New to group

July 3, 2007

Keisha wrote:

>The explanation that I was given as to why I needed

>the shot, was that if my blood type was RH neg and the

>babies was a positive blood type my body would look at

>it as a foreign body and try to expel it resulting in

>a miscarriage.

>

A simplied explanation, yes. BUT, if your blood is RH- you need to see

what your husband's blood is. If his is also negative, then there's

never a need to worry. If he's positive, then the baby might or might

not be negative. Docs just try to vaccinate all negative mothers for

the $ and the assumption that they don't know who the father is!

Regardless of the reason, stay away from any vaccine, especially this one.

Bobbett

July 4, 2007

-

> >

> A simplied explanation, yes. BUT, if your blood is RH- you need to see

> what your husband's blood is. If his is also negative, then there's

> never a need to worry. If he's positive, then the baby might or might

> not be negative. Docs just try to vaccinate all negative mothers for

> the $ and the assumption that they don't know who the father is!

>

> Regardless of the reason, stay away from any vaccine, especially

this one.

>

> Bobbett

>

*** Thanks, I wish I would have known that 8yrs ago. My husband has

positive blood. So I guess we would have to take our chances if we

wanted another one.

Keisha

July 4, 2007

Missed the OP, but have gathered we’re talking about RH stuff.

From something on Sheri’s site about it killing off red blood cells and

thereby eliminating 02 to the developing baby’s brain… and then the

mercury in it also, b/c I looked last time but it was the day off and I

didn’t have my arguments formulated and since everyone else had been

“OK”, I went with it.

Now, however, we are faced w/ another pregnancy and I’ve learned about

rhogam.. been antivaccine for 6 years and never even thought about

rhogam. It didn’t occur to me as a vaccine! Anyway.. I admit, I’m

nervous about bringing up to my doc. I know I will, I just want to sound

like I know what I’m talking about and I’m very forgetful so I need to

take a little index card with me. I don’t know if he’d read pages and

pages of stuff, I don’t know if he’ll take me seriously or if he’ll

dismiss my concerns. I don’t know if he’ll say something like if I’m

going to throw up standards of care, he won’t see me… my first

appointment is in a couple of weeks.

However, with that 02 thing, and the fact that the neurologist/brain

part of the autopsy on our son showed that he had a significant lack of

neurons and if I had said “yeah, he was blue and had to be resuscitated

at birth” would have made complete sense and he LOOKED ok. He was smart.

He was happy. He was a wonderful child…. How do I know now, that the

rhogam shot didn’t contribute to that since it wasn’t obvious he *was*

missing a bunch of neurons that should have been there?!

So I’m not going to believe it’s a benign shot and “it won’t do any

harm”.. b/c it might! I’m not going to get an amnio and I don’t have any

risk problems. I can deal with a shot afterward.. I thought I might

say, well if you can find a thimersol free shot, I will do it at 28

weeks, but you still have the problem of it attacking the RBC’s.. so

need to do more reading and then try to assimilate and understand what

exactly I read.

I was so glad to be done having babies! Man. I was so glad to be getting

out of the vaccine issue.. they don’t ask about the older ones b/c it’s

assumed they’re shot up

Nita, yes my hands are full, but not my heart: 14, Jon 12,

10, 8, 6, Christian (RIP: 7/16/03 to 8/22/04), 1,

and due 2/08

Some minds are like concrete:

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July 28, 2007

Hi,

Welcome to the group!

For information about Edgar Cayce's approach to treating muscular

dystrophy, visit

http://www.webspawner.com/users/ecsmdtx/index.html

Hope it helps!

Sincerely,

Dudley Delany

dudley_delany

August 26, 2007

Hello , welcome to the group. There are quite a few parents

here, of children that have been implanted. Not sure whether anyone

was implanted that young, but you should be congratulated on giving

Kaylee an excellent start in life.

Ted F.

>

> Hello all!!

>

> My name is . I am 25 years old and I live in Florida. My

> daughter, Kaylee is has profound bilateral hearing loss, and was

just

> bilaterally implanted on Tuesday, 8/21, at All Children's Hospital

in

> St. Pete.

