New to group

[Guest guest]

Welcome, ! I applaud you for questioning vaccines beforehand. So many of us

learned the hard way. I am sure you are right about your child being healthier

than others because of not being vaccinated.

Winnie

New to group

Vaccinations

> Hello everyone,

>

> Thanks for letting me join this group. My name's , I'm from

> Quebec, Canada and I work as a translator.

> I have a two year old daughter who is not vaccinated. I first

> heard about vaccines being bad for health when I was pregnant

> with her. It was my sister told me about the dangers of

> vaccination after her chiropractor had explained to her how

> vaccines can damage the immune system. Like most people, my

> first reaction when she told me about that was : " Well, I have

> to vaccinate my baby. I cannot leave her unvaccinated. " The idea

> that vaccines are a good and positive thing is so integrated

> into people's minds that when you question vaccines,

> people look at you as if you were telling them an alien lives in

> your basement.

> But since I am the kind of person who likes to question things,

> I agreed to read more on the subject of vaccines before making a

> decision. I bought some books, I did some research on the

> internet, and I started to realize that vaccinations were not

> the miracle that the medical establishment had tried to make us

> believe it was. But still, a part of me was unsure : " What if

> she gets a disease that could have been prevented by a vaccine ?

> Am I putting my child at risk by not vaccinating her ? " My first

> decision was to delay vaccines until she was one. I thought that

> this would give her immune system the time to strenghten, and

> that at one year old, she would be ready to receive a vaccine.

> On my way to her one-year-old checkup at the doctor's, I felt

> very nervous and as though I was about to make the worst mistake

> of my life. Finally, when I got to the doctor's office, I

> decided not to vaccinate her. That is when I started to read

> even more on the subject, and ever since that day, I have become

> more and more anti-vaccination. I've told all of my friends

> about this. Unfortunately, not all people are ready to question

> something that society holds as an absolute truth, and so most

> of my friends have decided to vaccinate their children anyway.

> That makes me sad, because they don't realize that they are

> poisoning their children and actually endangering their health

> instead of protecting them. I am a firm believer in the capacity

> of the body to heal itself, and I agree that vaccination is a

> big fraud. I truly wish we could educate people on that subject,

> and I will do everything I can to inform people around me. If I

> can save one child from vaccination, then I will be happy. I

> have already saved mine, and funny fact, she is the healthiest

> of all the children I know. I am convinced that the fact that

> she is not vaccinated has a lot to do with it.

> Well, thanks for letting me share my story. I am really glad I

> found this group and I am looking forward to discussing with the

> people in here.

>

>

>

>

[Guest guest]

Thank you, Winnie :-)

I agree that a lot of parents learn about that the hard way, and I find it very

sad. I try to tell people about the dangers of vaccination as much as I can, but

a lot of people just don't want to listen, unfortunately. It's not easy

questioning something that so many people think is the truth. It's too bad

something tragic would have to happen for them to open up their eyes...

>

> Welcome, ! I applaud you for questioning vaccines beforehand. So many of

us learned the hard way. I am sure you are right about your child being

healthier than others because of not being vaccinated.

>

> Winnie

[Guest guest]

Welcome !

I am a great admirer of another Qu

éb

écoise, Ghislaine Lanctôt!

Your daughter is so fortunate that you questioned the perceived " wisdom " of

vaccination.

We found out the hard way over 3 decades ago, and we are still working at

illuminating the truth.

Mara

> Hello everyone,

>

> Thanks for letting me join this group. My name's , I'm from

> Quebec, Canada and I work as a translator.

> I have a two year old daughter who is not vaccinated. I first

> heard about vaccines being bad for health when I was pregnant

> with her. It was my sister told me about the dangers of

> vaccination after her chiropractor had explained to her how

> vaccines can damage the immune system. Like most people, my

> first reaction when she told me about that was : " Well, I have

> to vaccinate my baby. I cannot leave her unvaccinated. " The idea

> that vaccines are a good and positive thing is so integrated

> into people's minds that when you question vaccines,

> people look at you as if you were telling them an alien lives in

> your basement.

> But since I am the kind of person who likes to question things,

> I agreed to read more on the subject of vaccines before making a

> decision. I bought some books, I did some research on the

> internet, and I started to realize that vaccinations were not

> the miracle that the medical establishment had tried to make us

> believe it was. But still, a part of me was unsure : " What if

> she gets a disease that could have been prevented by a vaccine ?

> Am I putting my child at risk by not vaccinating her ? " My first

> decision was to delay vaccines until she was one. I thought that

> this would give her immune system the time to strenghten, and

> that at one year old, she would be ready to receive a vaccine.

