Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 , Just be careful of the " equally quality " zeolites that are " so called " out there. Caveat emptor. The brilliant theory of integrity of a direct sales company is that who else can you trust than those you know who believe and are passionate about helping themselves and others and then being rewarded for a worth cause after doing their own research and education. There is no way else I would rather do it.I doubt ever that the clerk at GNC or Vitamin World would ever be educated in what to sell you. God Bless her for trying to make it too on a clerks salary.( what is the Inflated price? Is there a price in your mind that you've determined is adequate.. for health? Hope that there can shed some insight to your mindedness.Good luck to you! _____ From: cures for cancer [mailto:cures for cancer ] On Behalf Of Lowry Sent: Monday, July 23, 2007 6:06 PM cures for cancer Subject: Re: Advice Needed zeolite may or may not work (I recently tried it for three months with my cancer cell levels doubling in that time.) Bill you might want to wander aound the internet looking at various vendors for the zeolite as the one I signed up for turned out to have a marketing level practice where they horribly inflate the prices for the produce (6 bottles for $260 wholesale!) while at the same time giving their vendors 'free' trips to Las Vegas for selling at these inflated prices!!! It made me sick thinking they could so abuse peoples need for healing this way, and makes me distrust the integrity of the company. There are cheaper companies on the internet producing equally quality zeolite __________________________________________________________Ready for the edge of your seat? Check out tonight's top picks on TV. http://tv.. <http://tv./> com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2007 Report Share Posted July 31, 2007 www.gerson.org It's a blend of veggies, and fruits...You drink one every hour? I forget... The sight will have more info. good luck! bill Wilkins <w.wilkins@...> wrote: I'm interested. where do I access the info you mentioned? Bill Re: Advice Needed In a message dated 7/22/07 10:37:36 PM Eastern Daylight Time, w.wilkinscomcast (DOT) <mailto:w.wilkins%40comcast.net> net writes: > Please check my posts on cures for cancer as it is long and I can only type with > 1 finger. If you cannot find the info I left on the forum I can try typing it > again. Please check and let me know if you find it I have tons of email so I > deleted it after sending it to the forum. > Thanks > Bill > Bill...can you copy and paste rather than retyping? Please advise. ************************************** Get a sneak peek of the all-new AOL at http://discover. <http://discover.aol.com/memed/aolcom30tour> aol.com/memed/aolcom30tour Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 I suggest you go to our website www.tpa-uk.org.uk and have a look under 'Hypothyroidism' and see if you can put something together from there . I wish I could do this for you right now, but I'm afraid I will be out of the house very shortly. If anybody else can help maria, please coontact her. Luv - Sheila hi everyone I have got a medical tomorrow at work. I have had a look at some files but can anyone suggest something I could print up or type up, to give to them to send off to head office. because I so want them to understand about the thyroid and I think that is the only way they are going to understand, by having it in black and white in front of them. thanks No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.488 / Virus Database: 269.15.5/1085 - Release Date: 22/10/2007 10:35 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi Sheila, first let me congratulate you and on your anniversary. I had my medical at work today and it didn't go to well, I really get so frustrated trying to get these doctors to understand what an under active thyroid is. I can only give her one out of ten, according to her an under active thyroid is lack of energy. oh sorry you get cold has well so maybe I will give her two out of ten. unfortunately I didn't get time to put anything together to show her. on a lighter note I did speak to DR P today made an appointment to see him in November, so I am really pleased about that he is such a lovely person. I am into the third day of changing my thyroxine over to the night time and I cant explain it but there is a difference I seem to be more awake in the morning and that is good, mid day and early after noon I get tired then I come to life again and seem to be wide awake at bedtime. but I am going to give it a little longer. The complaint has gone to PCT re: the surgery manager. sorry if i have gone on but wanted to give you an update. thyroid treatment From: sheilaturner@...Date: Wed, 24 Oct 2007 08:27:47 +0100Subject: Re: Advice needed I suggest you go to our website www.tpa-uk.org.uk and have a look under 'Hypothyroidism' and see if you can put something together from there . I wish I could do this for you right now, but I'm afraid I will be out of the house very shortly. If anybody else can help maria, please coontact her. Luv - Sheila hi everyone I have got a medical tomorrow at work. Messages | Files | Photos | Links | Polls | Calendar Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe Recent Activity 10 New Members 1 New FilesVisit Your Group Having cancer is hardFinding helpshouldn´t be. A family Groupto share and learnabout healthy eating. Biz ResourcesY! Small BusinessArticles, tools,forms, and more. .. Are you the Quizmaster? Play BrainBattle with a friend now! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 Sorry I couldn't help with your update , but you could now get something together and post it to your doctor so in future, she will know a little bit more about hypothyroidism. You could also print off a TPA-UK Poster and put it up on her notice board in her surgery. Look in our Files section. Glad you are seeiong Dr Peatfield in November, you will not be disappointed after that consultation and will hopefully come out feeling you are walking a cloud 9. Let me know what the PCT ahve to soay when they respond, and if they haven't responded in 2 weeks, drop them a line giving them a reminder. Don't worry about having "gone on" as this is what this forum was set up for. We need sufferers to go on and get things off their chest and hopefully get some answers from this group. Luv - Sheila >...I did speak to DR P today made an appointment to see him in November, so I am really pleased about that he is such a lovely person. I am into the third day of changing my thyroxine over to the night time and I cant explain it but there is a difference I seem to be more awake in the morning and that is good, mid day and early after noon I get tired then I come to life again and seem to be wide awake at bedtime. but I am going to give it a little longer. The complaint has gone to PCT re: the surgery manager. sorry if i have gone on but wanted to give you an update. > > > thyroid treatment@...: sheilaturner@...: Wed, 24 Oct 2007 08:27:47 +0100Subject: Re: Advice needed> > > > > I suggest you go to our website www.tpa-uk.org.uk and have a look under 'Hypothyroidism' and see if you can put something together from there . I wish I could do this for you right now, but I'm afraid I will be out of the house very shortly. If anybody else can help maria, please coontact her.> > Luv - Sheila> > > > > hi everyone I have got a medical tomorrow at work. > Messages | Files | Photos | Links | Polls | Calendar > > > > Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. > Change settings via the Web ( ID required) Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional Visit Your Group | Terms of Use | Unsubscribe > > > Recent Activity> > > 10> New Members> > 1> New FilesVisit Your Group > > > Having cancer is hardFinding helpshouldn´t be.> > A family Groupto share and learnabout healthy eating.> > Biz ResourcesY! Small BusinessArticles, tools,forms, and more.> . > > > > > > > _________________________________________________________________> Get free emoticon packs and customisation from Windows Live. > http://www.pimpmylive.co.uk> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Hi , Get yourself started on CoQ10 (at least 200mg) and you will be able to slowly reduce your blood pressure meds - do not do this without getting the assistance of maybe the practice nurse (by getting your BP monitored regularly over a few days when you do stop). For your cholesterol because you are not being medicated for the thyroid (which brings it down) then you need to take Niacin, but you are best to get the no flush one because it feels like very hot prickly heat and a hot flush in one if you are one that it affects. Luv nne My doctor prescribed LERCANIDIPINE HYDROCHLORIDE (Zanidip)10mg for elevated blood pressure about 4 years ago - I also had slightly high colesterol and an awful lot of HypoT symptoms. The blood test showed THS 3.1 'normal'. About a year later I started using Natural Progesterone cream and my THS went down to 1.9. I am still taking the Zanidip - does anyone think I could stop taking it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 Hi , Well, that depends on how your BP is doing. I was prescribed zanidip last year, but could not tolerate it- I was just so sleepy and thick brained I just could not function- did you suffer any side effects? My doctor prescribed LERCANIDIPINE HYDROCHLORIDE (Zanidip)10mg for elevated blood pressure about 4 years ago - I also had slightly high colesterol and an awful lot of HypoT symptoms. The blood test showed THS 3.1 'normal'. About a year later I started using Natural Progesterone cream and my THS went down to 1.9. I am still taking the Zanidip - does anyone think I could stop taking it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2007 Report Share Posted October 26, 2007 My