New to group

[Guest guest]

Hi Helen,

Welcome to the wacky world of thyroid where nothing is quite

as it seems. Borderline just refers to blood test levels, which often

never raise very high as the TSH test relies on the pituitary telling

the thyroid via the TSH to produce more thyroid hormones. Theoretically

if there are not enough thyroid hormones in the blood then the TSH would

be very high to tell the thyroid to get going and the thyroid fails to

produce. More helpful are free T4 - the main thyroid hormone -

prescribed as levothyroxine and called T4) and free T3 ( liothyronine

T3) the T4 is supposed to convert to T3, but sometimes it can't for

various reasons. Lack of T4 being on of them- yo may not be on a high

enough dose of T4 for a start. Most healthy folk have a TSH of around

1.0, but many docs are satisfied with anything in the range ( usually

0.5 to 5.0).

Before trying to go the Armour route it would probably be simpler to

try to get the best out of T4 first as the NHS is reluctant to prescribe

Armour.

If you doc refuses to give a small dose increase 'to see if it helps'

with you symptoms, write a letter to him and the head of practice

requesting a referral to a thyroid endocrinologist ( most are concerned

with diabetes mainly)- getting a letter on you records ideas help them

to take you seriously.

A diuretic will help in the meantime to ease the pins and needles (

carpal tunnel syndrome)

Subject: new to group

Hi,I am new here but am intrigued to know about this

alternative " Armour " is it called.

I have been on levothyroxine for 5 years now and the doseage is

100mcg.I have been dianognosed as boarderline hypothyroid and my docter

reassurres me that it is nothing to worry about

I am just confused on looking for a second opinon.

I am just thinking that boarderline is not that bad or is it, I don " t

know now.

Can somebody put me right?.

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

Welcome

to our forum and I hope you get all your questioned answered - but can you give

yourself a name we can call you please. Armour is the brand name for natural thyroid

extract. Thyroid extract has been used safely and effectively for over 100

years and was the ONLY medication for all sufferers of hypothyroidism since

1894 - when it fell out of favour when synthetic levothyroxine started to be

used as 'the treatment of choice' in the mid 1970's and thyroid extract fell

out of favour. Armour Thyroid has been used safely and effectively, but because

it is a 'natural' product - the pharmaceutical companies do not profit with it

and discourage its use in whatever way they can (legal and illegal) to stop

doctors from using it for their patients.

TPA-UK

is a campaigning group to try to get medical practitioners to give their

patients a proper diagnosis and a choioce of treatment for hypothyroidism, and

many sufferers report that they get great effect once they have changed over to

this product. Read everything on our website www.tpa-uk.org.uk

about Armour and read everything we have in our FILES on this forum, and if you

have questions, just shout.

You

would do well to buy Dr Barry Durrant-Peatfield's book " Your Thyroid and

How to Keep it Healthy " . This is now only about £7.95 on Amazon. However,

if you do decide to buy it, can you do this through our own website www.tpa-uk.org.uk. We get a small percentage

of the cost. You can find this by going to the Home Page and scrolling down the

right hand column under TPA-UK NEWS until you see the link to Amazon. Dr

Peatfield is Patron and Medical Adviser to this forum and he wrote the book

especially for patients who were not doing well within the care of the NHS. He

teaches you how to look after yourself and many use this book as their thyroid

bible.

Many

patients suffer with depression because their brain is not getting the correct

level of thyroid hormones. Doctors don't even know this, and once they start

taking the right medication, such 'depression' lifts as they start to get their

life and health back again.

As

for your doctor telling you that you have " borderline "

hypothyroidism, believe me, there is no such thing. You are either hypothyroid

or you are not. Please get your last couple of thyroid function tests from your

GP (these are yours by law) together with the reference ranges and post them

here and we might be able to help you interpret them better than your doctor.

You also need to ask your doctor for a new full thyroid function test that

should include TSH, Free T4, Free T3. Ask him also to test your ferritin

(stored iron), B12, Vitamin D, magnesium, zinc and copper.

Luv -

Sheila

I have been on levothyroxine for 5 years now and the dosage is

100mcg.I have been diagnosed as boarderline hypothyroid and my docter

reassurres me that it is nothing to worry about so I just take the

pills and go back now for a yearly check up.Now seeing this site I am

wondering if I need to know more.I feel so naieve.I am more concerned

now as I also have prozac for depression and symptoms I get like

anxiety and nervousness if it is todo with the med or how I am.It makes

me more selfconcious as I have just started a job and have been picked

up on already that I am slower at my work.

