Re: White water rafting

[Guest guest]

Hi,

I think cochlear has a device to hold the ci on your ear while

participating in sports. Look at their web site under accessories.

Have fun!!

Debra

-- In , Dan and <danshelly@...> wrote:

>

> Hi Everyone,

>

> I'm considering going on a white water rafting trip soon, and am

trying

> to figure out how to handle my Freedom CI during that adventure.

I've

> been told that communication is essential, so I hate to go without

the

> CI. On the other hand, I certainly don't want it to fall off when

I get

> dumped overboard, so I'd want to really anchor it on and keep it

dry.

> Someone suggested that I wear a swim cap.

>

> If any of you have gone white water rafting since getting your CI,

I'd

> love to learn of your experiences and suggestions.

>

> Thank you,

> Dan

>

[Guest guest]

Do you have a body worn processor?

Ted F.

>

> Hi Everyone,

>

> I'm considering going on a white water rafting trip soon, and am

> trying to figure out how to handle my Freedom CI during that

> adventure. I've been told that communication is essential, so I

> hate to go without the CI. On the other hand, I certainly don't

> want it to fall off when I get dumped overboard, so I'd want to

> really anchor it on and keep it dry.

[Guest guest]

Or you could get an earmould to secure it more into place. When I was

first fitted with my Freedom my audie had an earmould made for me to help

keep it in place as some people find the looser feeling hard to get used to.

However I ditched it within a day as I felt the Freedom sat on my ear fine.

It wouldn't help if you were completely submerged though but that would

follow true for any device.

Severe/profoundly deaf since birth

Lost residual hearing October 2005

Approved for CI March 2006

Surgery 9th June 2006

Activation 29th June 2006

_____

From: [mailto: ] On Behalf Of

Ted F.

Sent: Monday, 17 July 2006 3:44 PM

Subject: Re: White water rafting

Do you have a body worn processor?

Ted F.

>

> Hi Everyone,

>

> I'm considering going on a white water rafting trip soon, and am

> trying to figure out how to handle my Freedom CI during that

> adventure. I've been told that communication is essential, so I

> hate to go without the CI. On the other hand, I certainly don't

> want it to fall off when I get dumped overboard, so I'd want to

> really anchor it on and keep it dry.

__________ NOD32 1.1663 (20060716) Information __________

This message was checked by NOD32 antivirus system.

http://www.eset.com

[Guest guest]

Dan,

Check and see if cochlear has the lock tubing for the Freedom. I

know they have it for the 3G and older models but not sure if it's

out for the Freedom yet or not.. should be on the website store.

Might not be a bad idea to wear something over it either for the

rafting trip.. Even though they are water resistant, splashproof and

can even survive a dunking with no damage, If it were me, I'd still

take the extra precaution of keeping it as dry as I could..I've

never been white water rafting, but I've heard the force of some of

those breakers, waves or whatever you call them can be pretty strong

at times.

Just my opinion though.

Hope you have a great trip and emjoy all the sounds of the river.

Let us know how the trip goes!

Cheers,

Silly MI

In , Dan and <danshelly@...> wrote:

>

> Hi Everyone,

>

> I'm considering going on a white water rafting trip soon, and am

trying

> to figure out how to handle my Freedom CI during that adventure.

I've

> been told that communication is essential, so I hate to go without

the

> CI. On the other hand, I certainly don't want it to fall off when

I get

> dumped overboard, so I'd want to really anchor it on and keep it

dry.

> Someone suggested that I wear a swim cap.

>

> If any of you have gone white water rafting since getting your CI,

I'd

> love to learn of your experiences and suggestions.

>

> Thank you,

> Dan

>

[Guest guest]

It's an ear level processor.

Come to think of it, I think I have the lock tubing around

somewhere--I used it the first week that I had the implant, since I

was on a week-long bicycle tour. The ear mold is also a great idea.

Thanks for the ideas!