>

> Kaylee is just 21 months old, and is quite a beautiful, smart little

> girl. She is recovering very well from her surgery.

>

> Kaylee was diagnosed with her hearing loss at 12 months. In just

this

> short time, she started speech therapy and received hearing aides.

It

> was not very long before they figured out that the hearing aides

were

> not benefiting her, and the CI was a great option for her.

>

> Our insurance, very thankfully, approved the bilateral implantation

> very quickly...and here we are today!!

>

> I am really a new parent to all of this. I desperately want Kaylee

to

> speak - and I am very anxious for them to " turn them on " . If anyone

> has any advice or links to websites where I can soak up all the

> information I can about the road I am about to venture down, that

> would be great!!

>

> I also have a question for those of you that have had the surgery:

> Kaylee's ears are sticking out pretty far from her head (we are

> lovingly calling her Dumbo!).... will this swelling go down? Or is

it

> possible that the implants have pushed her ears forward and out a

bit?

>

> Thanks everyone! Just reading your posts have been quite

informative!

>

August 26, 2007

Hi, . Welcome to the group. My name is and

we are from Minnesota. Our daughter was bilaterally

implanted at 24 months. She is now 5 years old and we are

transitioning this year from her oral deaf school to her

mainstream preschool. She is still about a year behind in

language and speech but she is really doing so awesome. We

are so totally amazed at her progress in the past 3 years.

Today she had to call me (while I was at work) that she was

eating a " monkey pickle " . Her Dad loves to call bananas

" monkey pickles " so she thought this was funny so she called

to tell me that she was eating a " monkey banana " since she

knew it wasn't a pickle. kept telling her it was a

" monkey pickle " and she said " it's not a pickle " . So for me

two great things-first of all she can carry on a

conversation (you wouldn't believe what we were told when

she was first diagnosed) and second she can carry on a

converstaion with us on the telephone with any help. We

used to use the speaker phone option when she was younger

because she wouldn't always hold the phone over the

microphone but now she is able to position it and hold a

conversation without that. She loves to talk on the phone

and even knows how to call her brothers on the cell phone.

She thinks she should get a phone of her own now!!!

Really the most important thing is to get her exposed

to language as much as possible. I am not sure what options

you are looking at and each family is so different. We made

the decision to go with an oral school because the school

district here was not able to offer her what we were looking

for in educating her and AVT support is limited in Minnesota

so we felt this was the best choice for her and our family.

I can think of a couple places where you can get some good

information to start with and that is the Clinic.

They do correspondence courses where they will send you

material to work on at home with your child plus it will

give you lots of good information as a parent of a child

with a hearing loss. The other place I would go to is AG

Bell. You can join and have your first year of membership

for free and they have been so very helpful with information

and support in our journey.

Another group that I belong to that is strictly for paretns

of children with CI's is also on and that is CIcirle.

There are lots of parents and support there and I don't know

where I would be without the support that I have received

from the list serves I belong to.

As far as the ear, it would be my guess that this is due to

swelling and yes that does go down. Just keep watching it

and sometimes it takes a while for the swelling to go down.

Annika's ears look really normal and she is now wearing the

BTE's. She loves to wear her " ears " .

Anymore questions just ask. I am so excited for you all as

you start this journey.

Mom of 4

Marcus 17

15

Jon 13

Annika 5

bilateral implant 3/1/04

September 19, 2007

Hi Bel

New to Group

Hi All,

I am new to your group and have been lurking for a while.

I am a bi-lateral Meniere's sufferer who has severe/profound hearing

loss in both ears. I recently began reading about the cochlear

implant after my hearing plummeted in my " good " ear.

I was interested to find out if anyone is located in Florida as I am

in Orlando, FL.

Also, I wanted to find out if anyone in Florida had any experience

with the Tampa Bay Hearing and Balance Center? I contacted the

center earlier today for info on a possible evaluation for a CI and

my email was promtly returned by the director, Loren Bartels almost

immediately. Now at 4:45pm, I find myself with an appointment on the

24th of October for an evaluation. WOW! I am overwhelmed.