> On my way to her one-year-old checkup at the doctor's, I felt

> very nervous and as though I was about to make the worst mistake

> of my life. Finally, when I got to the doctor's office, I

> decided not to vaccinate her. That is when I started to read

> even more on the subject, and ever since that day, I have become

> more and more anti-vaccination. I've told all of my friends

> about this. Unfortunately, not all people are ready to question

> something that society holds as an absolute truth, and so most

> of my friends have decided to vaccinate their children anyway.

> That makes me sad, because they don't realize that they are

> poisoning their children and actually endangering their health

> instead of protecting them. I am a firm believer in the capacity

> of the body to heal itself, and I agree that vaccination is a

> big fraud. I truly wish we could educate people on that subject,

> and I will do everything I can to inform people around me. If I

> can save one child from vaccination, then I will be happy. I

> have already saved mine, and funny fact, she is the healthiest

> of all the children I know. I am convinced that the fact that

> she is not vaccinated has a lot to do with it.

> Well, thanks for letting me share my story. I am really glad I

> found this group and I am looking forward to discussing with the

> people in here.

>

>

[Guest guest]

Thank you, Mara. I don't know about Ghislaine Lanctôt, who is she ?

>

> Welcome !

> I am a great admirer of another Québécoise, Ghislaine Lanctôt!

> Your daughter is so fortunate that you questioned the perceived " wisdom " of

vaccination.

> We found out the hard way over 3 decades ago, and we are still working at

illuminating the truth.

>

> Mara

[Guest guest]

She was Guylaine Lanctôt but changed her name when she became a sovereign woman.

She wrote a book exposing what she referred to as the Medical Mafia.. Here is

info from on 's site.

http://www.whale.to/a/lanctot.html

http://www.whale.to/vaccines/lanctot2.html

and an excerpt from her book.

http://educate-yourself.org/cn/vaccinationsilentgenocide14nov05.shtml

She was vilified by that same mafia of course and The Trial of The Medical

Mafia  by Joachim Schafer  is an account of the hearing before the Quebec

College of Physicians.

Her website:

http://personocratia.com/en/qui_est_ghislaine.php

Mara

Thank you, Mara. I don't know about Ghislaine Lanctôt, who is she ?

[Guest guest]

Thanks for all the links, Mara :-) I will definitely read more about her and her

works.

> Thank you, Mara. I don't know about Ghislaine Lanctôt, who is she ?

>

>

>

>

>

>

>

>

>

[Guest guest]

Welcome, Amy! Good for you to meet with the school board. All of the info out

there IS overwhelming so remember that when you meet with them. Too much info

will turn them off. Keep it simple. Do not even suggest vaccines don't work

(other than to say they're not guaranteed) or you will be labeled a kook.

I would stick to the fact that vaccines are a medical procedure, and as with any

medical procedure, the patient carries the risk. It is not the school's job to

get involved with this on any level other than to meet legal requirements. The

other parents at the school can vaccinate their children if they feel that

protects them--no need to ask others to back them up in case of vaccine failure.

If they're that unsure about vaccines working, all the more reason not to demand

it of others.

As for outing yourself, yes, you will get negative reactions. You can't know

until you say something how people will react. I've just gotten used to it. As

your kids get older, vaccines don't come up as much. Plus, by then other parents

unfortunately will have experienced vaccine side effects, so they might actually

agree with you. I tend to talk it up with strangers, although everyone I know

knows my stance by now. My kids have never been stigmatized and if they were, I

wouldn't want them at those people's houses anyway!

Winnie

New to group

Vaccinations

> Hi everyone,

> I'm a few weeks old to the group. Mom of three in the Bay Area.

> No vaccines for any of the kids (4, 2 and 4 mos.). It started

> out for me as just a gut check. I was aware of the connection

> between vaccines and autism and was aware that there were toxic

> substances in the vaccines. I had minimal info, but was really

> going on an internal reaction to the idea. Vaccines just

> intuitively didn't feel ok to me. Other than the pediatrician

> at the hospital telling me on teh day of her birth that my

> daughter would basically die when i refused the Hep B vaccine, i

> hadn't had many confrontations. I found myself a wonderful

> holistic doctor and it was never much of an issue. It became an

> issue recently however while she was out of the country for a

> month and during that time my son was misdiagnosed with Rubella

> by someone who was examining my son for the first time. Somehow

> I got swept up in the " hysteria " (i think because i was about to

> give birth) and was doing bloodwork, got results that said he

> was positive for rubella, only later was told that the test

> wasn't specific to rubella but instead indicated a viral

> infection, waited again to get his antibodies tested, turned out

> negative. Big drama, learned a great lesson and, if anything, it

> reinforced my perspective on the issue. During this experience

> I shared with the Director at our preschool what was going on.