Dan

> >

> > Hi Everyone,

> >

> > I'm considering going on a white water rafting trip soon, and am

> > trying to figure out how to handle my Freedom CI during that

> > adventure. I've been told that communication is essential, so I

> > hate to go without the CI. On the other hand, I certainly don't

> > want it to fall off when I get dumped overboard, so I'd want to

> > really anchor it on and keep it dry.

>

[Guest guest]

Hi, Dan,

I have used the mic-loc on both my 3G and my Freedom. I can tell you

that it is NOT reliable for something as active as whitewater rafting would be.

I don't do rafting but my processors fell off often, despite the tubing, even

during a gentle hug. I had earmolds made for both of my processors and found

that to be so much more secure. It is NOT foolproof. The swimcap or some

kind of headband to keep it covered and secure might be a good idea in

conjunction with an earmold. Have fun!

) Jackie

[Guest guest]

I agree with you Jackie in that the mic lock is not reliable; for me my ear

lobes are a bit smaller and thus the mic lock tended to come off. If I

tightened it, it was too tight and cause sores. Molds are more secure and

comfortable for me.

[Guest guest]

I came up with something that would work for people with glasses:

Using plastic tubing (quarter inch diameter worked for me), cut off a piece

of about a quarter inch. Slide this over the bow of the glasses, and slide

the ear hook of the processor through it. Be sure to position it so that

the processor freely sits on the ear without pressure. Slide the tube

forward or backward on the bow of the glasses until you find this right spot

that causes no pressure. It works like a charm for me.

Cheers, Ruth

_____

From: [mailto: ] On Behalf Of

Flashwun@...

Sent: Monday, July 17, 2006 2:54 PM

Subject: Re: White water rafting

Hi, Dan,

I have used the mic-loc on both my 3G and my Freedom. I can tell you

that it is NOT reliable for something as active as whitewater rafting would

be.

I don't do rafting but my processors fell off often, despite the tubing,

even

during a gentle hug. I had earmolds made for both of my processors and found

that to be so much more secure. It is NOT foolproof. The swimcap or some

kind of headband to keep it covered and secure might be a good idea in

conjunction with an earmold. Have fun!

) Jackie

[Guest guest]

Someone sent me this link for a possibility for the water rafting. They

make one from the CI. http://www.gearforears.com/

Ruth

_____

From: [mailto: ] On Behalf Of

Ruth Ilean Fox

Sent: Monday, July 17, 2006 6:58 PM

Subject: RE: Re: White water rafting

I came up with something that would work for people with glasses:

Using plastic tubing (quarter inch diameter worked for me), cut off a piece

of about a quarter inch. Slide this over the bow of the glasses, and slide

the ear hook of the processor through it. Be sure to position it so that

the processor freely sits on the ear without pressure. Slide the tube

forward or backward on the bow of the glasses until you find this right spot

that causes no pressure. It works like a charm for me.

Cheers, Ruth

_____

From: groups (DOT) <mailto:%40> com

[mailto:groups (DOT) <mailto:%40> com] On Behalf

Of

Flashwunaol (DOT) <mailto:Flashwun%40aol.com> com

Sent: Monday, July 17, 2006 2:54 PM

groups (DOT) <mailto:%40> com

Subject: Re: White water rafting

Hi, Dan,

I have used the mic-loc on both my 3G and my Freedom. I can tell you

that it is NOT reliable for something as active as whitewater rafting would

be.

I don't do rafting but my processors fell off often, despite the tubing,

even

during a gentle hug. I had earmolds made for both of my processors and found

that to be so much more secure. It is NOT foolproof. The swimcap or some

kind of headband to keep it covered and secure might be a good idea in

conjunction with an earmold. Have fun!

) Jackie

[Guest guest]

Didnt Cochlear supply you with the body worn thingy at the same time,

Dan? Personally, I would be more worried about losing it on a white

water rafting trip, than getting it wet.

Ted F.

> >

> > Do you have a body worn processor?

> >

> > Ted F.

> >

>

[Guest guest]

Ummm, Dan???

