Please Help

[Guest guest]

Amy...

Iodoral and lugols are on the short list. Your body needs both iodine and

potassium iodide. Both of which are in lugols and iodoral. Swanson

vitamins.com sells 2 oz of 2% lugols for $10. You can start there if you're

concerned about detox symptoms. Ultimately though, you're going to need to take

AT MINIMUM 50 mgs of iodoral or lugols to make a difference with your nodule and

cysts. There's a post by a woman on curezone who had uterine fibroids so bad

that the surgeon couldn't do a d & c. She started taking 50 mg 3 or 4 times a

day. Within 3 months, the fibroids were gone. I posted the link here but the

search feature isn't working well and I can't find it short of going back

through all the messages. I think I posted it sometime last month. But,

50-100 mgs would be a good starting dose. Don't forget the companion

supplements: C, A, niacin and riboflavin (ATP cofators by optimox is a good

choice it's got the niacin in the form you want and it combines the riboflavin

-- fewer pills to swallow!!), good quality unprocessed salt like Himalayan,

celtic or Redmond's RealSalt. Magnesium would be good too. Consider adding

Milk Thistle and/or NAC (n-acetyl-cysteine) to help the liver detox and process

the halides that you'll be freeing up. I found that the NAC 500-1000mg really

helps me with detox symptoms, especially the bromide breakouts.

Lorie

>

> I need some help deciding what type of iodine to take and what dose?

> FYI I have 1 small thyroid nodule and PCOS.

> Thanks,

> Amy

>

[Guest guest]

Here's that link:  http://www.curezone.com/forums/fm.asp?i=1321111#i~WOn Thu, Jul 16, 2009 at 4:10 PM, lbb116 <lorie@...> wrote:

 

Amy...

Iodoral and lugols are on the short list. Your body needs both iodine and potassium iodide. Both of which are in lugols and iodoral. Swanson vitamins.com sells 2 oz of 2% lugols for $10. You can start there if you're concerned about detox symptoms. Ultimately though, you're going to need to take AT MINIMUM 50 mgs of iodoral or lugols to make a difference with your nodule and cysts. There's a post by a woman on curezone who had uterine fibroids so bad that the surgeon couldn't do a d & c. She started taking 50 mg 3 or 4 times a day. Within 3 months, the fibroids were gone. I posted the link here but the search feature isn't working well and I can't find it short of going back through all the messages. I think I posted it sometime last month. But, 50-100 mgs would be a good starting dose. Don't forget the companion supplements: C, A, niacin and riboflavin (ATP cofators by optimox is a good choice it's got the niacin in the form you want and it combines the riboflavin -- fewer pills to swallow!!), good quality unprocessed salt like Himalayan, celtic or Redmond's RealSalt. Magnesium would be good too. Consider adding Milk Thistle and/or NAC (n-acetyl-cysteine) to help the liver detox and process the halides that you'll be freeing up. I found that the NAC 500-1000mg really helps me with detox symptoms, especially the bromide breakouts.

Lorie

>

> I need some help deciding what type of iodine to take and what dose?

> FYI I have 1 small thyroid nodule and PCOS.

> Thanks,

> Amy

>

[Guest guest]

Where is your friend located?2009/11/21 jenjackcarver <jenjackcarver@...>

 

I have a friend who sent me this email asking if i had any information for her (she knows we do not vaccinate).

" I have a referal show as (had) chickenpox in the 9th week of pregnancy. Her docter is recommending termination. She wante to wait until the results of the amnio are back.

She is not in the USA.

Can anyone relate to haveing chicken pox while pregnant?

If so are you able to help this referral? "

Does anyone have any information i can give her?? I would hate for her to ABORT the baby.

Please Help!

jen carver

[Guest guest]

Thank you Bianca.

I have just started reading the back-posts and trying to get some ideas. My ENT

is so-so on the openess, the allergist and aspirin/asthma doc are both very open

and very sympathetic to the suffering.

I live in NY, and I do think something is in that. The clearest I've been in

recent years has been on trips to the Caribean islands or to Hawaii. I don't

drink too much caffeine and I will pay more attention to the preservatives now.

Thank you

>

> Hi Jon,

>

> first all wanted to say hello and welcome to the group. I've been a member for

the past 3 years and have had a great deal of moral support from knowing there

are others out there suffering as I have (and you are as well)

>

> I dont have a magic drug but wanted to at least extend a sense of

understanding....because I can relate (as we all can on some level) to what

you're going through.

>

> usually the way this group has helped me is just providing information and

people will do with it what they may.

>

> I too have researched a low salicylate diet and have found personally that my

best response from that is stopping drinking caffeinated coffee as well as

steering clear of foods with high amounts of preservatives and dyes.

>

> as you look through some of the back posts you may find some suggestions that

you will want to bring up with your doctor and hopefully you have an ENT that is

open to other suggestions.

>

> Also, what part of the country do you live in? I've heard mixed opinion on

weather playing a role in samters

>

> again, welcome and I hope you get some releif and support from this group. i

know I have!

>

>

>

> Bianca

>

> www.aigadesignjobs.org/Biafran

>

> 907-830-9277

>

[Guest guest]

Hi Jon,

You are doing well so far with what you have tried. The salicylate free

diet will not help as long as you are taking aspirin. Aspirin

desensitization is great for Samters if you went through it properly.

The short answer is something is bugging you. If it is a true allergy

then Xolair or avoidance will help avoid the inflammation. There are

also sensitivities that do not show up on allergy tests that could cause

the inflammation. I have trouble with perfumes and VOC's. You

mentioned gastro defects. I had a hernia that caused reflux which I

breathed in my sinus and lungs every night. Repairing that has been a

god send.

We are all different with our triggers. Your challenge is to find and

control yours.

Keep up the posts,

Pam

Jon wrote:

> Hello All,

>

> I just found this group through researching online and seeing it referenced to

several times.

>

> To give a little back story, I am a 29 year old male who suffers greatly from

samter's triad, environmental allergies, asthma, nasal polyps and just a huge,

general discomfort in my sinuses, nose and chest. I have long since said

good-bye to my sense of smell (unless on steroids at that time).

>

> I have had 3 surgeries already which each time the ENT deemed " successful. "

After my last surgery, the ENT said my sinus cavaties are unlike most she has

ever seen. Apparently most of my mucus membrane is " defective " and I have a

base level of polyps that I basically have to live with.

>

> I currently see with some regularity an ENT an allerigst and an

asthma/samter's triad specialist. My medications are almost maxed out with

cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x

daily, nasal washes with pulmicort and average about 1 dose monthly of

prednisone and antibiotics. I also get weekly allergy shots.

>

> I also live with some stomach issues (had my appendix removed, gall bladder

removed, was diagnosed with gastroparesis-basically I don't digest food as

normal people do-which I was told improves and comes back in cycles). I live

with a very healthy diet avoiding fats, saturated fats, large intakes and

exercise often as I compete in triathlons. I have never smoked a cigarette and

never touched drugs in my life. I do drink occasionally on weekends.

>

> I'm sorry for the long post and if bored anyone, I guess what it comes down to

is I am just desperate. I am about to begin xolair shots and I am now doing

research into a salicylate free diet.

>

> Every doctor I see I am " one of the more severe cases " they have ever dealt

with. I can't tell you how many times I've made a doctor sigh or look up to the

ceiling with a blank look or even just look at me with pity.

>

> I am only 29 years old, try to live in a very healthy way but I am just always

miserable, cannot breathe and am VERY open to any success stories and

suggestions of methods that workds for others.

