Guest guest Posted July 30, 2003 Report Share Posted July 30, 2003 That is a wonderful idea. So many people can't get coverage for hearing aids and it's a shame. I'm in the process of writing my state representative about legislation requiring insurance companies to cover hearing aids and cochlear implants.. I know, I'm just one person and probably won't make much of an impact, but if everyone wrote to their representatives and got as many signatures as they could.. maybe, just maybe they would pay closer attention to the needs of the deaf. Hugs, Silly In , snoopy1964@a... wrote: > I donated them to my audie for use as loaners or to give them to someone who > might need them!!! > > -- > Snoopy > N24C-bilateral Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 Rosemary, I'd probably try a minute with the hearing aid turned off and then one with it turned on and see what kind of difference showed up, if any. Pete-----Original Message-----From: Rosemary Herron Sent: Sep 17, 2003 9:39 PM Subject: Hearing aids Pete, What would you expect to see if someone has a hearing aid in and turned on during the assessment? And is totally nerve deaf in the other ear? Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Pete, That was my plan. Didn't figure out what the problem might be until after the session. Let you know the results. Rosemary Re: Hearing aids Rosemary, I'd probably try a minute with the hearing aid turned off and then one with it turned on and see what kind of difference showed up, if any. Pete-----Original Message-----From: Rosemary Herron Sent: Sep 17, 2003 9:39 PM Subject: Hearing aids Pete, What would you expect to see if someone has a hearing aid in and turned on during the assessment? And is totally nerve deaf in the other ear? Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Rosemary, I'd probably try a minute with the hearing aid turned off and then one with it turned on and see what kind of difference showed up, if any. Pete-----Original Message-----From: Rosemary Herron Sent: Sep 17, 2003 9:39 PM Subject: Hearing aids Pete, What would you expect to see if someone has a hearing aid in and turned on during the assessment? And is totally nerve deaf in the other ear? Rosemary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 I am intrigued by this digital/analogue combined HA... I went back to my HA supplier and asked about it. Seems they are only available abroad, but he's going to enquire for me... Can anyone give me a cost estimate how much they are? One of my first BTEs was Venniatone really good HAs, had it for years - and since they 'went out of business'/changed ownership have been unable to get anything to match them; in my quest I tried Phonak analogue HAs and found them awful hallow. I currently wear Oticon, which are good sound-wise, but very heavy and long compared to other BTEs and cause an indention on top of my ear where it attaches to the tubing. Anything smaller just won't work at all, or produces a sound I'm not happy with... After all the hassle in finding a BTE, only to be told the market will 'close' within 5-10 years for high-powered analogues, I wasn't impressed to have my 'options' narrowed considerably. Any websites I can view? Hearing Aids Hi , Regarding hearing aids behind the ear are the best for people with hearing loss because in-the-ear, in-the- canal or even completely in -the- canal are too small to hold the necessary electronics you need to hear with. I recommend directional microphones, a volume control, T-coil ( used with assistive listening equipment, and a wide range dynamic program which makes loud sounds softer and soft sounds louder. You need to try a Phonak brand behind the ear hearing aid with the above mentioned. The hearing aids I now have are Phonak (brand name) and they are behind -the -ear PiCS (Personal Integrated Communication System) Mark 2. It includes a remote control called a Digital Handy Control, this is the gadget I carry around with me all the time. You can also wear it around your neck if desired. The remote is an integral part of these hearing aids. I have three programs specified for my hearing loss. Program (1) is for conversation in a quiet room. Program (2) is in a noisy restaurant or convention hall or talking to someone on an airplane. Program (3) is for hearing at a football game. What program #2 does is lower the background noise so the person you are talking to will be louder than the background noise. There is a plus sign for increasing the volume and a minus sign for decreasing the volume on the remote, this can be used with the different programs as well. There is also a t-coil to help hear on the phone an can also be used with assistive listening devices and there is an autozoom (AZ) feature which can zoom in on to the person you are talking to. There are four types of hearing aids. Analog, this lets you hear all sounds even those you do not want to hear. Programmable aids are only programmed for your specific loss and no directional microphones are included and then there is the Digital Programmable Analog hearing aid (Behind the Ear) BTE, which is what I wear, this hearing aid is digitally programmed in the audiologist office with the use of a