__

[Guest guest]

Hi Helen, you don`t sound right at all, what tests have you had.? post these to the groupwith reference range. your doctor should let you have these. have you had a auto-antibody test.this is to tell what is the cause of the hypothyroidism. pins and needles is a symptom of hashimoto`s disease. it is hard to tell what the matter is so can`t really advise you.angel.

[Guest guest]

Hi Helen -

we can all appreciate how you feel and can only advise you to read as much as

you can about hypothyroidism and you can get lots of information on our web

site www.tpa-uk.org.uk and also in the

files on this forum. If there is anything you don't understand or you need more

information about, just shout and somebody will be along to help you.

You need to

wean off your Prozac very slowly so please don't rush this. Ask your doctor to

help you with this, and once you get on the thyroid hormone your body requires,

this should help greatly.

You are

ENTITLED to all of your blood test results and the reference ranges, so ask

your doctor to let you have a copy of these and post them on the forum. She

cannot hold these back from you, neither can she not allow you to look through

all of your medical notes if this is something you desire, though you might

have to pay for that.

Luv -

Sheila

PS - Please

will you try to remember to delete most of the message you are responding to

and leave just a portion as I have done here. Many thanks.

Sorry but this is concerning me as if it is effecting my ability to

be employed.I AM SCARED AS i HAVE JUST STARTED A NEW JOB.

Sorry for going on but I don " t like to go to the docters all the

time, and feel I am not getting the full picture from the docter.

Thanks for your time,

Helen

[Guest guest]

>

> Hi Helen, you don`t sound right at all, what tests have you had.?

post these to the group

> with reference range. your doctor should let you have these. have you

had a auto-antibody test.

> this is to tell what is the cause of the hypothyroidism. pins and

needles is a symptom of

> hashimoto`s disease. it is hard to tell what the matter is so can`t

really advise you.

> angel.

>

Hi Angel,

I have never heard of this auto-antibody test until being on here.What

makes you say that I don " t sound right?.I have just been having the

rountine bloodtests which the last one was last year in may.I feel so

confused now and I am not one to make a fuss I just want to know if

the anxiety and depression are linked to this if it is as bad or not.

[Guest guest]

PLEASE DELETE PREVIOUS MESSAGES AND LEAVE JUST A SMALL PORTION OF WHAT YOU ARE

RESPONDING TO BEFORE CLICKING 'SEND'.IF YOU DON'T KNOW HOW TO DO THIS, PLEASE

ASK ON THE FORUM AND WE WILL BE PLEASED TO TELL YOU. LUV - SHEILA

_____________________________________________

>

>

>

> As for your doctor telling you that you have " borderline "

hypothyroidism,

> believe me, there is no such thing. You are either hypothyroid or

you are

> not. Please get your last couple of thyroid function tests from

your GP

> (these are yours by law) together with the reference ranges and

post them

> here and we might be able to help you interpret them better than

your

> doctor. You also need to ask your doctor for a new full thyroid

function

> test that should include TSH, Free T4, Free T3. Ask him also to

test your

> ferritin (stored iron), B12, Vitamin D, magnesium, zinc and copper.

>

>

>

> Luv - Sheila

>

>I have got the docters tommorrow but for my daughter should i say

something then and mention that I found this on your sight as I am

sure she is going to argue with me.I feel so cheated and will feel

like I am ganging up on her.I want to find out the facts also just

incase they find something.

Thanks for your help,

Helen

>

>

> __

>

[Guest guest]

If your GP

wants an argument or reasons not to give you these tests. Tell her that you

know that if any of these levels are low, they could be causing your thyroid

hormone replacement not be properly absorbed, and this could well be the reason

you need to supplement whatever you are low in before your thyroxine will start

to work properly.

Tell her

that there is a large minority of people who are unable to convert the mainly inactive

hormone T4 to the active hormone T3 and that you know it is the T3 that is

required by every cell in your body and brain to make it function. Without T3 -

you is dead. Low T3 - you feel virtually dead, sufficient T3, you feel pretty

good - too much T3, you go hypERthyroid.

You are

right to find the facts and your GP should be happy that you are taking

responsibility for your health. Just talk to her with a nice smile on your face

and tell her the path you would like to go down to help yourself, and tell her

you would really appreciate her input and that perhaps you could help each

other. If it was found you were either not converting, or you had low levels of

ferritin etc and treated with the appropriate supplements, this might help all

her future patients too.

