New to group

[Guest guest]

check out 714x

[Guest guest]

>

> check out 714x

Thank you Kev

Very interesting

[Guest guest]

Hi , do you have any first-hand experience of 714x?

>

> check out 714x

[Guest guest]

Barbara, welcome to the group. Please check out, carefully, the

following link regarding PCR and viral load... I'll place it below

the ad, and you may have to cut-and-paste it as it will display on

more than one line and will probably get " broken " ;

;

;

;

;

;

;

;

;

;

;

;

;

;

;;

http://groups.msn.com/EVERYTHINGABOUTT4CELLS/articles.msnw?

action=get_message & mview=0 & ID_Message=15 & LastModified=467548835368655

1801

Barbara, there are lots of helpful articles (some rather technical,

but well worth studying) at;

http://groups.msn.com/EVERYTHINGABOUTT4CELLS/articles.msnw

-

[Guest guest]

This is the first I have heard of 714X. I see it's an IV injection of

camphor, nitrogen salts and mineral salts. I know that minerals alone have

thrown AIDS remissions ...

To me something like this stands along side immusil (AG404) being that they

are patentable, but immusil has a proven track record. Anyone know of some

studies indicating potential results of 714X visa vie AIDS remissions and

perhaps both HIV RNA and DNA viral loads? If not studies, any substantial

testimonials anyone is aware?

Re: new to group

>

>

> Hi , do you have any first-hand experience of 714x?

>

>

>

> >

> > check out 714x

>

>

>

>

>

>

> Read AIDS-Cured

[Guest guest]

Hi Pam,

Welcome to our group. I'm sorry to be responding so late but I've had some

computer problems the past few days.

I guess I am having a hard time understanding why you would not want to go ahead

with the implant if the trial was successful in stopping the pain. The scs is

NOT a cure, but a treatment for a problem with chronic pain. It's not uncommon

for the pain to stop for a short period, but your doctor is correct, it will

come back.

Holly had given you good advise for finding another doctor. First to go through

your insurance provider and also you can find a doctor in your area from the web

site of the unit you are having implanted.

I hope you'll reconsider your decision and not wait until the pain comes back to

decide and then have to wait for the surgery.

Please keep us posted as you decide.

Good luck,

Jeff-NY/PA

Moderator

new to group

Hi,

My name is Pam and I am 34 from WV. I had a trial stimulator put in

last week and had it taken out Tues. I decided not to have the

permanent put in yet because the pain is gone. My doctor said that

the pain will come back it is just a matter of time. So I wanted to

do some research about the stimulator. Where does everyone go for the

simulator? My doctor right now is in Baltimore at johns Hopkins but I

am not very happy with them.

Please any advise or recommendations I would really appreciate.

Anyone can email me privately if you want at ptshadow@...

Thanks

Pam

------------------------------------------------------------------------------

[Guest guest]

Hi Mel, welcome to the group! It is nice to be able to have others

to chat with about this condition! My daughter is the one with

Heterochromia and gets gets alot of comments too! I don't think

people are glad they are not like her, but she is only 4 and we

haven't had any stupid questions or comments yet.

>

> Hello all, how neat to have found this. I just did a random

search

> on " two different colored eyes " for the first time and found this

> group. I never even knew it had a name!! I have a green eye and a

> blue eye, growing up I was pretty self conscience about it, when I

> was in middle school I even got colored contacts but you could

still

> tell. I don't care anymore, but don't you just love it when

people

> say mid conversation " is that your natural eye color?...I had a

> dog/cat/horse etc. with two different colored eyes " . Anyway, I

will

> post a pic sometime soon, It was neat to see all of yours. I do

> wonder though, when people are like " wow, that is so cool,

unique " ,

> don't you feel like their really saying " wow, that's weird, I am

glad

> I don't have that "

>

> :)Mel

[Guest guest]

Welcome Tony!!!I'm so glad you found us.

This disease is a pain literally at times. It helps so much to have a

loving family around you to listen to you. and hey whine all you need to.

NOBODY else gets it..who hasn't suffered or lived for years with a

sufferer.

So I guess we have like three dads in our family: Rick, Ray, and Dave:)

That's so nice... They are the best moderators anyone could ask for. Their

own lives are such an inspiration to me. They are in pain so much of the

time and have their own problems.. like Ray's wife not understanding and

divorcing him. Those things on top of the disease just are so difficult

to bear. But Ray hasn't given up and we love him for that. Just one

example--

So now that I have finished singing praises:) (Sincere ones too!!!) I

shall step down from the platform...