computer for my specific hearing needs and it has directional microphones. The most expensive is the completely digital and does all your hearing work for you. Phonak makes the Claro and Perseo these should be behind the ear even though Phonak also sells them as in- the- canal hearing aids. The smaller they are, the more expensive they are. With completely digital hearing aids Phonak provides a remote, always insist on a volume control, T-coil even it they claim to be completely digital. Always try them out for thirty days, with a written guarantee to return if not satisfied. You should only be charged for the ear molds, and small charge for fitting. Some hearing aid dealers ask for a 10% of the complete purchase price if returned. You can always try a hospital or university with a audiology department that sells Phonak, perhaps your Doctor does not have a contract with Phonak and may not be up-to-date when fitting them. Let your audiologist know your hearing environment too. I joined this list because I have been hard of hearing all my life and appreciate the feed back on this list. Also involved with many folks who have or considering a CI too. I just joined this list last week. I am a retired microbiologist and do not sell hearing aids. Take a friend or family member when purchasing hearing aids too. Hermine Willey Columbus OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 , I will be very interested in hearing if you get into the hybrid trials. Is your center participating? At least your hearing aids are helping and that's good. I know how frustrating it can be when they don't do more than take up space in your ear. FYI - most of the activity is on the other CI Hear list now as we moved the list from - due to multiple technical problems here. You won't see too much response over here but I kept it open for people who join looking for CI Hear. The new list address is @... which is where you will notice a lot of response now. I'm so glad you posted on this list though and the reason I've kept it open. Let me know if you wish to be on the active list and so that I can add you to it. Alice > > > I just wanted to say I got my new hearing aids. They're the kind of > hearing aids that shift the upper sound frequencies lower. I can hear > my family members but not the tv sounds as well. Now I won't have the > excuse I can't hear yall lol. I'm still working on getting into a > hybrid CI trial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2005 Report Share Posted April 5, 2005 Ah really? I didn't know. By all mean add me. > > > > > > I just wanted to say I got my new hearing aids. They're the kind of > > hearing aids that shift the upper sound frequencies lower. I can hear > > my family members but not the tv sounds as well. Now I won't have the > > excuse I can't hear yall lol. I'm still working on getting into a > > hybrid CI trial. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2011 Report Share Posted April 4, 2011 I had surgery in August 2009 to remove a large cholesteatoma. It destroyed my hearing bones and I now have a titanium prothesis. My family moved to North Carolina last summer so I had to find a new doctor to follow my care. I went to her several weeks ago and she said that everything looked good (except for my hearing loss) and did I ever consider hearing aids? I have severe sensoneural hearing loss in that ear. So I went for a consult and decided to try the hearing aids. I have a month to decide if they are right for me. Here is my problem- I have Eustachian tube dysfunction as well. I feel like I still cannot hear with the hearing aid. When I pop my ears I can hear for a brief time, and then it fades and plugs up again. Has anyone had luck with hearing aids if their eustachian tubes don't work properly. Also, is there any treatment for ETD?? I was told there was nothing that could be done, but I have read that sometimes it is allergy related and antihistamines or steroids can sometimes work. I am so frustrated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2011 Report Share Posted April 5, 2011 Have you heard the BAHA implant? My husband has had multiple surgeries and hearing loss in both ears. If you want more information, let me know and I will send you his email address. From: seftonmichelle <seftonmichelle@...>cholesteatoma Sent: Mon, April 4, 2011 7:38:20 PMSubject: hearing aids I had surgery in August 2009 to remove a large cholesteatoma. It destroyed my hearing bones and I now have a titanium prothesis. My family moved to North Carolina last summer so I had to find a new doctor to follow my care. I went to her several weeks ago and she said that everything looked good (except for my hearing loss) and did I ever consider hearing aids? I have severe sensoneural hearing loss in that ear. So I went for a consult and decided to try the hearing aids. I have a month to decide if they are right for me. Here is my problem- I have Eustachian tube dysfunction as well. I feel like I still cannot hear with the hearing aid. When I pop my ears I can hear for a brief time, and then it fades and plugs up again. Has anyone had luck with hearing aids if their eustachian tubes don't work properly. Also, is there any treatment for ETD?? I was told there was nothing that could be done, but I have read that sometimes it is allergy related and antihistamines or steroids can sometimes work.I am so frustrated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 That would be great! Any information you have would be greatly appreciated. Why would the doctor tell me to try hearing aids if they aren't going to work??Thank you!From: Christy Dozier <savemoredo@...