>

> Thank you everyone

>

>

>

> ------------------------------------

>

>

[Guest guest]

Jon,

I live in Alaska and I swear before I knew I had samters I was adament that I was allergic to cold weather as my symptoms seem to get worse during the winter months.

How is your asthma with doing triathalons? I've just recently started running myself but this was only after desensitization as I couldn't previously because I just couldn't catch my breathBianca www.aigadesignjobs.org/Biafran907-830-9277

From: Jon <jon@...>Subject: Re: Please helpsamters Date: Thursday, December 17, 2009, 6:35 PM

Thank you Bianca.I have just started reading the back-posts and trying to get some ideas. My ENT is so-so on the openess, the allergist and aspirin/asthma doc are both very open and very sympathetic to the suffering.I live in NY, and I do think something is in that. The clearest I've been in recent years has been on trips to the Caribean islands or to Hawaii. I don't drink too much caffeine and I will pay more attention to the preservatives now.Thank you>> Hi Jon, > > first all wanted to say hello and welcome to the group. I've been a member for the past 3 years and have had a great deal of moral support from knowing there are others out there suffering as I have (and

you are as well)> > I dont have a magic drug but wanted to at least extend a sense of understanding. ...because I can relate (as we all can on some level) to what you're going through. > > usually the way this group has helped me is just providing information and people will do with it what they may. > > I too have researched a low salicylate diet and have found personally that my best response from that is stopping drinking caffeinated coffee as well as steering clear of foods with high amounts of preservatives and dyes.> > as you look through some of the back posts you may find some suggestions that you will want to bring up with your doctor and hopefully you have an ENT that is open to other suggestions. > > Also, what part of the country do you live in? I've heard mixed opinion on weather playing a role in samters> > again, welcome and I hope you get some releif and

support from this group. i know I have! > > > > Bianca > > www.aigadesignjobs. org/Biafran> > 907-830-9277>

[Guest guest]

It's funny. I swear I am allergic to my aparment in the winter...because it is

the forced heat from radiators that I swear pumps dust through the rooms.

It does get tough with triathlons. I try to be diligent with inhalers. A puff

before the swim, a buff as I get on the bike and then again before the run. It

is definately a challenge, as you are are well aware.

> >

> > Hi Jon,

> >

> > first all wanted to say hello and welcome to the group. I've been a member

for the past 3 years and have had a great deal of moral support from knowing

there are others out there suffering as I have (and you are as well)

> >

> > I dont have a magic drug but wanted to at least extend a sense of

understanding. ...because I can relate (as we all can on some level) to what

you're going through.

> >

> > usually the way this group has helped me is just providing information and

people will do with it what they may.

> >

> > I too have researched a low salicylate diet and have found personally that

my best response from that is stopping drinking caffeinated coffee as well as

steering clear of foods with high amounts of preservatives and dyes.

> >

> > as you look through some of the back posts you may find some suggestions

that you will want to bring up with your doctor and hopefully you have an ENT

that is open to other suggestions.

> >

> > Also, what part of the country do you live in? I've heard mixed opinion on

weather playing a role in samters

> >

> > again, welcome and I hope you get some releif and support from this group. i

know I have!

> >

> >

> >

> > Bianca

> >

> > www.aigadesignjobs. org/Biafran

> >

> > 907-830-9277

> >

>

[Guest guest]

yep forced air here too !Bianca www.aigadesignjobs.org/Biafran907-830-9277

From: Jon <jon@...>Subject: Re: Please helpsamters Date: Thursday, December 17, 2009, 7:21 PM

It's funny. I swear I am allergic to my aparment in the winter...because it is the forced heat from radiators that I swear pumps dust through the rooms.It does get tough with triathlons. I try to be diligent with inhalers. A puff before the swim, a buff as I get on the bike and then again before the run. It is definately a challenge, as you are are well aware.> >> > Hi Jon, > > > > first all wanted to say hello and welcome to the group. I've been a member for the past 3 years and have had a great deal of moral support from knowing there are others out there suffering as I have (and you are as well)> > > > I dont have a magic drug but wanted to at least extend a sense of understanding. ...because I can relate (as we all can on some level) to what you're going through. > > > > usually the way this group has helped me is just providing information and people will do with it what they may. > > > > I too have researched a low salicylate

diet and have found personally that my best response from that is stopping drinking caffeinated coffee as well as steering clear of foods with high amounts of preservatives and dyes.> > > > as you look through some of the back posts you may find some suggestions that you will want to bring up with your doctor and hopefully you have an ENT that is open to other suggestions. > > > > Also, what part of the country do you live in? I've heard mixed opinion on weather playing a role in samters> > > > again, welcome and I hope you get some releif and support from this group. i know I have! > > > > > > > > Bianca > > > > www.aigadesignjobs. org/Biafran> > > > 907-830-9277> >>

[Guest guest]

Hi Jon,

Unlike many on the site I have had a lot of success with the low sals diet especially if I stick to the no sals, low sals lists. It gets a bit boring but it works for me. I just have to use my immagination when trying to make up recepies. To complicate matters I am also lactose intolerant and can't cope with wheat so no home made mac and cheese for me!! That was a favourite.

It would be worth a try on the diet to see if it helps.

Maggie

samters From: jon@...Date: Fri, 18 Dec 2009 03:20:25 +0000Subject: Please help

Hello All,I just found this group through researching online and seeing it referenced to several times.To give a little back story, I am a 29 year old male who suffers greatly from samter's triad, environmental allergies, asthma, nasal polyps and just a huge, general discomfort in my sinuses, nose and chest. I have long since said good-bye to my sense of smell (unless on steroids at that time).I have had 3 surgeries already which each time the ENT deemed "successful." After my last surgery, the ENT said my sinus cavaties are unlike most she has ever seen. Apparently most of my mucus membrane is "defective" and I have a base level of polyps that I basically have to live with.I currently see with some regularity an ENT an allerigst and an asthma/samter's triad specialist. My medications are almost maxed out with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x daily, nasal washes with pulmicort and average about 1 dose monthly of prednisone and antibiotics. I also get weekly allergy shots.I also live with some stomach issues (had my appendix removed, gall bladder removed, was diagnosed with gastroparesis-basically I don't digest food as normal people do-which I was told improves and comes back in cycles). I live with a very healthy diet avoiding fats, saturated fats, large intakes and exercise often as I compete in triathlons. I have never smoked a cigarette and never touched drugs in my life. I do drink occasionally on weekends.I'm sorry for the long post and if bored anyone, I guess what it comes down to is I am just desperate. I am about to begin xolair shots and I am now doing research into a salicylate free diet.Every doctor I see I am "one of the more severe cases" they have ever dealt with. I can't tell you how many times I've made a doctor sigh or look up to the ceiling with a blank look or even just look at me with pity.I am only 29 years old, try to live in a very healthy way but I am just always miserable, cannot breathe and am VERY open to any success stories and suggestions of methods that workds for others.Thank you everyone

Windows Live: Make it easier for your friends to see what you’re up to on Facebook.

[Guest guest]

Hi Jon -

I wanted to add one thing.

You are in the right place for great information. This group has helped my family immeasurably. Jane and Becca with this group highly recommended an allergist - Dr. Ebadi - in Denver. My husband, Bob, has Samters and, thanks to these people, ended up with Dr. Ebadi. Dr. Ebadi referred Bob to a Dr. Kingdom for surgery. Dr. Kingdom does Endoscopic, computer-guided polyp removal. He spent 2-1/2 hours performing surgery. Bob's surgery was recent and he feels great. Really great, for the first time in 8 years.

