New to group

[Guest guest]

I for one do not rely to figures alone. Data will be more sufficient if

survey will include the hearing condition of the individual prior the

implantation. That's why when I checked out with Med-El here in Philippines,

I asked for people who have similar condition as I do.

One thing for sure, CI can help where hearing aids can't. Due to invasive

operation, CI is only for people who do not gain enough benefits from

hearing aids.

Regards/

Jerome

RE: new to group

Lee,

<<Chance of " don't work " is less than 5%. The other 95% are hearing better

than with hearing aid to some degrees.>>

Do you have a source for those numbers?

____________________________________________

Best Regards,

Brad Ingrao, M.S.Ed. CCC-A, FAAA

Editor

EDEN - The Electronic Deaf Education Network www.bradingrao.com

e-mail: info@...

[Guest guest]

My husband and I have been banded by Dr. R. We have used Tacoma Radiology

for fills. Our Dr. at Virginia Mason knows Dr. Oh who does the surgery in

Federal Way and seems to be familiar with the band. Tom and I haven't had

any problems though. Tom has had some questions and Dr. Rumbaut has always

called back or email him. I don't know how I would feel if we had any

problems.

We both have the utmost respect for Dr. Rumbaut. Jan H. Dr. Rumbaut

3-19-2002 240-140-140

new to group

Hello,

My name is Judie and I am doing my research to go to Mexico to see Dr

Rumbaut. Has any one in the PNW gone to mexico? Who did the follow up

here?

[Guest guest]

Hi, Judie - welcome! This Band group is primarily for announcements

of meetings and such. Your question will recieve many answers if you

post it on one of the main Bandster Boards - I'd suggest

SmartBandsters at :SmartBandsters/

And, yes, hundreds and hundreds of us in the PNW have gone to Mexico

for excellent care. There are also groups in Coos Bay, OR and

Kirkland, WA that band low-risk clients for not much more than

Mexican prices, and it is always far better (IMO) to have a nearby

doc. the surgery itself is only the very first step. It is the fills

and aftercare given by an experienced followup doc over ther next few

years that will largely determine your band success, and it can be

very hard to get back to mexico so often for fills and followup.

http://www.nwwls.com/

Dr. Tersigni, Coos Bay, OR

541 257 5151

Hope this is useful - Sandy RN - Portland

> Hello,

>

> My name is Judie and I am doing my research to go to Mexico to see

Dr

> Rumbaut. Has any one in the PNW gone to mexico? Who did the follow

up

> here?

[Guest guest]

Hi Ginny - I had the surgery in April and have absolutely no regrets. i will do it again if needed & highly recommend it to anyone who is a good candidate and who can find a laproscopic surgeon very experienced in this procedure. Check out the "questions to ask a surgeon" on the site. Also, any old hospital won't do...be sure to go to a teaching hospital...and even then, be sure it is someone very experienced in A, myotomies and laproscopy (if you can have it done laproscopically). Best wishes...keep us posted - Cindi

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

--- I had surgery last month here in South Florida by a very

experienced surgeon. I would do it again in a heartbeat! Lap with a

wrap, some issues post op with reflux but nothing that Prevacid

didn't eventually fix.

I can eat almost anything, sometimes with no water, chewed well of

course. If there is stickage, a little fluid cures it! I, like

Cindi, would recommend it to anyone who is a good candidate. It

makes a world of difference--you can be somewhat normal again.

Jo from South Florida

P.S. Wow! 33 years? How did you do it??????

In achalasia , " ginnyfamily2004 "

<ginnyfamily2004@y...> wrote:

> Hi,

> I have had achalasia for 33 years, and 2 dilations. I am

developing

> lung problems, and have decided to pursue a laproscopic heller

> myotomy. I have an appointment with a surgical group next week. I

> would like to know of experiences of others with this surgery.

> Thanks.