> Now I've received a letter stating that they are changing their

> vaccine policy and requiring vaccines for entry to their school.

> My kids will be grandfathered in but I am just livid over this.

> I have a meeting scheduled with the Board in a week and boy

> have I been doing my homework. Have found a lot of great info

> and articles through this site and am also referring to the

> paper that Alan wrote. I never thought I'd become an

> Advocate for the cause, but here I am.

> A couple of things that I'm noticing for myself. One, I'm

> simply overwhelmed with info. Especially regarding swine flu

> stuff. I'm just now processing all of the general vaccine info.

> Even though i had a sense of it, i'm really internalizing it

> now. I can't even track the swine flu stuff yet...but I'll get

> there. Second, I feel like I'm " outing " myself on this issue

> and the reactions are so negative and aggressive I find myself

> concerned that my kids will be somewhat stigmatized by the other

> parents/families. Any thoughts on this? How do you choose who

> to share info with and be an advocate when you want to protect

> your kids from the fall out?

> Thanks for the forum, the support, the feedback,

> the information...everything!

> Amy

>

>

[Guest guest]

Hi Kerrie. I'm glad you found this group. Everyone here knows what everyone else

is going through. Noone knows what it is like to live in chonic pain every

minute of every day unless you are living it. Family and friends are great, but

they don't know what it's like not to be able to do the things we used to be

able to do, not to be able to do the things we want to do. They don't understand

when we say we just can't do something because the pain is too severe, or too

fatigued due to the pain.

Depression is a large part of living with chronic pain. It's a huge achievement

that you are able to work full time with RSD. You should be very proud of

yourself. The important thing is that you shouldn't push yourself. The key is to

do everything is moderation. If you overdo it, your pain level will increase. If

full time is too much, maybe you could consider working part time? Stress will

increase your pain.

Have you tried talking to a therapist that deals with chronic pain? They teach

you how to deal with and cope with living in chronic pain. The important thing

is to think postive. Be grateful for what you still have, for what you still can

do, not what you cannot do, what you can no longer do. I know this is very

difficult, but take one day at a day instead of thinking long term.

The pump does not take away all the pain, but you should have many more good

days than bad ones. Have they increased the doseage if the relief isn't enough?

If you have any questions or need any information, please contact us.

Sue C

________________________________

From: kdsdsr06 <kdsdsr06@...>

Stimulator

Sent: Friday, August 14, 2009 11:02:35 PM

Subject: New to Group

 

Hi,

My name is Kerrie, I am an RSD patient with a pain pump. I've had RSD since June

06 which resulted from a fall. I had to have the ankle reconstructed and I ended

up after many treatments for pain having the pump. I am looking forward to the

support and information on this group.

Kerrie

[Guest guest]

>

> Hi,

> My name is Kerrie, I am an RSD patient with a pain pump. I've had RSD since

June 06 which resulted from a fall. I had to have the ankle reconstructed and I

ended up after many treatments for pain having the pump. I am looking forward to

the support and information on this group.

> Kerrie

>hey kerrie, i was a little dumbfounded when i read your post, i didn't knew if

i messed something, being 6 in the morning, i may have, lol, but have you tried

cannabis??? you said " works for some, not for others, right for some, and not

for other's " is that correct???the first part of that i can agree with, but

pharmaceutical medications only work for about 25% of patients AT BEST. i guess

its the second part i don't understand, what does " right " for some and not

others mean??? i'm not trying to be rude, seriously, i've had this discussion

before. if you have tried cannabis, and it doesn't WORK for you, then i am 110%

with you, but if you haven't, and your unwilling to try something that has No

serious side effects, reduces nausea and allows patients to keep food down and

has NEVER had one recorded overdose, and the chinese have been using it

medicinally for over 5000 years, the american indians over 10,000 years, you

should talk to someone.

i was never a " pot smoker " before i became ill, but now wish i had been. through

therapy i found out that this back injury i had 28 years ago had more of a

negative effect on my life than cannabis ever could. i had a lifting injury

when i was about 19-20 years old, had three herniated disc's, went to canada for

chymopapian injection to dissolve those bulges. i used alcohol as my " pain

relief " of choice, it was " socially and morally " acceptable, i had a good job,

sort of high profile, and i'd be on my knees by the end of my day, but a few

cocktails and i was ready to do it all over again--and did!!! for 17 years!!!!!!

that should have killed me right there. i could go on and on, but don't want to

bore you.