doctor prescribed LERCANIDIPINE HYDROCHLORIDE (Zanidip)10mg for elevated blood pressure about 4 years ago - I also had slightly high colesterol and an awful lot of HypoT symptoms. The blood test showed THS 3.1 'normal'. About a year later I started using Natural Progesterone cream and my THS went down to 1.9. I am still taking the Zanidip - does anyone think I could stop taking it? Many members here are using high doses of CoEnzymeQ10 and high doses of Niacin (Vitamin B3) to help bring down their high BP and high cholesterol and these are excellent supplements to the awful BP medication presdribed within the NHS. My husband uses both these and his BP and hiogh cholesterol have both come down. This was after his doctor prescribed Symvastin 40 mgs and increased it too 80 mgs and all he got was terrible muscle and joint problems. You could try and see if these would work. Both are natural products and it is fact that CoEnzymeQ10 is depleted when we get older and is vital for our health. After visiting Dr P, and having tests, he said my T3 is under range and I have a conversion deficit and overstressed adrenals. I started on a very low dose of Nutri Adrenal and have been slowly increasing the dose every week. How will I know whenI have reached the optimum dose? What dose are you taking of NAE at the moment and when do you take this medication? Don't take it after 1.00p.m. because it could interfere with your sleep. You should start to feel better than you have felt for a long time though this could take some time. Usually you start NAE for at least a couple of weeks before adding in other medication or supplements.What is the difference between Nutri Thyroid and Armour? There is a lot of difference. Nutri Thyroid is a supplement to boost the action of the thyroid gland but it contains no thyroid hormone. Armour Thyroid, USP is a natural desiccated pigs thyroid extract. It contains the thyroid hormones T4, T3, T2, T1, Calcitonin and other unspecified enzymes. If you are hypothyroid, you have to supplement with thyroiod hormones, and usually, for the rest of your life. Your Nutri Thyroid will boost your thyroid action until you can start on the 'proper' thing (Armour) but cannot be a substitute. Luv - Sheila No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.10/1092 - Release Date: 25/10/2007 13:14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hi , It's a wonderful relief to realise that you are not crazy and what the problem is. Many of us have gone through that which is why we are fighting so hard to be listened to and it's the medical system that is failing us . S For years I have been told that I am 'bored' or 'fussy' or 'silly' - or 'lazy' when I could hardly get out of bed in the morning - or in bed for two days with migraine or sinus attack. I have been apologising most of my life for being sensitive. Looking at Dr Rind Scorecard, looking at the various files etc., visiting Dr P and reading all the HypoT stories, I realised that even in this day and age of wonderful technological discoveries there are hundreds and thousands of people who are told that their illnesses are all in their heads! Keep smiling everyone - it makes people uneasy, they think you are up to something......... Messages are not a substitute for professional medical advice. Always consult with a suitably qualified practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 Hiya Yes it is a relief to realise it was not all in my head - but what a waste of a life. If some sympathetic, knowledgeable person could have listened to me and taken account of all the problems I have had for as long as I can remember, I would have been thankful for the understanding and it might have given me the courage to fight for my 'wellness'. Thankfully there is the TPA and a few doctors like Dr P - and hopefully if enough 'fuss' is made then surely someone, somewhere will listen. > > Hi , > It's a wonderful relief to realise that you are not crazy and > what the problem is. Many of us have gone through that which is why we are > fighting so hard to be listened to and it's the medical system that is > failing us . > S > > For years I have been told that I am 'bored' > or 'fussy' or 'silly' - or 'lazy' when I could hardly get out of bed in > the morning - or in bed for two days with migraine or sinus attack. I > have been apologising most of my life for being sensitive. Looking at > Dr Rind Scorecard, looking at the various files etc., visiting Dr P and > reading all the HypoT stories, I realised that even in this day and age > of wonderful technological discoveries there are hundreds and thousands > of people who are told that their illnesses are all in their heads! > > Keep smiling everyone - it makes people uneasy, they think you are up > to something......... > > > > > > > > Messages are not a substitute for professional medical advice. Always > consult with a suitably qualified practitioner before changing medication. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2007 Report Share Posted December 24, 2007 I am not a doctor, and am not qualified to give you any medical opinion. But I have corresponded with hundreds of people affected adversely by the Harrington rod over the past decade. I also began my career as a medical writer and editor, researhing and writing up medical news for physicians and other health professionals, so I am fairly familiar with the available research, including its shortcomings and the questions it has not addressed as yet. I have never heard odds like those you received from this surgeon. A 1 in 400 chance of paralysis is extremely high -- in fact, almost unheard of --unless you have some other condition the dcotor did not mention to you. Assuming your surgeon is a revision surgeon who has operated on many adults with previous fusions -- that is, not a general orthopedic surgeon, and not necessarily even a scoliosis surgeon and SRS member, but a Board-certified orthopedist or neurosurgeon with postdoctoral training in complex spinal deformities who operates routinely on adults with such deformities and with previously implanted spinal hardware -- the 1-in-400 risk he cited is shocking. One of my revision surgeons was reviewing possible complications of surgery with me and touched only lightly on paralysis, saying " That just doesn't happen anymore. " As we now know now, that is not entirely correct, since one of our group members did come out of revision surgery paraplegic -- but it is significant that Loriann is the first and only person most of us have ever known to experience this complication. No one apparently knows why or how she became paralyzed, although she did (like some others, including me) have previous neurological abnormalities relating to her spinal canal. Today's spinal fusions and revisions are generally safer than ever. Spinal cord functioning (both sensory and motor) is monitored continuously throughout the operation, enabling a surgeon to intervene immediately to prevent any possible damage in the case of an unexpected problem. I am wondering if you have some other condition you may not have mentioned, or if your surgeon found such a condition. In that case, however, I would think you would need urgent surgery anyway, as when I developed a post-op fracture at T-10 which put my spinal cord at risk. I am also concerned that your doctor did not mention any spinal problem other than your worsening scoliosis. Unless you have a fairly short Harrington rod limited to, say, your upper thoracic region, I would think you are at risk of flatback syndrome as well. If you do not have flatback syndrome, that is good mews indeed. It would be good to have the reassurance that your doctor is well informed on this secondary, hardware-induced deformity. Did he order special, long x-rays showing your spine in the sagittal plane? Did he check for flatback, using the " plumbline " method advocated by the Scoliosis Research Society? Unfortunately, even today, we are gettig reports of doctors who simply overlooked this diagnosis and sent patients away with no help. It is surprising that a qualified spinal specialist was hesitant to correct your progressive scoliosis. This can often be done as part of an operation to correct a flatback deformity. Even in the absence of flatback syndrome, a number of us have had adult scoliosis corrections at some time later in life, after shorter fusions in our adolescence (when longer operations were less safe and feasible) which left us vulnerable to later deterioration in unfused vertebrae. This kind of adult re-correction is usually posterior- only and is not nearly as complex as most flatback revisions, making your surgeon's " paralysis odds " even more puzzling and worrisome. The most experienced and skilled revision surgeons do not hesitate to perform such surgeries these days on people in their seventies, eighties, even nineties, provided that the patient's cardiovascular condition and overall health situation do not make general anesthesia hazardous. After an experience like the one you had with your surgeon, it is usually worthwhile to see another doctor, or even seveal more doctors, to find out whether there is a true consensus or whether a more knowledgeable and experienced specialist can offer you information or assurance that the first doctor could not. If the surgeons agree that you do not need further fusion and will not get any worse, that might give you some basis for deciding to live with the scoliosis (assuming it is not causing you any particular pain or difficulty). I assume your surgeon will be referring you to a hip specialist. I think you should also make every possible effort to consult another spinal specialist with the qualifications I mentioned earlier in this post. We may be able to help you with recommendations if you tell us where you are located. We do not have data on everyone in the US who may be sufficiently