>

> Ginny

[Guest guest]

In a message dated 7/20/2004 6:40:11 AM Eastern Daylight Time, ginnyfamily2004@... writes:

Hi,I have had achalasia for 33 years, and 2 dilations. I am developing lung problems, and have decided to pursue a laproscopic heller myotomy. I have an appointment with a surgical group next week. I would like to know of experiences of others with this surgery. Thanks.Ginny

Ginny-

Welcome to the group!

I'm sorry that you have achalasia, but it sounds like you are on the right track seeking solutions. It seems many members have had good results from surgery, you'll be hearing from them soon.

The most important thing to remember is finding VERY experienced doctors!

Again, welcome aboard.

Hugs,

Jan from Northern KY

[Guest guest]

Brad,

People with CI's can have MRI's but they need to have the magnet

removed first with the Nucleus and the AB product. With the Med-El

they can have an MRI in the US with a very low tesla but in Europe

the tesla is higher. The magnet in the MRI machine is the problem

not the CI itself. A person who needs frequent MRI's can have the

receiver implanted with the internal magnetremoved and would need to

use wig tape to keep the headpiece on but many people who require

frequent MRI's do this with no problem.

I suggest that you go to a qualified CI Center and discuss this

option with the surgeon. If you need help finding one, e mail me

privately and I'll try to help you. There, they would also evaluate

her properly to see if she's a good candidate for a CI. Please let

us know how you make out with it. Good Luck!

Alice

> We are now trying to deal with the hearing issue. She has had an

ABR and the test that checks cochlear funtion. She flunked both.

We are now trying hearing aids and I don't see any difference. So

we are looking at cochlear implants. BUT her neurosurgeon last week

told me we couldn't do it because she will need frequent MRI's

throughout her life. Is he right?? Can people with CI's still have

MRI's on their head?? Anyone here have Spina Bifida and hearing

loss?? Thank you, >

[Guest guest]

LouAnn,

welcome to the group. Great sweight loss and not far to go to goal.

Good folks here that like to help and share.

Charlie

05/16/03

405/302/200

Glen Rose, TX

[Guest guest]

Welcome Louanne! Congrats on your terrific weight loss. Lots of

nice people here in various stages of their band journey.

mary

dr. ortiz

05/21/04 -32

>

> Hi:

> My name is Louann , from Oshawa On. Canada I've been banded

just over a yr, (sept 4/03) by Dr. Yau /Scarborough, ON. I'm down 97

1/2 lbs, with about 35-40 lbs to go to my goal weight. Looking

forward to being apart of this group.

> Thanks

> Louann

> Oshawa, On

> 260/164/135

>

>

[Guest guest]

Hi Daryl...

I had scoliosis surgery when I was 42. You can read my story here:

http://www.scoliosislinks.com/AboutMe.htm

I hope that your doctor mentioned that after a long spinal fusion, the

discs above and below the fusion are at some increased risk of injury.

If you decide to have surgery, you'll have to make a decision about

whether you want to continue playing golf or being involved in other

activities that could mean that you'll need additional surgery. I

know a lot of people who have continued " risky " behavior after

recovery, and who have had no additional problem. I also know people

who have been very sedate, and who still had the problem. In my case,

I'm somewhere in between those two groups. The first disc below my

fusion is pretty much shot, and I'll eventually have to have my fusion

extended one level. We each have to decide whether the risk/reward is

worth it. In any case, I think your surgeon will tell you that you

shouldn't participate in any of these behaviors until at least a year

post-op.

Also, I'd like to encourage you to read Scoliosis Surgery The

Definitive Patient Reference. You can purchase it from The Scoliosis

Association, The National Scoliosis Foundation, directly from the

author (http://www.curvedspine.com), or from Amazon or other online

book stores.

Regards,

>

>

> my name is Daryl. I am 43 and I have Scoliosis as does my sister.

> She wore a Milwaukee brace in the 1960s and I wore one from 1971 to

> 1978. I am now faced with surgery. I am very active, play golf and

> other sports. My top curve is 50 and my bottom is 43. I have no

> pain but several doctors suggest that I have the surgery now before

> it gets too late. Any help or advice would be appreciated.

