ear infections and ear tubes

[Guest guest]

Hi everyone,

I am new in the group, and still not sure how it works... I have a question, and

i would love some help. My nephew is 6 Y.O. he has achondroplasia and he

suffered from several ear infections.. After a while, the doctor recommended ear

tubes to drain his ears. They worked wonderfully, he could hear better and no

more infections!! and after a while they came out. Now, he has lost some

hearing.. ( not sure if this is permanent) and the doctor wants to treat the

ear infections with more meds.. but there is some concern about putting new

tubes ( more permanent ones). My question is.. have you gone through something

similar?? any suggestions or comments?? is it worthwhile to put the ear tubes??

Thanks for your help!!!!!! ;-)

[Guest guest]

Hello,

As this will be an ongoing issue, you would probably want to look into

permanent T-Tubes in the ears. Replacing tubes every couple of years will

lead to significant scaring which will lead to hearing loss. Doing it once

with the t-tubes will last several years. I had them for 15-20 years. I can

tell you that it was absolutely necessary in my case. In the past couple

of years they have come out. I haven't had an infection yet so it seems as

though I have grown out of them at this point. I went snorkling for the

first time a couple months ago and loved it. My wife (also in her 30's) on

the other hand who also had them for a similar amount of time and also

currently lost them, has had some minor infections over the past couple of

years easily treated with drops and antibiotics. (nothing like we had when

we were kids)

-Casey

On Sun, Jul 31, 2011 at 10:35 PM, candilux_tade <canditorres@...>wrote:

> **

>

>

> Hi everyone,

> I am new in the group, and still not sure how it works... I have a

> question, and i would love some help. My nephew is 6 Y.O. he has

> achondroplasia and he suffered from several ear infections.. After a while,

> the doctor recommended ear tubes to drain his ears. They worked wonderfully,

> he could hear better and no more infections!! and after a while they came

> out. Now, he has lost some hearing.. ( not sure if this is permanent) and

> the doctor wants to treat the ear infections with more meds.. but there is

> some concern about putting new tubes ( more permanent ones). My question

> is.. have you gone through something similar?? any suggestions or comments??

> is it worthwhile to put the ear tubes??

> Thanks for your help!!!!!! ;-)

>

>

>

[Guest guest]

HI Casey, Thank you so much for your answer. It's so good to talk to someone who

has gone through the same experiences. It is really useful!! ;-)My nephew's

doctors are hesitant about the permanent t-tubes. I really don't know why.

Maybe lack of experience with achon.He had some for 1 year, and they recently

came off.. and again we are with meds.. and of course some hearing loss.Do you

know where can i get some info about t-tubes and achondroplasia? some statistics

or something similar???I guess that most people need to have t-tubes? Am i

correct??Thanks again Casey!I am glad you went snorkeling. It's so awesome!

where did you go?Candy

Candy , M.Ed., BCBA

Clinical Supervisor

Resources in Autism Education, Inc. (RAE)

808-343-6225