The last ENT that did surgery on Bob spent approximately 30 minutes on the process - Bob was sick again almost immediately. We would not have found the allergist nor the surgeon that Bob needed without this group. You need to see very specific specialists for this disease and this group is essential in doing this (and giving valuable information).

Sue

samters From: maggieuig1@...Date: Fri, 18 Dec 2009 06:43:52 -0800Subject: RE: Please help

Hi Jon,Unlike many on the site I have had a lot of success with the low sals diet especially if I stick to the no sals, low sals lists. It gets a bit boring but it works for me. I just have to use my immagination when trying to make up recepies. To complicate matters I am also lactose intolerant and can't cope with wheat so no home made mac and cheese for me!! That was a favourite.It would be worth a try on the diet to see if it helps.Maggie

samters From: jonprogosllcDate: Fri, 18 Dec 2009 03:20:25 +0000Subject: Please help

Hello All,I just found this group through researching online and seeing it referenced to several times.To give a little back story, I am a 29 year old male who suffers greatly from samter's triad, environmental allergies, asthma, nasal polyps and just a huge, general discomfort in my sinuses, nose and chest. I have long since said good-bye to my sense of smell (unless on steroids at that time).I have had 3 surgeries already which each time the ENT deemed "successful." After my last surgery, the ENT said my sinus cavaties are unlike most she has ever seen. Apparently most of my mucus membrane is "defective" and I have a base level of polyps that I basically have to live with.I currently see with some regularity an ENT an allerigst and an asthma/samter's triad specialist. My medications are almost maxed out with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x daily, nasal washes with pulmicort and average about 1 dose monthly of prednisone and antibiotics. I also get weekly allergy shots.I also live with some stomach issues (had my appendix removed, gall bladder removed, was diagnosed with gastroparesis-basically I don't digest food as normal people do-which I was told improves and comes back in cycles). I live with a very healthy diet avoiding fats, saturated fats, large intakes and exercise often as I compete in triathlons. I have never smoked a cigarette and never touched drugs in my life. I do drink occasionally on weekends.I'm sorry for the long post and if bored anyone, I guess what it comes down to is I am just desperate. I am about to begin xolair shots and I am now doing research into a salicylate free diet.Every doctor I see I am "one of the more severe cases" they have ever dealt with. I can't tell you how many times I've made a doctor sigh or look up to the ceiling with a blank look or even just look at me with pity.I am only 29 years old, try to live in a very healthy way but I am just always miserable, cannot breathe and am VERY open to any success stories and suggestions of methods that workds for others.Thank you everyone

Windows Live: Make it easier for your friends to see what you’re up to on Facebook.

[Guest guest]

Thank you Maggie,

Well that's good to hear and glad that someone can say " lot of success " is good

to hear. Other than just trusty ole google, do you have any sites or links or

resources of where I can find info on how to implement the diet? Maybe the

yes/no list or even possible recipes? And yes, lactose intolerant as well, so

just add that to the list of things wrong with me.

Thank you

>

>

> Hi Jon,

>

> Unlike many on the site I have had a lot of success with the low sals diet

especially if I stick to the no sals, low sals lists. It gets a bit boring but

it works for me. I just have to use my immagination when trying to make up

recepies. To complicate matters I am also lactose intolerant and can't cope with

wheat so no home made mac and cheese for me!!

> That was a favourite.

>

> It would be worth a try on the diet to see if it helps.

>

> Maggie

>

>

> samters

> From: jon@...

> Date: Fri, 18 Dec 2009 03:20:25 +0000

> Subject: Please help

>

>

>

>

>

> Hello All,

>

> I just found this group through researching online and seeing it referenced to

several times.

>

> To give a little back story, I am a 29 year old male who suffers greatly from

samter's triad, environmental allergies, asthma, nasal polyps and just a huge,

general discomfort in my sinuses, nose and chest. I have long since said

good-bye to my sense of smell (unless on steroids at that time).

>

> I have had 3 surgeries already which each time the ENT deemed " successful. "

After my last surgery, the ENT said my sinus cavaties are unlike most she has

ever seen. Apparently most of my mucus membrane is " defective " and I have a base

level of polyps that I basically have to live with.

>

> I currently see with some regularity an ENT an allerigst and an

asthma/samter's triad specialist. My medications are almost maxed out with

cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x

daily, nasal washes with pulmicort and average about 1 dose monthly of

prednisone and antibiotics. I also get weekly allergy shots.

>

> I also live with some stomach issues (had my appendix removed, gall bladder

removed, was diagnosed with gastroparesis-basically I don't digest food as

normal people do-which I was told improves and comes back in cycles). I live

with a very healthy diet avoiding fats, saturated fats, large intakes and

exercise often as I compete in triathlons. I have never smoked a cigarette and

never touched drugs in my life. I do drink occasionally on weekends.

>

> I'm sorry for the long post and if bored anyone, I guess what it comes down to

is I am just desperate. I am about to begin xolair shots and I am now doing

research into a salicylate free diet.

>

> Every doctor I see I am " one of the more severe cases " they have ever dealt

with. I can't tell you how many times I've made a doctor sigh or look up to the

ceiling with a blank look or even just look at me with pity.

>

> I am only 29 years old, try to live in a very healthy way but I am just always

miserable, cannot breathe and am VERY open to any success stories and

suggestions of methods that workds for others.

>

> Thank you everyone

>

>

>

>

>

> _________________________________________________________________

> Windows Live: Make it easier for your friends to see what you're up to on

Facebook.

> http://go.microsoft.com/?linkid=9691816

>

[Guest guest]

How recent was his surgery? How has he been since then? Because I have had

relief after my surgeries and then feel good for a while, but eventually I go

back to my usual horrible state. Kind of like prednisone. I take it, react

well, feel good, complete cycle, feel like crap again. I do know my ENT spent

hours up in there each time, but it's just the relief does not last long.

Thank you for the info. What I sometimes feel is all doctor's stick together.

My orignal ENT eventually told me he isn't equipped to handle my case and passed

me on to a highly regarded ENT. But when I was with original doctor, my

allergist spoke highly of the 1st ENT as well. Now that I'm not with him, he

speaks as if it's a good thing I have moved on. I almost wish they would bemore

willing to tell you if they have heard negative things of other doctors. I

understand why they don't, but sometimes may be helpful.

>

>

> Hi Jon -

>

> I wanted to add one thing.

>

> You are in the right place for great information. This group has helped my

family immeasurably. Jane and Becca with this group highly recommended an

allergist - Dr. Ebadi - in Denver. My husband, Bob, has Samters and, thanks to

these people, ended up with Dr. Ebadi. Dr. Ebadi referred Bob to a Dr. Kingdom

for surgery. Dr. Kingdom does Endoscopic, computer-guided polyp removal. He

spent 2-1/2 hours performing surgery. Bob's surgery was recent and he feels

great. Really great, for the first time in 8 years.

>

> The last ENT that did surgery on Bob spent approximately 30 minutes on the

process - Bob was sick again almost immediately. We would not have found the

allergist nor the surgeon that Bob needed without this group. You need to see

very specific specialists for this disease and this group is essential in doing

this (and giving valuable information).

>

> Sue

>

>

>

>

>

>

>

>

>

> samters

> From: maggieuig1@...