[Guest guest]

Daryl, Where do you live? Make sure you get several opinions and only consider

the very best doc... This is major surgery, so if you go for it, you've got to

do your research. I have a great list of docs and will send you some names.

na

New to group

my name is Daryl. I am 43 and I have Scoliosis as does my sister.

She wore a Milwaukee brace in the 1960s and I wore one from 1971 to

1978. I am now faced with surgery. I am very active, play golf and

other sports. My top curve is 50 and my bottom is 43. I have no

pain but several doctors suggest that I have the surgery now before

it gets too late. Any help or advice would be appreciated.

[Guest guest]

Welcome to Boston! Dr. Glazer did mine, but if you have any Boston questions,

please

ask! My email is cpointer@...

Carolyn

Quoting just ask ! <spunkyone_66@...>:

>

> <html><body>

>

>

>

> <tt>

> <BR>

> <BR>

> hello all...<BR>

> <BR>

> <BR>

> my name is and I am going to be having revision surgery <BR>

> sometime within the next six months by Dr. Rand. I just moved

> <BR>

> to the Boston, MA area to get this process started. <BR>

> <BR>

> Has anyone had him as a surgeon?? If you could post something about

> <BR>

> how you are I would appreciate it a lot. I am really alone with all

> <BR>

> of this and need someone to talk to. <BR>

> <BR>

> Dr Rand says I need three surgeries possibly, and I am very, very

> <BR>

> scared of it. It is all of the not knowing that gets to me. The what

> <BR>

> if's.<BR>

> <BR>

> I would really appreciate any help anyone could offer in terms of

> <BR>

> experience, and here's hoping you all have a great holiday and I

> <BR>

> look forward to chatting sometime soon.<BR>

> <BR>

> Thanks!<BR>

> <BR>

> <BR>

> <BR>

> <BR>

> <BR>

> <BR>

> <BR>

> <BR>

> </tt>

>

> <br><br>

> <tt>

> Support for scoliosis-surgery veterans with Harrington Rod

> Malalignment Syndrome. Not medical advice. Group does not control ads

> or endorse any advertised products.</tt>

> <br><br>

>

> <br>

>

> <!-- |**|begin egp html banner|**| -->

>

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> size= " -2 " >ADVERTISEMENT</font><br><a

> href= " http://us.ard./SIG=12ctl28nj/M=294855.5468653.6549235.3001176/

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http://smallbusiness./domains/ "

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> <b>

[Guest guest]

,

Hi, I have been on with this group for just under a year....welcome

to the group (and New England!).

I have not yet had the surgery, but also have chosen Dr Rand for my

surgery and I am scheduled for a two stage, three part revision on

Feb 9 & 17th.

I went back through the board to understand people's experiences and

choices and it was very useful...

If you are looking specifically for Dr R. patients look back for the

the past a year you will see that , Ann, Corine, Cheryl, and

DianneS are some recent NEBH " graduates " ...and the founder of this

group, , had surgery with him as well a couple years back.

Regardless of your doctor, it is well worth your while to cruise

back through the board when you have some idle time...you will learn

a lot. You will have to go to the actual site to do this effectivly.

I am curious, there is a poster on another " scoli " website that just

moved to Boston to do surgery with Dr Rand...posting as Sheridan or

sheridanlee....is that you or is someone else living a paralell life

with you? Crazy or what?

If you have anything I can help you with feel free to ask....

By the way, are you living in Boston or just nearby?

Merry Christmas, Cam

[Guest guest]

Hi, ,

Most or all of us who have been through revision surgery have shared

your feelings. Pre-op, I'm afraid, stark terror is pretty much the

norm. You do get through it and beyond it.

If you need more than one surgery -- as I did -- you will very

likely be over the worst of your fear after the first operation. At

least that was my experience, anyway.