Once again, I'm SO glad you joined us. I wish i knew that answers to your

questions, Tony but at any rate I just wanted you to know that I hope you

will be able to deal better as the result of being here. I know that we

will learn from you too. it is always a two-way street here.

BIG HUGS and handing you a mug of your favorite hot drink and some fresh

baked cookies!

Liz Kilpatrick

~~~~~~

" Happiness comes of the capacity to feel deeply, to enjoy simply, to think

freely, to risk life, and to be needed. " **Storm on**

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

EMAIL: juliette@... **** liz_kitten@...

PERSONAL HOMEPAGE PAGE http://members.tripod.com/~LizK

ADDult ADD GROUP PAGE: http://members.tripod.com/~LizK/addult.htm

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

Hi Tony,

Welcome. I am relatively new to the this site myself. I have found it

very informative and supportive. I have many of the same symptoms as

you. My eyes were constantly flared for about two years. I have been

doing better now that I am on daily doses of diclofenac (an anti-

inflammatory med. and also using good quality fish oils and flax seed

oils daily. It seems my eyes drip before they flare so I can

sometimes ward it off by increasing the anti-inflam med. dose. I now

have less flares and have to use those pred.forte eye drops far less

often. I notice that you live in So.Ca. as I do. I have been making

progress since seeing Dr. Pirnazar an ophthamologist and a Rh. MD

named Dennehey at UCI and a holistic MD named Eckert in Laguna Beach.

I hear UCLA has some good specialist, too. They may be closer to you.

I hope this info. helps. I keep all of us in my prayers.

Sincerely,

in CA

[Guest guest]

Dear Carol,

Welcome! I grew up in Modesto, Ca, though now I reside in Colorado. I had my

Harrington rod surgery in 1973, at age 14, at UCSF, fused T-5 to L-3. I did

well following that surgery until the birth of my first child in 1984. My pain

started with low back pain, take a tylenol and it was okay. By the time my

daughter was two I was going from spine doc to spine doc trying to get answers

for the pain running down my leg and occasional hip pain. The answer was always

your fusions look good an herë's some pills for the pain. One doc in Stockton

told me I didn't have pain, he saw nothing to cause me pain, but didn't like the

fact that my rods were unhooked. Then through the next years I had two more

children and moved across country twice, from Modesto to Chicago, to Ashland

Oregon and then to the Denver area. During these years I saw a total of twelve

doctors, in three states, all with zero answers for me.

When we moved to Denver in 1999 the pain was just too bad to ingnore, so I gave

doc's another chance. My first visit to my spine surgeon in 2000 was one of

those lightbulb moments. He took one look at my X-rays and said " who did this to

you " . I knew I was in the right place. He explained that I had Flat Back

Syndrome and gave me a surgical plan to fix it. While this can be a very

complicated syndrome and it took three surgeries, I'm doing great. I walk where

I want, and pre- surgery I was walking with a cane and for very limited time.

I'm pain free and feel like I got my life back

While I'm not a doc, it's a good idea for you to be looked at by a good doc to

see whats going on with you. Look on the groups list of spine doc's, there are

some listed at UCSF. I wish you luck! I know that this group was here for me

when I got the word from my doc, these women and men have been of great value to

me through my journey through Flat Back.

Colorado Springs

New to Group

I am new to this group and had never heard of " revision surgery "

until I found your group. How does a person know if they need this? I

had my surgery 30+ years ago and experience muscle spasms in my back

and also alot of pain in my lower back when I do housework and

bending. I have fusion from T5-L4. I have also lost some correction

from my original surgery. My original surgeon moved away over 25

years ago and I have no orthopedic doctor to refer to about any

questions I may have. I wouldn't want to undergo any more surgery

unless something got REALLY BAD (like not being able to walk or

function with other daily activities). I'm not into that much pain

and suffering right now. I live in Central California, and there are

not many orthopedic specialists here. I work full time, have two

teenagers and am 47 years old. Does anyone have any thoughts or

advice for me? You can e-mail me directly because I don't have time

to check the postings very often. I also am wondering if anyone out

there knows anything about the correct (original) scoliosis surgeries

they are doing on children now? I have a co-worker who has a niece

that just found out she needs surgery. The girl is 14 yrs. old and

lives in Visalia, CA. They have seen some doctor at Children's

Hospital Central California, but don't know all the details. The

mother is scared (rightfully so) Any ideas or thoughts would be

appreciated. I don't know how original surgeries are done any more--

just that they are not casted (or braced)after the surgery like I was

many years ago.

Support for scoliosis-surgery veterans with Harrington Rod Malalignment