[Guest guest]

Actually low thyroid and cysts are a sign of low / deficient iodine status among other nutrients that we call companion. Take some time reading the files as well as the information on my website at www.naturalthyroidchoices.com

New to group

Here's what I found out about low thyroid. Hypothyroid can contribute to the formation of cysts. I went to a Chinese herbalist and got herbs to help get rid of the ovarian cysts. Cysts are considered a cold stagnation.My doctor gave me cortisol to support my adrenals. Low adrenals will contribute to hypothryoid.If my doctor refused to recognize that I had an issue when I knew I did. I'd find a new doctor. There are lots of forward thinking doctors or ND's who can help you. Keep looking in your area. We know are own bodies and how we're feeling.Good luck

[Guest guest]

I think it is important to take Raw Adrenals bu Natural Sources or Adrenal support with the desicated adreanal. it is probably better than taking the cortisol hormone,

Jag

From: Louise <ljweezee@...>Subject: New to groupiodine Date: Monday, August 24, 2009, 9:47 AM

Here's what I found out about low thyroid. Hypothyroid can contribute to the formation of cysts. I went to a Chinese herbalist and got herbs to help get rid of the ovarian cysts. Cysts are considered a cold stagnation.My doctor gave me cortisol to support my adrenals. Low adrenals will contribute to hypothryoid.If my doctor refused to recognize that I had an issue when I knew I did. I'd find a new doctor. There are lots of forward thinking doctors or ND's who can help you. Keep looking in your area. We know are own bodies and how we're feeling.Good luck__________________________________________________

[Guest guest]

I'm doing sublingual, though the method doesn't change the results in my

opinion,

and have lost 32 pounds in 56 days. I love hcg!!!! No hunger, happier than I

have been in years and melting away before my very eyes.

--- Original Message ---

From: " illnailyaca " <illnailyaca@...>

Sent:Wed 8/26/09 7:04 pm

Subj: New to group

I'm doing some research on the HCG shots and was wondering how everybody was

doing. I was wondering if it is safe and effective. I have about 35lbs. to lose

and have tried the B-12 B-6 shots and have done terrible. A have only lost 5

lbs. in a month. Any input would be much appreciated. Thanks

[Guest guest]

Sublingual (SL) - hcg is taken under the tongue and held there for 10 to 20

minutes so the hcg can be absorbed by the tissue. Then swallow. You order the

same hcg for both injections and SL... You just dose differently and there are

different ways to mix. If you go to the files section and look around you will

find all sorts of great info.

--- Original Message ---

From: " illnailyaca " <illnailyaca@...>

Sent:Wed 8/26/09 9:49 pm

Subj: Re: New to group

>What is sublingual? How do you take the HCG in liquid or shots/

> I'm doing sublingual, though the method doesn't change the results in my

opinion,

> and have lost 32 pounds in 56 days. I love hcg!!!! No hunger, happier than I

have been in years and melting away before my very eyes.

> --- Original Message ---

> From: " illnailyaca " <illnailyaca@...>

> Sent:Wed 8/26/09 7:04 pm

>

> Subj: New to group

>

> I'm doing some research on the HCG shots and was wondering how everybody was

doing. I was wondering if it is safe and effective. I have about 35lbs. to lose

and have tried the B-12 B-6 shots and have done terrible. A have only lost 5

lbs. in a month. Any input would be much appreciated. Thanks

>

[Guest guest]

>What is sublingual? How do you take the HCG in liquid or shots/

> I'm doing sublingual, though the method doesn't change the results in my

opinion,

> and have lost 32 pounds in 56 days. I love hcg!!!! No hunger, happier than I

have been in years and melting away before my very eyes.

> --- Original Message ---

> From: " illnailyaca " <illnailyaca@...>

> Sent:Wed 8/26/09 7:04 pm

>

> Subj: New to group

>

> I'm doing some research on the HCG shots and was wondering how everybody was

doing. I was wondering if it is safe and effective. I have about 35lbs. to lose

and have tried the B-12 B-6 shots and have done terrible. A have only lost 5

lbs. in a month. Any input would be much appreciated. Thanks

>

[Guest guest]

I did the hcg shots 250 Iu and lost 30lbs in 31 days and i feel fine the whole

time

>

> I'm doing some research on the HCG shots and was wondering how everybody was

doing. I was wondering if it is safe and effective. I have about 35lbs. to lose

and have tried the B-12 B-6 shots and have done terrible. A have only lost 5

lbs. in a month. Any input would be much appreciated. Thanks

>

[Guest guest]

--

My wife has had the disease for several years now (she is

45) and has never needed treatment yet - WBC at 72k but all

other bloodwork normal. Thus the " watch and worry. "

Thankfully she has good prognostic markers (see below),

meaning that she may need treatment at some point, but

likely to live a near normal lifespan, whatever that means.