> Date: Fri, 18 Dec 2009 06:43:52 -0800

> Subject: RE: Please help

>

>

>

>

>

> Hi Jon,

> Unlike many on the site I have had a lot of success with the low sals diet

especially if I stick to the no sals, low sals lists. It gets a bit boring but

it works for me. I just have to use my immagination when trying to make up

recepies. To complicate matters I am also lactose intolerant and can't cope with

wheat so no home made mac and cheese for me!!

> That was a favourite.

> It would be worth a try on the diet to see if it helps.

> Maggie

>

>

> samters

> From: jon@...

> Date: Fri, 18 Dec 2009 03:20:25 +0000

> Subject: Please help

>

>

>

>

> Hello All,

>

> I just found this group through researching online and seeing it referenced to

several times.

>

> To give a little back story, I am a 29 year old male who suffers greatly from

samter's triad, environmental allergies, asthma, nasal polyps and just a huge,

general discomfort in my sinuses, nose and chest. I have long since said

good-bye to my sense of smell (unless on steroids at that time).

>

> I have had 3 surgeries already which each time the ENT deemed " successful. "

After my last surgery, the ENT said my sinus cavaties are unlike most she has

ever seen. Apparently most of my mucus membrane is " defective " and I have a base

level of polyps that I basically have to live with.

>

> I currently see with some regularity an ENT an allerigst and an

asthma/samter's triad specialist. My medications are almost maxed out with

cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x

daily, nasal washes with pulmicort and average about 1 dose monthly of

prednisone and antibiotics. I also get weekly allergy shots.

>

> I also live with some stomach issues (had my appendix removed, gall bladder

removed, was diagnosed with gastroparesis-basically I don't digest food as

normal people do-which I was told improves and comes back in cycles). I live

with a very healthy diet avoiding fats, saturated fats, large intakes and

exercise often as I compete in triathlons. I have never smoked a cigarette and

never touched drugs in my life. I do drink occasionally on weekends.

>

> I'm sorry for the long post and if bored anyone, I guess what it comes down to

is I am just desperate. I am about to begin xolair shots and I am now doing

research into a salicylate free diet.

>

> Every doctor I see I am " one of the more severe cases " they have ever dealt

with. I can't tell you how many times I've made a doctor sigh or look up to the

ceiling with a blank look or even just look at me with pity.

>

> I am only 29 years old, try to live in a very healthy way but I am just always

miserable, cannot breathe and am VERY open to any success stories and

suggestions of methods that workds for others.

>

> Thank you everyone

>

>

>

>

>

>

> Windows Live: Make it easier for your friends to see what you're up to on

Facebook.

>

[Guest guest]

VERY recent. So, perhaps he will descend into misery once more. This is his second surgery - the first gave him no relief, so we assumed that since the relief this time is enormous that he would be okay for awhile. This surgeon gave him Pulmicort Respules to rinse his sinuses with twice daily and Ebadi will do desens on him next week. It seems that they do know what to do for Samters - so we have high hopes.

I do know what you mean about professionals sticking together. We have experienced the same hesitancy on their part to rip you from the people that can't help and send you to the ones that can. There's nothing to be done about that - other than to get your info from a group like this one that is not invested in professional relationships, but only in finding the best medical care available for Samters.

samters From: jon@...Date: Fri, 18 Dec 2009 15:43:32 +0000Subject: Re: Please help

How recent was his surgery? How has he been since then? Because I have had relief after my surgeries and then feel good for a while, but eventually I go back to my usual horrible state. Kind of like prednisone. I take it, react well, feel good, complete cycle, feel like crap again. I do know my ENT spent hours up in there each time, but it's just the relief does not last long.Thank you for the info. What I sometimes feel is all doctor's stick together. My orignal ENT eventually told me he isn't equipped to handle my case and passed me on to a highly regarded ENT. But when I was with original doctor, my allergist spoke highly of the 1st ENT as well. Now that I'm not with him, he speaks as if it's a good thing I have moved on. I almost wish they would bemore willing to tell you if they have heard negative things of other doctors. I understand why they don't, but sometimes may be helpful.>> > Hi Jon -> > I wanted to add one thing.> > You are in the right place for great information. This group has helped my family immeasurably. Jane and Becca with this group highly recommended an allergist - Dr. Ebadi - in Denver. My husband, Bob, has Samters and, thanks to these people, ended up with Dr. Ebadi. Dr. Ebadi referred Bob to a Dr. Kingdom for surgery. Dr. Kingdom does Endoscopic, computer-guided polyp removal. He spent 2-1/2 hours performing surgery. Bob's surgery was recent and he feels great. Really great, for the first time in 8 years.> > The last ENT that did surgery on Bob spent approximately 30 minutes on the process - Bob was sick again almost immediately. We would not have found the allergist nor the surgeon that Bob needed without this group. You need to see very specific specialists for this disease and this group is essential in doing this (and giving valuable information).> > Sue > > > > > > > > > > samters > From: maggieuig1@...> Date: Fri, 18 Dec 2009 06:43:52 -0800> Subject: RE: Please help> > > > > > Hi Jon,> Unlike many on the site I have had a lot of success with the low sals diet especially if I stick to the no sals, low sals lists. It gets a bit boring but it works for me. I just have to use my immagination when trying to make up recepies. To complicate matters I am also lactose intolerant and can't cope with wheat so no home made mac and cheese for me!!> That was a favourite.> It would be worth a try on the diet to see if it helps.> Maggie > > > samters > From: jon@...> Date: Fri, 18 Dec 2009 03:20:25 +0000> Subject: Please help> > > > > Hello All,> > I just found this group through researching online and seeing it referenced to several times.> > To give a little back story, I am a 29 year old male who suffers greatly from samter's triad, environmental allergies, asthma, nasal polyps and just a huge, general discomfort in my sinuses, nose and chest. I have long since said good-bye to my sense of smell (unless on steroids at that time).> > I have had 3 surgeries already which each time the ENT deemed "successful." After my last surgery, the ENT said my sinus cavaties are unlike most she has ever seen. Apparently most of my mucus membrane is "defective" and I have a base level of polyps that I basically have to live with.> > I currently see with some regularity an ENT an allerigst and an asthma/samter's triad specialist. My medications are almost maxed out with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x daily, nasal washes with pulmicort and average about 1 dose monthly of prednisone and antibiotics. I also get weekly allergy shots.> > I also live with some stomach issues (had my appendix removed, gall bladder removed, was diagnosed with gastroparesis-basically I don't digest food as normal people do-which I was told improves and comes back in cycles). I live with a very healthy diet avoiding fats, saturated fats, large intakes and exercise often as I compete in triathlons. I have never smoked a cigarette and never touched drugs in my life. I do drink occasionally on weekends.> > I'm sorry for the long post and if bored anyone, I guess what it comes down to is I am just desperate. I am about to begin xolair shots and I am now doing research into a salicylate free diet.> > Every doctor I see I am "one of the more severe cases" they have ever dealt with. I can't tell you how many times I've made a doctor sigh or look up to the ceiling with a blank look or even just look at me with pity.> > I am only 29 years old, try to live in a very healthy way but I am just always miserable, cannot breathe and am VERY open to any success stories and suggestions of methods that workds for others.> > Thank you everyone> > > > > > > Windows Live: Make it easier for your friends to see what you're up to on Facebook.>

[Guest guest]

I really hope I didn't just dampen your outlook. I know a few people who had 1

surgery, take no meds and never looked back. I pray that he is one of the lucky

ones. Good luck with it and I know my doctor says his patients react terrificly

to it. Good luck, and don't let my screwed-up-ness dampen your outlooks.