Syndrome. Not medical advice. Group does not control ads or endorse any

advertised products.

[Guest guest]

Thank you for your reply, . You sound like me--I've only been to

GP's mostly the past 25 yrs., and they all say " it looks good " but

when I ask why I'm having hip pain that goes down my leg or lately

shoulder pain that goes into my rib area, they just give me pain

pills. No answers. Luckily, Chiropractic has helped me quite a bit

with the pain and muscle spasms over the years. I just wasn't aware

that people had " revision surgeries " . Until I found this site, I had

never heard of such a thing. I have been having more and more muscle

spasms and pain in my lower back/hip area and shoulder/rib area the

past year or so and I also feel like my spine is twisting more. I

feel a " downward pull " of gravity that is very uncomfortable. I've

been relying more and more on muscle spasm medication lately. I

probably should go to a specialist, but I don't know how I'd get

there. I don't have anyone to drive me to San Fran. or somewhere

else. Yes, I drive, but I don't like to drive long distances. My

husband wouldn't be available because of his strange work hours.

Like you, the pain in my lower back started about the time of my

first pregnancy. The GP called it " radiculopathy " . Gave me Ibuprofen

800mg. and that's mostly what I've been relying on over the years

until lately.

You're a brave person to take up skiing. That is one sport that I

never had the desire to do, especially with my back surgery. I was

always afraid that I would get hurt worse. You always fall while

you're learning, you know!!

Thank you again. I plan on keeping your e-mail for future reference.

Carol V.

> Dear Carol,

>

> Welcome! I grew up in Modesto, Ca, though now I reside in Colorado.

I had my Harrington rod surgery in 1973, at age 14, at UCSF, fused T-

5 to L-3. I did well following that surgery until the birth of my

first child in 1984. My pain started with low back pain, take a

tylenol and it was okay. By the time my daughter was two I was going

from spine doc to spine doc trying to get answers for the pain

running down my leg and occasional hip pain. The answer was always

your fusions look good an herë's some pills for the pain. One doc in

Stockton told me I didn't have pain, he saw nothing to cause me pain,

but didn't like the fact that my rods were unhooked. Then through the

next years I had two more children and moved across country twice,

from Modesto to Chicago, to Ashland Oregon and then to the Denver

area. During these years I saw a total of twelve doctors, in three

states, all with zero answers for me.

>

> When we moved to Denver in 1999 the pain was just too bad to

ingnore, so I gave doc's another chance. My first visit to my spine

surgeon in 2000 was one of those lightbulb moments. He took one look

at my X-rays and said " who did this to you " . I knew I was in the right

place. He explained that I had Flat Back Syndrome and gave me a

surgical plan to fix it. While this can be a very complicated

syndrome and it took three surgeries, I'm doing great. I walk where I

want, and pre- surgery I was walking with a cane and for very limited

time. I'm pain free and feel like I got my life back

>

> While I'm not a doc, it's a good idea for you to be looked at by a

good doc to see whats going on with you. Look on the groups list of

spine doc's, there are some listed at UCSF. I wish you luck! I know

that this group was here for me when I got the word from my doc,

these women and men have been of great value to me through my journey

through Flat Back.

>

>

[Guest guest]

This will be better asked and answered on SmartBandsters or another

general group. Do what your doctor tells you. And an artichoke stem

is probably as tough and fibrous a thing as I can imagine eating.

If your doctor told you to start mushies or solids now, do it with the

kinds of things he suggests.

dan

Tuesday, March 29, 2005, 1:30:57 PM, you wrote:

e> Just banded 2 weeks ago. I am craving solid

e> food and I am not sure if I am really hungry or not. I feel pretty

e> confused about feelings I am having and I am just really tired of

e> liquids. Will it hurt to eat a solid? I did and vomited once on an

e> artichoke stem.

Dan Lester, Boise, ID honu@... www.mylapband.tk

Dr. Ortiz, Tijuana, 4/28/03

323/209/199 Age 62 Fair is whatever God decides to do.

[Guest guest]

Hi, Joan --

Welcome to the group, and thanks for querying us. Many of us have

had similar questions, and, as it happens, we are just now beginning

the process of producing an FAQ. We hope it will answer many of the

major questions in a comprehensive way, and in one relatively

compact document.

In the meantime, you may want to browse through the message archives

at our Website. You will find many accounts of people's experiences

with revision surgery. If you like, you can use the

groups " Search " function to narrow down the subject matter,

putting a specific search term in the box and watching what comes up.

Also, please be sure to check the resource materials available on

site, especially in the " Files " section.

Best,

>

>

> Hello;

>

> I have just discovered your group and am glad there is a group for