CLL ain't great, but it ain't lung or breast cancer either.

Generally does not attack the organs like the others. While

your dad may need treatment now, he likely has years, not

months.

To me, the most important things to know first are the

details that one gets through " FISH " testing. This will tell

you whether he has " good " version of CLL which will respond

to treatments and longer life span approaching normal, or

" bad " kind for which BMT is the best hope. There are two

distinct clinical courses depending on which bucket you fall

into. BMT is only known " cure " , but it can kill just getting

ready. Thus, it is critical to find out exactly what you are

dealing with in terms of which kind of CLL he has.

What you should do unless you already know is find out

whether he is CD38 positive/negative, ZAP-70 positive

negative, which gene deletion he has (P53 is a nasty one),

and whether he is mutated or unmutated. These will give you

a better roadmap of the likely course and perhaps best

treatment path. Also would track down a recognized expert.

Being in Michigan, you should try to see Dr. Kay at the Mayo

Clinic, Dr. Byrd at Ohio State if your local docs don't have

these answers. Find a CLL expert, not just a good

oncologist, if you can. MD in Texas is cutting

edge, and BMT out in Seattle (name escapes me) are well

known. We see an expert in Washington D.C. at town

University - Dr. Bruce Cheson. Says my wife will be around

to torment me for many years.

Our first doc gave my wife 10 years, never told us abouth

the good/bad dichotomy, and she is already at six with no

treatment, so get the testing and find an expert if you can

afford one, etc.

CLL Topics website is an excellent resource for all of the

above. Stay out of the chat rooms until you know exaclty

what you are dealing with. Your dad should be around for a

good while yet and have a good quality of life. Make sure he

eats well and exercises as much as possible as its very much

a disease of how you are feeling. Think of it more as an

immune system disorder than true leukimia like I do. Learn

as much as you can and stay up on clinical trials - see NCI

website for trials. The goal is to hang around long enough

for the next round to buy another few years as there is

promise in the drug pipeline. I never think of cure, just

managing it down to a chronic condition that may need

treatments every so often. Don't rush an BMT until you know

the above kind.

It may be that he needs the treatment asap, i.e., bulging

nodes, true lethargy, etc. If he has the " good kind " he very

well will get a good and long remission and be good to go

for a few years until the next cycle.

Be Well and good luck!

Erwin

<ashleye494 To

4@... cll

> <@...

Sent by: om>

cc

@group

s.com Subject

New to group

09/03/2009

02:29 PM

Please

respond to

@group

s.com

Hello my name is and my Father (45) has just been diagnosed with Chronic

Lymohocytic Leukemia and i was wondering if any one can tell me a little more

about this disease. I will start by telling u alittle bit about my father.  He

has

been having blood transfusions ever 2-3 weeks or so and he starts Chemo monday.

He

also has had a varity of tests including ct scan, bone marrow aspiration, blood

tests. I am not sure if he has to have a bone marrow transplant yet but they r

looking twards it. The disease is in him liver, blood, spleen and marrow, i

guess

that means it is pretty bad.  He gets tired easly and he has shortness of

breath,

he also got a pot put in about a week or so ago so they can do the Chemo

through

that.....anything anyone can tell me might help me understand and also prepare

my

family for the road ahead.  We (my sisters and i) are planning a benefit for

him

to help raise money for all the medical bills they r incurring, on October

10 2009.  We live in Michigan..If you need to know more please don't hesitate

to

ask me ty for the support

[Guest guest]

Welcome I lived in San Mateo until last year! Best wishes for

your twin birth!

E B wrote:

Hi,

My name is . I live in San Mateo, Ca with my husband and 3.5 year

old daughter, Rowan. We are expecting twin boys any day now. We are

non-vaxers, practice AP, homeschool/unschool, and work very hard

to be informed and form values accordingly. I joined this group after a

member of another slow/no-vax group recommended I check it out. I am so

happy that I did. The information that I have received in the last day

or so of being on the list is amazing, and I am so excited to take many

of Sheri's classes.

B

San Mateo, Ca

[Guest guest]

Welcome, --what an exciting time for you! Glad to have you on board and hope all goes smoothly with the birth.