I think the best bet for you is to detach your head and leave it on the

dock before you set off to raft. With all those things on your head you not

only won't hear, but you won't see either! LOL Hope it's fun!

) Jackie

[Guest guest]

Thanks for all of the good advice. I really like the " gearforears "

product, so I've gone ahead and ordered one of those. That will clip

on to my shirt and help keep the processor dry and secure. I'll then

wear a lightweight balaclava (like a ski mask, but with the face

open) over my head, which should make it impossible for the device to

fall off. I'll top that with the safety helmet that they will give

me, and will also see if I can attach my old hearing aid earmold to

the processor for the day.

In answer to Ted's question, I don't have any spare processors--just

the one, and it's an ear level one.

I really appreciate all of your thoughtful replies and insight!

Dan

[Guest guest]

I love white water rafting, he will have a blast. No worries, enjoy!

Joe C

On Aug 6, 2011, at 4:38 PM, " K " <kandamal@...> wrote:

> Hi folks! My 20 year old achon son has an opportunity to go white water

rafting. I know there are some no-no's with achons, such as avoiding

trampolines. Does anyone have any recommendations regarding white water rafting?

> Thanks,

> Kirsi

>

>

[Guest guest]

Thanks. Just needed a little reassurance that it was an okay thing to do.

He should have a great time. It's such an adrenalin rush!

>

> > Hi folks! My 20 year old achon son has an opportunity to go white water

rafting. I know there are some no-no's with achons, such as avoiding

trampolines. Does anyone have any recommendations regarding white water rafting?

> > Thanks,

> > Kirsi

> >

> >

>

>

>

[Guest guest]

Oh, sorry to butt in on a different subject but I just bought a 'family'

trampoline.... Is that a big no no for my achon daughter? My daughter has had

decompression surgery. Lailou is nearly 4. Any further advice most welcome.

Sent from my iPhone

On 7 Aug 2011, at 02:26, Cantreachmuch <cantreachmuch@...> wrote:

> I love white water rafting, he will have a blast. No worries, enjoy!

> Joe C

>

> On Aug 6, 2011, at 4:38 PM, " K " <kandamal@...> wrote:

>

> > Hi folks! My 20 year old achon son has an opportunity to go white water

rafting. I know there are some no-no's with achons, such as avoiding

trampolines. Does anyone have any recommendations regarding white water rafting?

> > Thanks,

> > Kirsi

> >

> >

>

>

[Guest guest]

Hate to rain on this but!

Not so sure we can tell you it's okay. ALL Achons have spinal issues and many

have instability in the neck area and foramen magnum area which is small in many

of us.

A whiplash or jerk can cause serious permanent damage.

Talk to a Doctor who has read your child's scans and images. If not get a CT

scan and x-rays.

Not trying to scare but I can't sit back and watch a potential accident.

An experienced Orthopedic surgeon or Neurosurgen can tell you.

One that has worked on LP's

On Aug 6, 2011, at 10:02 PM, K wrote:

> Thanks. Just needed a little reassurance that it was an okay thing to do.

>

> He should have a great time. It's such an adrenalin rush!

[Guest guest]

Agreed!!

Sent from my iPhone

On Aug 7, 2011, at 6:02 AM, Tony Soares <tonysoares07030@...> wrote:

> Hate to rain on this but!

>

> Not so sure we can tell you it's okay. ALL Achons have spinal issues and many

have instability in the neck area and foramen magnum area which is small in many

of us.

>

> A whiplash or jerk can cause serious permanent damage.

>

> Talk to a Doctor who has read your child's scans and images. If not get a CT

scan and x-rays.

>

> Not trying to scare but I can't sit back and watch a potential accident.

>

> An experienced Orthopedic surgeon or Neurosurgen can tell you.

> One that has worked on LP's

>

> On Aug 6, 2011, at 10:02 PM, K wrote:

>

> > Thanks. Just needed a little reassurance that it was an okay thing to do.

> >

> > He should have a great time. It's such an adrenalin rush!