> those of us who have flat back syndrome or think they may have it.

>

> I am 45 years old and had spinal fusion surgery at 16 (1976) I have

> the classic Harrington rod to correct the double s curve but since

> they did not catch this until it had progressed very far they were

> only able to correct part of the curve. I am still left with a

curve

> (not sure what degrees) that is noticable if you look. I am not

sure

> as to where the rod begins and ends (I think L5?) I was not told

as

> much as patients may be told these days. I wore a plastic cast

for 9

> months and have not had many problems until about 10 years ago.

>

> I had noticed the stooping forward and low back pain (dull and

achy)

> but thought that this was just a byproduct of the scoliosis and I

> would just have to bear it. Lying on my back is near impossible

and

> if I do have to (for some medical testing years ago) I can hardly

walk

> afterwards. After raking or mowing or any extended bending I am

> usually stooped over very badly for the rest of the day and in

more pain.

>

> I lost weight 2 years ago (50 lbs) and this has helped some.I ride

> approx. 50 miles a week and that seems to have aleveated some pain

> too. I just get tired of people saying " is your back hurting you?

You

> walk all hunched over like an old woman "

>

> I have contacted a local ortho doc who I hope will be able to lead

me

> in the right direction. How have any of you fared with

surgery...is

> it worth it?

>

> Thanks for any help and advice.

>

> Joan

[Guest guest]

Hello everyone:

I hope I am getting this right by posting to everyone but also by answering a

question by one person.If I get this wrong somebody please set me straight.

First of all...what a relief to find such a board and to be able to read the

stories about what you've all been through. I have found answers to questions

that have plagued me for years that I thought were just the consequences of

getting older and not having good posture. I am always telling myself to stand

up straight and just get over the pain because it is a fact I will have to

always deal with as a result of the scoliosis. In answer to the question of

biking...No it is not hard to stand after biking and I normally bike anywhere

from 12 to 40 miles at a time depending on weather, time etc... The biking seems

to have helped the hip pain or maybe just losing the weight is what helped

there. If I do any type of sweeping. mopping, raking etc...that is what will

stoop me over at the end of the day.This has gotten worse over the last 3 years.

I guess my one big question is will I get worse.Will the pain get worse? Right

now it is very manageable . Depending on what I do. I can only remember in the

last 6 months one time that I actually had great difficulty in walking after a

day of putting mulch around the flower beds. if doctors tell me that it will get

worse and I will have more pain, then I am prepared to do what I have to do.

Right now I just need to find the right doctor, which is already proving

difficult. 2 doctors nurses would not even answer the question " Does this Dr.

have any experience treating flat back syndrome " So...my quest is just

beginning.

Thanks you all SO much for your posts and sharing your story with me. I have

not thought very much about scoliosis until this past month and now I find

myself thinking about it everyday and what impact it will have on my future and

the future of my family. As I told someone else, I have a great husband and two

great big healthy boys who say they will carry me to work and wait on me with

great pleasure. However....they are not used to me being the sick person so

this may come as a shock to them if and when it happens.

I look forward to many more stories from you all. God bless each of you as you

continue your journey to better health and quality of life. I will keep you

informed.

Joan

---------------------------------

Messenger

Show us what our next emoticon should look like. Join the fun.

[Guest guest]

Joan,

After I read where you are I pondered that I hadn't really read much

about revision specialists in your neck of the woods and wondered if

it was just a coincidence of who is posting these days. I went to

the files section to see who was listed and didn't see anything in

the Physicians listing for GA.

In that recomendation section there is another file titled from

Pinion, a member name I don't recognize (but may?)

with doctors in Altanta...she mentions Dr. Horton at Emory

University in Atlanta... perhaps others know about him or he might

be a starting poiont close to home. You may find you need to travel

to get a second opinion.

There is also the Scoliosis Research Society physician locator:

http://www.scoliosis.org/resources.php

I think you are looking for someone that deals with adult scoliosis

and aging spine....then when you see them ask them how may revisions

they perform routinely....if my memory serves me ...the advice

around here is you would like them to be doing at least one a month,

preferably more...

Be sure to let us know what you find out as you go along!

Good luck, Cam

[Guest guest]

Joan,

That is another good point about having a good listener with you. I

was alone for my first visit and wished I wasn't. I think it is

