Chances of cholesteatoma in both ears

[Guest guest]

Hi,

I posted first in August shortly after my daughters first op. after which we

were told she had an extensive c-toma which had destroyed the stapes. She had

canal wall down surgery (through the ear canal rather than behind the ear).

At her first post op. check-up 4 weeks after the surgery the consultant informed

us she had actually lost all her ossicles as a result of the c-toma. Some

reconstructive work to the inside walls of the ear was done during the op and

she also had her eardrum reconstructed. This surprised me as I'd not heard of

this being done on canal wall down surgery. I thought they'd keep it open to

have good viewing access into the ear during following check-ups. Has anyone

else had this done? How will they now check to see if the c-toma has returned?

There are positives to this. She can now get her ear wet (swim and shower)

without ear protection.

I know I should have asked the consultant at the time but there was a lot of

information to take in. Her next check-up is December.

Also, I've heard accounts of people who have had c-toma in both ears. How common

is this? And what are the chances of people getting it in both ears? Are there

any factors that increase the chances of this occurring?

Thanks for reading.