I can not say too many good things about Dr. Rand. He performed two

of my revision surgeries -- actually a single, three-stage procedure,

but in two major installments of about nine hours each. I found him

very straightforward (which I like), meticulous procedurally and in

every other way, confident, and, of course, extremely experienced in

this superspecialized area of spinal deformity correction. He has had

great success in correcting some of the most severe and advanced

deformities. I always feel terrific -- reassured and happy for the

person -- when I hear that someone has chosen to have revision

surgery either with Rand in Boston or with Ondra in

Chicago. I have had surgery with several other specialists as well,

but these two -- Ondra and Rand -- are tops in my book.

Please do use this group as much as you choose to for emotional

support, encouragement, companionship, sharing of personal

experiences, etc. It is all too easy to start feeling cut off from

others and deeply lonely when you are facing this enormous challenge.

To me, especially before I actually had the surgery, my distress

often felt gut-deep -- soul-deep. Beyond the physical pain, the

anxiety, the anger, etc., this was really a crisis involving my whole

being.

During the lowest times, many of us have found the " Feisties " a

helpful antidote to isolation. My philosophy of running a forum like

this is that being gracious is nice, but being truthful is paramount -

- that you will get the most out of this group if you can be open

about all that you are going through, at least to whatever degree you

feel comfortable opening up. In other words, all of our feelings are

welcome here. We have shared some deep joy (not to mention a number

of actual belly-laughs) as we grew through the experience of pain and

hardship -- such growth seems almost inevitable when life throws

something this mammoth your way. We have also shared plenty of very

raw pain, even a despondency verging on despair. For the most part,

although we have had our tiffs, our bumbling and insensitive moments,

I think we generally share a whole lot of compassion and empathy

toward one another. Wherever you are at any given point in this long

ordeal, you can be almost sure that someone else in this group has

been there too.

You are NOT alone with this, -- not ever. You can be sure that

we are here for you, for as long as you may choose to be with us.

Sincerely,

>

>

> hello all...

>

>

> my name is and I am going to be having revision surgery

> sometime within the next six months by Dr. Rand. I just moved

> to the Boston, MA area to get this process started.

>

> Has anyone had him as a surgeon?? If you could post something about

> how you are I would appreciate it a lot. I am really alone with all

> of this and need someone to talk to.

>

> Dr Rand says I need three surgeries possibly, and I am very, very

> scared of it. It is all of the not knowing that gets to me. The

what

> if's.

>

> I would really appreciate any help anyone could offer in terms of

> experience, and here's hoping you all have a great holiday and I

> look forward to chatting sometime soon.

>

> Thanks!

>

>

[Guest guest]

Oh, !

What a beautiful letter you wrote to ! What a fine welcome for her! It

even made me feel special!

It is so good to see your postings again! Are you feeling better? I do

hope so! And, I wish you and all the " Feisties " a healthy, happy, even wealthy

New Year!

Sincerely,

Carole M.

[Guest guest]

I'm glad if my post made you feel special, Carole, because you

certainly are.

I am taking my pain problem one day (sometimes one hour) at a time. I

have had a bunch of consults and seem headed toward a morphine pump

some time in January. I am still sort of ambivalent about this option

but am finding the literature and personal anecdote increasingly

persuasive. I can not tolerate an adequate dose of any narcotic

because of my narcolepsy -- am in danger of inconvenient or dangerous

conk-outs at unpredictable times. So, most recently, I seem to be

alternating between hypersomnia (or broken sleep with vivid,

unsettling dreams) and those spells of want-to-screech-out-loud agony

(as the docs insist I try to raise my dosages of pain meds -- for

some reason, some have fretted that I do not seem like a candidate

for the pump because my dosages are so very low, not quite getting

why I can NOT reasonably raise these despite inadequate analgesia).

With the pump and intrathecal delivery via catheter, a mere fraction

of the oral dose can relieve severe pain without causing drowsiness.

I'll let you know how all this evolves. Thanks so much for asking.

As ever,

> Oh, !

>

> What a beautiful letter you wrote to ! What a fine welcome

for her! It

> even made me feel special!

