Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Recurrence does happen ... to many of us. Were you going back to your doctor for routine follow-up visits? After three surgeries and then about 5 years of cholesteatoma-free visits every six months, we finally moved mine to 9 months apart and now a year apart. If you haven't made routine follow-up visits, you really should have been. Many, if not most of us, have a eustachian tube malfunction that basically means we never really get completely free of this. [at least they think this is due to eustachian tube malfunction] crabtreejana wrote: > > I had cholesteoma surgery three years ago, but recently I have > experienced severe reduction in my hearing and I have a feeling of > fullness in my ear.. I am unable to pop my hear and my ear rings > constantly. Any suggestions? > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 --- In cholesteatoma , " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 My cholesteoma did form due to my eustachian tube not functioning properly. Prior to the cholesteoma, I have had tube, polyps removed twice, tympanoplasty twice, and repaired retracted eardrum. I just returned from my ENT and he attempted to clean the ear to take a look but was unable to see clearly and is sending me for a CT scan. I do not have any discharge, just a constant fullness, ringing and pain in the ear. Just noticed some numbness in my nose and pain in my jaw today. Umm... Does this sound like the dread " C " has returned? or could it possibly something else. Thanks so much for your response! > > I had cholesteoma surgery three years ago, but recently I have experienced severe reduction in my hearing and I have a feeling of fullness in my ear.. I am unable to pop my hear and my ear rings constantly. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 I failed to mention, when they removed the cholesteoma they repaired the eardrum and my ENT said he " built up the eardrum " to prevent future cholesteomas and ear infections.. > > I had cholesteoma surgery three years ago, but recently I have experienced severe reduction in my hearing and I have a feeling of fullness in my ear.. I am unable to pop my hear and my ear rings constantly. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 I've learned not to get too worked up. The one time I thought everything was fine I had a recurrence. The other times when I felt something was wrong, the doctor keeps saying all is well. I would just focus hard on describing accurately how you're feeling, let them do the clean and inspect and then hope for the best. It will be what it is. For me fullness could be just a stuffed up nose - I feel awful when that happens. crabtreejana wrote: > > My cholesteoma did form due to my eustachian tube not functioning > properly. Prior to the cholesteoma, I have had tube, polyps removed > twice, tympanoplasty twice, and repaired retracted eardrum. I just > returned from my ENT and he attempted to clean the ear to take a look > but was unable to see clearly and is sending me for a CT scan. I do > not have any discharge, just a constant fullness, ringing and pain in > the ear. Just noticed some numbness in my nose and pain in my jaw > today. Umm... Does this sound like the dread " C " has returned? or > could it possibly something else. Thanks so much for your response! > > > > > > I had cholesteoma surgery three years ago, but recently I have > experienced severe reduction in my hearing and I have a feeling of > fullness in my ear.. I am unable to pop my hear and my ear rings > constantly. Any suggestions? > > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 I find myself heavily reliant on the doctor to make that call. That's why I'm glad I lucked out being able to see a good one! The CT scan might be your doctor just trying to be careful although they don't seem to be all that reliable of a tool. IF it shows up, then I understand that they're fairly certain its there, but they sometimes don't spot it OR can't get a good handle on how extensive it is. Matt crabtreejana wrote: > > > > --- In cholesteatoma > <mailto:cholesteatoma%40>, " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 so are you saying he suspects something but isn't saying anything until after the CT scan? Hopefully, it is something simply. But when it comes to this ear..... It always seems to be bad news. I see Dr. Schwaber at St. Hospital and have been pleased thus far... Just anxious! Thx so much! On Thu, May 19, 2011 at 4:30 PM, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2011 Report Share Posted May 19, 2011 Nobody could or should tell you one way or the other except your doctor. Hang in there. Matt Jana Crabtree wrote: > so are you saying he suspects something but isn't saying anything > until after the CT scan? Hopefully, it is something simply. But when > it comes to this ear..... It always seems to be bad news. I see Dr. > Schwaber at St. Hospital and have been pleased thus far... Just > anxious! > Thx so much! > > On Thu, May 19, 2011 at 4:30 PM, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Here is what I have posted previously: I inflate my ears 2-3 times a day using the Politzer technique, http://www.pediatricsupersite.com/view.aspx?rid=35966Here's the technique I perform as written by the Pediatric ENT that wrote the article:"Third, the bulb syringe is seated firmly against one nasal aperture and the other nostril is gently pinched closed by the index finger tip not holding the bulb syringe. The final step is when the patient is commanded to swallow a bolus of water and synchronous to deglutition, the bulb syringe is gently squeezed. If the Politzer procedure is performed correctly, some of the bolus of air released into the nasal passage enters and traverses both Eustachian tubes and exits into both middle ear clefts. The act of deglutition causes activation of the tensor palatini muscle and this opens the mouth of the Eustachian tube allowing the bolus of air to enter. A quick look with the pneumatic otoscope will allow the examiner to tell if the eardrum remains in the retracted position or reverts to the normal neutral position. At the same time, the patient is queried if he or she felt discomfort when air entered one or both middle ear clefts. ative patients can practice this technique and relieve the effects of negative middle ear pressure on descent during air travel or after coming up from deep water diving." For the past year I've actively swam at both indoor and outdoor pools and the ocean. I am not a diver, so do not have any information on this aspect as a result of CWD. Post swimming I make sure that I flush any residual water from the ear by shaking it out and using Swim Ear solution, http://www.drugstore.com/qxp12443_333181_sespider/swim_ear/ear_drying_aid.htm. It contains Isopropyl Alcohol (95%), which mixes well with water and dries quickly. I just use 4-5 drops, then inflate to help drain and open u-tube. Hope this helps, NateDisclaimer - This post is not intended to offend anyone that suffers, or has suffered, from Cholesteatoma. From: crabtreejana <crabtreejana@...