specialized to offer you a definitive diagnosis and substantive help with your spinal isues, but we do have many more names than we used to, both in the doctor-evalution section of our website and in posts archived here over the past seven years. I do not know whether this applies to you or not, but I want to make one final comment. As a very general rule -- in view of the collective reported experience of several hundred people with Harrington-rod-related issues -- it is probably preferable to see a doctor other than the surgeon who originally implanted your rod. You need and deserve much clearer and more specific answers than you have received so far. I very much hope that you can get these. Thank you so much for updating us, and please keep us posted on your subsequent progress. Best, In , " daly.amanda " <daly.amanda@...> wrote: > > I have just come back from my surgeon. I was visiting him for pain > that is in my hip. He now has to send me for MRI and says that it is > not related to my back and is a seperate issue which may need to be > operated on. But with regards to my back I have posted here before and > had a 57 degree post op curve with harrington rods 12 years ago. He > measured it today at 66. He said this is not unusal but I said when is > this going to stop, he said he didnt know but wouldnt expect it to go > any futher. He said he can operate and starighten it but it would be a > big operation with a 1 in 400 chance of being paralyzed, he wouldnt > reccomend it but would do it. > What do other people here think, have ye being given those odds yet > gone ahead with surgery? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 Hi there Everyone - Seasons Greetings from the UK! Was just wondering if anyone knows how Andy is doing after her surgery for removal of revision instrumention that was taking place just before Christmas? T ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Thank u for your response it makes me feel much better. I thought the odds were very high but he just kept saying it. I dont have any other conditions. I am fused fairly high up but he didnt think that that was a problem the only problem he could see was a reduction in lung capacity as I have a castoplast to reduce my rib hump and he said a revision surgery would reduce my lung capacity further. I am going to see another surgeon in a couple of months for a second opinion. I choose him because he is also invovled in a study of the Katharina Schroth technique. I dont know if u have heard of it but it is suppose to help with pain and progression. I am having an MRI on Monday for my hip so will let ye know how that goes.Again Thanks. > > > > I have just come back from my surgeon. I was visiting him for pain > > that is in my hip. He now has to send me for MRI and says that it > is > > not related to my back and is a seperate issue which may need to > be > > operated on. But with regards to my back I have posted here before > and > > had a 57 degree post op curve with harrington rods 12 years ago. > He > > measured it today at 66. He said this is not unusal but I said > when is > > this going to stop, he said he didnt know but wouldnt expect it to > go > > any futher. He said he can operate and starighten it but it would > be a > > big operation with a 1 in 400 chance of being paralyzed, he > wouldnt > > reccomend it but would do it. > > What do other people here think, have ye being given those odds > yet > > gone ahead with surgery? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Sorry I forgot to mention I live in the UK so u proberly dont have any information on doctors here.He did do a full body xray and said everything looked fine but I will bring the xrays to this other surgeon and see what he says. > > > > I have just come back from my surgeon. I was visiting him for pain > > that is in my hip. He now has to send me for MRI and says that it > is > > not related to my back and is a seperate issue which may need to > be > > operated on. But with regards to my back I have posted here before > and > > had a 57 degree post op curve with harrington rods 12 years ago. > He > > measured it today at 66. He said this is not unusal but I said > when is > > this going to stop, he said he didnt know but wouldnt expect it to > go > > any futher. He said he can operate and starighten it but it would > be a > > big operation with a 1 in 400 chance of being paralyzed, he > wouldnt > > reccomend it but would do it. > > What do other people here think, have ye being given those odds > yet > > gone ahead with surgery? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 HI Gol to our website www.tpa-uk.org.uk and click on 'Hypothyroidism' and on the drop down menu, click on 'Nutrition and Supplements'. Hopefully ('cos i can't remember without going to have a look) the recommended supplements etc will tell you whether you shouldn't take them with others. Luv - Sheila Advice needed HiPerhaps Bob could tell me.........I wonder if there is a link/file that will tell me what supplements and medications etc., should not be taken at the same time. Which supplements cancel out each other etc.,And....... if there are supplements which should not be taken together, how do multivitamin supplements work.I am taking so many vitamin and mineral pills along with Nutri Thyroid and Nutri Adrenal, I don't want the potency to be diminished by taking them together. B No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.3/1306 - Release Date: 01/03/2008 17:41 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hi sheila I have just had a look - it does not say what vitamin and minerals one should not take together. I take vit C (x2), vit E, Co-Q10, magneisum and magneisum with calcium, vit D,K and boron, Milk Thistle, selienum, omega 3,6,9, and a multivitamin/mineral. How do multi vits work if some of the ingredients seem to cancel out each other? B > Gol to our website www.tpa-uk.org.uk and click on 'Hypothyroidism' and on the drop down menu, click on 'Nutrition and Supplements'. Hopefully ('cos i can't remember without going to have a look) the recommended supplements etc will tell you whether you shouldn't take them with others. > > Luv - Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 I am definitely passing this to Bob . He is the chemist! Luv - Sheila Hi sheilaI have just had a look - it does not say what vitamin and minerals one should not take together.I take vit C (x2), vit E, Co-Q10, magneisum and magneisum with calcium, vit D,K and boron, Milk Thistle, selienum, omega 3,6,9, and a multivitamin/mineral.How do multi vits work if some of the ingredients seem to cancel out each other? B> Gol to our website www.tpa-uk.org.uk and click on 'Hypothyroidism' and on the drop down menu, click on 'Nutrition and Supplements'. Hopefully ('cos i can't remember without going to have a look) the recommended supplements etc will tell you whether you shouldn't take them with others.> > Luv - Sheila No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.21.3/1306 - Release Date: 01/03/2008 17:41 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Hi I need my brain back in good order, to answer... I'll try later. best wishes Bob > > Hi sheila > > I have just had a look - it does not say what vitamin and minerals > one should not take together. > > I take vit C (x2), vit E, Co-Q10, magneisum and magneisum with > calcium, vit D,K and boron, Milk Thistle, selienum, omega 3,6,9, and > a multivitamin/mineral. > > How do multi vits work if some of the ingredients seem to cancel out > each other? > > B > > > > > Gol to our website www.tpa-uk.org.uk and click on 'Hypothyroidism' > and on the drop down menu, click on 'Nutrition and Supplements'. > Hopefully ('cos i can't remember without going to have a look) the > recommended supplements etc will tell you whether you shouldn't take > them with others. > > > > Luv - Sheila > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 That is exactly what happened to me and I had to go back to my gp who told me to stop meds totally and he made an appointment for me to see the endo. The endo put me on T3 for 5 months and then finally agreed to give me armour as the T3 also gave me headaches. Did you sort out your adrenals before starting levo by the way, I do think that this was initially what caused my headaches but I knew nothing about adrenals then. Luv nne Hi Everyone,I really need some advice, I've now been on my trial of levothyroxine for nearly 3 weeks and I'm thinking about stopping. I've been taking 25 mcg for the first two weeks, but I was getting excrutiating headaches with dizziness. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi Angie If you were complaining of brain dysfunction before and sinusitis like pain, it could be your head clearing. The headaches are horrendous, but if this is the case it will get better. Uping and downing on the dose does not help matters. Luv Chris > > Hi Everyone, > > I really need some advice, I've now been on my trial of levothyroxine > for nearly 3 weeks and I'm thinking about stopping. I've been taking 25 > mcg for the first two weeks, but I was getting excrutiating headaches > with dizziness. I've now cut it down to 12.5 mcgs for the past 5 days, > but I'm still getting these awful headaches. I don't know what to do, > whether to try and tuff it out, or stop taking them. I really don't > want to go back to my doctor and admit defeat as he's only giving me a > trial to see if it cures any of my symptoms, but if I can't get past a > tiny dose, I'm never going to get any benefits. > > Any advice? > > Angie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi I certainly had brain dysfunction and a bit of sinus pressure. How long do you think it will take to get better? Angie > > Hi Angie > > If you were complaining of brain dysfunction before and sinusitis > like pain, it could be your head clearing. The headaches