Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Hi ne! > I noticed in the last mail I got from our group that others are having > problems with their eye sight from ra. I have this too. Some days my eyes > are pretty good but other days my eyes are terrible. I will have trouble > focusing on anything. Things look blurred and reading is hard to do as well > as anything else that needs good eye sight. I recently went to an opthamologist because of this. On the worse days, my problems sound a lot like yours. Of course, as luck would have it, by the time the 3 months time for a non-emergency appointment came around, I was not flaring, and my eyes were doing better. He found no inflammatory problems with them at the exam, but did find some slight vision changes that required both reading and distance glasses. Wearing the glasses, however, does not seem to make any difference in the achy feeling or focusing problems I have when my ra is giving me trouble. I asked him about the issue of ra and my eye problems, and he did say that since the disease affects collagen, it can also affect collagen in the eye, but said that the only thing to do about it is to get better control of the disease. I am sure he was referring to taking immunosupressant medications, but I've had so many problems with one infection after another this last year, that I couldn't imagine taking something like that right now. I would urge you to see an opthamologist soon, just to be sure how your eyes are doing. And if your eyes get red, swollen, painful, or very sensitive to light, call one and schedule an emergency appointment or go to ER, because serious conditions like iritis can be associated with inflammatory arthritis, and they need to be treated immediately. There are medications for that, like steroid drops, but they are not used for milder problems, as the risks outweigh the benefits for problems that are not leading to immediate damage. > > I haven't noticed that the antibiotics I take have helped in any way with > this problem. Is there something else I can do to stop my eyes from being > bad on some days. > I personally really noticed that when I was getting my best response to the antibiotics, my eyes got better. When I was in a severe flare 3 years ago, before tetracycline, it was getting hard to see to thread a needle. I remember writing to some folks here about how later, when I was having good response, I could see to do that easily again. This was when I was in a state near remission with the RA. I think it largely correlates with inflammation, how is your inflammation control right now, otherwise? Is what you are taking working on your joints? Also, have you been tested for dry eyes? Dryness can cause blurring and irritation too. You might, in the meantime, try one of the OTC tear replacement drops from the drugstore and see if it helps. > Also I have been decreasing my doseage of mtx. Will this cause my eyes to > get worse? I used to read several books a week Me too! I still read a lot, but have to go in shorter sessions, or my eyes get achy. This is a hard one for me, as reading was always one of my best coping mechanisms for pain and depression--sort of like meditation therapy, in the sense that it takes you away from obsessing on your own problems, lowering stress. And it also was salvation to my sanity when I was having bad sleep problems before. I hope you can find some solutions. You might try some of the " talking book " tapes from your library for days when your eyes need a break, while you sort it all out. You can even get a pillow speaker cheaply for your tape player, and just lie back and indulge in a story while you rest. {{{{{{{{{Sus}}}}}}}} Take care, Liz G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2003 Report Share Posted October 18, 2003 Hey, I would recommend you go see an otologist right away. Cholesteatoma is not something you want to mess around with. Especially when it begins to effect your facial nerves and your eye sight. Take care, let us know if we can be of any help. bradjaques <bradjaques@...> wrote: I HAVE BEEN TOLD THAT I HAVE A Cholesteatoma IN MY RIGHT EAR. I HAVE HAD FACIAL PAIN AND NOW MY EYE SIGHT IS FUZZY AT TIMES IN THE RIGHT EYE. I HAVE NOT SEEN THIS AS A SYMPTOM IN ANYTHING I HAVE READ. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 Hiya I also have had trouble with my eyesight...my eyes sometimes find it hard to focus on things for a period of time (usually distance) and my eyes sometimes flicker from side to side (called nystygmas i think). I'm not sure about the 'fuzzy' eyesight but I sometimes think my problems have been caused by trouble with the inner ear and 'labrinth'..but not too sure about this. I thought that after surgery the eyes would improve but 2 weeks down the line I still sometimes have this problem..maybe it's the packing still in my ear? Anyway I, like yourself, would be interested to know if anyone else has this difficulty. Considering getting my eyes tested soon!! Regards bradjaques <bradjaques@...> wrote: I HAVE BEEN TOLD THAT I HAVE A Cholesteatoma IN MY RIGHT EAR. I HAVE HAD FACIAL PAIN AND NOW MY EYE SIGHT IS FUZZY AT TIMES IN THE RIGHT EYE. I HAVE NOT SEEN THIS AS A SYMPTOM IN ANYTHING I HAVE READ. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 You know this is funny that this is being brought up. I had to have my eyes rechecked last thursday. My vision has always been -1.25(in both eyes) and have not had to have a perscription change in years. But after my surgery in August my eyes got fuzzy and my glasses were not helping. My eye sight in my left eye (same side as surgery) is now -2.00 in left the right is still the same. I thought is was just old age kicking in. Is there really a connection between cholesteaoma surgery and vision? Is this a regular complaint? Would it be wise to have eyes rechecked after next surgery? This is weird. Boy choleateatomas are a real pain in the bottom!!! Sue > I HAVE BEEN TOLD THAT I HAVE A Cholesteatoma IN MY RIGHT EAR. I HAVE > HAD FACIAL PAIN AND NOW MY EYE SIGHT IS FUZZY AT TIMES IN THE RIGHT > EYE. I HAVE NOT SEEN THIS AS A SYMPTOM IN ANYTHING I HAVE READ. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Anyone tell me good herbs or other things to strengthen eye sight. Carl is having trouble reading and would rather strengthen with natural things than succumb to glasses just yet. Poor old thing :-) Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Trace, Carrots are supposed to be good and which is probably why I cannot see since I cannot stand them lol actually I would think any beta carotene veggie. Also isn't it bayberry that is good for the eyes? I might be wrong though but I think that is it.. tone Pa says " When the Men in white coats come, don't think it's Good Humor" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Bilberry! also the eyebright, and the eyebright formula in the files.. and carrotsTone <tone102@...> wrote: Trace, Carrots are supposed to be good and which is probably why I cannot see since I cannot stand them lol actually I would think any beta carotene veggie. Also isn't it bayberry that is good for the eyes? I might be wrong though but I think that is it.. Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 > > You need to see an opthamologist about that. > Don't go risking your vision trying to save some money by asking on > the Internet. write down every thing that happens to you. Fatigue can be a sign of hundreds of systemic illnesses. So can vision problems. Talk to a doctor. > Livesimply, it strikes me as very odd that with all of the many SickBuildings group discussions of Dr Shoemakers work, you would strangely neglect to mention that the VCS examination of retinal hypoperfusion is the very basis for suspecting the presence of biotoxin mediated illness. Surely you haven't forgotten this? - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Hi!! I have FM for about 13 years.Since 1994 I had always problems with my eyes.I have been checked and everything is OK with me. My visual dizzness, this is the name I give to my visual disturbances,is constant. I have only 2 or 3 days without dizness. I think it could be related to neurological problems, to the nervous system. I hope it serves hughs carmen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2007 Report Share Posted November 19, 2007 I don´t take anything for dizness. I have tried many things, but I´m very sensitive for drugs.I have all the side effects. So, I have to live with my dizness. Hi > Do you take anything for the dizziness? I take meclizine every few hours which is like bonine. It helps to keep the whirling at a minimum. > > -------------- Original message from " carmenmontaner " <carmenmontaner@...>: -------------- > > Hi!! > I have FM for about 13 years.Since 1994 I had always problems with my > eyes.I have been checked and everything is OK with me. > My visual dizzness, this is the name I give to my visual > disturbances,is constant. I have only 2 or 3 days without dizness. I > think it could be related to neurological problems, to the nervous > system. > I hope it serves > hughs > carmen > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2007 Report Share Posted November 30, 2007 Ophthalmologists aren't eye doctors. They're eye surgeons. They know how to slice and dice your eyeball and put it back together again, but if you have a problem without a surgical solution they're relatively clueless. Optometrists (name, OD) are eye DOCTORS. They don't cut. They do lenses, prisms and eye exercises (vision therapy). You're a lot more likely to get help seeing an optometrist for this kind of problem. Andy > > YES I experience vision problems that come and go!!! I went to an opthamologist recently because I thought I needed new glasses. My RX did not change ...the opthamologist sent me for an MRI because he thought my complaints did not match his normal findings. I'm waiting for the final results...I was called back by the MRI tech Thursday to come in for more tests. I'm thinking they are looking for MS or white matter on the brain. I read on pub med that some CFIDS people have white matter. Everyone has white matter. People with MS have white matter LESIONS, visualizable on MRI. >With my nuerological symptoms so bad I read that white matter is usually there. What this means...I'm not really sure. I've been sick since 1983 with CFIDS.....finding MS now?????? who knows. I can't see clearly when I want to and I occasionally see yellow spots....and I have positional vertigo. Now, I'm trying to understand what " white matter " is. With my nuerological symptoms so bad and the vertigo I'm slow at trying to find this out. I got sick in 1983 and my nuerological problems started ab > out 1997 which is when I had my first MRI ...they were looking for MS then too. I'll deal with whatever is..isn't that what we do..... Mindy > > > > > -------------- Original message from " yildiz " <yildiz22@...>: -------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Brilliant - I hope you will tell your doctor Chris. Luv - Sheila Well, I've just got back from opticians and my eye sight has gone up 2 levels now I am back on my 200mcg thyroxine.ChrisNo virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.4.6/1540 - Release Date: 08/07/2008 06:33 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2008 Report Share Posted July 9, 2008 Hi Sheila I will delight in giving over copies of the tests. Chris > > Brilliant - I hope you will tell your doctor Chris. > > Luv - Sheila > > > > Quote Link to comment Share on other sites More sharing options...
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