>

> It is so good to see your postings again! Are you feeling

better? I do

> hope so! And, I wish you and all the " Feisties " a healthy, happy,

even wealthy

> New Year!

>

> Sincerely,

>

> Carole M.

>

>

>

[Guest guest]

Hi - I was diagnosed with A at age 15, after suffering symptoms

for about 3 years. I'm old now (by an 11 year olds standard) at 36

but many of us were diagnosed as pre-teens and teens. It isn't fun.

The one thing I can offer is the hope that this does not need to stop

him from growing up and having a pretty normal life. Hopefully he

will start to feel better from his surgery and get back to 'normal'

eating.

For one month prior to my first dilation at age 15, I was put on a

liquid diet - spaghettios in the blender - woo hoo!! Try explaining

that to the teachers at school. Treatments and outcomes are much

better now even than they were 20 years ago. It's lifelong but

hopefully he'll get to the point where he can eat solids more

normally and then his friends won't even have to know.

Keep posted here. This group is an amazing source of support and

knowledge!! Ask questions and let us know how he's doing. Invite him

along with you sometime to say hi! We're all adults here but even

that may make him feel less alone. For over 20 years -prior to

finding this group - I had never spoken to a single other person with

A.

p.s. did you say where you are located??

Happy Swallowing!

-michelle in VA.

[Guest guest]

--- > Welcome, cold in Chicago!! I'm new here too. This is a very

supportive place to break those life long habits.

Faye in Somerville, MA

>

> Hi, I am new to the group. Just started a diet, the Food Movers

Plan

> by . I lost my job last month through " downsizing "

> and figure I have time on my hands, I might as well use it well. I

> have a heart condition and had a heart attack a couple of years

> ago. I know if I lose the weight I need to lose ( about 120 lbs )

I

> will be much healthier. I just need to break some lifelong habits

> but I know now is the time.

>

> Thanks for listening.

>

> Cold in Chicago

[Guest guest]

hi there and welcome - I'm also in the cold Chicago area - (where is this winter storm - not that I want it LOL) I was downsized in the wake of 9/11 - I temped for 2 years and then was out of a job for almost a year and all I did was grow - so please take extra care of yourself! this is a great group of woman who'll give more encouragement then you'll know what to do with LOL

New to group

Hi, I am new to the group. Just started a diet, the Food Movers Plan by . I lost my job last month through "downsizing" and figure I have time on my hands, I might as well use it well. I have a heart condition and had a heart attack a couple of years ago. I know if I lose the weight I need to lose ( about 120 lbs ) I will be much healthier. I just need to break some lifelong habits but I know now is the time.Thanks for listening.Cold in ChicagoThe answer to reaching my goal is to stop making reasons for why I can't.--------- from the old .com web site Daily MessageDon't forget to check our list's Files and Links pages for helpful weight loss information and loads of healthy recipes.

No virus found in this incoming message.Checked by AVG Anti-Virus.Version: 7.0.300 / Virus Database: 265.6.9 - Release Date: 1/6/2005

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

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[Guest guest]

, thank you so much for responding! This goup information already has been very valuable to us. We live in Florida and my son's surgeon who performed the myotomy is Dr. Rosemurgy. He preformed the surgery laproscopically and did a fundiplication. Botox and Balloon Dilitation did not offer relief. Have you had surgery? Will eat really be able to eat normal again? He is about four weeks post-op and still has to eat soft foods, no meats. I have had him read emails posted and I think it makes him feel less "weird". I am so happy this support group exists!