Expect the best!

> >

> >

> > Hi Jon -

> >

> > I wanted to add one thing.

> >

> > You are in the right place for great information. This group has helped my

family immeasurably. Jane and Becca with this group highly recommended an

allergist - Dr. Ebadi - in Denver. My husband, Bob, has Samters and, thanks to

these people, ended up with Dr. Ebadi. Dr. Ebadi referred Bob to a Dr. Kingdom

for surgery. Dr. Kingdom does Endoscopic, computer-guided polyp removal. He

spent 2-1/2 hours performing surgery. Bob's surgery was recent and he feels

great. Really great, for the first time in 8 years.

> >

> > The last ENT that did surgery on Bob spent approximately 30 minutes on the

process - Bob was sick again almost immediately. We would not have found the

allergist nor the surgeon that Bob needed without this group. You need to see

very specific specialists for this disease and this group is essential in doing

this (and giving valuable information).

> >

> > Sue

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > samters

> > From: maggieuig1@

> > Date: Fri, 18 Dec 2009 06:43:52 -0800

> > Subject: RE: Please help

> >

> >

> >

> >

> >

> > Hi Jon,

> > Unlike many on the site I have had a lot of success with the low sals diet

especially if I stick to the no sals, low sals lists. It gets a bit boring but

it works for me. I just have to use my immagination when trying to make up

recepies. To complicate matters I am also lactose intolerant and can't cope with

wheat so no home made mac and cheese for me!!

> > That was a favourite.

> > It would be worth a try on the diet to see if it helps.

> > Maggie

> >

> >

> > samters

> > From: jon@

> > Date: Fri, 18 Dec 2009 03:20:25 +0000

> > Subject: Please help

> >

> >

> >

> >

> > Hello All,

> >

> > I just found this group through researching online and seeing it referenced

to several times.

> >

> > To give a little back story, I am a 29 year old male who suffers greatly

from samter's triad, environmental allergies, asthma, nasal polyps and just a

huge, general discomfort in my sinuses, nose and chest. I have long since said

good-bye to my sense of smell (unless on steroids at that time).

> >

> > I have had 3 surgeries already which each time the ENT deemed " successful. "

After my last surgery, the ENT said my sinus cavaties are unlike most she has

ever seen. Apparently most of my mucus membrane is " defective " and I have a base

level of polyps that I basically have to live with.

> >

> > I currently see with some regularity an ENT an allerigst and an

asthma/samter's triad specialist. My medications are almost maxed out with

cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x

daily, nasal washes with pulmicort and average about 1 dose monthly of

prednisone and antibiotics. I also get weekly allergy shots.

> >

> > I also live with some stomach issues (had my appendix removed, gall bladder

removed, was diagnosed with gastroparesis-basically I don't digest food as

normal people do-which I was told improves and comes back in cycles). I live

with a very healthy diet avoiding fats, saturated fats, large intakes and

exercise often as I compete in triathlons. I have never smoked a cigarette and

never touched drugs in my life. I do drink occasionally on weekends.

> >

> > I'm sorry for the long post and if bored anyone, I guess what it comes down

to is I am just desperate. I am about to begin xolair shots and I am now doing

research into a salicylate free diet.

> >

> > Every doctor I see I am " one of the more severe cases " they have ever dealt

with. I can't tell you how many times I've made a doctor sigh or look up to the

ceiling with a blank look or even just look at me with pity.

> >

> > I am only 29 years old, try to live in a very healthy way but I am just

always miserable, cannot breathe and am VERY open to any success stories and

suggestions of methods that workds for others.

> >

> > Thank you everyone

> >

> >

> >

> >

> >

> >

> > Windows Live: Make it easier for your friends to see what you're up to on

Facebook.

> >

>

[Guest guest]

Jon,

the site I mainly use is salicylatesensitivity.com . They have lists of foods divided into categories and quite a lot of recepies too though many are for children. Sue Dengate has a good site too. There are quite a few to be found on google and every now and then I go browsing. The salicylate sensitivity site also has a forum and there is lots of good info to be gained from going through the past posts.

Good luck. It isn't easy but if it works for you it is worth it. In the beginning you do need to be very strict and then you can add more food items and assess if they are affecting you or not. If you follow it you will probably have a period of "mourning" for the foods you can't eat - I used to be in tears as I did my grocery shopping but I have now adjusted and can allow myself the occasional indulgence.

Maggie.

samters From: jon@...Date: Fri, 18 Dec 2009 15:39:09 +0000Subject: Re: Please help

Thank you Maggie,Well that's good to hear and glad that someone can say "lot of success" is good to hear. Other than just trusty ole google, do you have any sites or links or resources of where I can find info on how to implement the diet? Maybe the yes/no list or even possible recipes? And yes, lactose intolerant as well, so just add that to the list of things wrong with me.Thank you>> > Hi Jon,> > Unlike many on the site I have had a lot of success with the low sals diet especially if I stick to the no sals, low sals lists. It gets a bit boring but it works for me. I just have to use my immagination when trying to make up recepies. To complicate matters I am also lactose intolerant and can't cope with wheat so no home made mac and cheese for me!!> That was a favourite.> > It would be worth a try on the diet to see if it helps.> > Maggie > > > samters > From: jon@...> Date: Fri, 18 Dec 2009 03:20:25 +0000> Subject: Please help> > > > > > Hello All,> > I just found this group through researching online and seeing it referenced to several times.> > To give a little back story, I am a 29 year old male who suffers greatly from samter's triad, environmental allergies, asthma, nasal polyps and just a huge, general discomfort in my sinuses, nose and chest. I have long since said good-bye to my sense of smell (unless on steroids at that time).> > I have had 3 surgeries already which each time the ENT deemed "successful." After my last surgery, the ENT said my sinus cavaties are unlike most she has ever seen. Apparently most of my mucus membrane is "defective" and I have a base level of polyps that I basically have to live with.> > I currently see with some regularity an ENT an allerigst and an asthma/samter's triad specialist. My medications are almost maxed out with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x daily, nasal washes with pulmicort and average about 1 dose monthly of prednisone and antibiotics. I also get weekly allergy shots.> > I also live with some stomach issues (had my appendix removed, gall bladder removed, was diagnosed with gastroparesis-basically I don't digest food as normal people do-which I was told improves and comes back in cycles). I live with a very healthy diet avoiding fats, saturated fats, large intakes and exercise often as I compete in triathlons. I have never smoked a cigarette and never touched drugs in my life. I do drink occasionally on weekends.> > I'm sorry for the long post and if bored anyone, I guess what it comes down to is I am just desperate. I am about to begin xolair shots and I am now doing research into a salicylate free diet.> > Every doctor I see I am "one of the more severe cases" they have ever dealt with. I can't tell you how many times I've made a doctor sigh or look up to the ceiling with a blank look or even just look at me with pity.> > I am only 29 years old, try to live in a very healthy way but I am just always miserable, cannot breathe and am VERY open to any success stories and suggestions of methods that workds for others.> > Thank you everyone> > > > > > __________________________________________________________> Windows Live: Make it easier for your friends to see what you're up to on Facebook.> http://go.microsoft.com/?linkid=9691816>

Get a great deal on Windows 7 and see how it works the way you want. Check out the offers on Windows 7now.

[Guest guest]

Thanks, that is the main one I found last night. I will start researching.

