Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 Thanks, . That's reassuring. Miriam > > I have always taken them all with breakfast and have been at amounts as high as 125 mgs / day. > > > > My question is, does it matter whether I take all 4 Iodoral tablets with breakfast, or do I need to split the dose between morning and evening? I have been taking them all at once in the morning because I am somewhat forgetful (brain fog), so reckon I would keep forgetting to take tablets later in the day as well. Is this just as effective? > > Miriam > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2010 Report Share Posted May 27, 2010 Another question: does anyone know where I can get the Iodine Loading Test done in the UK? Miriam > > My question is, does it matter whether I take all 4 Iodoral tablets with breakfast, or do I need to split the dose between morning and evening? I have been taking them all at once in the morning because I am somewhat forgetful (brain fog), so reckon I would keep forgetting to take tablets later in the day as well. Is this just as effective? > > Miriam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 This group is open to anyone. Is your failed back surgery due to a prior scoliosis spinal fusion surgery or surgeries, or did prior scoliosis spinal fusions result in the failed back surgery? Most members on this list have "flatback syndrome" due to prior spinal fusion surgeries with 1) Harrington Rod instrumentation during the 1960's, 1970's, and early 1980's or 2) long spinal fusion surgeries that include the L4, L5, and S1 vertebras with Harrington Rods and/or one of the newer instrumentation types (I am in the second group as my fusion is from T9 to S1 with Acromed Instrumentation a generic version of TSRH System Instrumentation in 1996). I am a member of a number of group scoliosis groups. If you are not within one or both of the above, in addition to this group you may gain additional benefits from the "" group. Hope this helps!! S. New to Group I am a 66 year old woman that has scoliosis because of failed back surgery. I am not sure if this is the group I should be in. Would like to talk to others about complications, pain, braces etc. If this is not where I should belong please let me know if there is a group out there for me. Have a good day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2010 Report Share Posted June 1, 2010 What type of surgery did you have? Can you give us more detail about your initial surgery and what your scoliosis curve is now? I am a 50 year old woman who had scoliosis as a teenager and ended up with surgery at the age of 17. I now have pain and lower back problems as a result of the initial surgery. Please give us as much detail as you feel comfortable with, I am sure there are many here who will respond to you to offer what help they can. Thanks, Jeanne New to Group I am a 66 year old woman that has scoliosis because of failed back surgery. I am not sure if this is the group I should be in. Would like to talk to others about complications, pain, braces etc. If this is not where I should belong please let me know if there is a group out there for me.Have a good day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Hi and welcome! While this group primarily is made up of people who have had flatback caused by previous scoliosis surgeries (the majority of those being Harrington rod surgeries), there are a number of people here who don't fit that description. Please let us know a few more details of what you're experiencing. For example, what was your original back surgery for? How severe is the scoliosis that it caused? What have your doctors suggested you do to move forward? Have you consulted with more than one doctor about this? It's often a wise idea to get a second (or third) opinion, and to be sure that you are consulting a surgeon with extensive experience in adult spinal deformities that are like yours. Welcome again, and I hope we can offer some helpful advice for you! > > I am a 66 year old woman that has scoliosis because of failed back surgery. I am not sure if this is the group I should be in. Would like to talk to others about complications, pain, braces etc. If this is not where I should belong please let me know if there is a group out there for me. > Have a good day. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2010 Report Share Posted July 27, 2010 Welcome to the group, Steph. Glad to have you aboard!Here is a Cayce site you may find interesting:http://www.webspawner.com/users/ecstreatments/index.htmlPerhaps there is something in that site that can help with your physical condition.All the best,Dudley Delany dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2010 Report Share Posted July 27, 2010 Steph, OMG…what a beautiful message/reminder to us all. Thank you so much for sharing. Om Spa Fine Tuning The World One Person At A Time Mobile:570-780-5858 Skype:570-309-0317 From: [mailto: ] On Behalf Of Steph Sent: Sunday, July 25, 2010 8:41 PM Subject: New to Group Hello all. My name is Steph. I read every book on Edgar Cayce I could get my hands on many times by the time I was 15 years old. I'm 56 now, so it's been a while. I have read a lot more from others too who understand true regression therapy now. Reading those books taught me so much it stayed with me and a desire to continue my