>Subject: Re: hearing aidscholesteatoma Date: Wednesday, April 6, 2011, 12:48 AM Have you heard the BAHA implant? My husband has had multiple surgeries and hearing loss in both ears. If you want more information, let me know and I will send you his email address. From: seftonmichelle <seftonmichelle@...>cholesteatoma Sent: Mon, April 4, 2011 7:38:20 PMSubject: hearing aids I had surgery in August 2009 to remove a large cholesteatoma. It destroyed my hearing bones and I now have a titanium prothesis. My family moved to North Carolina last summer so I had to find a new doctor to follow my care. I went to her several weeks ago and she said that everything looked good (except for my hearing loss) and did I ever consider hearing aids? I have severe sensoneural hearing loss in that ear. So I went for a consult and decided to try the hearing aids. I have a month to decide if they are right for me. Here is my problem- I have Eustachian tube dysfunction as well. I feel like I still cannot hear with the hearing aid. When I pop my ears I can hear for a brief time, and then it fades and plugs up again. Has anyone had luck with hearing aids if their eustachian tubes don't work properly. Also, is there any treatment for ETD?? I was told there was nothing that could be done, but I have read that sometimes it is allergy related and antihistamines or steroids can sometimes work.I am so frustrated!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 , I have sensorineural hearing loss as well. I wasn't happy with in-the-ear aids because they weren't powerful enough and they trapped moisture in my ear too much. I now have behind-the-ear aids with 'ear tips' - funky little tubes that I insert in my ears - that " allow the ear canals to breathe. " I like them a lot! They were a huge improvement over my old set of hearing aids. Matt Sefton wrote: > > > That would be great! Any information you have would be greatly > appreciated. Why would the doctor tell me to try hearing aids if they > aren't going to work?? > > Thank you! > > > > > > From: Christy Dozier <savemoredo@...> > Subject: Re: hearing aids > cholesteatoma > Date: Wednesday, April 6, 2011, 12:48 AM > > > Have you heard the BAHA implant? My husband has had multiple > surgeries and hearing loss in both ears. If you want more > information, let me know and I will send you his email address. > > ------------------------------------------------------------------------ > *From:* seftonmichelle <seftonmichelle@...> > *To:* cholesteatoma > *Sent:* Mon, April 4, 2011 7:38:20 PM > *Subject:* hearing aids > > > > I had surgery in August 2009 to remove a large cholesteatoma. It > destroyed my hearing bones and I now have a titanium prothesis. My > family moved to North Carolina last summer so I had to find a new > doctor to follow my care. I went to her several weeks ago and she > said that everything looked good (except for my hearing loss) and > did I ever consider hearing aids? I have severe sensoneural > hearing loss in that ear. > > So I went for a consult and decided to try the hearing aids. I > have a month to decide if they are right for me. Here is my > problem- I have Eustachian tube dysfunction as well. I feel like I > still cannot hear with the hearing aid. When I pop my ears I can > hear for a brief time, and then it fades and plugs up again. Has > anyone had luck with hearing aids if their eustachian tubes don't > work properly. Also, is there any treatment for ETD?? I was told > there was nothing that could be done, but I have read that > sometimes it is allergy related and antihistamines or steroids can > sometimes work. > > I am so frustrated!!!! > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 Matt,I do have behind the ear hearing aids, and the one that I have severe hearing loss in they fitted the receiver to my ear (so it is bigger and fits in the ear, with the microphone behind the ear). The problem I am having is I don't feel like I can hear any better SOME of the time. The other day I could hear plain as day- like I haven't heard in 4 years! I could even hear people talking like 4 people down during a soccer game like they were right next to me. I found that if I pop my ear I can hear for a few seconds to a few minutes, and then it closes off again (plugged up). I don't know if this is Eustachian tube dysfunction or what. I asked the audiologist and she said she didn't know (???) So I have a call in to my otologist and I am waiting to hear back. We have moved recently so I have a new doctor- not the doctor that performed the surgery. I am so frustrated!! Thanks for your input- I greatly appreciate it!--- On Wed, 4/6/11, Quote Link to comment Share on other sites More sharing options...
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