Thanks so much

> >

> >

> > Hi Jon,

> >

> > Unlike many on the site I have had a lot of success with the low sals diet

especially if I stick to the no sals, low sals lists. It gets a bit boring but

it works for me. I just have to use my immagination when trying to make up

recepies. To complicate matters I am also lactose intolerant and can't cope with

wheat so no home made mac and cheese for me!!

> > That was a favourite.

> >

> > It would be worth a try on the diet to see if it helps.

> >

> > Maggie

> >

> >

> > samters

> > From: jon@

> > Date: Fri, 18 Dec 2009 03:20:25 +0000

> > Subject: Please help

> >

> >

> >

> >

> >

> > Hello All,

> >

> > I just found this group through researching online and seeing it referenced

to several times.

> >

> > To give a little back story, I am a 29 year old male who suffers greatly

from samter's triad, environmental allergies, asthma, nasal polyps and just a

huge, general discomfort in my sinuses, nose and chest. I have long since said

good-bye to my sense of smell (unless on steroids at that time).

> >

> > I have had 3 surgeries already which each time the ENT deemed " successful. "

After my last surgery, the ENT said my sinus cavaties are unlike most she has

ever seen. Apparently most of my mucus membrane is " defective " and I have a base

level of polyps that I basically have to live with.

> >

> > I currently see with some regularity an ENT an allerigst and an

asthma/samter's triad specialist. My medications are almost maxed out with

cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x

daily, nasal washes with pulmicort and average about 1 dose monthly of

prednisone and antibiotics. I also get weekly allergy shots.

> >

> > I also live with some stomach issues (had my appendix removed, gall bladder

removed, was diagnosed with gastroparesis-basically I don't digest food as

normal people do-which I was told improves and comes back in cycles). I live

with a very healthy diet avoiding fats, saturated fats, large intakes and

exercise often as I compete in triathlons. I have never smoked a cigarette and

never touched drugs in my life. I do drink occasionally on weekends.

> >

> > I'm sorry for the long post and if bored anyone, I guess what it comes down

to is I am just desperate. I am about to begin xolair shots and I am now doing

research into a salicylate free diet.

> >

> > Every doctor I see I am " one of the more severe cases " they have ever dealt

with. I can't tell you how many times I've made a doctor sigh or look up to the

ceiling with a blank look or even just look at me with pity.

> >

> > I am only 29 years old, try to live in a very healthy way but I am just

always miserable, cannot breathe and am VERY open to any success stories and

suggestions of methods that workds for others.

> >

> > Thank you everyone

> >

> >

> >

> >

> >

> > __________________________________________________________

> > Windows Live: Make it easier for your friends to see what you're up to on

Facebook.

> > http://go.microsoft.com/?linkid=9691816

> >

>

>

>

>

>

> _________________________________________________________________

> Windows Live: Friends get your Flickr, Yelp, and Digg updates when they e-mail

you.

> http://go.microsoft.com/?linkid=9691817

>

[Guest guest]

Welcome to the group! There is a lot of info in the back

messages as I am sure you are discovering. Two great things about this

group are the variety of things to try that have worked for various people and

then simply the support that comes from knowing you are not the only one out

there that is miserable from this disease! I have certainly had doctors

tell me I was one of the worst patients they have seen, so I know how you feel.

One thing I did not see mentioned in your posts is nasal

irrigation. Do you irrigate at all with a saline solution? If not, I

definitely recommend this!! I religiously irrigate twice a day and have

done so for the past 4 years and while it has not cured me, it makes a huge

difference. When I joined this group 4-5 years ago, it was the first

thing a new person on the list was told to do and I am glad I listened.

You mentioned the warm air in your apartment in the winter, do

you use a humidifier? I started using one last winter when we moved to CT

because the winters are so very dry up here and it seems to make a

difference. Keeping the sinuses moist helps! Every time I have seen

my ENT lately (which has been a lot since I just had surgery 2 weeks ago!) he

has asked if I use a humidifier.

What do you take for your environmental allergies? How

long have you been doing allergy shots? I tried shots for a year and was still

miserable and then got sick so I skipped a shot and suddenly realized my

sinuses were much clearer when I skipped the shot! I quit taking them and

never looked back as I was so much clearer without them. And my allergist

really wasn’t surprised when I told him this because of how whacked out

my sinuses are!

Good luck!

K.

From:

samters [mailto:samters ] On Behalf Of Jon

Sent: Thursday, December 17, 2009 10:20 PM

samters

Subject: Please help

Hello All,

I just found this group through researching online and seeing it referenced to

several times.

To give a little back story, I am a 29 year old male who suffers greatly from

samter's triad, environmental allergies, asthma, nasal polyps and just a huge,

general discomfort in my sinuses, nose and chest. I have long since said

good-bye to my sense of smell (unless on steroids at that time).

I have had 3 surgeries already which each time the ENT deemed " successful. "

After my last surgery, the ENT said my sinus cavaties are unlike most she has

ever seen. Apparently most of my mucus membrane is " defective " and I

have a base level of polyps that I basically have to live with.

I currently see with some regularity an ENT an allerigst and an asthma/samter's

triad specialist. My medications are almost maxed out with cingulair daily,

advair 2x daily, zyflo 2 pills 2x daily, aspirin 650mg 2x daily, nasal washes

with pulmicort and average about 1 dose monthly of prednisone and antibiotics.

I also get weekly allergy shots.

I also live with some stomach issues (had my appendix removed, gall bladder

removed, was diagnosed with gastroparesis-basically I don't digest food as

normal people do-which I was told improves and comes back in cycles). I live

with a very healthy diet avoiding fats, saturated fats, large intakes and

exercise often as I compete in triathlons. I have never smoked a cigarette and

never touched drugs in my life. I do drink occasionally on weekends.

I'm sorry for the long post and if bored anyone, I guess what it comes down to

is I am just desperate. I am about to begin xolair shots and I am now doing

research into a salicylate free diet.

Every doctor I see I am " one of the more severe cases " they have ever

dealt with. I can't tell you how many times I've made a doctor sigh or look up

to the ceiling with a blank look or even just look at me with pity.

I am only 29 years old, try to live in a very healthy way but I am just always

miserable, cannot breathe and am VERY open to any success stories and

suggestions of methods that workds for others.

Thank you everyone

[Guest guest]

Hi Jon,

You indeed have a good, healthy lifestyle Samterwise. Have you

" screened " your environment (including home, work, food) to see if you

have particular inflammation triggers. For instance, you mentioned

drinking occasionally ; have you ever tried to cut it for, say, a month

and see if it does any good?

Similarly, can you think of any environmental allergens that could

provoke inflammation, like molds, chemicals, pollution, etc ? Are you

often in contact with people who are sick ?

>

> Hello All,

>

> I just found this group through researching online and seeing it

referenced to several times.

>

> To give a little back story, I am a 29 year old male who suffers

greatly from samter's triad, environmental allergies, asthma, nasal

polyps and just a huge, general discomfort in my sinuses, nose and

chest. I have long since said good-bye to my sense of smell (unless on

steroids at that time).

>

> I have had 3 surgeries already which each time the ENT deemed

" successful. " After my last surgery, the ENT said my sinus cavaties are

unlike most she has ever seen. Apparently most of my mucus membrane is

" defective " and I have a base level of polyps that I basically have to

live with.

>

> I currently see with some regularity an ENT an allerigst and an

asthma/samter's triad specialist. My medications are almost maxed out

with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin

650mg 2x daily, nasal washes with pulmicort and average about 1 dose

monthly of prednisone and antibiotics. I also get weekly allergy shots.