generally advisable to have someone with you..ideally your spouse or

signifigant other (or whichever adult is most impacted by your

incapacity). By the time I had a second opinion scheduled (and for my

pre-surgical consult)I brought my hubby and written questions and felt

much better prepared and consequently got alot out of those exams.

The files section also has a listing of questions members have

prepared in advance of their consult...it might help to use as a

starting point for organizing your thoughts.

Seems to me there is also a doctor in land that is well

regarded..but I can't recall the name. May not be too far from your

sister..perhaps someone else will have a better memory than me. Cam

[Guest guest]

Hi my name is Lorrie Snyder. I had scoliosis surgery in 1973 at the

Hospital for Special Surgery. I am now having problems below my

Harrington Rod fusion which I belive ends at L2. I live in land

and have seen Dr. McAfee in Towson at " Orthopedics Associates. " He

referred me to Dr. Tortolani in his practice, who I am seeing next

week. I've heard really good things a about " Orthopedics

Associates. " It is really a good idea to bring someone with you to

your appointments.

>

> Joan,

>

> That is another good point about having a good listener with you.

I

> was alone for my first visit and wished I wasn't. I think it is

> generally advisable to have someone with you..ideally your spouse

or

> signifigant other (or whichever adult is most impacted by your

> incapacity). By the time I had a second opinion scheduled (and for

my

> pre-surgical consult)I brought my hubby and written questions and

felt

> much better prepared and consequently got alot out of those exams.

>

> The files section also has a listing of questions members have

> prepared in advance of their consult...it might help to use as a

> starting point for organizing your thoughts.

>

> Seems to me there is also a doctor in land that is well

> regarded..but I can't recall the name. May not be too far from

your

> sister..perhaps someone else will have a better memory than me. Cam

[Guest guest]

Hi Amy,

It is always a pleasure to make a new friend...no matter the

circumstnces..so, hello!

I am just shy of three months post-revision surgery, and as far as

looking to your future activites...I suspect you will have to limit

them somewhat, depending on the type of revision you

undergo...should you proceed.

I owned, rode and kept horses through my 20's and 30's. When I

started having trouble standing up I thought it was 'cause I had

done to much " horse labor " ..you know, hauling bales of shavings and

hay...dragging feed into the tack room. Hard work. I then went

through a divorce and really couldnt keep my mares in an apartment,

so I realized it was time to say goodbye to that time in my life. I

will say that there is no way, right now, I could or would be able

to care for a horse. I can't imagine having much of a seat

either...but I am now fused to the sacrum. Your situation may be

different.

One woman I spoke with who was a floor nurse pre-revison changed

from working on the floor at a hospital to working as a nurse for an

insurance company...she didn't regret it...she knew she couldn't do

the lifting anymore. So, you may have to consider that you will have

to find a way to be a different kind of nurse. She had a good result

from her surgery and didn't regret it.

It is too early for me to say more than I am very satisfied with my

results to date...even though I know some things are off the " list "

for me, probably forever.

Good luck in your search for answers, Cam

[Guest guest]

Tema welcome to the group. You maybe out only WLS gal. Recipes check out our website and Sue has tons of information with recipes on it. I am glad to hear you are seeing a nutrionist as well that is key with WLS. Lets hope we can help you get off that plateau.

NH... Mom to Abby Liz 10/94 Anne 7/99

[Guest guest]

In a message dated 5/6/2005 3:50:48 AM US Eastern Standard Time, entwydoumayla@... writes:

..I recently went through wls in 9/04....I have since

then lost -96lbs but seem to be on a plateau for the last 2 months...

Hi Tema!

Welcome. Congrats on your weight loss. I am in the middle of a plateau also. It sure is frustrating. I am just trying to ride it out. I am keeping up with exercise and watching what I eat. I wish I had some advice other than just keep on trying. It's gotta start going down again soon.

Beth

[Guest guest]

Hello and welcome to this group I hope you find all the support you need here good luck to you in your journey to loose weight

Tema <mdevitt@...> wrote:

Hi I am . I am in need of support and inspiration to lose 100+ pounds that have been following me around. I struggle with emotional eating and eating when bored. I will try to post on weekends (from work) but for now I will just read some older posts and get to know everyone. Peace 100-Plus Files page 100-plus/files100-Plus Links page 100-plus/links

[Guest guest]

Hi !

Welcome! Omgoodness there is SO much inspiration and support here! I

too have STRUGGLED for years with emotional eating and just eating from

boredom... for me I just kind of had to go cold turkey from the