Anyway, just looking for some feedback from anyone who may have had

their surgery there.

Belinda

________________________________________________________________________

Check Out the new free AIM® Mail -- Unlimited storage and industry-leading

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September 19, 2007

Hi Belinda.? My name is Peggy and I live in Clearwater.? I have been a patient

of Dr. Bartels for 18 years.? I have a progressive loss and have just recently

been identified as a candidate for an implant. My surgery is scheduled for

Nov.5.? However, it's with a different doctor in the Tampa Bay area because my

insurance changed and I have to stay in network.?

Recently, I was able to view Dr. Bartels? on line performing surgery and

implanting a cochlear implant.

It was amazing to see.? Good luck with your evaluation and I know you'll be

pleased with the Tampa Bay Hearing and Balance Center.

Peggy

New to Group

Hi All,

I am new to your group and have been lurking for a while.

I am a bi-lateral Meniere's sufferer who has severe/profound hearing

loss in both ears. I recently began reading about the cochlear

implant after my hearing plummeted in my " good " ear.

I was interested to find out if anyone is located in Florida as I am

in Orlando, FL.

Also, I wanted to find out if anyone in Florida had any experience

with the Tampa Bay Hearing and Balance Center? I contacted the

center earlier today for info on a possible evaluation for a CI and

my email was promtly returned by the director, Loren Bartels almost

immediately. Now at 4:45pm, I find myself with an appointment on the

24th of October for an evaluation. WOW! I am overwhelmed.

Anyway, just looking for some feedback from anyone who may have had

their surgery there.

Belinda

________________________________________________________________________

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spam and email virus protection.

September 20, 2007

Welcome, Belinda,

I wasn't aware of anywhere in Orlando that did implant surgery. So if

they are doing it at the dizziness center you'll be attending, I'd sure

like to know about it. I mean what happens if Mickey Mouse has a hearing

loss. With those big ears of his? And he's not getting any younger

either.

Good luck with the balance issues. Meniere's is really nasty.

Let us know how it goes.

Posted by: " Belinda DeLaby " dogirl@... belinda_delaby

Wed Sep 19, 2007 5:44 pm (PST)

Hi All,

I am new to your group and have been lurking for a while.

I am a bi-lateral Meniere's sufferer who has severe/profound hearing

loss in both ears. I recently began reading about the cochlear

implant after my hearing plummeted in my " good " ear.

I was interested to find out if anyone is located in Florida as I am

in Orlando, FL.

Also, I wanted to find out if anyone in Florida had any experience

with the Tampa Bay Hearing and Balance Center? I contacted the

center earlier today for info on a possible evaluation for a CI and

my email was promtly returned by the director, Loren Bartels almost

immediately. Now at 4:45pm, I find myself with an appointment on the

24th of October for an evaluation. WOW! I am overwhelmed.

Anyway, just looking for some feedback from anyone who may have had

their surgery there.

Belinda

September 20, 2007

Dr Atkins in Kissimmee at the Florida hospital (celebration) does

cochlear ear implants.

Dennis handa

On Sep 20, 2007, at 5:31 PM, M Jansen wrote:

> Welcome, Belinda,

> I wasn't aware of anywhere in Orlando that did implant surgery.

> So if

> they are doing it at the dizziness center you'll be attending, I'd

> sure

> like to know about it. I mean what happens if Mickey Mouse has a

> hearing

> loss. With those big ears of his? And he's not getting any younger

> either.

> Good luck with the balance issues. Meniere's is really nasty.

> Let us know how it goes.

>

> Posted by: " Belinda DeLaby " dogirl@... belinda_delaby

> Wed Sep 19, 2007 5:44 pm (PST)

> Hi All,

>

> I am new to your group and have been lurking for a while.

>

> I am a bi-lateral Meniere's sufferer who has severe/profound hearing

> loss in both ears. I recently began reading about the cochlear

> implant after my hearing plummeted in my " good " ear.

>

> I was interested to find out if anyone is located in Florida as I am

> in Orlando, FL.