>

> I also live with some stomach issues (had my appendix removed, gall

bladder removed, was diagnosed with gastroparesis-basically I don't

digest food as normal people do-which I was told improves and comes back

in cycles). I live with a very healthy diet avoiding fats, saturated

fats, large intakes and exercise often as I compete in triathlons. I

have never smoked a cigarette and never touched drugs in my life. I do

drink occasionally on weekends.

>

> I'm sorry for the long post and if bored anyone, I guess what it comes

down to is I am just desperate. I am about to begin xolair shots and I

am now doing research into a salicylate free diet.

>

> Every doctor I see I am " one of the more severe cases " they have ever

dealt with. I can't tell you how many times I've made a doctor sigh or

look up to the ceiling with a blank look or even just look at me with

pity.

>

> I am only 29 years old, try to live in a very healthy way but I am

just always miserable, cannot breathe and am VERY open to any success

stories and suggestions of methods that workds for others.

>

> Thank you everyone

>

[Guest guest]

Thanks, and yes, I am learning and reading as much as possible.

Not too fun when doctors say that, huh? Or that puzzled look that I have seen

oh, so many times.

I was using a wash with water, pulmicort and salt. Doc then suggested laying on

my back and tring to just put pulmicort right up there so it directly hits the

spot.

I do have a humidifier and purifier and try to regulate bedroom air as much as I

can. Have tried cheap ones, expensive ones, VERY expensive ones and so far none

seem to make huge difference. I'm in NY, so understand your CT feelings.

What # surgery was this? Have you foudn any relief between surgeries?

I did start playing around with shots in terms of going weekly, bi-weekly, once

skipped for 3 months because I felt what you did and none of them make a single

difference. I just don't know what the variables are. I just started a daily

log to see if I can pinpoint anything, but everything is so random except my

crappy feeling that it's tough.

Thanks for the note

[Guest guest]

I try...that's what makes it so frustrating.

I have skipped drinking for some time (up to 2 months at a time) and no real

difference. I do take an antihistamine now if I do drink and found that helped.

Environment I know, but hard to change. My work environment is proabbly what

one would call awful for me, and my home probably bad. But I don't have the

finances to move yet.

I am somewhat of a germophobe so I do my best to stay away from sick people at

all costs. I do have a young niece and nephew and my wife is a kindagarten

teacher, so I'm sure they all have some germs. My wife does do a good job with

purrell, cleaning before she comes home.

So I know my work and my home are very bad, but just not so sure what to do with

them. I have the purifiers, humidifiers, etc, but just don't know what else to

do.

> >

> > Hello All,

> >

> > I just found this group through researching online and seeing it

> referenced to several times.

> >

> > To give a little back story, I am a 29 year old male who suffers

> greatly from samter's triad, environmental allergies, asthma, nasal

> polyps and just a huge, general discomfort in my sinuses, nose and

> chest. I have long since said good-bye to my sense of smell (unless on

> steroids at that time).

> >

> > I have had 3 surgeries already which each time the ENT deemed

> " successful. " After my last surgery, the ENT said my sinus cavaties are

> unlike most she has ever seen. Apparently most of my mucus membrane is

> " defective " and I have a base level of polyps that I basically have to

> live with.

> >

> > I currently see with some regularity an ENT an allerigst and an

> asthma/samter's triad specialist. My medications are almost maxed out

> with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily, aspirin

> 650mg 2x daily, nasal washes with pulmicort and average about 1 dose

> monthly of prednisone and antibiotics. I also get weekly allergy shots.

> >

> > I also live with some stomach issues (had my appendix removed, gall

> bladder removed, was diagnosed with gastroparesis-basically I don't

> digest food as normal people do-which I was told improves and comes back

> in cycles). I live with a very healthy diet avoiding fats, saturated

> fats, large intakes and exercise often as I compete in triathlons. I

> have never smoked a cigarette and never touched drugs in my life. I do

> drink occasionally on weekends.

> >

> > I'm sorry for the long post and if bored anyone, I guess what it comes

> down to is I am just desperate. I am about to begin xolair shots and I

> am now doing research into a salicylate free diet.

> >

> > Every doctor I see I am " one of the more severe cases " they have ever

> dealt with. I can't tell you how many times I've made a doctor sigh or

> look up to the ceiling with a blank look or even just look at me with

> pity.

> >

> > I am only 29 years old, try to live in a very healthy way but I am

> just always miserable, cannot breathe and am VERY open to any success

> stories and suggestions of methods that workds for others.

> >

> > Thank you everyone

> >

>

[Guest guest]

If possible, you should see if you can remove things that may harbor

large quantities of dust mites (if you are allergic to them), like floor

carpeting. Regarding your work environment, what kind of environmental

allergens/pollutants/germs are you exposed to there ?

> > >

> > > Hello All,

> > >

> > > I just found this group through researching online and seeing it

> > referenced to several times.

> > >

> > > To give a little back story, I am a 29 year old male who suffers

> > greatly from samter's triad, environmental allergies, asthma, nasal

> > polyps and just a huge, general discomfort in my sinuses, nose and

> > chest. I have long since said good-bye to my sense of smell (unless

on

> > steroids at that time).

> > >

> > > I have had 3 surgeries already which each time the ENT deemed

> > " successful. " After my last surgery, the ENT said my sinus cavaties

are

> > unlike most she has ever seen. Apparently most of my mucus membrane

is

> > " defective " and I have a base level of polyps that I basically have

to

> > live with.

> > >

> > > I currently see with some regularity an ENT an allerigst and an

> > asthma/samter's triad specialist. My medications are almost maxed

out

> > with cingulair daily, advair 2x daily, zyflo 2 pills 2x daily,

aspirin

> > 650mg 2x daily, nasal washes with pulmicort and average about 1 dose

> > monthly of prednisone and antibiotics. I also get weekly allergy

shots.

> > >

> > > I also live with some stomach issues (had my appendix removed,

gall

> > bladder removed, was diagnosed with gastroparesis-basically I don't

> > digest food as normal people do-which I was told improves and comes

back

> > in cycles). I live with a very healthy diet avoiding fats,

saturated

> > fats, large intakes and exercise often as I compete in triathlons.

I

> > have never smoked a cigarette and never touched drugs in my life. I

do

> > drink occasionally on weekends.

> > >

> > > I'm sorry for the long post and if bored anyone, I guess what it

comes

> > down to is I am just desperate. I am about to begin xolair shots

and I

> > am now doing research into a salicylate free diet.

> > >

> > > Every doctor I see I am " one of the more severe cases " they have

ever

> > dealt with. I can't tell you how many times I've made a doctor sigh

or

> > look up to the ceiling with a blank look or even just look at me

with

> > pity.

> > >

> > > I am only 29 years old, try to live in a very healthy way but I am

> > just always miserable, cannot breathe and am VERY open to any

success

> > stories and suggestions of methods that workds for others.

> > >

> > > Thank you everyone

> > >

> >

>

[Guest guest]

Hi Soumayya

I tried to find the answers for these questions but couldn't.

Guys please lets think together and answer them.

Theya are in feedback,so everyone can have it on their exam.

SincerelyLyudmylaHuhley

From: soumayya alhajeh <samsomih@...>Subject: please help Date: Tuesday, 23 March, 2010, 22:21

Hi every body, can anyone, help in these questions??

