Re: Re: Any suggestions - Unilateral hearing loss and cholesteatoma - I need to explain

[Guest guest]

We actually had a relatively easy time getting Chloe's aid for her left ear. This is because the surgeon got involved and called the audiologist directly. He was concerned for her learning, since she was in kindergarten at the time. We also had some concerns about her ability to interpret the direction of sound, as in is the car she hears approaching her or driving away!?!

 It made a huge difference for her in being part of the world around her. She has since had a working prosthesis which then failed, and we went back to the aid. We are trying again with the prosthesis now. She reports that the aid was very helpful and she won't be too upset if she needs to go back to it. She is in fourth grade now.

 Glad you are doing this, because there is not a lot of information out there, and most audiologists we have seen are surprised that she has an aid for only one ear.

On Wed, Jun 29, 2011 at 3:39 AM, <wadvani@...> wrote:

Thanks.  We were actually dismissed and told a unilateral hearing loss needs no hearing aid or help.

I have fought for everything my son has, so I have an interesting story.

in australia all children get their hearing aids, FMs or cochlear implants free of charge.  So, although I had to fight for it, we pay $26 a year for batteries and servicing and that is it.  So, after reading the American stories about insurance and things like that we actually have it pretty good.

I think it is more about the attitude around unilateral hearing loss that I have issues.  And of course, the audiologist has never heard of cholesteatoma.

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> >Hi,

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> >I have been asked to give a 30 minute talk to audiology students at our local university.  There are other parents talking as well, but they are bilateral hearing loss parents.  Once again, I am the only uilateral loss parent around.

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> >My son is 9 and has had a cholesteatoma and now has a moderate unilateral loss.  The Ctoma was removed 3 years ago with no reoccurrence.

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> >So, I have a story and what I think I should say, but what suggestions should I give them in dealing with unilateral loss and cholesteatoma.

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> >Thanks in advance

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