Guest guest Posted March 27, 2000 Report Share Posted March 27, 2000 HAPPY BIRTHDAY TIERNAN TRIPLETS!! , your trip home will be another reaon to PARTY!! Thinking of you all with love, Debbi and Logan (almost 6) Eli (DS) and Milo, 3 1/2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2000 Report Share Posted July 21, 2000 People are affected by them; they just arent' diagnosed. The mercury slowly destroys the immune system and over time cause a lot of illness. There has been plenty of research on this. The medical community is political and influenced by money. The researchers are funded by pharmaceutical companies and others who are biased for certain types of treatment. I'm not saying your problem is mercury, but at the same time, dentists are trained to treat silver amalgam as toxic waste!! Best wishes, Digest Number 266 > ------------------------------------------------------------------------ > Find long lost high school friends: > 1/7080/13/_/62054/_/964173157/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 In a message dated 7/24/00 9:51:00 PM Pacific Daylight Time, egroups writes: << I also take thyroid hormone and testosterone. I've been able to wean the thyroid dose down by 2/3 since January. At this point I could probably stop a lot of this stuff but I am pretty used to taking it and don't want to go cold turkey on it so I have been slowly weaning off some of it for the last 6 months or so. I do generally believe in the story behind " life extension " (which is why I knew enough about vitamins to do something useful with them when I got really toxic in '94) so I will keep taking a lot of this stuff even when perfectly well. Andy >> Andy, Do you take both T3 and T4, as my daughter does? How many years have you taken them? I am still hoping to someday wean her off these hormones. In the meantime, they have helped her become much healthier. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 In a message dated 7/25/00 12:51:00 AM Eastern Daylight Time, egroups writes: << Reason is there was a bit of talk on the GFCF list about this not to be used because it had Mercury in it. Anyone know of this? Kathleen =) >> Kathleen-- Our son is currently taking Effalux and he also used to do the eyes to the side thing. I was also worried about mercury from it--I had heard that the company would not say it was not in it, so people had assumed it was. Since being on it, DMG, the gfcf diet we have noticed a marked improvement in his attention. We did one round of DMSA and the urine showed not even detectable limits on mercury. Correct me if I'm wrong anybody, but I assumed that if the Effalux had mercury, then it would be new to his system and the DMSA would pull it out. Since mercury was less than detectable limits, I am still using the Effalux. Any comments????? Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2000 Report Share Posted July 25, 2000 << Correct me if I'm wrong anybody, but I assumed that if the Effalux had mercury, then it would be new to his system and the DMSA would pull it out. Since mercury was less than detectable limits, I am still using the Effalux. Any comments????? >> Sounds reasonable to me. I don't really believe things until I hear independent reports of them (the scientific thing about reproducible experiments) but this is strongly suggestive. Andy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 I would love to see the video, probe sheets & tracking forms! Our program is only 3 months old, so I'm still trying to get all this stuff down. Thanks so much! God bless you, Anne 31 Woodelves Place The Woodlands, Tx. 77381 annepatte3339854@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 I have attached a file that Dr. Carbone gave us which has a probe sheet,skill tracking sheet and explains how to set up the notebook and do cue cards. Hope this is helpful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 Yesterday was a long day...don't know where my brain was sending an attachment...sorry. Let me know if you want it and I will email it to you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2000 Report Share Posted August 9, 2000 At 01:05 AM 8/9/00 EDT, onelessrck@... wrote: >I have attached a file that Dr. Carbone gave us which has a probe sheet,skill >tracking sheet and explains how to set up the notebook and do cue cards. >Hope this is helpful. > > > I think all attachments are being removed from these lists now. I never see any. Can you please send it to my