>cholesteatoma Sent: Thu, May 19, 2011 3:18:20 PMSubject: Popping Ear I had cholesteoma surgery three years ago, but recently I have experienced severe reduction in my hearing and I have a feeling of fullness in my ear.. I am unable to pop my hear and my ear rings constantly. Any suggestions? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Presumably this technique doesn't work if the eardrum is perforated? And this might be the reason that the popping is not experienced? Bernard > > Here is what I have posted previously: > > I inflate my ears 2-3 times a day using the Politzer technique, > http://www.pediatricsupersite.com/view.aspx?rid=35966 > > Here's the technique I perform as written by the Pediatric ENT that wrote the > article: > " Third, the bulb syringe is seated firmly against one nasal aperture and the > other nostril is gently pinched closed by the index finger tip not holding the > bulb syringe. The final step is when the patient is commanded to swallow a bolus > of water and synchronous to deglutition, the bulb syringe is gently squeezed. If > the Politzer procedure is performed correctly, some of the bolus of air released > into the nasal passage enters and traverses both Eustachian tubes and exits into > both middle ear clefts. The act of deglutition causes activation of the tensor > palatini muscle and this opens the mouth of the Eustachian tube allowing the > bolus of air to enter. A quick look with the pneumatic otoscope will allow the > examiner to tell if the eardrum remains in the retracted position or reverts to > the normal neutral position. At the same time, the patient is queried if he or > she felt discomfort when air entered one or both middle ear clefts. ative > patients can practice this technique and relieve the effects of negative middle > ear pressure on descent during air travel or after coming up from deep water > diving. " > > > For the past year I've actively swam at both indoor and outdoor pools and the > ocean. I am not a diver, so do not have any information on this aspect as a > result of CWD. Post swimming I make sure that I flush any residual water from > the ear by shaking it out and using Swim Ear solution, > http://www.drugstore.com/qxp12443_333181_sespider/swim_ear/ear_drying_aid.htm. > It contains Isopropyl Alcohol (95%), which mixes well with water and dries > quickly. I just use 4-5 drops, then inflate to help drain and open u-tube. > > Hope this helps, > Nate > > Disclaimer - This post is not intended to offend anyone that suffers, or has > suffered, from Cholesteatoma. > > > > > ________________________________ > From: crabtreejana <crabtreejana@...> > cholesteatoma > Sent: Thu, May 19, 2011 3:18:20 PM > Subject: Popping Ear > >  > I had cholesteoma surgery three years ago, but recently I have experienced > severe reduction in my hearing and I have a feeling of fullness in my ear.. I am > unable to pop my hear and my ear rings constantly. Any suggestions? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2011 Report Share Posted May 20, 2011 Most likely yes, it won't work if eardrum is perforated. I would suggest consulting your doctor on how to pop your ears with this condition. -Nate From: contactb.today <bernbrooks@...>cholesteatoma Sent: Fri, May 20, 2011 9:33:55 AMSubject: Re: Popping Ear Presumably this technique doesn't work if the eardrum is perforated? And this might be the reason that the popping is not experienced?Bernard>> Here is what I have posted previously: > > I inflate my ears 2-3 times a day using the Politzer technique, > http://www.pediatricsupersite.com/view.aspx?rid=35966> > Here's the technique I perform as written by the Pediatric ENT that wrote the > article:> "Third, the bulb syringe is seated firmly against one nasal aperture and the > other nostril is gently pinched closed by the index finger tip not holding the > bulb syringe. The final step is when the patient is commanded to swallow a bolus > of water and synchronous to deglutition, the bulb syringe is gently squeezed. If > the Politzer procedure is performed correctly, some of the bolus of air released > into the nasal passage enters and traverses both Eustachian tubes and exits into > both middle ear clefts. The act of deglutition causes activation of the tensor > palatini muscle and this opens the mouth of the Eustachian tube allowing the > bolus of air to enter. A quick look with the pneumatic otoscope will allow the > examiner to tell if the eardrum remains in the retracted position or reverts to > the normal neutral position. At the same time, the patient is queried if he or > she felt discomfort when air entered one or both middle ear clefts. ative > patients can practice this technique and relieve the effects of negative middle > ear pressure on descent during air travel or after coming up from deep water > diving."> > > For the past year I've actively swam at both indoor and outdoor pools and the > ocean. I am not a diver, so do not have any information on this aspect as a > result of CWD. Post swimming I make sure that I flush any residual water from > the ear by shaking it out and using Swim Ear solution, > http://www.drugstore.com/qxp12443_333181_sespider/swim_ear/ear_drying_aid.htm. > It contains Isopropyl Alcohol (95%), which mixes well with water and dries > quickly. I just use 4-5 drops, then inflate to help drain and open u-tube.> > Hope this helps,> Nate> > Disclaimer - This post is not intended to offend anyone that suffers, or has > suffered, from Cholesteatoma.> > > > > ________________________________> From: crabtreejana <crabtreejana@...>> To: cholesteatoma > Sent: Thu, May 19, 2011 3:18:20 PM> Subject: Popping Ear> >  > I had cholesteoma surgery three years ago, but recently I have experienced > severe reduction in my hearing and I have a feeling of fullness in my ear.. I am > unable to pop my hear and my ear rings constantly. Any suggestions?> Quote Link to comment Share on other sites More sharing options...
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