Luv -

Sheila

>

>I have got the docters tommorrow but for my daughter should i say

something then and mention that I found this on your sight as I am

sure she is going to argue with me.I feel so cheated and will feel

like I am ganging up on her.I want to find out the facts also just

incase they find something.

Thanks for your help,

Helen

>

>

> __

>

[Guest guest]

Hi,Sheila,

Well I spoke to the docter but I kind of knew the response.I just

showed her what I written down of what you said and just wanted her to

give me the results or have time to find them.She didn " t like it and

said it is an insult to her as I have been having the blood tests every

year and have has the iron level checked and b12.I didn2t know about

the other checks she treated me with contempt as if I was suggesting

that she wasn " t doing her job.I said that I just wanted to be updated

and I said that the throxine I was taking might not be absorbed but she

looked at the tests results and said they were normal after taking the

medication.I only wanted to know but the feeling that she was annoyed

with me.I wish I never brought it up now.She did say that I could have

another blood test done so I have got to go back tommorrow as it was

last march the last one and to see her a week after the test.I feel

really annoyed and more depressed as I feel that she justs thinks I am

just mentally ill.Or attention seeking which is the last thing I

wanted.she said before I left have you heard from the phychiatrist yet

and I didn " t want to know anymore.

Another thing she said was that thyroid doesn " t cause low mood.I didn2t

want to cause a arguement as I had my girls there.I know it was wrong

to bring it up at my daughters appointment but I don " t like to go to

the docters because of she thinks I am worrying unessary.

I knew she would react like this and I took a risk but I din " t know

about the other vitamin tests that were done.She aid she would get the

results for me.

I feel so patronised.The thing was she probably could see I was nervous

about telling her as I was a quivering wreck.I said I want to find a

avenue away from having prozac.I can2t feel like this for my childrens

sake or I might as well not be here because most of the time I am

angry, snappy and don " t see the funny side of things.That is not good

for my children or my husband to be around me.

sorry I am feeling very confused and I don2t want to be wrapped up on

this.

Helen.

[Guest guest]

Perhaps your doctor needs to read the interesting piece that appeared

in Lancet in 1904 (see separate post).

Please don't let the dr appt get you down. Maybe you need to find a

doctor that you feel more comfortable with and who respects what you

have to say and can discuss your concerns with you.

By the way, my doc checks my thyroid function a few times a year!

P

Hi,Sheila,

Well I spoke to the docter but I kind of knew the response.

[Guest guest]

Hi

Helen

Well I spoke to the docter but I kind of knew the response.I just

showed her what I written down of what you said and just wanted her to

give me the results or have time to find them.She didn " t like it and

said it is an insult to her as I have been having the blood tests every

year and have has the iron level checked and b12.I didn2t know about

the other checks she treated me with contempt as if I was suggesting

that she wasn " t doing her job

She

doesn't like it because she feels she is at the risk of being found to be

wanting. You are entitled to all your test results and to see your medical

records. You need to keep a diary on your road to getting your health back, and

you need these for your diary. I think she is feeling guilt. Don't allow her to

make you feel it is your fault and she is going out of your way to try to upset

up.

..I said that I just wanted to be updated

and I said that the throxine I was taking might not be absorbed but she

looked at the tests results and said they were normal after taking the

medication.I only wanted to know but the feeling that she was annoyed

with me.I wish I never brought it up now.

How

DARE this doctor make you feel this way. This is the reason I keep telling

members to WRITE a letter to their GP if they need to requests for referrals or

blood results, that way, you don't have to face such a reaction. I would

happily report this GP to the Head of practice. According to the General

Medical Council in the duties of a doctor, she should be working with you, not

against you.

She did say that I could have

another blood test done so I have got to go back tommorrow as it was

last march the last one and to see her a week after the test.I feel

really annoyed and more depressed as I feel that she justs thinks I am

just mentally ill.

That's

HER problem, not yours. Make sure that she knows you will be needing a copy of

that blood test too…and by the way, did she give you the results of your

other tests.

…or attention

seeking which is the last thing I

wanted.she said before I left have you heard from the phychiatrist yet

and I didn " t want to know anymore.