>

> Also, I wanted to find out if anyone in Florida had any experience

> with the Tampa Bay Hearing and Balance Center? I contacted the

> center earlier today for info on a possible evaluation for a CI and

> my email was promtly returned by the director, Loren Bartels almost

> immediately. Now at 4:45pm, I find myself with an appointment on the

> 24th of October for an evaluation. WOW! I am overwhelmed.

>

> Anyway, just looking for some feedback from anyone who may have had

> their surgery there.

>

> Belinda

>

September 20, 2007

Hi Peggy,

So far the feedback I have received on Dr. Bartels and the center has been

overwhelmingly positive.

Don't you just love insurance.network.out of network.referrals?

Good luck with your surgery on the 5th.

I did view the online surgery as well. I wish I hadn't though. LOL

Belinda DeLaby, CPDT

Canine Action, Inc.

(407) 325-9317

www.tempestwires.com

www.canineaction.com

www.godogs.biz

_____

From: [mailto: ] On Behalf Of

peggy99141@...

Sent: Wednesday, September 19, 2007 9:21 PM

Subject: Re: New to Group

Hi Belinda.? My name is Peggy and I live in Clearwater.? I have been a

patient of Dr. Bartels for 18 years.? I have a progressive loss and have

just recently been identified as a candidate for an implant. My surgery is

scheduled for Nov.5.? However, it's with a different doctor in the Tampa Bay

area because my insurance changed and I have to stay in network.?

Recently, I was able to view Dr. Bartels? on line performing surgery and

implanting a cochlear implant.

It was amazing to see.? Good luck with your evaluation and I know you'll be

pleased with the Tampa Bay Hearing and Balance Center.

Peggy

New to Group

Hi All,

I am new to your group and have been lurking for a while.

I am a bi-lateral Meniere's sufferer who has severe/profound hearing

loss in both ears. I recently began reading about the cochlear

implant after my hearing plummeted in my " good " ear.

I was interested to find out if anyone is located in Florida as I am

in Orlando, FL.

Also, I wanted to find out if anyone in Florida had any experience

with the Tampa Bay Hearing and Balance Center? I contacted the

center earlier today for info on a possible evaluation for a CI and

my email was promtly returned by the director, Loren Bartels almost

immediately. Now at 4:45pm, I find myself with an appointment on the

24th of October for an evaluation. WOW! I am overwhelmed.

Anyway, just looking for some feedback from anyone who may have had

their surgery there.

Belinda

__________________________________________________________

Check Out the new free AIM® Mail -- Unlimited storage and industry-leading

spam and email virus protection.

September 20, 2007

Hi ,

Well, the center is in Tampa so I will have to drive a little. I am sure

Mickey Mouse wouldn't mind either.

The Meniere's really hasn't bothered me much over the last few years, just

the hearing loss. :-(

Belinda DeLaby, CPDT

Canine Action, Inc.

(407) 325-9317

www.tempestwires.com

www.canineaction.com

www.godogs.biz

_____

From: [mailto: ] On Behalf Of

M Jansen

Sent: Thursday, September 20, 2007 5:32 PM

Subject: Re:New to Group

Welcome, Belinda,

I wasn't aware of anywhere in Orlando that did implant surgery. So if

they are doing it at the dizziness center you'll be attending, I'd sure

like to know about it. I mean what happens if Mickey Mouse has a hearing

loss. With those big ears of his? And he's not getting any younger

either.

Good luck with the balance issues. Meniere's is really nasty.

Let us know how it goes.

Posted by: " Belinda DeLaby " dogirl@.... <mailto:dogirl%40cfl.rr.com> com

belinda_delaby

Wed Sep 19, 2007 5:44 pm (PST)

Hi All,

I am new to your group and have been lurking for a while.

I am a bi-lateral Meniere's sufferer who has severe/profound hearing

loss in both ears. I recently began reading about the cochlear

implant after my hearing plummeted in my " good " ear.

I was interested to find out if anyone is located in Florida as I am

in Orlando, FL.