Winnie New to GroupVaccinations > Hi,> > My name is . I live in San Mateo, Ca with my husband and 3.5 > year old daughter, Rowan. We are expecting twin boys any day > now. We are non-vaxers, practice AP, homeschool/unschool, and > work very hard to be informed and form values accordingly. I > joined this group after a member of another slow/no-vax group > recommended I check it out. I am so happy that I did. The > information that I have received in the last day or so of being > on the list is amazing, and I am so excited to take many of > Sheri's classes. > > B> San Mateo, Ca > >

[Guest guest]

C -

I had my surgery back in 1977 and I did very well for 30 years. I did pretty

much everything that I wanted to do and felt very normal. It's amazing what

your body can get used to. Of course, I was 17 when I had surgery and that

makes a little bit of difference, but I think that you will do well. By the

way, who is your surgeon? Where will you be having this surgery? How many of

these operations does this surgeon do in a year and is this his/her specialty?

It's so important to have the right doctor for this operation.

Jeanne

new to group

Hi Everyone,

I'm new to this . I have had scholiois for most of my life . I am 43 now and

have decided to have surgery. My curves starts at my bra line and ends at my

tail bone. We are planning to do an 8 level fusion and I am looking for someone

who has had one or something similar. Or just here from others about their

surgery and how well and long it took them to recover. I should also mention

that my pain got worse which is why I decided on the surgery , walking ,

standing or sitting for longer then 30 min because almost unbearable .

Thanks

[Guest guest]

Just be as sure as you can. Only you know for sure what to do. Make sure that

Scoliosis is all that you have going on with your spine and that there is

nothing else. Get a couple of opinions. It is a big step. I am somewhat

doubtful about having had my surgery. Only God knows what would have happnened

if I didn't. That surgery lead to another one. I am not trying to scare you but

be very sure. Some are glad that they had the surgery and the quality of their

life improves. Get an excellent surgeon and 3 opinions.

>

> Hi Everyone,

>

> I'm new to this . I have had scholiois for most of my life . I am 43 now

and have decided to have surgery. My curves starts at my bra line and ends at my

tail bone. We are planning to do an 8 level fusion and I am looking for someone

who has had one or something similar. Or just here from others about their

surgery and how well and long it took them to recover. I should also mention

that my pain got worse which is why I decided on the surgery , walking ,

standing or sitting for longer then 30 min because almost unbearable .

> Thanks

>

[Guest guest]

Hi, I had surgery top to bottom and front and back with four titanium rods. 

Like you, I had surgery in hopes of relieving pain.  I have no pain now.  The

surgery was in July 2002.  Recovery was just as my surgeon told me it would

take:  three months for the worst part, when I would be doing ABSOLUTELY

NOTHING, sit reading, watching TV, no lifting of anything weighing more than a

quart of milk, no twisting, wearing the brace all the time except in the shower

and in bed, etc.  The next three months, I was driving and doing very light

housework.  At 6 mo. I could do almost anything I wanted to do.  At one year,

I was healed.  I'm happy with the result and glad I did it.

lj

From: c <siillyy2000@...>

Subject: new to group

Scoliosis Treatment

Date: Wednesday, January 6, 2010, 3:05 PM

 

Hi Everyone,

I'm new to this . I have had scholiois for most of my life . I am 43 now and

have decided to have surgery. My curves starts at my bra line and ends at my

tail bone. We are planning to do an 8 level fusion and I am looking for someone

who has had one or something similar. Or just here from others about their

surgery and how well and long it took them to recover. I should also mention

that my pain got worse which is why I decided on the surgery , walking ,

standing or sitting for longer then 30 min because almost unbearable .

Thanks

[Guest guest]

I've said it before and I'll say it again. Do what she says! My surgeon did a

great job on my back, but he didn't believe in braces. And he only said the

basics like to bend or twist, don't pick up anything over 10 lbs. But other than

that, I was on my own. I drove, I walked dogs, I felt great after 6 weeks

compared to the pain I'd been in for 13 years. Then, 2 years later my rods

broke. Actually I think one had been broken for a few months, but when the 2nd

one went, I knew it. I heard it and I could hear it rub when I walked. So I went

in for revision surgery 2 years ago. At the last minute the surgeon--not my

orginal surgeon as I had moved across country since the other surgery--he

decided to fuse my last disc, L5-S1. My surgery because surgeries. I had 2 five

days apart. It was tough bouncing back from that. I lost 15 lbs I could ill

afford. At 5'11 I was 120. My blood pressure hovered at 84 over 60,

approximately, for 6 months. I was too tired to

eat. And to top it off, he put my iliac screw in my iliac joint. I didn't know

exactly what the problem was until last Oct. when I went to UCSF and the surgeon

there did a CT scan. Then he got me into surgery right away and took out the

screw. But a lot of damage was done, including extreme pain for 18 months. Now

it's been 3 months and I still can't do much without the area flaring up. My

drs. all say it's a toss up as to whether or not I'll ever get relief.