are > horrendous, but if this is the case it will get better. Uping and > downing on the dose does not help matters. > > Luv > Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi nne, I've been thinking about going back to my GP, but the problem I have is that he will just tell me to stop taking it and that will be my trial over and back to being in the zone of no hope again. Have you done better on armour? I haven't done anything about my adrenals, I started to take half a nutri adrenal extra each day, and that's when my headaches started to get much worse, so I stopped them, but the headaches haven't got better, so am not sure what to do really. Angie > That is exactly what happened to me and I had to go back to my gp who told > me to stop meds totally and he made an appointment for me to see the endo. > The endo put me on T3 for 5 months and then finally agreed to give me armour as > the T3 also gave me headaches. Did you sort out your adrenals before > starting levo by the way, I do think that this was initially what caused my > headaches but I knew nothing about adrenals then. > > Luv nne > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi Angie Based on my experience a good few weeks, do your headaches start after you get up in the morning and get worse as the day goes on and seem to move around the head with the need to lay your head down. Luv Chris > > Hi > > I certainly had brain dysfunction and a bit of sinus pressure. How long > do you think it will take to get better? > > Angie > > > > > > Hi Angie > > > > If you were complaining of brain dysfunction before and sinusitis > > like pain, it could be your head clearing. The headaches are > > horrendous, but if this is the case it will get better. Uping and > > downing on the dose does not help matters. > > > > Luv > > Chris > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi my headaches usually start mid morning, I don't feel too bad when I get up, then they get really bad after lunch till early evening, when they seem to ease off a bit although not fully. It's a strange sensation really, not something I've had before. It feels like pressure and it's all around the area of my sinuses and mid forehead. I've also got pressure like a squeezing sensation at my temples. I'm also getting really dizzy and lightheaded. Maybe I'll stick it out a bit longer and see what happens, it's tough though as painkillers aren't doing much. Angie > Hi Angie > > Based on my experience a good few weeks, do your headaches start > after you get up in the morning and get worse as the day goes on and > seem to move around the head with the need to lay your head down. > > Luv > Chris > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2008 Report Share Posted March 9, 2008 Hi Angie Do you know if you have an allergy to Lactose. Many people cannot get along with L-thyroxine because of the fillers, and you would need to try the natural thyroid extract (Armour) that does not contain lactose, or your doctor would need to prescribe the pure form of thyroxine that he can order from dales Pharmacy. You might need to get tested to see if you do have such an allergy, because you can't go on like this. For the moment, I would stop taking your thyroxine and make absolutely sure that you have no other condition that might be causing you to have this reaction. It comes back to the possibility of having low adrenal reserve, having candida albicans, having a low ferritin level and any of these could stop your thyroxine working as it should. It might be that you simply are unable to convert the inactive T4 to the active T3 so the T4 is floating around in your blood and has literally nowhere to go. Have a look at these http://www.endocrine-abstracts.org/ea/0006/ea0006p3.htm - http://www.ncbi.nlm.nih.gov/pubmed/17123345 http://www.emedicine.com/ped/byname/lactose-intolerance.htm Do phone your doctor and explain what is happening, and suggest that it could be that you are having a reaction to the Lactose, especially if you are intolerant to dairy foods. Luv - Sheila Advice needed Hi Everyone,I really need some advice, I've now been on my trial of levothyroxine for nearly 3 weeks and I'm thinking about stopping. I've been taking 25 mcg for the first two weeks, but I was getting excrutiating headaches with dizziness. I've now cut it down to 12.5 mcgs for the past 5 days, but I'm still getting these awful headaches. I don't know what to do, whether to try and tuff it out, or stop taking them. I really don't want to go back to my doctor and admit defeat as he's only giving me a trial to see if it cures any of my symptoms, but if I can't get past a tiny dose, I'm never going to get any benefits.Any advice?Angie No virus found in this incoming message.Checked by AVG. Version: 7.5.518 / Virus Database: 269.21.7/1319 - Release Date: 08/03/2008 10:14 Quote Link to comment Share on other sites More sharing options...
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