Also, I wanted to find out if anyone in Florida had any experience

with the Tampa Bay Hearing and Balance Center? I contacted the

center earlier today for info on a possible evaluation for a CI and

my email was promtly returned by the director, Loren Bartels almost

immediately. Now at 4:45pm, I find myself with an appointment on the

24th of October for an evaluation. WOW! I am overwhelmed.

Anyway, just looking for some feedback from anyone who may have had

their surgery there.

Belinda

September 21, 2007

A drive through sunny central (I hope) Florida is always nice. Gives you

time to roll down the window, sing along with the radio and get bugs on

your teeth.

Good luck with your evaluation. Everyone says nice things about the

center, so it sounds like you're in good hands.

Someone mentioned watching CI surgery being done on a telecast. I

actually was in the OR watching my implant surgeon doing the surgery

before I had mine. And he explained everything he was doing. One of the

peak moments of my life.

Hi ,

Well, the center is in Tampa so I will have to drive a little. I am sure

Mickey Mouse wouldn't mind either.

The Meniere's really hasn't bothered me much over the last few years,

just

the hearing loss. :-(

Belinda DeLaby, CPDT

September 21, 2007

, that is really neat that you could watch the surgeon performing an

implant live. How could you hear what he was explaining?? Did they have it

captioned somewhere?? Just curious and waiting for a peak moment in my life!

Peggy

Re: New to Group

A drive through sunny central (I hope) Florida is always nice. Gives you

time to roll down the window, sing along with the radio and get bugs on

your teeth.

Good luck with your evaluation. Everyone says nice things about the

center, so it sounds like you're in good hands.

Someone mentioned watching CI surgery being done on a telecast. I

actually was in the OR watching my implant surgeon doing the surgery

before I had mine. And he explained everything he was doing. One of the

peak moments of my life.

Hi ,

Well, the center is in Tampa so I will have to drive a little. I am sure

Mickey Mouse wouldn't mind either.

The Meniere's really hasn't bothered me much over the last few years,

just

the hearing loss. :-(

Belinda DeLaby, CPDT

September 23, 2007

Hi Melinda

Glad to have you here. Good to know we can make

adjustments in our head journey along with the band

even five years out. I saw Dr. Rumbaut at Tacoma Bash

in 2006. He didn't make it to the Seattle Splash in

February last year, but several other Mexico doctors

did. It was nice to hear them, but hope more of the

doctors closer to home participate this next year.

With you in the journey.

Kathy R in Walla Walla

278/257/128 today

10/13/2005

Dr. Montgomery NWWLS

--- roadeogirl <roadeogirl@...> wrote:

> Hi all! I live in Kitsap County. I've been banded

> for nearly 5

> years. I was banded by Dr. Rumbaut in Mexico. I've

> had my ups and

> downs with the band all due to me, not the band. I

> am doing great now,

> I finally got my head on straight. Just wanted to

> introduce myself and

> say Hi!

>

> Melinda

>

________________________________________________________________________________\

____

Don't let your dream ride pass you by. Make it a reality with Autos.

http://autos./index.html

September 24, 2007

Welcome Melinda,

I am from kitsap county also Port Orchard. Just wanted to let you know

that we have a group that meets once a month in Port Orchard. Third

Wednesday of the month @ LaGarmarche catering. Hope to see you there Todd

October 28, 2007

Mainly there are a couple of things you can use:

Lugol's Liquid (Iodine / Iodide)

Iodoral (Lugol's formula in a pill - Iodine / Iodide)

Detoxified Iodine - weak form

Nascent Iodine - we are still determining what this is.

Automindine (sp?) - which I believe is the same as the detoxified.

Most of us use one of the first two because getting both forms of Iodine /

Iodide is important to different parts of the body.

Hope that helps!

Welcome!

Moderator

New to group

> Hi, I am new to this group. Have been reading past posts. I would like

> to inquire as to the brands of iodine that the group uses. Thanks. Liz

>

> Send Message: iodine

>

> Iodine

October 28, 2007

Thank you for the info........Regards, Liz

>

> Mainly there are a couple of things you can use:

>

> Lugol's Liquid (Iodine / Iodide)

> Iodoral (Lugol's formula in a pill - Iodine / Iodide)

> Detoxified Iodine - weak form

> Nascent Iodine - we are still determining what this is.

