Does anyone have this since Cholesteatoma removal?

[Guest guest]

Hi guys,

It's been some time since I had any questions or news to report but now need some input?

My daughter Hollie is the little lady that has suffered/ still suffering. Her story so far -

December 2009 started with ear ache and chronic discharge

February 2010 operated to insert Grommets for supposed glue ear, Tonsil and Adenoids removed. Under surgery Ctoma discovered in her left ear. Not refereed to specialist for this till May 2010.

19th May 2010 Ctoma removed under 3 and half hour op. Oscillies totally destroyed, ear drum destroyed but rebuilt.

June 2010 - March 2011 a number of infections in both ears, responded well to ear drops.

Now we get to April 2011 and a new problem starts....she has become intolerant to everyday sounds, every little noise hurts her ears, running water, television, people talking, etc...it goes on. She always seems irritated by her ears, pain, feeling of popping in her ears, fullness, pain running down her neck (left side only for pain). I had a look to see if this was a side affect from surgery but couldn't fine anything so went to see my mums neighbour who is a Paediatrician....he asked Hollie to describe what she is experiencing and came back with a diagnosis....Hyperacusis http://www.entnet.org/HealthInformation/hyperacusis-increasedsensitivity.cfm.

I just wanted to know if anyone else out there has this, suffered with it or being treated for it?

I have friends and family who tell me to stop worrying and that all is OK....erm no! I know my child and knew there was something wrong. Its been hard watching her getting so upset, especially when she is invited to friends parties but the noise is to much and she sits out with her ears covered.

We are back to her consultant on the 4th May which can't come soon enough. I'll report back with his findings. In the meantime if anyone out there is/ has suffered with Hyperacusis it would be good to hear from you.

Thanks,

- Hollies worried mummy ;(