>

>

[Guest guest]

I agree with Tony. I couldn't foresee any injury from white water rafting being

okay for an LP. Especially since an AH person already has difficulty

maneuvering while white water rafting in general. We're top heavy, and the fact

is, our noggins are usually the first thing that gets hit. Just my two cents.

In any case, I just posted a new entry on our blog about my head injury this

week. Blech! It really sucked. Household accidents suck.

http://dwarfparents.com/spinal-stenosis-care

Enjoy.

-Ellen

[Guest guest]

It's difficult to make these decisions and take away activities from

kids who really want to do them. There are different levels of white water

rafting. I remember when we had the LP Conference in Denver, Colorado,

there was a trip that included rafting. I remember they had rafts for all

people and abilities whether they were in wheelchairs or had limited

mobility. No matter what you do, there will always be some risk associated

with the activity. The most dangerous sport in high school today is

cheerleading. More injuries and accidents happen in this " sport " than any

other, yet.... because the kids want to participate in the events, most

parents even knowing the dangers still allow their daughters (or sons) to

participate.

While in high school, the cheerleading team kept trying to recruit me

for the top of the pyramids because I was so light. Sounded fun but too

dangerous to me. I was glad however that the decision was up to me and my

mom didn't step in and make it for me. They did however convince me

to play soccer with a youth league rather than the team of middle school

average kids.

On Wed, Aug 10, 2011 at 7:31 PM, El <hey_elel@...> wrote:

> **

>

>

> I agree with Tony. I couldn't foresee any injury from white water rafting

> being okay for an LP. Especially since an AH person already has difficulty

> maneuvering while white water rafting in general. We're top heavy, and the

> fact is, our noggins are usually the first thing that gets hit. Just my two

> cents.

>

> In any case, I just posted a new entry on our blog about my head injury

> this week. Blech! It really sucked. Household accidents suck.

>

> http://dwarfparents.com/spinal-stenosis-care

>

> Enjoy.

>

> -Ellen

>

>

>

[Guest guest]

I'd really like to thank you all for sharing your experience/opinion/insight

regarding white water rafting for LP's. I appreciate your thoughts and your

willingness to share. The trip hasn't happened yet (mid-Sept.) and we're still

mulling it over. If he goes, it would be with his older (22) and younger (17)

brothers and a couple other friends. 's never been the thrill-seeker the

other two are, so he may decide against it, but I want him to go into the

decision making process with as much information as possible.

One of our problems at this point is getting the opinion of a dwarfism

specialist. When was younger we saw Dr. Rodney Beals at OHSU (Portland,

OR). He " graduated " from Dr. Beals care at the age of 15 when Dr. Beals said,

everything's looking good-come back if there are problems. Since that time

we've had no problems and Dr. Beals has passed away. I called OHSU and asked if

they have any dwarfism specialists and the response I got was " well, I guess he

could see dr. so-and-so. " Didn't exactly fill me with confidence. Does anyone

living in the Portland area know of a doctor in the area that sees LP's?

Thanks again to all of you for sharing.

Kirsi

Kirsi

>

> Hi folks! My 20 year old achon son has an opportunity to go white water

rafting. I know there are some no-no's with achons, such as avoiding

trampolines. Does anyone have any recommendations regarding white water rafting?

> Thanks,

> Kirsi

>

[Guest guest]

I would get in touch with your local chapter and see who other people use. The

chapter actually has an event this weekend where you could talk to parents and

LP adults to exchange ideas. The president's name is . Also, it's a great

way for your son to meet other LP young adults and get their take on it.

Coincidentally, we were in Portland for a friend's wedding recently and stopped

by OHSU to ride their aerial tram for fun. Just as we were finding parking, 2

young adult LPs with different types of dwarfism, came out of the hospital with

their parents. Perhaps they see someone there or at the Children's Hospital

there? Do some investigation and see if there are other LPs in the chapter who

go to these hospitals. Our LP friends who live there travel to Seattle for care

because they've had history with them.

Good luck!

-Ellen