchange rate and postage costs are a bit prohibitive for us to participate in the t-shirt order.But we have found this group very helpful.My son had a check up yesterday. 1 year post 4-hour RHS op to remove serious c-toma and 6 months post LHS op to remove and reconstruct a smaller c-toma.

We are declared clean and safe and are on 6-monthly visits now. We are discussing doing a reconstruction i the RHS ear within the next year to insert prosthetic ossicles to try to recover some of the RHS hearing (he only has a stapes footplate left).

Our ENT is wonderful and we are forever grateful for his brilliant and friendly care. We discussed not getting to see each other as often now and we are planning a social outing instead now, because we have all become such good friends. (Our kids are in the same school too).

On 27 April 2011 05:48, kiekeboe4you <kiekeboe4you@...> wrote:

 

That is a terrific idea Nate about the link to this forum. I have also been working on another forum Cholesteatoma - The Hidden Disease Should be going within a few days

Some people like this group and the way the messages are sent/received but yet some are confused and prefer the facebook page. Some complain about the facebook group, having to scroll down to far to view messages. On the forum, all you'll need to do is click new posts ) I hope it will be just as successful as our & facebook group and look forward to seeing many of you there.

It makes me so happy to see all the interaction and friendships formed and the bonds that we share dealing with this hidden disease!!! Thanks to each & everyone one of you that helps make this support group so terrific!!!

>> I too like the " ...pain in the ear " idea, along with a link to this forum.

> > I am thinking of buying a few and will let you know how many next week.> > -Nate