intense research into these miracles of life that Edgar gave us. I went to metaphysics school, and have done a lot of work with others besides having lots of work done with me. I learned Rieki and a lot of other things having to do with healing. When I was 15 years old, I had an out of body experience and it really scared me as young as I was and felt I did not know enough of this state of being to be doing this kind of thing yet. I know it sounds like maybe I was doing a bunch of drugs or something, but I promise you, everything I say is the truth. When I was about 40, my life did a major turn around on me. My body became very ill and I had serious spinal problems which I had had for a long time, but managed to learn to live with until then. Things became very difficult and at one point, I thought I could go on no longer when my Angel came to me and assured me that things would not stay like this and I would learn to live with this and even come out much better for it. She gave me love and hope. A few years later, I told my mother of her and described her and we found it, my Angel was my great grandmother who long passed away when my mother was about 13 years old. She did give me hope and it was with that healing hope I continued on, did not let myself get on the pity pot, and sought help in the world of doctors too. Long story short, I had nine spinal levels fused, a few years later, I had a brain aneurysm which was quite a miracle that they found it before I either had a major stroke or died. I've had a lot of other things too, but it matters not at this point, that is just life on life's terms for me. The wonderful thing is that I have always healed beautifully from everything that has happened. I believe the prayer and meditation I perform has a tremendous amount to do with it and I also believe we are taken when our work for this life time is completed, the healing that is to take place is done for this life time and then we will be taken. About two months ago, one of my best friends passed on at a very young age and it was very sad for us who will miss him, but we know he is at peace right now. Something amazing happened when he passed. About week after it happened, I had a " dream " if you wish to call it that, but I think of it as much more. My friend came to me in Spirit form and I was in Spirit form when I received him. He had always been that kind of a friend when he needed to talk about something very personal or needed help with something, he would call me. He told me he was very afraid and it did not surprise me at all, so I took his hand and we began to walk through a dark tunnel, talking all the while and telling each other how much we had meant to each other in life. I saw the brightest light I have ever seen in all my meditation down the tunnel and all of a sudden, I knew I could go no further. I told my friend to keep going and that people, his father would be waiting for him, so we said our goodbyes and expressed our love and on he went. I know he is at peace today and it helped me to heal too. I was having a lot of trouble with this because of the suddenness of it and his young age. Thank you for letting me be a part of your organization and I hope to get a lot out of it as well give as much as I am able to besides. Thank you so much. Love and Light, Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 welcome to the group, maddy! glad to see you are taking things seriously & that you have a sensible doctor. Joy joybilee@... When I am dead, I hope it is said, 'His sins were scarlet, but his books were read'. -Hilaire BellocFrom: Maddy M <tea4maddy@...>100-plus Sent: Thu, August 12, 2010 11:41:14 AMSubject: new to group Hello, My name is Maddy. I'm a widow, mom and grandma who needs to lose at least one hundred pounds sensibly. My cardiologist would like me to follow a simple plan that uses the divided plate format as a guideline. There's no counting calories or points, no weighing either as the plate and place mat does this for me. I haven't had much luck following a prescribed diet but I can't ignore heart problems. Looking forward to meeting everyone, Maddy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Hi Maddy..welcome. Good luck with your efforts and hearing on your future success. Liliann From: Maddy M <tea4maddy@...>100-plus Sent: Thu, August 12, 2010 12:41:14 PMSubject: new to group Hello,My name is Maddy. I'm a widow, mom and grandma who needs to lose at least one hundred pounds sensibly. My cardiologist would like me to follow a simple plan that uses the divided plate format as a guideline. There's no counting calories or points, no weighing either as the plate and place mat does this for me. I haven't had much luck following a prescribed diet but I can't ignore heart problems. Looking forward to meeting everyone,Maddy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Hi Maddy great to meet you. Sorry I don't have any immediate suggestions never heard of the divided plate theory lol... My name is Merry. I'm 75 lbs from my goal. I started at 450lbs 3 years ago. My doctor sent me to a weight loss center because my health was failing fast so I under went the gastric bypass procedure. that was 175 lbs ago. I had lost more but I gained some when I was taking care of my mom during her struggle with terminal cancer. So hang in there and you will