Obviously

yet another doctor who believes everybody suffering from automatically needs

to be handed over to the psychiatrist. You might, and it would be a good idea

to go, because believe me, if you are not clinically depressed, a psychiatrist

will know and be able to write to your doctor to tell her so. Some actually

treat their 'depressed' patients with the thyroid hormone T3. Now, wouldn't

that be a hoot?

Another thing she said was that thyroid doesn " t cause low mood.I didn2t

want to cause a arguement as I had my girls there.I know it was wrong

to bring it up at my daughters appointment but I don " t like to go to

the docters because of she thinks I am worrying unessary.

She

is 100% WRONG - and mood is affected because the right amount of thyroid

hormones are not reaching the brain. You definitely need to get as far away

from this doctor as possible. Perhaps you really should write down your

experience and pass it on to the Head of Practice as she should not be allowed

to treat her patients in such an uncaring way.

I knew she would react like this and I took a risk but I din " t know

about the other vitamin tests that were done.She aid she would get the

results for me.

So -

you are teaching her something. Obviously, she must have realised that she

didn't stand a chance in refusing you your test results. They will often try it

on with a patient, but once the patient starts biting back, they have to think

again. Hey Ho - your doctor might actually secretly admire you for being so

assertive and may actually start to treat you differently from now on.

I feel so patronised.The thing was she probably could see I was nervous

about telling her as I was a quivering wreck.I said I want to find a

avenue away from having prozac.I can2t feel like this for my childrens

sake or I might as well not be here because most of the time I am

angry, snappy and don " t see the funny side of things.That is not good

for my children or my husband to be around me.

Then

write to your GP and tell her exactly how she made you feel today. She needs to

know how upset she has made you and she needs to know you would be happier with

another doctor if she is going to carry on like this in the future. You need a

doctor to care for you. Be open and honest, and if you need help in writing

such a letter, let me know Helen.

sorry I am feeling very confused and I don2t want to be wrapped up on

this.

Keep

your chin up - you have now found TPA-UK and everybody will do what they can to

help you. If it is any help, believe me, you are far from being alone with this

problem - you are amongst thousands who are treated by their doctor in exactly

the same way.

Luv -

Sheila

Helen.

[Guest guest]

Hi Helen

Her behaviour is not acceptable. Can you not see another doctor in the practice? If not then I suggest that you never go to see her alone. You may find that her manner improves if you have a witness with you, and I hate to have to say it, but a man might be good here. Also if they make notes for you! She will not want anything on record about her behaviour.

I have come across doctors like this, but not for years luckily, and my local ones now are good on the communication front.

A husband here could just say that they are with you as they are taking an active role in helping you get well, and so they want the blood test results as they are studying all they can about it.

Val

I feel so patronised.The thing was she probably could see I was nervous about telling her as I was a quivering wreck.I said I want to find a avenue away from having prozac.I can2t feel like this for my childrens sake or I might as well not be here because most of the time I am angry, snappy and don"t see the funny side of things.

[Guest guest]

Hi there , you seem to have to much cortisol. this could explain the problems you have.google cushings and see if any thing rings a bell. and also cortisol , you need to read and learn about these hormones and how they work. angel.

[Guest guest]

Hi robbojnr,

It may help to look at the list in files of other things

that can affect the post thyroid issues- the test do show reasonable

amounts in the blood- the trick is to be able to use then properly. You

have already picked up on amalgams- I have lots too but have also

decided to let sleeping doge lie- but at least I'm well. I would suggest

you consider selenium as this will help lock the mercury in place as

well as helping with T4/T3 conversion as does zinc. To test for zinc

suck a zinc gluconate tablet- if you taste nothing but chalk you are low

in zinc- if it immediately tastes revolting then you're OK. There is

also candida, low vit D- look in the files there's a good paper there

listing it all.

Subject: new to group

Hi all

I am newbie, have been reading posts. I am a long time sufferer of

depression and OCD....

I am going to get a liver detox profile test done, if anyone has

anything else they think i should consider please tell me.

thanks

------------------------------------

TPA is not medically qualified. Consult with a qualified medical

practitioner before changing medication.

[Guest guest]

PETE COULD YOU PLEASE ONLY LEAVE A FEW LINES OF THE MESSAGE YOU ARE REPLYING TO.

As you are new I have done it for you this time.

Lilian

Moderator.

thanks jen

what forms of selenium cause i know that cutler says that methione

form of tablets shouldn't be used whilst amalgams are in, what do you

propose.

many thanks

pete

>

> Hi robbojnr,

> It may help to look at the list in files of other things

> that can affect the post thyroid issues- the test do show reasonable

> amounts in the blood- the trick is to be able to use then properly.

