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Re: Hearing loss after Mastoidectomy/Tympanoplasty

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I ended with total hearing loss in the right ear due to A botched surgery, I

have since required 2 other surgeries, one being a BAHA hearing aid on the

right, I don't find it to be much help, but everyone is different, it was done

due to the same type of hearing loss. Usually totaled covered by insurance.

Regular hearing aids are not covered by insurance. Good luck

>

> I had surgery to remove a cholesteatoma about 18 months ago. I had been

going to my surgeon for regular checkups and everything was going well. I did

have hearing loss after the surgery but was told everything looked good. Then

we moved to North Carolina so I had to find a new doctor here, and I went for a

checkup. They did a hearing test and my hearing has gotten worse in both ears.

This doctor told me I have moderate to severe sensorineural hearing loss in my

right ear (the one I had surgery on) and mild to moderate sensorineural hearing

loss in my left ear (never had surgery). My question is, did the surgery cause

this hearing loss? And why am I losing hearing in my other ear?? This new

doctor said she would recommend hearing aids. This is the first time I heard

that I have inner ear hearing loss- I thought it was conductive hearing loss due

to the damage to the hearing bones by the cholesteatoma. Has anyone else had a

similar experience??

>

>

>

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My husband has had several surgeries on both ears because of cholesteatoma. He finally had a canal wall down surgery this past summer. He has lost much of his hearing from both ears and wears a BAHA on his right side. It seems like what little hearing he has continues to get worse.

From: seftonmichelle <seftonmichelle@...>cholesteatoma Sent: Tue, March 1, 2011 3:48:40 PMSubject: Hearing loss after Mastoidectomy/Tympanoplasty

I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar

experience??

y

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Hearing Aid is only easy option for u.Regarding reason, very difficult to find??

On Wed, Mar 2, 2011 at 9:32 AM, Christy Dozier <savemoredo@...> wrote:

 

My husband has had several surgeries on both ears because of cholesteatoma.  He finally had a canal wall down surgery this past summer.  He has lost much of his hearing from both ears and wears a BAHA on his right side.  It seems like what little hearing he has continues to get worse. 

From: seftonmichelle <seftonmichelle@...>cholesteatoma

Sent: Tue, March 1, 2011 3:48:40 PMSubject: Hearing loss after Mastoidectomy/Tympanoplasty

 

I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar experience??

y

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I can understand losing my hearing in the ear I had surgery. But why would I be losing my hearing in the ear that I did not have a c-toma or surgery? Could this just be genetics?

My husband has had several surgeries on both ears because of cholesteatoma. He finally had a canal wall down surgery this past summer. He has lost much of his hearing from both ears and wears a BAHA on his right side. It seems like what little hearing he has continues to get worse.

From: seftonmichelle <seftonmichelle@...>cholesteatoma

Sent: Tue, March 1, 2011 3:48:40 PMSubject: Hearing loss after Mastoidectomy/Tympanoplasty

I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar experience??

y

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Your good ear over compensates for your ear with the cholesteatomaSent from my BlackBerry device on the Wireless NetworkFrom: Sefton <seftonmichelle@...>Sender: cholesteatoma Date: Wed, 2 Mar 2011 06:11:48 -0800 (PST)<cholesteatoma >Reply cholesteatoma Subject: Re: Hearing loss after Mastoidectomy/Tympanoplasty I can understand losing my hearing in the ear I had surgery. But why would I be losing my hearing in the ear that I did not have a c-toma or surgery? Could this just be genetics? My husband has had several surgeries on both ears because of cholesteatoma. He finally had a canal wall down surgery this past summer. He has lost much of his hearing from both ears and wears a BAHA on his right side. It seems like what little hearing he has continues to get worse. From: seftonmichelle <seftonmichelle@...>cholesteatoma Sent: Tue, March 1, 2011 3:48:40 PMSubject: Hearing loss after Mastoidectomy/Tympanoplasty I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar experience??y

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Even before ctoma diagnostis with my left ear and recent surgeries, I had

tinnitus in the right ear. It may have been my imagination, but it seemed to get

better for a bit, but it is seriously back. I think the ear may be

overcompensating for the lack of sounds in the left ear.

Sharalyn

>

> I had surgery to remove a cholesteatoma about 18 months ago. I had been

going to my surgeon for regular checkups and everything was going well. I did

have hearing loss after the surgery but was told everything looked good. Then

we moved to North Carolina so I had to find a new doctor here, and I went for a

checkup. They did a hearing test and my hearing has gotten worse in both ears.

This doctor told me I have moderate to severe sensorineural hearing loss in my

right ear (the one I had surgery on) and mild to moderate sensorineural hearing

loss in my left ear (never had surgery). My question is, did the surgery cause

this hearing loss? And why am I losing hearing in my other ear?? This new

doctor said she would recommend hearing aids. This is the first time I heard

that I have inner ear hearing loss- I thought it was conductive hearing loss due

to the damage to the hearing bones by the cholesteatoma. Has anyone else had a

similar experience??

>

>

>

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That would concern me. I would get a second opinion.

>

>

>  

>

>

>

>

>

> My husband has had several surgeries on both ears because of cholesteatoma. 

He finally had a canal wall down surgery this past summer.  He has lost much of

his hearing from both ears and wears a BAHA on his right side.  It seems like

what little hearing he has continues to get worse. 

>

>

>

>

>

>

> From: seftonmichelle <seftonmichelle@...>

> cholesteatoma

>

>

> Sent: Tue, March 1, 2011 3:48:40 PM

> Subject: Hearing loss after Mastoidectomy/Tympanoplasty

>

>

>  

>

> I had surgery to remove a cholesteatoma about 18 months ago. I had been going

to my surgeon for regular checkups and everything was going well. I did have

hearing loss after the surgery but was told everything looked good. Then we

moved to North Carolina so I had to find a new doctor here, and I went for a

checkup. They did a hearing test and my hearing has gotten worse in both ears.