address. jennie@... Thanks, Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Dear : The needle will probably always be there, and you will either learn to ignore it, or it will become less uncomfortable. If you could focus on something else when getting the shot, it will relieve some of the tenseness in your muscles and skin, which will allow the shots to be less irritating. If " slower " works, great, but, by body absorbtion/irritation, there really is no change. If you have not tried Wellbutrin, aka Zyban, it might help in conjunction with the inhaler, and problems from the smoking withdrawal. You may need a maximum dose, but, maybe several items at the same time will be to your benefit. As far as the eating goes, this may not get much better. Most people lose their appetite, or, can only eat small amounts when they sit down. This is NOT the time to try to lose weight, even though you will. You may want to try either increasing the number of times you eat a day, and smaller portions, or use some type of supplement instead of eating. You need the vitamins, minerals, protein etc., so your body does not become vulnerable to other problems. Do whatever it takes to try and either maintain your weight, or try to shoot for no more than 1 lb a week. You should take 1-2 ibuprofens, or regular tylenol just before you lie down to sleep. The onset of problems usually occurs between 3-6 hours after the injection, and if you " premedicate " , most are able to avoid many of the problems when they sleep. Also, with the patch, where is the most irritation. If it is the adhesive, you can cut around the medication, and use something else to secure it. That might cut some of the problem. You could also try something like benadryl cream applied to the area 1-2 hours before you place the patch. It might help to get rid of some localized problems without taking away from the medication. I know it is difficult, but, try to stay as positive as possible, under the circumstances. At least you have all of us to share these things with. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Dear : The needle will probably always be there, and you will either learn to ignore it, or it will become less uncomfortable. If you could focus on something else when getting the shot, it will relieve some of the tenseness in your muscles and skin, which will allow the shots to be less irritating. If " slower " works, great, but, by body absorbtion/irritation, there really is no change. If you have not tried Wellbutrin, aka Zyban, it might help in conjunction with the inhaler, and problems from the smoking withdrawal. You may need a maximum dose, but, maybe several items at the same time will be to your benefit. As far as the eating goes, this may not get much better. Most people lose their appetite, or, can only eat small amounts when they sit down. This is NOT the time to try to lose weight, even though you will. You may want to try either increasing the number of times you eat a day, and smaller portions, or use some type of supplement instead of eating. You need the vitamins, minerals, protein etc., so your body does not become vulnerable to other problems. Do whatever it takes to try and either maintain your weight, or try to shoot for no more than 1 lb a week. You should take 1-2 ibuprofens, or regular tylenol just before you lie down to sleep. The onset of problems usually occurs between 3-6 hours after the injection, and if you " premedicate " , most are able to avoid many of the problems when they sleep. Also, with the patch, where is the most irritation. If it is the adhesive, you can cut around the medication, and use something else to secure it. That might cut some of the problem. You could also try something like benadryl cream applied to the area 1-2 hours before you place the patch. It might help to get rid of some localized problems without taking away from the medication. I know it is difficult, but, try to stay as positive as possible, under the circumstances. At least you have all of us to share these things with. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Dear : The needle will probably always be there, and you will either learn to ignore it, or it will become less uncomfortable. If you could focus on something else when getting the shot, it will relieve some of the tenseness in your muscles and skin, which will allow the shots to be less irritating. If " slower " works, great, but, by body absorbtion/irritation, there really is no change. If you have not tried Wellbutrin, aka Zyban, it might help in conjunction with the inhaler, and problems from the smoking withdrawal. You may need a maximum dose, but, maybe several items at the same time will be to your benefit. As far as the eating goes, this may not get much better. Most people lose their appetite, or, can only eat small amounts when they sit down. This is NOT the time to try to lose weight, even though you will. You may want to try either increasing the number of times you eat a day, and smaller portions, or use some type of supplement instead of eating. You need the vitamins, minerals, protein etc., so your body does not become vulnerable to other problems. Do whatever it takes to try and either maintain your weight, or try to shoot for no more than 1 lb a week. You should take 1-2 ibuprofens, or regular tylenol just before you lie down to sleep. The onset of problems usually occurs between 3-6 hours after the injection, and if you " premedicate " , most are able to avoid many of the problems when they sleep. Also, with the patch, where is the most irritation. If it is the adhesive, you can cut around the medication, and use something else to secure it. That might cut some of the problem. You could also try something like benadryl cream applied to the area 1-2 hours before you place the patch. It might help to get rid of some localized problems without taking away from the medication. I know it is difficult, but, try to stay as positive as possible, under the circumstances. At least you have all of us to share these things with. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2000 Report Share Posted August 25, 2000 Dear : The needle will probably always be there, and you will either learn to ignore it, or it will become less uncomfortable. If you could focus on something else when getting the shot, it will relieve some of the tenseness in your muscles and skin, which will allow the shots to be less irritating. If " slower " works, great, but, by body absorbtion/irritation, there really is no change. If you have not tried Wellbutrin, aka Zyban, it might help in conjunction with the inhaler, and problems from the smoking withdrawal. You may need a maximum dose, but, maybe several items at the same time will be to your benefit. As far as the eating goes, this may not get much better. Most people lose their appetite, or, can only eat small amounts when they sit down. This is NOT the time to try to lose weight, even though you will. You may want to try either increasing the number of times you eat a day, and smaller portions, or use some type of supplement instead of eating. You need the vitamins, minerals, protein etc., so your body does not become vulnerable to other problems. Do whatever it takes to try and either maintain your weight, or try to shoot for no more than 1 lb a week. You should take 1-2 ibuprofens, or regular tylenol just before you lie down to sleep. The onset of problems usually occurs between 3-6 hours after the injection, and if you " premedicate " , most are able to avoid many of the problems when they sleep. Also, with the patch, where is the most irritation. If it is the adhesive, you can cut around the medication, and use something else to secure it. That might cut some of the problem. You could also try something like benadryl cream applied to the area 1-2 hours before you place the patch. It might help to get rid of some localized problems without taking away from the medication. I know it is difficult, but, try to stay as positive as possible, under the circumstances. At least you have all of us to share these things with. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2001 Report Share Posted July 8, 2001 Hi Everyone, I know I have been missing in action lately. I've been reading the posts but have'nt had the chance to respond, I've been so busy working on the conference with and Dr. Katz. All the information on the conference will be posted soon we're just smoothing out the last couple of details. I hope to meet all of you at the dinner, it's going to be an evening to remember. Just a quick note we are going to see the lawyer on tuesday. We got our 2nd IEP and it was a bigger joke than the first. Clearly we are getting no where with the district so we are going to see Stacey to find out if we have a case. Hope we do because I do not want Bobby in their program and we can't afford the Summit Speech School on our own. I will let you know how things go. Keep a look out for the conference info you're not gonna want to miss this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 > > ===================== Doesn't drinking prune juice for days give you liquid bowel movements (for DAYS?!!). Is this a more effective cleanse than drinking high fiber drinks? I have rheumatoid arthritis and have benefited from water fasts in the past, but my joints became really swollen and sore before a five day fast was over. I'm trying to find a better way to detox. I don't want to spend 3-6 days reading on the throne! Hi , > > The purpose of the prune juice is to keep the bowels moving. As you > cleanse your body is dumping toxins into the bowels and if you don't > keep them moving you just reabsorb them which only leads to further > problems. This is exactly what I am suggesting and is also what Dr. > and others suggest. However, it is your choice to do the > cleanse how you wish. These cleanses have been around awhile and are > tried and true. They are born out of lots of practice, trial and error. > > Okay so now you know my suggestion. LOL > > -- > Peace, love and light, > > Don Quai > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2004 Report Share Posted August 25, 2004 cweeks@... wrote: > > > > > ===================== > Doesn't drinking prune juice for days give you liquid bowel movements (for > DAYS?!!). Is this a more effective cleanse than drinking high fiber > drinks? I > have rheumatoid arthritis and have benefited from water fasts in the > past, but > my joints became really swollen and sore before a five day fast was > over. I'm > trying to find a better way to detox. I don't want to spend 3-6 days > reading on > the throne! > ============================= Hi , Not necessarily. If your bowels move just fine without the prune juice than leave it out. If your bowels aren't moving then you need to use the prune juice. Personally I would suggest that you do a juice fast using Celery, Parsley, Carrots and Beets. I would also suggest that you take 2 ounces of Wheat grass juice per day. Taking a tablespoonful of vinegar and honey will help to alkalinize your system. Drinking distilled water with lemon in it will help in removing excess mucus and dissolving inorganic minerals from the muscles and joints. Cut out all mucus forming foods and allow the healing to begin. You can overcome your rheumatoid arthritis just by changing your diet and doing the juicing cleanses. I would still suggest you use prune juice unless your bowels move easily. Peace be with you . -- Peace, love and light, Don Quai " Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal and wakes in man. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Donna, Sorry about the not so positive Mammogram. Its probably nothing. Better to be over cautious right? To all- Ack I fell and hurt my elbow....My theme song is " I get knocked down " So Friday I took off. Saturday we went trail running/hiking for about an hour and a half. Sunday we played tennis (me a bit handi-capped by the wlbow) and today I did light weights focusing mostly on the legs. I might walk or do a FitTv workout when I get home. I did do Taebo Extreme 2 last week and REALLY liked it. The best one yet since the advanced tapes. I haven't gotten boot camp yet. Maybe for Valentines Day. I also did the Cardio Groove from I got for a buck at Target. Not bad for a dollar. Very begginer workout, but fun for someone who doesn't want to spend a bunch of money on intro videos. Does anyone know of a good cheap recipe CD that doesn't have complicated or mega ingredient recipes?? a -- _______________________________________________ Find what you are looking for with the Lycos Yellow Pages http://r.lycos.com/r/yp_emailfooter/http://yellowpages.lycos.com/default.asp?SRC\ =lycos10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 Bruce, Isn't inulin in some store bought yogurts? I have bought some like I believe Stonefield and noticed I had extreme gas with the yougurt. Looked on the label and it contained inulin. I do not tolerate it very well. Deb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 - There is a ton of research linking Cpn to disease. It depends on what you mean by " conclusive. " The best, although a bit outdated, review is Stratton's at this link. You can download the pdf for pay, buty I'll try and cut/paste into a following email. Jim http://www.sciencedirect.com/science?