[Guest guest]

Welcome . I am sorry that you have to join our group, but I have been a member for several years now and the wealth of knowledge here is invaluable. I think we members all agree that often we learn more from each other than from our own doctors! If you scroll down to the bottom of this page, you will find the links for the data bases, links, and many valuable files. You can actually do a search for the topics you are most interested in. After a little research, fire off your questions to members. We are all happy to share.

Best of luck.

Jane

From: Steve man <sjpeterman@...>Subject: new to group"Sampters Triad" <samters >Date: Tuesday, March 3, 2009, 12:48 PM

Hello I am new to the sampters group. I am interested in several areas: loss of smell, ASA desensitization, and hoarseness of the voice. Where can I find some answers on these things. Is there an archive to search? Thanks for the help.

A little back ground: I have had sinus infections for more than 30 years 3-5 times a years (or more). I got sick 2 years ago and my body when nuts over the last 2 years. Started going to specialist (Allergist,Gastro, ENT, pulmonary, etc...) have roto rooter done June of 2008, rusted to ER in Aug. after taking Aspirin. ENT said I might have Sampter's Triad Syn. Los of sense of smell over the last year (that sucks). Periods of smell returning after use Prednisone and sometime for no known reason.

I would like to find out more on Aspirin desensitization, what does it entail, what can it help with, and anything else about it. Thanks for any assistance.

Have a Great DaySteve man

[Guest guest]

Hi Katy:

I was wondering if you were still taking any thyroid medication along with the Iodoral. Are you taking the companion nutrients that suggests?

Sorry you are feeling so lousy.

From: katylee53 <johnsonb@...>Subject: New to groupiodine Date: Tuesday, March 31, 2009, 6:07 PM

Hello, I am new to this group and learning lots about this subject. I was recently diagnosed with low adrenal function and low thyroid(have been on meds for this a long time-thyroid) , but have recently been put on cortef. I am very frustrated because it made me severely depressed, really pyschoitic like. I got off that, then was told to try the Iodoral. I had high hopes that this would help my poor conversion problem of t4 to t3. I have high Reverse t3 and was hoping this would help. Well, after three days, I feel worse. I can't understand it. My eyes feel weak and I have terrible floaters while being on this. I won't take it tomorrow as I am a teacher and have to feel good, especially not straining to see.

If anyone has any recommendations for me I would certainly appreciate it. I am afraid my doctor is going to be upset with me when she hears that I can't tolerate the iodoral either.she will probably give up on me too. I am very frustrated and sad.

Thanks for listening.

Katy

[Guest guest]

>

> From: katylee53 <johnsonb@...>

> Subject: New to group

> iodine

> Date: Tuesday, March 31, 2009, 6:07 PM

>

>

>

>

>

>

>

> Hello, I am new to this group and learning lots about this subject. I was

recently diagnosed with low adrenal function and low thyroid(have been on meds

for this a long time-thyroid) , but have recently been put on cortef. I am very

frustrated because it made me severely depressed, really pyschoitic like. I got

off that, then was told to try the Iodoral. I had high hopes that this would

help my poor conversion problem of t4 to t3. I have high Reverse t3 and was

hoping this would help. Well, after three days, I feel worse. I can't understand

it. My eyes feel weak and I have terrible floaters while being on this. I won't

take it tomorrow as I am a teacher and have to feel good, especially not

straining to see.

> If anyone has any recommendations for me I would certainly appreciate it. I am

afraid my doctor is going to be upset with me when she hears that I can't

tolerate the iodoral either.she will probably give up on me too. I am very

frustrated and sad.

>           Thanks for listening.

>                     Katy

>

[Guest guest]

Hello Sophie and

welcome to our forum where I hope you get the support you need, and eventually,

your health back.

You are not alone,

believe me, and when you read the messages on this forum, you will realise

this. I am glad your GP is going to do the works. Wait and see what the results

show, but when you get these, post them on the forum so we can help you

interpret them, together with the reference range for each of the tests. Is it

also possible you can get a copy of your results when your GP decided to drop

your thyroxine back from 200 mcgs to 100mcgs. Did he do this all at one go.?

