Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Hello, I am currently in close touch with a family here in Arizona whose baby girl with SED or SEMD is facing some difficult challenges. At higher altitudes, where they currently live, she needs to be on oxygen all the time. Her doctors here in Phoenix do not feel she will outgrow this condition and have recommended a surgery called titanium rib expansion, which would provide more room for her lungs. Is there anyone whose child has had this done who would be willing to share their experiences? Thank you very much. Betsy Trombino (602) 942-8626 betsyt44@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2008 Report Share Posted August 18, 2008 Christus Santa Children's Hospital in San , Texas are specialized in the surgery. I worked there as a Child Life Specialist for a while and had many successful cases with that surgery. We dream, cry, laugh, shout, fall in love, and make mistakes. We are no different from you. -- Barty From: The Blackburn's <britendale@...> Subject: titanium rib expansion? " Dwarfism Listserver " <dwarfism >, parentsoflittlepeople , parentsoflittlepeople2 Cc: " 'Besty Trombino' " <betsyt44@...>, jtkngarcia@... Date: Monday, August 18, 2008, 12:20 PM Hello, I am currently in close touch with a family here in Arizona whose baby girl with SED or SEMD is facing some difficult challenges. At higher altitudes, where they currently live, she needs to be on oxygen all the time. Her doctors here in Phoenix do not feel she will outgrow this condition and have recommended a surgery called titanium rib expansion, which would provide more room for her lungs. Is there anyone whose child has had this done who would be willing to share their experiences? Thank you very much. Betsy Trombino (602) 942-8626 betsyt44cox (DOT) net Quote Link to comment Share on other sites More sharing options...
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