If only I'd worn a brace after my big surgery, maybe I wouldn't have had that

revision and I'd still be feeling good. Who knows. But I tell anyone, if you

have the surgery, be careful. Wait until your body's had a chance to start a

good fusion before jumping into normal activities. It could make the difference

between a successful outcome or a trip back to the operating room.

________________________________

From: Lana Jarvis <fyfer1949@...>

Scoliosis Treatment

Sent: Tue, January 19, 2010 11:42:48 PM

Subject: Re: new to group

 

Hi, I had surgery top to bottom and front and back with four titanium rods. 

Like you, I had surgery in hopes of relieving pain.  I have no pain now.  The

surgery was in July 2002.  Recovery was just as my surgeon told me it would

take:  three months for the worst part, when I would be doing ABSOLUTELY

NOTHING, sit reading, watching TV, no lifting of anything weighing more than a

quart of milk, no twisting, wearing the brace all the time except in the shower

and in bed, etc.  The next three months, I was driving and doing very light

housework.  At 6 mo. I could do almost anything I wanted to do.  At one year,

I was healed.  I'm happy with the result and glad I did it.

lj

From: c <siillyy2000>

Subject: new to group

Scoliosis Treatment

Date: Wednesday, January 6, 2010, 3:05 PM

 

Hi Everyone,

I'm new to this . I have had scholiois for most of my life . I am 43 now and

have decided to have surgery. My curves starts at my bra line and ends at my

tail bone. We are planning to do an 8 level fusion and I am looking for someone

who has had one or something similar. Or just here from others about their

surgery and how well and long it took them to recover. I should also mention

that my pain got worse which is why I decided on the surgery , walking ,

standing or sitting for longer then 30 min because almost unbearable .

Thanks

[Guest guest]

Randie is so right about not doing ANYTHINg after surgery. I've seen too

many women post surgery that didn't heed those words and paid tremendously

for it later.

Jolene Morell

Shop online at _www.InheritedButtons.com_

(http://www.inheritedbuttons.com/)

[Guest guest]

At 06:30 PM 1/25/2010, you wrote:

Hi. I am a single mom with

an 18 month old son adopted from Ethiopia.

welcome

He has had several series

of vaccines which he got before I had him. Unfortunately not only

did he get these vaccines, polio,DTaP, Hep B in a place where the safety

and cleanliness of the vaccines are in question but he got them much

closer together than the schedule suggests. So, those were out of

my control, can't really spend time fretting about that.

no you can't

Meanwhile I thought I had

chosen to do an alternative schedule so i could at least spread them out.

All vaccines are dangerous - spread out, singly or in combo

and NO vaccine gives immunity

It's not an option for me

to home school and I was thinking that I would have to give them to him

eventually if I was going to get him into preschool or regular

school. I'm getting more and more afraid of vaccines and I'd rather

not give him any more. Here in North Carolina we only have a

medical and a religious exemption.

It is an easy religious exemption and better to have that actually than

philosophical - it will be harder to take that one away

I will try to get a

religious exemption even though I'm not religious at

all.

You don't have to be religious................

http://www.nvic.org/Vaccine-Laws/state-vaccine-requirements/northcarolina.aspx

If the bona fide religious beliefs of an adult or the parent, guardian or

person in loco parentis of a child are contrary to the immunization

requirements, the adult or the child shall be exempt from the

requirements. Upon submission of a written statement of the bona fide

religious beliefs and opposition to the immunization requirements, the

person may attend the college, university, school or facility without

presenting a certificate of immunization. No child shall be exempt from

the requirements of immunizations for the case of a personal belief or

philosophy of a parent or guardian not founded upon a religious belief.

where do your ''religious beliefs' end and your beliefs about life

begin? Aren't they the same thing.

You just write a state saying:

I object to vaccines for ________________________. I have bona fide

religious beliefs and oppose the immunizatoin requirements.

That's it - no further statements. They can't ask you questions

about those beliefs. That is not in the law. You just have to

make a statement. No explanation

(I'm thinking of putting

him in two day a week preschool when he is 3). I have a question

for you all. I want to start a campaign to get a philosophical

exemption allowed here in North Carolina. I don't have any idea how

to go about it. The states that do have it, how did they get

it? Who makes that decision? What would be the first

step? I see other arguments other than just vaccine safety and

parental choice. I think that allowing one person to get out of

vaccines because they have a belief and not allowing the next person (ie

me) who chooses not to believe do the same is religious discrimination

which of course is illegal. I've been getting more and more worked

up about this and it infuriates me. Getting a philosophical

exemption would at least allow an option to people. Thanks for your

help.