habit... I found this website and bought the book called Eat 2 Live by

Dr. Fuhrman, and it has really changed my way of thinking. Plus I have

4 children, a new husband, and at 34 something inside me just said come

girl, now is the time... just do it... dont wake up one day at 50 and

still be 400 pounds... so here I am starting my weight loss journey,

tomorrow will be week 3 for me and I'm doing pretty good! Never went

past a few days without just saying " forget it " .

Anyway Hun... welcome again! )

Shanelle

373/360/195

~Get Movin! Get Losin! Get Fit!

> Hi I am . I am in need of support and inspiration to lose 100+

> pounds that have been following me around. I struggle with emotional

> eating and eating when bored. I will try to post on weekends (from

> work) but for now I will just read some older posts and get to know

> everyone. Peace

[Guest guest]

From: " "

> Hi I am .

Welcome . The name in your email program claim's you're ,

though. Weird.

>I am in need of support and inspiration to lose 100+

> pounds that have been following me around.

So do most of us here - the 100 pounds, that is. We all need some kind of

support. We're all in various stages of weight loss and use just about every

means under the sun - from all the latest (and oldies but goodies, too) fad

diets, pills, WLS and exercise plans. Our Links page can give you info on

many of these plans.

>but for now I will just read some older posts and get to know

> everyone.

Take your time. Be sure to peek in at the Files section, too.

Are you following any specific diet or exercise plan right now?

Sue in NJ

[Guest guest]

Hi Lee,

Welcome to the group. Congratulations on the pregnancy and I hope it

continues to go well for you with no complications.

Any breastfeeding that you can do after delivery will be invaluable for the

future health of your baby - even if you only end up giving the colostrum

you will have given them a very precious gift. But don't automatically

write off breastfeeding - I have often known doctors tell a mum she cannot

breastfeed because of drug toxicity, only to find out later that the drug

was compatible, or there was an alternative drug that was compatible. Do

you know what drug they will be prescribing for you after your babe is born?

I can understand your concern over your baby's prematurity and your decision

to vaccinate or not. Obviously the more premature your baby is, the less

mature his/her organs and immune system - which is all the more reason to

breastfeed, even if only for a day or two - so I suppose in theory there is

a greater potential for reaction. Equally, it is generally considered that

the later it is left to vaccinate a baby, the less likely there is to be an

adverse reaction although I suspect that if a babe is susceptible to a

particular vaccine, the age doesn't make a huge difference. Are you having

an elective CS or does your condition make it likely that your baby will

arrive early?

I am sure someone else here will have more knowledge about potential risks

for preemies, but you have come to the right place for support. I wish you

well.

Love, light and peace,

Sue

> new to group

>

>

> hello - i am new to the group. I have been trying to keep up with the

> post for about a week and just have finished reading them. So I

> thought i would give an introduction.

>

> I am 13 weeks pregnant and facing a tough road ahead of me. I am high

> risk b/c i have kidney disease. So far, everything is going great, the

> baby's growth is right on time and my health is stable. I am looking

> at a preterm baby and i wish not to vaccinate. Has anyone not

> vaccinated a preemie?

>

> Also, b/c of the potential progression of my kidney disease they have

> told me that i will not be able to breast feed for very long

> (hopefullt at least a week) b/c they will want to put me back on my

> medicine which is excreted in breast milk & is not safe for the baby.

>

> I look forward to getting to know you all better and just in a week i

> have already received so much encouragement from all of the brave

> parents.

>

> Lee

>

>

>

>

>

>

>

[Guest guest]

Lee, how forward thinking of you to be doing your research now - you have a

lot of issues on your plate - you are going to be a super mom - you already

have all the juggling skills down pat!!!

That being said - I second Sue - re: breastfeeding - do as much as you can

as long as you can - it really is the best way to go.

While not in the same boat as yourself re: premie - my daughter has a cleft

palate and hasn't received one vaccination yet - and won't -- I believe my

pumping for her until she was 6 mos and not vaccinating her has led to the

interesting side effect of her having very little fluid in her ears and when

she does have fluid - no ear infections at all - cleft palate babies are so

prone to these problems that frequently infants 2-6 mos. will receive ear

tubes.

Good luck in your decision not to vaccinate - I believe you are making the

right one

Sider

Mom to , Avalon, friend to Indy, March 1998-April 2005, Ninja, the

black stripey beast and Taco, the Gunsmoke gelding

Remember, one day you're a hero. . . the next a zero!

jsider@...

www.firstdogofftheporch.ca

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