You could ask your

GP to test your ferritin level (stored iron), B12, Vitamin D3, magnesium, zinc and

copper. If he wants to know why you need these, tell him you have learned that

if any of these are low, they will stop your thyroid hormones from being absorbed

and getting into the tissues. If you ARE found to be low, then you will need to

supplement with whatever you are low in.

Also, low adrenal

reserve is a great problem for sufferers of hypothyroidism as is Candida

Albicans. Read about these on our web site www.tpa-uk.org.uk

- click on Hypothyroidism in the Menu, and then click on 'Associated Conditions'

in the drop down Menu and make sure you understand everything you read. If you

don't understand it all then ask as many questions as you need. There is light

at the end of the tunnel, but not down the NHS route. You can do no better than

read Dr Peatfield's book, be guided by him, he has restored health back to

hundreds of women, and quite a lot of men too.

luv - Sheila

Since reading Dr P's book I went back to my GP today and showed him the book

and research off the internet … don't get me wrong he is great ….

But he said it was outside his remit.. But he said lets do a full MOT and blood

test….for everything and go from there.

In the meantime I have managed to get throw to Dr P's clinic and hope to got to

see him……….

[Guest guest]

The information regarding CLL and radiation is very interesting from an

epidemiologic perspective for many reasons. As mentioned, CLL was not

considered to be related to radiation exposure based upon the information that

came from the atomic bombs dropped in Japan during WWII. But there are several

important caveats that this data is lacking that demonstrate the importance of

important controls and using correct patient populations.

The incidence of CLL in Japanese is extraordinarily low. Far lower than any

other group in the world. When other groups are studied for increases in CLL

among individuals exposed to radiation, an increase in CLL is found. The most

recent article that comes to mind is based upon radiation exposure related to

the Chernobyl disaster. There was an increase in CLL seen in those people in

surrounding areas. It looks as if the lack of increase post-WWII in Japenese is

related to the low likelihood of developing CLL.

Rick Furman

>

> Hi, You Guys ~

>

> I'm new to the group. My father was diagnosed in 2003, at the age of 73. He

beat CLL through two of rounds chemo - he came out swinging and despite (my)

nervousness about his choice of aggressive treatment, he gave it hell. Just as

he was starting to feel better, he was diagnosed with Burkitt's Lymphoma. True

to his warrior nature, he's defied what his doctors have predicted, and

generally, the man is kicking butt. He just celebrated his 80th birthday.

>

> I began researching CLL because - as we all do when something bad happens to

us or someone we love - I wanted to know why my father got ill. I suspected it

was linked to his long career in aerospace. He was a Senior Propulsion Test

Inspector on the Saturn V and Apollo programs, at a little known-about nuclear

and rocket engine testing facility called Santa a Field Laboratory (SSFL),

near Los Angeles. In 1959, a partial meltdown at SSFL gave the facility the

distinction of being home to the worst nuclear incident on U.S. soil, releasing

over 240 times the radiation as Three Mile Island. Since the reactor was

experimental, it was not in a containment structure; therefore over a period of

two weeks while they attempted to trouble shoot this experimental reactor and

get it back online, radioactive gas was dispersed into the environment. There

were other incidents over the decades, and waste disposal practices were

unorthodox, resulting in the exposure of many employees and contamination of the

facility that is still being discovered and slated to be cleaned up by 2017,

after a new state law (SB990) was passed in 2007. After spending several years

working at SSFL, my Dad went on to work on the Titan missiles at Vandenberg, and

retired from Lockheed .

>

> I searched and searched for information. I live near Los Angeles, and SSFL is

fascinating to me, so research came easily. Some CLL-related information was

difficult to find, scattered in many different places. I ended up making an

acquaintance that is one of the leading epidemiologists in the world in the

field of CLL research, and he helped me compile a lot of data. Throughout this

endeavor, I reflected that there are likely people out there feeling pretty

tired, lacking endurance, help or even computer knowledge that can help them

search for this stuff. So one goal of mine was to put the info in two big

compilations, and make them available to anyone who is looking.

>

> I found out the disease has been reclassified to be analogous to Small

Lymphocytic Lymphoma (SLL) and now the name of the disease is considered to be,

" CLL/SLL " . They're considered to be the same illness.

>

> The Energy Employee Occupational Illness Compensation Program Act of 2000

(EEOICPA) was enacted by Congress to compensate our nation's energy workers who

were exposed to radiation or chemicals during the Cold War and the Race to

Space. But even though SLL is on the list of cancers they consider linked to

radiation exposure, CLL is not on the list ... because old research on Japanese

Atomic Bomb Survivors wasn't entirely accurate with respect to instances of CLL.