The religious exemption is an option to all. It doesn't say you

have to be a member of a specific church

Jillani is the director of the vaccine dangers group in NC

People Advocating Vaccine Education:

www.vaccineeducation.com

vaccine exemption page

http://www.vaccineeducation.com/exemptions-NC.htm

contact and have a chat with her

WeRPave@...

P.O. Box 36701

Charlotte, NC 28236

USA

again, welcome

Sherilistowner

Sheri Nakken, R.N., MA, Hahnemannian

Homeopath

Vaccination Information & Choice Network, Washington State, USA

Vaccines -

http://vaccinationdangers.wordpress.com/

Vaccine Dangers, Childhood Disease Classes & Homeopathy

Online/email courses - next classes start January 27 & 28

http://www.wellwithin1.com/vaccineclass.htm or

http://www.wellwithin1.com/homeo.htm

[Guest guest]

How do i get in touch with ?thanksKimOn Jan 25, 2010, at 10:18 PM, Sheri Nakken wrote: At 06:30 PM 1/25/2010, you wrote: Hi. I am a single mom with an 18 month old son adopted from Ethiopia. welcome He has had several series of vaccines which he got before I had him. Unfortunately not only did he get these vaccines, polio,DTaP, Hep B in a place where the safety and cleanliness of the vaccines are in question but he got them much closer together than the schedule suggests. So, those were out of my control, can't really spend time fretting about that. no you can't Meanwhile I thought I had chosen to do an alternative schedule so i could at least spread them out. All vaccines are dangerous - spread out, singly or in combo and NO vaccine gives immunity It's not an option for me to home school and I was thinking that I would have to give them to him eventually if I was going to get him into preschool or regular school. I'm getting more and more afraid of vaccines and I'd rather not give him any more. Here in North Carolina we only have a medical and a religious exemption. It is an easy religious exemption and better to have that actually than philosophical - it will be harder to take that one away I will try to get a religious exemption even though I'm not religious at all. You don't have to be religious................ http://www.nvic.org/Vaccine-Laws/state-vaccine-requirements/northcarolina.aspx If the bona fide religious beliefs of an adult or the parent, guardian or person in loco parentis of a child are contrary to the immunization requirements, the adult or the child shall be exempt from the requirements. Upon submission of a written statement of the bona fide religious beliefs and opposition to the immunization requirements, the person may attend the college, university, school or facility without presenting a certificate of immunization. No child shall be exempt from the requirements of immunizations for the case of a personal belief or philosophy of a parent or guardian not founded upon a religious belief. where do your ''religious beliefs' end and your beliefs about life begin? Aren't they the same thing. You just write a state saying: I object to vaccines for ________________________. I have bona fide religious beliefs and oppose the immunizatoin requirements. That's it - no further statements. They can't ask you questions about those beliefs. That is not in the law. You just have to make a statement. No explanation (I'm thinking of putting him in two day a week preschool when he is 3). I have a question for you all. I want to start a campaign to get a philosophical exemption allowed here in North Carolina. I don't have any idea how to go about it. The states that do have it, how did they get it? Who makes that decision? What would be the first step? I see other arguments other than just vaccine safety and parental choice. I think that allowing one person to get out of vaccines because they have a belief and not allowing the next person (ie me) who chooses not to believe do the same is religious discrimination which of course is illegal. I've been getting more and more worked up about this and it infuriates me. Getting a philosophical exemption would at least allow an option to people. Thanks for your help. The religious exemption is an option to all. It doesn't say you have to be a member of a specific church Jillani is the director of the vaccine dangers group in NC People Advocating Vaccine Education: www.vaccineeducation.com vaccine exemption page http://www.vaccineeducation.com/exemptions-NC.htm contact and have a chat with her WeRPave P.O. Box 36701 Charlotte, NC 28236 USA again, welcome Sherilistowner Sheri Nakken, R.N., MA, Hahnemannian Homeopath Vaccination Information & Choice Network, Washington State, USA Vaccines - http://vaccinationdangers.wordpress.com/ Vaccine Dangers, Childhood Disease Classes & Homeopathy Online/email courses - next classes start January 27 & 28 http://www.wellwithin1.com/vaccineclass.htm or http://www.wellwithin1.com/homeo.htm