Re: Does anyone have this since Cholesteatoma removal?

[Guest guest]

hi,

I am sorry to hear about your daughters problems. This is the first time I have

heard about this condition. But when I read about her symptoms, I feel like I am

reading about myself. My mother have told me I had this issue with sounds when I

was a kid, too. My problems with my ear started already at the age of 6 months.

After I had my kids this problem felt worse than ever. No wonder! I will ask my

surgion about this condition when I go back in two days.

Please, let us know what the doctors are telling you.

The best of luck,

Wenche

>

> Hi guys,

>  

> It's been some time since I had any questions or news to report but now need

some input?

>  

> My daughter Hollie is the little lady that has suffered/ still suffering. Her

story so far -

>  

> December 2009 started with ear ache and chronic discharge

> February 2010 operated to insert Grommets for supposed glue ear, Tonsil and

Adenoids removed. Under surgery Ctoma discovered in her left ear. Not refereed

to specialist for this till May 2010.

> 19th May 2010 Ctoma removed under 3 and half hour op. Oscillies totally

destroyed, ear drum destroyed but rebuilt.

> June 2010 - March 2011 a number of infections in both ears, responded well to

ear drops.

>  

> Now we get to April 2011 and a new problem starts....she has become intolerant

to everyday sounds, every little noise hurts her ears, running water,

television, people talking, etc...it goes on. She always seems irritated by her

ears, pain, feeling of popping in her ears, fullness, pain running down her neck

(left side only for pain). I had a look to see if this was a side affect from

surgery but couldn't fine anything so went to see my mums neighbour who is a

Paediatrician....he asked Hollie to describe what she is experiencing and came

back with a diagnosis....Hyperacusis

http://www.entnet.org/HealthInformation/hyperacusis-increasedsensitivity.cfm.

>  

> I just wanted to know if anyone else out there has this, suffered with it or

being treated for it?

>  

> I have friends and family who tell me to stop worrying and that all is

OK....erm no! I know my child and knew there was something wrong. Its been hard

watching her getting so upset, especially when she is invited to friends parties

but the noise is to much and she sits out with her ears covered.

>  

> We are back to her consultant on the 4th May which can't come soon enough.

I'll report back with his findings. In the meantime if anyone out there is/ has

suffered with Hyperacusis it would be good to hear from you.

>  

> Thanks,

>  

> - Hollies worried mummy ;(

>