Rather than acknowledge new science (along with The World Health Organization,

the Veterans' Administration, the Revised European-American Lymphoma

Classification Scheme, and every medical professional in the world who now

recognizes that CLL/SLL are virtually the same disease), in a problem of logic,

EEOICPA denies Cold War workers who have been diagnosed with CLL (while

compensating for a diagnosis of SLL). My father is among those who have been

denied benefits on the basis of his diagnosis with CLL.

>

> Recognizing that CLL deserves a place on the list beside its cohort, SLL, is a

national outcry. EEOICPA continues to stall on recognizing current science.

>

> If you happen to be interested in more info on CLL's link to radiation and

chemicals used in the atomic and aerospace industries, I encourage you to visit

http://www.TheAeroSpace.org and download two compilations in the library.

They're free. Since I presented them to EEOICPA on behalf of my Dad and SSFL

workers, there are a few facility documents mixed in that detail unprecedented

waste disposal of specific materials linked to CLL/SLL... and these may be

helpful to those of you looking for a link between chemical exposures and CLL. I

hope it helps someone out there. Again... this info is free.

>

> TheAeroSpace.org's mission is to provide awareness about SSFL, CLL/SLL's need

for reclassification by EEOICPA in concert with current science, and to provide

as much info on CLL/SLL as it is related to aerospace and atomic industry in one

place as possible. You might not equate aerospace and/or atomic research with

your situation but much of this research is surprising. Due to the

experimentation during this era, so many different things were used - and

chemicals can be found in all kinds of different substances. The long latency of

CLL makes it possible that exposures occurred upwards of twenty years prior to

the disease's onset. So... investigate!!! Knowledge is power, and it is my

sincere hope that these compilations help someone, in some fashion.

>

> I wish you all the very best of health and happiness.

> Thank you for forming this group.

>

> Best Wishes,

> D'Lanie Blaze

> TheAeroSpace.org

> http://www.TheAeroSpace.org

>

[Guest guest]

The reason there was not an increase in Japanese survivors of the atomic bombs

is likely related to whatever is present in their genetic make-up that protects

them from developing CLL in the first place. (Better?)

>

> > It looks as if the lack of increase post-WWII in Japenese is related

> > to the low likelihood of developing CLL.

>

[Guest guest]

Yup. Thanx.

On May 3, 2009, at 1:54 PM, rrfman wrote:

>

>

> The reason there was not an increase in Japanese survivors of the

> atomic bombs is likely related to whatever is present in their genetic

> make-up that protects them from developing CLL in the first place.

> (Better?)

>

>

> >

> > > It looks as if the lack of increase post-WWII in Japenese is

> related

> > > to the low likelihood of developing CLL.

> >

>

>

[Guest guest]

Hi ,

I'm also on the San Diego group but live in Nebraska now.

Chelly

vaccinations

From: carrie_benitez@...

Date: Sat, 20 Jun 2009 15:46:43 -0700

Subject: New to Group

Hello All,

I just joined. I found this group through San Diego Natural Families. I have a

5.5 yr old who is partially vaxed, and a 3 mo old who is not vaxed. I have made

NO time to research statistics, etc. and every time I hear something new about

vaxes, I move further and further away from wanting to give them ANY. The newest

for me is the aluminum and formaldehyde. Ug. We were lucky enough to catch and

share chickenpox last summer for ds before I got pregnant with dd, so that's out

of the way for a couple more years, and now I have to make some decisions about

other illnesses/vaxes.

Thanks!

Benitez, Valley Center

Roma Born 3/9/09, Sam Homebirth 10/13/03, Step-Mom to Dillon 6/12/95

SEE OUR FAMILY PHOTOS AT:

http://vistadelvalleranch.spaces.live.com/?lc=1033

[Guest guest]

Welcome, ! How smart of you to be looking into the vaccine issue. It is

very complex but a good place to start your research would be with Neil 's

book " Vaccines: Are They Really Safe and Effective? " He has a newer book but

this older one is a classic, easy to read and chock full of info.