Re: new to group

Hi - I was diagnosed with A at age 15, after suffering symptoms for about 3 years. I'm old now (by an 11 year olds standard) at 36 but many of us were diagnosed as pre-teens and teens. It isn't fun.The one thing I can offer is the hope that this does not need to stop him from growing up and having a pretty normal life. Hopefully he will start to feel better from his surgery and get back to 'normal' eating.For one month prior to my first dilation at age 15, I was put on a liquid diet - spaghettios in the blender - woo hoo!! Try explaining that to the teachers at school. Treatments and outcomes are much better now even than they were 20 years ago. It's lifelong but hopefully he'll get to the point where he can eat solids more normally and then his friends won't even have to know.Keep posted here. This group is an amazing source of support and knowledge!! Ask questions and let us know how he's doing. Invite him along with you sometime to say hi! We're all adults here but even that may make him feel less alone. For over 20 years -prior to finding this group - I had never spoken to a single other person with A. p.s. did you say where you are located??Happy Swallowing!-michelle in VA.

[Guest guest]

---> , thank you so much for responding! This goup

information already has been very valuable to us. We live in Florida

and my son's surgeon who performed the myotomy is Dr. Rosemurgy. He

preformed the surgery laproscopically and did a fundiplication. Botox

and Balloon Dilitation did not offer relief. Have you had surgery?

Will eat really be able to eat normal again? He is about four weeks

post-op and still has to eat soft foods, no meats. I have had him

read emails posted and I think it makes him feel less " weird " . I am

so happy this support group exists!

>

Hi - I'm glad this group exists too. It's hard enough being a

teen without something weird that noone can pronounce, let alone has

ever heard of.

I had open surgery at the age of 20 in 1989. I am now - this month -

16 years post-op. I eat pretty near to normal. There are specific

items I have to avoid and most of that was many years of trial and

error. There is actually a list in the database section here of foods

that we have difficulty with. I think the only common one is raw

carrots. Otherwise you may just have to experiment. For instance, I

have to be careful of coffee and chocolate. I do not do any citrus or

anything carbonated and have to watch how much greasy or spicy food I

eat. If my husband makes buffalo wings - I can eat about 2-3 with no

trouble but any more than that....

I do not have many difficulties swallowing (raw carrots aside) meat,

bread, potatoes, rice, veggies - just lots of water always; most of

my avoidance foods are because I get spasms occasionally.

I'm surprised he's still on soft food after this long - any

particular reason? Even in the dark ages of 1989 - I was on real food

(as tolerated) after about 2 weeks. Most of the people here who have

had lap hellers are eating in a matter of days.

Every case is different but keep reading because you'll find more

information here than you'll probably ever get from your doctors.

Good Luck and tell your son (did you ever tell us his name?) he is

not alone and he is welcome here anytime. Ask zillions and zillions

of questions. That's how we all learn and cope.

Happy Swallowing!--michelle in Va.

p.s. what part of Florida?

[Guest guest]

Hi , my son's name is Chasen. We live in Clearwater, Florida. The reason he is still on soft foods is because about a week after surgery he started back on solids and he experienced excruciating left shoulder pain for about three days straight. The surgeon said it was from his esophagus having spasms, and that their was probably food stuck in it. An upper GI showed this. He has now recovered but it seems every time he starts to eats something more than pureed food (like pasta ) the shoulder pain and or nauseas begins. Has anyone else experienced this?? Thanks again for all the support!

Re: new to group

---> , thank you so much for responding! This goup information already has been very valuable to us. We live in Florida and my son's surgeon who performed the myotomy is Dr. Rosemurgy. He preformed the surgery laproscopically and did a fundiplication. Botox and Balloon Dilitation did not offer relief. Have you had surgery? Will eat really be able to eat normal again? He is about four weeks post-op and still has to eat soft foods, no meats. I have had him read emails posted and I think it makes him feel less "weird". I am so happy this support group exists! > Hi - I'm glad this group exists too. It's hard enough being a teen without something weird that noone can pronounce, let alone has ever heard of.I had open surgery at the age of 20 in 1989. I am now - this month - 16 years post-op. I eat pretty near to normal. There are specific items I have to avoid and most of that was many years of trial and error. There is actually a list in the database section here of foods that we have difficulty with. I think the only common one is raw carrots. Otherwise you may just have to experiment. For instance, I have to be careful of coffee and chocolate. I do not do any citrus or anything carbonated and have to watch how much greasy or spicy food I eat. If my husband makes buffalo wings - I can eat about 2-3 with no trouble but any more than that.... I do not have many difficulties swallowing (raw carrots aside) meat, bread, potatoes, rice, veggies - just lots of water always; most of my avoidance foods are because I get spasms occasionally.I'm surprised he's still on soft food after this long - any particular reason? Even in the dark ages of 1989 - I was on real food (as tolerated) after about 2 weeks. Most of the people here who have had lap hellers are eating in a matter of days.Every case is different but keep reading because you'll find more information here than you'll probably ever get from your doctors.Good Luck and tell your son (did you ever tell us his name?) he is not alone and he is welcome here anytime. Ask zillions and zillions of questions. That's how we all learn and cope.Happy Swallowing!--michelle in Va.p.s. what part of Florida?