This doctor told me I have moderate to severe sensorineural hearing loss in my

right ear (the one I had surgery on) and mild to moderate sensorineural hearing

loss in my left ear (never had surgery). My question is, did the surgery cause

this hearing loss? And why am I losing hearing in my other ear?? This new doctor

said she would recommend hearing aids. This is the first time I heard that I

have inner ear hearing loss- I thought it was conductive hearing loss due to the

damage to the hearing bones by the cholesteatoma. Has anyone else had a similar

experience??

>

>

>

>

>

> y

>

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In my case, my over the ear hearing aids were mostly covered by insurance, They were $1,500 each, and while my insurance would pay only $100 per ear, my husband’s insurance

would pay $1,000 per ear.

IDQ Companies

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I had a similar problem to yours. I had surgery about 14 months ago in my left ear. The cholesteatoma was quite extensive and had damaged a lot of the middle ear and invaded part of the semi-circular canal. After surgery my consultant was quite surprised that I still had any hearing and although less than before, I was confident that a hearing aid would help. Then one morning 6 months after surgery I woke up and had no hearing at all in the damaged ear. Subsequent audiograms confirmed I had severe sensorineural hearing loss. My consultant told me the likely cause for this set back was probably related to me becoming more active and the delicate state of my hearing couldn't be sustained. I am now in the process of having a BAHA fitted to help me hear on the left

side.

If all that was not bad enough, the damage to the semi-circular canal left me very dizzy and even now, after 14 months I am still suffering although to a much lesser extent.

Suffering hearing loss at this level is not easy to cope with both mentally and physically, so I know what you are going through. I really hope your situation improves.

From: seftonmichelle <seftonmichelle@...>cholesteatoma Sent: Tue, 1 March, 2011 21:48:40Subject: Hearing loss after Mastoidectomy/Tympanoplasty

I had surgery to remove a cholesteatoma about 18 months ago. I had been going to my surgeon for regular checkups and everything was going well. I did have hearing loss after the surgery but was told everything looked good. Then we moved to North Carolina so I had to find a new doctor here, and I went for a checkup. They did a hearing test and my hearing has gotten worse in both ears. This doctor told me I have moderate to severe sensorineural hearing loss in my right ear (the one I had surgery on) and mild to moderate sensorineural hearing loss in my left ear (never had surgery). My question is, did the surgery cause this hearing loss? And why am I losing hearing in my other ear?? This new doctor said she would recommend hearing aids. This is the first time I heard that I have inner ear hearing loss- I thought it was conductive hearing loss due to the damage to the hearing bones by the cholesteatoma. Has anyone else had a similar

experience??

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Iam in the same positon, i had 2 ops last year, one in Jan which didn't destroy

much of hearing but some of c-toma was left behind, i had a 2nd op in may which

it was all removed, my hearing dropped, but i woke up one morning some 2 weeks

after the op to find i had little hearing, being already severly deaf in left, i

had nothing at all, profoundly in right now, my balance is bad as my balance

organ was damamged, i am constantly off balance, dizzy, worse in cold weather, I

am waiting for a BAHA desicion as well.

I am finding a quite difficult adjusting to the hearing loss and balance issues,

and yes it is hard work, i work full time and trying to do my job to my best and

cope with both hearing loss and balance issues is difficult, i keep getting

infections in my right ear, got one now, 2nd one in a month, that really drags

me down.

>

> I had a similar problem to yours. I had surgery about 14 months ago in my left

> ear. The cholesteatoma was quite extensive and had damaged a lot of the middle

> ear and invaded part of the semi-circular canal. After surgery my consultant

was

> quite surprised that I still had any hearing and although less than

> before, I was confident that a hearing aid would help. Then one morning 6

months

> after surgery I woke up and had no hearing at all in the damaged ear.

Subsequent

> audiograms confirmed I had severe sensorineural hearing loss. My consultant

told

> me the likely cause for this set back was probably related to me becoming more

> active and the delicate state of my hearing couldn't be sustained. I am now

in

> the process of having a BAHA fitted to help me hear on the left side.

>

> If all that was not bad enough, the damage to the semi-circular canal left me

> very dizzy and even now, after 14 months I am still suffering although to a

much

> lesser extent.

>

> Suffering hearing loss at this level is not easy to cope with both mentally

and

> physically, so I know what you are going through. I really hope your situation

> improves.

>

>

>

>

> ________________________________

> From: seftonmichelle <seftonmichelle@...>

> cholesteatoma

> Sent: Tue, 1 March, 2011 21:48:40

> Subject: Hearing loss after Mastoidectomy/Tympanoplasty

>

>  

> I had surgery to remove a cholesteatoma about 18 months ago. I had been going

to

> my surgeon for regular checkups and everything was going well. I did have

> hearing loss after the surgery but was told everything looked good. Then we

> moved to North Carolina so I had to find a new doctor here, and I went for a

> checkup. They did a hearing test and my hearing has gotten worse in both ears.

> This doctor told me I have moderate to severe sensorineural hearing loss in my

> right ear (the one I had surgery on) and mild to moderate sensorineural

hearing

> loss in my left ear (never had surgery). My question is, did the surgery cause

> this hearing loss? And why am I losing hearing in my other ear?? This new

doctor

> said she would recommend hearing aids. This is the first time I heard that I

> have inner ear hearing loss- I thought it was conductive hearing loss due to

the

> damage to the hearing bones by the cholesteatoma. Has anyone else had a

similar

> experience??

>

>

>

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