_ob=IssueURL & _tockey=%23TOC%234967%232000%2\ 3999819992%23261948%23FLP%23 & _auth=y & view=c & _acct=C000050221 & _version=1 & _urlVers\ ion=0 & _userid=10 & md5=0fdcbce75856d888ac6aaf808aeff194 These are from Wheldon's website and are mostly MS oriented: 1. Balin BJ, Gérard HC, Arking EJ, Appelt DM, Branigan PJ, Abrams JT, Whittum- Hudson JA, Hudson AP. Identification and localization of Chlamydia pneumoniae in the Alzheimer’s brain. Med Microbiol Immunol 1998; 187: 23-42 2. Sriram S, Stratton CW, Yao S, Tharp A, Ding L, Bannan JD, WM. Chlamydia pneumoniae infection of the CNS in multiple sclerosis. Ann Neurol 1999; 46:1 6-14 3 Layh-Schmitt G, Bendl C, Hildt U, Dong-Si T, Juttler E, Schnitzler P, Grond-Ginsbach C, Grau AJ. Evidence for infection with Chlamydia pneumoniae in a subgroup of patients with multiple sclerosis. Ann Neurol 2000; 47:5 652-5 4 Hintzen R, et al Chlamydia pneumoniae infections linked to disease flare-ups in multiple sclerosis patients. Presentation at the 2003 Conference of the Association of American Neurologists (April 3, 2003) 5 Munger KL, Peeling RW, Hernán MA, Chasan-Taber L, Olek MJ, Hankinson SE, Hunter D, Ascherio A. Infection with Chlamydia pneumoniae and risk of multiple sclerosis. Epidemiology 2003 14:2 141-147 6 Dong-Si T, Weber J, Liu YB, Buhmann C, Bauer H, Bendl C, Schnitzler P, Grond- Ginsbach C, Grau AJ. Increased prevalence of and gene transcription by Chlamydia pneumoniae in cerebrospinal fluid of patients with relapsing-remitting multiple sclerosis. J Neurol. 2004 May;251(5):542-547. 7 Prabhakar S, Kurien E, Gupta RS, Zielinski S, Freedman MS. Heat shock protein immunoreactivity in CSF: correlation with oligoclonal banding and demyelinating disease. Australian Neurology. 1994 Sep;44(9):1644-8. 8 Cid C, Alvarez-Cermeno JC, Camafeita E, Salinas M, Alcazar A. Antibodies reactive to heat shock protein 90 induce oligodendrocyte precursor cell death in culture. Implications for demyelination in multiple sclerosis. FASEB J. 2004 Feb;18(2):409-11. 9 Barnett, M H Prineas, J W. Relapsing and remitting Multiple Sclerosis: pathology of the Newly Forming lesion. ls of Neurology Vol 55 No 4 April 2004. 10 Sriram S, WM and Stratton CW. Multiple sclerosis associated with Chlamydia pneumoniae infection of the CNS. Neurology 1998 502: 571-572. 11 Sriram, S., Song, Y., Moses, H., Stratton, C.W., Wolinsky J.: A pilot study to examine the effect of antibiotic therapy on MRI outcomes in relapsing remitting MS. Poster Presentation. Presented at the Annual Meeting of the American Academy of Neurology, San Francisco, CA, 2004. 12 Towler HM, Lightman S. Symptomatic intraocular inflammation in multiple sclerosis. Clin Experiment Ophthalmol. 2000 28(2):97-102. 13 Vine AK Severe periphlebitis, peripheral retinal ischemia, and preretinal neovascularization in patients with multiple sclerosis Am J Ophthalmol. 1992 ;113(1):28-32 14 Ruby AJ, Jampol LM Crohn's disease and retinal vascular disease Am J Ophthalmol. 1990;110(4):349-53 15 Stratton CW and WM Pyoderma gangrenosum and Chlamydia pneumoniae infection in a diabetic man: pathogenic role or coincidence? J Am Acad Dermatol 2000; 42(2) 295-297 16 Gerard HC, Schumacher HR, El-Gabalawy H, Goldbach-Mansky R, Hudson AP. Chlamydia pneumoniae present in the human synovium are viable and metabolically active. Microb Pathog. 2000 Jul;29(1):17-24. 17 Geissler A, Andus T, Roth M, Kullmann F, Caesar I, Held P, Gross V, Feuerbach S, Scholmerich J. Focal white-matter lesions in brain of patients with inflammatory bowel disease. Lancet. 1995 345:897-8. 18 Jens Gieffers, Henriette Füllgraf, Jürgen Jahn, Matthias Klinger, Klaus Dalhoff, Hugo A. Katus, Werner Solbach, and Matthias Maass Chlamydia pneumoniae infection in circulating human monocytes is refractory to antibiotic treatment, Circulation, 2001; 103: 351 - 356. 19 Wegner C and s P M. A new view of the cortex; new insights into multiple sclerosis. (Review) Brain 2003 126:8 1719-1721 Message: 13 Date: Fri, 19 Aug 2005 02:14:25 -0000 From: " Hodologica " <usenethod@...> Subject: chlamydia, ReA - an interesting one I had not been aware of any direct, conclusive evidence linking chlamydial persistence, despite abx, to any disease. In chlamydia- associated " reactive " arthritis, Nanagara (who did a similar study on borrelia) demonstrated persistence of C. trachmoatis in the joint. This study is ten years old and so far (only a little searching) I have not found significant subsequent work taking up this angle. Does anyone know what is the current leading treatment for chronic chlamydia-associated reactive arthritis / Reiters syndrome? Are patients told this is probably an aseptic illness? Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.