Winnie

New to Group

vaccinations

>

> Hello All,

>

>

>

> I just joined. I found this group through San Diego Natural

> Families. I have a 5.5 yr old who is partially vaxed, and a 3 mo

> old who is not vaxed. I have made NO time to research

> statistics, etc. and every time I hear something new about

> vaxes, I move further and further away from wanting to give them

> ANY. The newest for me is the aluminum and formaldehyde. Ug. We

> were lucky enough to catch and share chickenpox last summer for

> ds before I got pregnant with dd, so that's out of the way for a

> couple more years, and now I have to make some decisions about

> other illnesses/vaxes.

>

>

>

> Thanks!

>

>

> Benitez, Valley Center

>

> Roma Born 3/9/09, Sam Homebirth 10/13/03, Step-Mom to Dillon 6/12/95

>

> SEE OUR FAMILY PHOTOS AT:

> http://vistadelvalleranch.spaces.live.com/?lc=1033

>

>

>

>

[Guest guest]

Hi --

Welcome to the group. You'll find lots of great info here - check out the

message archives.

And I'm . I live in NY and both my kids are partially vaxed.

Best of Health,

*Isn't it better to be safe, than sorry...

*http://www.EcoCleanInfo.com

Please consider the environment before printing this e-mail.

On Sat, Jun 20, 2009 at 6:46 PM, Benitez

<carrie_benitez@...>wrote:

>

> Hello All,

>

> I just joined. I found this group through San Diego Natural Families. I

> have a 5.5 yr old who is partially vaxed, and a 3 mo old who is not vaxed. I

> have made NO time to research statistics, etc. and every time I hear

> something new about vaxes, I move further and further away from wanting to

> give them ANY. The newest for me is the aluminum and formaldehyde. Ug. We

> were lucky enough to catch and share chickenpox last summer for ds before I

> got pregnant with dd, so that's out of the way for a couple more years, and

> now I have to make some decisions about other illnesses/vaxes.

>

> Thanks!

> Benitez, Valley Center

>

> Roma Born 3/9/09, Sam Homebirth 10/13/03, Step-Mom to Dillon 6/12/95

>

> SEE OUR FAMILY PHOTOS AT:

> http://vistadelvalleranch.spaces.live.com/?lc=1033

>

[Guest guest]

welcome to the group mary and thanks for sharing your story with us !

________________________________

From: Mariève <marieve333@...>

Vaccinations

Sent: Monday, July 6, 2009 6:16:12 PM

Subject: New to group

Hello everyone,

Thanks for letting me join this group. My name's , I'm from Quebec, Canada

and I work as a translator.

I have a two year old daughter who is not vaccinated. I first heard about

vaccines being bad for health when I was pregnant with her. It was my sister

told me about the dangers of vaccination after her chiropractor had explained to

her how vaccines can damage the immune system. Like most people, my first

reaction when she told me about that was : " Well, I have to vaccinate my baby. I

cannot leave her unvaccinated. " The idea that vaccines are a good and positive

thing is so integrated into people's minds that when you question vaccines,

people look at you as if you were telling them an alien lives in your basement.

But since I am the kind of person who likes to question things, I agreed to read

more on the subject of vaccines before making a decision. I bought some books, I

did some research on the internet, and I started to realize that vaccinations

were not the miracle that the medical establishment had tried to make us believe

it was. But still, a part of me was unsure : " What if she gets a disease that

could have been prevented by a vaccine ? Am I putting my child at risk by not

vaccinating her ? " My first decision was to delay vaccines until she was one. I

thought that this would give her immune system the time to strenghten, and that

at one year old, she would be ready to receive a vaccine. On my way to her

one-year-old checkup at the doctor's, I felt very nervous and as though I was

about to make the worst mistake of my life. Finally, when I got to the doctor's

office, I decided not to vaccinate her. That is when I started to read even more

on the subject,

and ever since that day, I have become more and more anti-vaccination. I've

told all of my friends about this. Unfortunately, not all people are ready to

question something that society holds as an absolute truth, and so most of my

friends have decided to vaccinate their children anyway. That makes me sad,

because they don't realize that they are poisoning their children and actually

endangering their health instead of protecting them. I am a firm believer in the

capacity of the body to heal itself, and I agree that vaccination is a big

fraud. I truly wish we could educate people on that subject, and I will do

everything I can to inform people around me. If I can save one child from

vaccination, then I will be happy. I have already saved mine, and funny fact,

she is the healthiest of all the children I know. I am convinced that the fact

that she is not vaccinated has a lot to do with it.

Well, thanks for letting me share my story. I am really glad I found this group

and I am looking forward to discussing with the people in here.