> Automindine (sp?) - which I believe is the same as the detoxified.

>

> Most of us use one of the first two because getting both forms of

Iodine /

> Iodide is important to different parts of the body.

>

> Hope that helps!

>

> Welcome!

>

> Moderator

>

> New to group

>

> > Hi, I am new to this group. Have been reading past posts. I

would like

> > to inquire as to the brands of iodine that the group uses.

Thanks. Liz

> >

> > Send Message: iodine

> >

> > Iodine

November 8, 2007

Wow, at your age, with your curvatures, I would SERIOUSLY consider seeing

a surgeon about your scoliosis. I am 56 years old, so when I was your age, they

did not have the technology they have now. You need to do research on the

internet, become informed, read books, and start being as proactive as a 15 year

old can. It is your life. And, I would say you have a better chance getting off

pain meds with surgery than without. Just my opinion.

Debbie

chrisman22122 <chrisman22122@...> wrote:

My name is , I am 15 years of age. I am from Ohio, and I

have know about my scoliosis for about a year now, I started with a 37

lower and a 27 upper. They have been getting worse over the months and

go back to doctor for another check up later this month. Was wondering

if anyone knows how to make the pain less when wearing a brace (my

goal is to not have to be on pain meds all the time). I try to wear it

more, but my family just does not know the pain, it hurts so bad that

I wish that I could just have the surgery. However everytime that I

say that I get yelled at because my parents tell me that I will be on

pain meds for the rest of my life if I do. They globalize so much,

because some people do, everyone must. Well thanks for the time, and

hope you all have a nice day.

November 8, 2007

Thanks Debbie, I am currently going to a pediatric specialist on bones

(breaks, sprains, and scoliosis), the only doctor who would see a

patient who was 14 at the time of spotting. He is the only doctor that

will see a patient in the city, with the insurance that we have, that

will see me until I am 18. I have been doing research and gathering,

thanks for the time and the tips.

>

> Wow, at your age, with your curvatures, I would SERIOUSLY

consider seeing a surgeon about your scoliosis. I am 56 years old, so

when I was your age, they did not have the technology they have now.

You need to do research on the internet, become informed, read books,

and start being as proactive as a 15 year old can. It is your life.

And, I would say you have a better chance getting off pain meds with

surgery than without. Just my opinion.

> Debbie

>

November 9, 2007

At your age, my son was diagnosed with scoliosis and had your same

curves. His brace didn't cause pain which leads me to suggest that perhaps

your brace is fitting poorly. Maybe you could get that checked out? By the

way, his name is too!

**************************************

See

what's new at http://www.aol.com

November 9, 2007

It's hard to take some down-time when you are a teenager, but try to pace

your day where you can find a position to relax and meditate some. The brace

is trying to stop or even correct your curve, which is going against your

body's nature at the moment. The muscles are rebelling. This is why I

suggest to take some time to let your body relax during the day, then you

might not need as much medications. I know that wearing the brace is the

pits and to have the pain along with it is worse. My guess is that the

surgeon probably wants to wait a little longer before doing the surgery, if

possible, until your growth period is completed.

It is your life and if your parents really want to help you, then they

should educate themselves about scoliosis and how it affects the body. By

coming to this forum, my guess is that you have a mature attitude for your

age and you are wanting your parent's support, not lecture, in dealing with

this difficult condition (both physically and emotionally). It is also a

condition that affects the whole family, so ask for your parent's help in

researching the various options and other people's experiences with

scoliosis. There is also a forum for parents on the Scoliosis Research

Society site, www.srs.org , and possibly other sites too. You have started

at the right place in your research. Keep in touch.

Take care,

Llweyn

_____

From: Scoliosis Treatment

[mailto:Scoliosis Treatment ] On Behalf Of chrisman22122

Sent: November 8, 2007 1:54 PM

Scoliosis Treatment

Subject: New to group