1-which ion released whan there is low gastric ph?2-jugular venous pressure indicate what pressure?3-jugular venous pressure is best describe asa-pulse pressureb-10 mm hg less than ventricular pressurec-20 mm less than ventricular pressured-20 mm hg more than ventricular pressure4- what combine with o2Thank you

From: "a_hawas (DOT) com" <a_hawas (DOT) com>Sent: Tuesday, March 23, 2010 21:14:17Subject: Re: Our apologies to the people who wanted to attend the lecture

Get your new Email address! Grab the Email name you've always wanted before someone else does!

[Guest guest]

I think maybe the first question is Sodium Bicarbonate...?But honestly not sure... LyudmylaHuhley

From: soumayya alhajeh <samsomih@...>Subject: please help Date: Tuesday, 23 March, 2010, 22:21

Hi every body, can anyone, help in these questions??

1-which ion released whan there is low gastric ph?2-jugular venous pressure indicate what pressure?3-jugular venous pressure is best describe asa-pulse pressureb-10 mm hg less than ventricular pressurec-20 mm less than ventricular pressured-20 mm hg more than ventricular pressure4- what combine with o2Thank you

From: "a_hawas (DOT) com" <a_hawas (DOT) com>Sent: Tuesday, March 23, 2010 21:14:17Subject: Re: Our apologies to the people who wanted to attend the lecture

Get your new Email address! Grab the Email name you've always wanted before someone else does!

[Guest guest]

Congratulations. isn't it great to feel good and when you do feel a little bad,

it's so much easier to " haul " yourself around in bed or wherever -- like now.

I've had a slight " bug " today and since I had a total knee replacement about 8

weeks ago. My pain meds make me a little " loopy " so will say good night and

hooray for Frer.

________________________________

From: L <pel@...>

Sent: Mon, April 5, 2010 10:25:46 PM

Subject: Please Help

------------ --------- --------- --------- --------- --------- -

Hello to those considering weight loss surgery and the MGB in particular. My

name is Fryer and I just celebrated my 10th anniversary of my MGB. And I

would like to share my story with you.

At age 45 I weighed about 165 pounds and had never had even a passing thought of

obesity. Then I started gaining weight. I hadn't changed what or how much I

ate nor had I changed any exercise program. I don't know why the weight started

coming on but it did. I tried just about every weight loss program you can name

and they all worked for a while then I would start gaining weight again. And

the end result was always more weight than I had ever had before. I went to many

different doctors and even to Mayo Clinic to try to find out what was happening

to me and how to turn it around. But nothing was a permanent solution. At age

65 I found myself weighing 400 pounds! My primary care doctor was very

concerned and two years later he told me that, in his opinion, I had about

another year to live. He recommended weight loss surgery but had no suggestion

as to who to ask to do it for me. Local surgeons had no interest in an age 67

man with many ailments

as a patient for weight loss surgery..

Finally I went on line and located Doctor Rutledge who was doing a

procedure he called a " Mini Gastric Bypass. " At that time this procedure was

quite controversial. The Roux N Y was considered the state of the art. And

there were web sites proclaiming the danger of the Mini Gastric Bypass.

I, not being a medical person, really had no idea just who to believe. It got

down to this. Dr. Rutledge was willing to take me as a patient and no one else

wanted anything to do with me. So I did the necessary pre op requirements for

the MGB.

Then my daughter drove me from my home in Florida to Durham, NC where Dr.

Rutledge was then doing his work. I attended a clinic on a Monday and had the

surgery on Wednesday. I stayed in the hospital overnight and was discharged the

following morning at about 9 am. I had very little discomfort after the

surgery. The surgery took about 45 minutes.

I stayed in Durham until the next Tuesday and then my daughter drove me from

Durham to her home in South Carolina. Three days later I DROVE my wife and

myself to our home in Florida.

To sum it all up: I had the MGB. It was done quickly with little discomfort.

I started losing weight right away. I went from the weight of 363 on the day of

surgery to 192 in about a year. I had no complications of any kind. My

diabetes and sleep apnea went away as did most of my other problems. For those

interested Medicare paid for my MGB.

Would I do it again? In a heartbeat. It works. And it wasn't painful. I now

eat just about anything anyone else can. Just not large amounts. My wife,

Linnea, and I celebrated our 56th wedding anniversary last November. If not for

Dr. Rutledge and the MGB she would have probably been a widow for the last 9

years.

For anyone interested in writing me my email address is oxfry@.... I would

be glad to answer any questions you might like to send me.

Regards,

H; Fryer

[Guest guest]

What a great testimony !  It is always great when the men share their

stories!  

 Elinor R.

Florida

Dr. P

Post-Op (4/20/07)

5' 1 "

53 min./7' bypass

Surgery/Now/Goal

278/168-171/120-125

Reynolds-Family-Elinor.blogspot.com

Live, love and LAUGH!!!!

________________________________

From: L <pel@...>

Sent: Mon, April 5, 2010 10:25:46 PM

Subject: Please Help

 

------------ --------- --------- --------- --------- --------- -

Hello to those considering weight loss surgery and the MGB in particular. My

name is Fryer and I just celebrated my 10th anniversary of my MGB. And I

would like to share my story with you.

At age 45 I weighed about 165 pounds and had never had even a passing thought of

obesity. Then I started gaining weight. I hadn't changed what or how much I ate

nor had I changed any exercise program. I don't know why the weight started

coming on but it did. I tried just about every weight loss program you can name

and they all worked for a while then I would start gaining weight again. And the

end result was always more weight than I had ever had before. I went to many

different doctors and even to Mayo Clinic to try to find out what was happening

to me and how to turn it around. But nothing was a permanent solution. At age 65

I found myself weighing 400 pounds! My primary care doctor was very concerned

and two years later he told me that, in his opinion, I had about another year to

live. He recommended weight loss surgery but had no suggestion as to who to ask

to do it for me. Local surgeons had no interest in an age 67 man with many

ailments as a

patient for weight loss surgery..

Finally I went on line and located Doctor Rutledge who was doing a

procedure he called a " Mini Gastric Bypass. " At that time this procedure was

quite controversial. The Roux N Y was considered the state of the art. And there

were web sites proclaiming the danger of the Mini Gastric Bypass.

I, not being a medical person, really had no idea just who to believe. It got

down to this. Dr. Rutledge was willing to take me as a patient and no one else

wanted anything to do with me. So I did the necessary pre op requirements for

the MGB.

Then my daughter drove me from my home in Florida to Durham, NC where Dr.

Rutledge was then doing his work. I attended a clinic on a Monday and had the

surgery on Wednesday. I stayed in the hospital overnight and was discharged the

following morning at about 9 am. I had very little discomfort after the surgery.

The surgery took about 45 minutes.

I stayed in Durham until the next Tuesday and then my daughter drove me from

Durham to her home in South Carolina. Three days later I DROVE my wife and

myself to our home in Florida.

To sum it all up: I had the MGB. It was done quickly with little discomfort. I

started losing weight right away. I went from the weight of 363 on the day of

surgery to 192 in about a year. I had no complications of any kind. My diabetes

and sleep apnea went away as did most of my other problems. For those interested

Medicare paid for my MGB.

Would I do it again? In a heartbeat. It works. And it wasn't painful. I now eat

just about anything anyone else can. Just not large amounts. My wife, Linnea,

and I celebrated our 56th wedding anniversary last November. If not for Dr.

Rutledge and the MGB she would have probably been a widow for the last 9 years.

For anyone interested in writing me my email address is oxfry@.... I would

be glad to answer any questions you might like to send me.

Regards,

H; Fryer