[Guest guest]

Hello

My name is , my daughter Jasmine is 9. She has had achalasia since she

was 7.We have had seven procedures including a lap Heller myotomy. Jas seems

quite stable at the moment although she has no peristalsis. We actually

manage to have a fairly normal life at the moment. Jasmine is quite positive

and does not seem to let it get her down. We have 2 trampolines, a big one

in the garden and a small one in my lounge! Jas jumps after each mouthful,

she eats small amounts of soft food often including lots of fish and

spaghetti. She has a chocolate meal replacement drink every night and 15 mg

lansoprazole fastabs also 5 ml gaviscon before bed. I send jasmines food to

school and they help me monitor fluids, all her class know about it and dont

seem to take any notice. her teacher told the class about it 2 years ago.

Where do you live?

I hope your son is doing OK.

,

Tamworth ,

UK.

new to group

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> My son is eleven years old and was diagnosed with Achalasia last

> year. He has had botox twice and Balloon dilatation without success.

> On dec 14, 2004 he underwent a heller myotomy with fundiplication. He

> is still on liquids/soft food and experiences frequent nasuea after

> eating. He is also taking Prevacid solutabs. He feels very alone and

> different from his friends. I wonder if anyone knows any kids his age

> going through this, or can offer him some support?? Any

> help/suggestions would be appreciated. thanks

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[Guest guest]

Hi Barbara,

Welcome to the group!

My doctor also advised eating small amounts more often(same

surgery in Aug 03). I tend to still make an entire meal. Then just

eat part and heat the rest up in a couple hours(thank God for

microwaves!!).

I don't know about the reflux. I guess I'm one of the lucky

ones who doesn't get it unless I eat something really spicy.

Good luck!

Mike in WI

[Guest guest]

Hi Barbara,

Try making nourishing soups/broth yourself using pure ground beef or

chicken. You can also have eggs. I have a soft boiled egg for breakfast

every day ( no - I do not believe eggs contribute to your cholesterol - I

have done it for a year now and my cholesterol is fine !) You can add eggs

to smoothies - low fat milk shakes.

Ensure - the new kind is a food supplement which tastes better than it used

to- especially the Chocolate.

If you still get reflux after a fundoplication you will have to elevate the

head of your bed. You can either use a wedge pillow or put old telephone

books under the mattress, or blocks under the legs of the bed.

As for vitamins try having some of the liquid vitamin supplements - if you

have problem swallowing pills. It is difficult to get enough vitamins with

our restricted diet so one can rely on some help.

Welcome to the group and feel free to ask questions - there will always be

someone who can offer you some help or just a warm fuzzy.

Joan

new to group

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> hello all my name is barbara and i am 58 and had a heller myotomy

> with nissen fundopilcation in july 04,i have been told to eat little

> and often but i am finding it difficult to get enough protein into

> my diet.i still get acid reflux every 4 or five days and i take

> nexium 40mg am and pm,and zantac at bed time has anybody any advice

> as to what they eat to prevent acid and still get enough vitamins to

> mantain weight.My doctor has told me not to eat fatty foods as they

> make acid worse.

> barbara shervell

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