find the right thing for you.... Merry current 275lbs goal 200 lbs > > Hello, > > My name is Maddy. I'm a widow, mom and grandma who needs to lose at least one hundred pounds sensibly. My cardiologist would like me to follow a simple plan that uses the divided plate format as a guideline. There's no counting calories or points, no weighing either as the plate and place mat does this for me. I haven't had much luck following a prescribed diet but I can't ignore heart problems. > > Looking forward to meeting everyone, > Maddy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Hi Maddy! I LOVE the divided plate method. Do you have the whole set or just the plate? I used a ceramic TV dinner style plate for a few months when I was trying to force myself to have more variety and smaller portions. It worked really well for me. I am currently using a small bowl for most of my meals as a portion control, so that I am eating 1 cup of food at a time. This is a fab group!    elisaannh -- new to group Hello, My name is Maddy. I'm a widow, mom and grandma who needs to lose at least one hundred pounds sensibly. My cardiologist would like me to follow a simple plan that uses the divided plate format as a guideline. There's no counting calories or points, no weighing either as the plate and place mat does this for me. I haven't had much luck following a prescribed diet but I can't ignore heart problems. Looking forward to meeting everyone, Maddy ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 I don't have an answer for you and hope someone on the group might know more. I have severe (no surgery) scoliosis and severe (lifelong) asthma. I have been in and out of the hospital with asthma and pnuemonia. I do know the less you use your lung - function deteriorates. Also, in my case the worsening curve is restricting my lung function as well. Bless you and your son. Sara ________________________________ From: autumqueen <autumqueen@...> Scoliosis Treatment Sent: Fri, August 13, 2010 6:46:24 AM Subject: New To Group  Hi. Our son has cerebral palsy. He was diagnosed with sudden onset scoliosis at 13 years old with a curvature that went from 47 degrees to 82 degrees within one year. Surgery was done. There was no real option to wait until he was 15 or 16. He had Anterior L1-L4 and posterior T3-Pelvis spinal fusion. Unfortunately around 15 years old he grew some more and developed crankshaft where the vertebrae rotated along with the ribcage. With the rotation a bar between the two rods ended up " poking " the skin, resulted in a quarter size raised area and eventually an infection. He had surgery to remove the bar but they were unable to remove all the hardware and so he is now on lifetime anitibiotics to confine the bacteria on the rods/remaining hardware. He was diagnosed with severe restrictive lung disease and the pulmonologist and ortho surgeon both agreed that structurely there is nothing that can be done to fix the problem and removing the hardware would result in pulmonary failure. Ok...I love the several paged detailed reports from the pulmonologist. Was going to say what his curve is now and what type so was looking at the 7 page report done from March 2010. Ok. It says 10/23/2009 Spine: Broad-based 85 degrees dextroconvex T-5 - L4 curve (mild worsening). Stable thoracic kyphosis and lumbar lordosis, marked right side down pelvic tilt and the leftward truncal shift. For some reason I thought the curve was less but guess not. That all said what I am wondering is if anyone has been diagnosed with severe restrictive lung disease. They did a CT...weren't able to do full pulmonary function tests due to the cerebral palsy. We know that the right lung is smaller than it should be and it should be the bigger of the lungs. We know that it is confined/compressed between the spine and the right rotated ribcage. When you listen to it there is very little air movement. The left lung is larger than it should be and is doing most of the work. He breaths, always has, from the lower left part of his stomach/abdomen. We are doing breathing treatments with albuterol and pulmicort. That helps some with the oxygen sats especially when spring hit and now apparently the humid weather is doing a number on him. If anyone has been diagnosed with lung issues related to the lung not being able to expand like it should do you know what the effect is on the lung itself? I have been trying to research it but can't seem to find anything. There is tons of stuff on obstructive lung disease or a couple of the restrictive ones but very little on restrictive/scoliosis. If they do talk about it they say " surgically fix the scoliosis " . We tried that and can't fix it now. I know that if our son gets the flu/pnemonia that things will be bad...but trying to figure out what is happening to the right lung over time when it cannot move air like it should. Does it damamge the walls of the lung inside over time? I visualize this lung sitting there barely moving and thinking that it has to do something to the lung if it's not functioning properly. We see the ortho doc and pulmonologist in Sept. so I know I can ask then but just curious if anyone has dealt with the restrictive lung disease and what it does over time to the lung that is restricted. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi Maddy,welcome to the group.This group has some great people who are understanding and very supportive! I know you'll just love it here! :)Daisy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 , I have restrictive lung disease from scoliosis (no cp, asthma) alone. Anyone with a large upper curve will have restrictive lungs because the rib hump prevents one lung (and therefore affects the other from expanding) from fully expanding. And yes, I am fused there, but the fusion didn't cause the restriction-the scoliosis did. I am vigillant about not catching the flu (taking all shots) and pneumonia (with a shot) and staying away from anyone with a cold or cough. As every person gets older lungs get more restrictive due to age. Those of us with restrictive lungs MAY eventually require oxygen. MAY. There is an education/exercise that MAY help called pulmonary Rehab. I haven't had it, so I don't know if it helps. Jolene Morell Shop online at _www.InheritedButtons.com_ (http://www.inheritedbuttons.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 Lido, No, I do not have PAH. I have read the symptoms and have (in the past) had those diagnostic tests which were negative. Jolene Morell Shop online at _www.InheritedButtons.com_ (http://www.inheritedbuttons.com/) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Welcome Maddy. I to worry about heart issues. I already have the HBP. BUT no matter what diet we follow portions, movement, and water are key. N.H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2010 Report Share Posted September 5, 2010 Sounds like you are detoxing and it will pass. Drinks lots of water. From: Payden <morganpayden@...>Subject: New to Group Date: Friday, September 3, 2010, 3:50 PM Hi Everyone! I'm new to the group. I'm on day 3, first cycle! Today was SOOO hard! I go through my local doctor and he is GREAT it was only $200 for everythiny...anyways, I'm on the injections and they aren't that bad. I thought I'd be scared but needles aren't as bad as they use to be. Anyways, the first two days were a breeze! I had to force myself to eat (well I did have to over eat too). Today was difficult. I spent half the day dizzy, tired, unable to focus as work. It scared me, how am I going to get past this. Then all of a sudden around 3ish when it was time for my afternoon snack, I got energy. Still have a minor headache, and have to spend extra time concentrating. I'm really really motivated! I have between 50-70lbs to loose. Anyone have suggestions how to cope? Also, the cookbook, does it work? I made the chicken chili last night for today and it was DELICIOUS I've never tasted healthy food so good! Even my husband grabbed it all up. I really would like all suggestions and tips as possible : ) OH and I'm doing GREAT with water! Around 3L a day but most of it does have the Walmart sweetner in it because too much water makes me queezy.Thanks everyone : ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 thanks. It did pass. I felt fine this weekend..actually I've decided to split up ALL of my foods and eat every 2 hours so I'm eating all day, no time to be hungry : ) it was VERY difficult yestarday at our bbq to be good. I did stay away from the baked beans, but did snub a bit of my husband's burger (small bit nothing on it, it was his first time ever grilling out) and I even bakes a cake and didn't snag a piece...deff hard. I've decided to fnish this month up and take a break because my dr does the 500 cal continuous for 2 months and I want to hike and things next month so I want the energy and right amount of caleries. I weighed myself this morning and lost 3lbs so YAY! 3 lbs in 4 days, not too bad > > > From: Payden <morganpayden@...> > Subject: New to Group > > Date: Friday, September 3, 2010, 3:50 PM > > >  > > > > Hi Everyone! I'm new to the group. I'm on day 3, first cycle! Today was SOOO hard! I go through my local doctor and he is GREAT it was only $200 for everythiny...anyways, I'm on the injections and they aren't that bad. I thought I'd be scared but needles aren't as bad as they use to be. Anyways, the first two days were a breeze! I had to force myself to eat (well I did have to over eat too). Today was difficult. I spent half the day dizzy, tired, unable to focus as work. It scared me, how am I going to get past this. Then all of a sudden around 3ish when it was time for my afternoon snack, I got energy. Still have a minor headache, and have to spend extra time concentrating. I'm really really motivated! I have between 50-70lbs to loose. Anyone have suggestions how to cope? Also, the cookbook, does it work? I made the chicken chili last night for today and it was DELICIOUS I've never tasted healthy food so good! Even my husband grabbed it all up. > > I really would like all suggestions and tips as possible : ) OH and I'm doing GREAT with water! Around 3L a day but most of it does have the Walmart sweetner in it because too much water makes me queezy. > > Thanks everyone : ) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2010 Report Share Posted September 7, 2010 I split my meat up and eat a little for breakfast (lean flat iron skillet steak or chicken. I also have a digital scale and weigh all the meat. I carry an apple for emergencies. From: Payden <morganpayden@...>Subject: Re: New to Group Date: Tuesday, September 7, 2010, 12:23 PM thanks. It did pass. I felt fine this weekend..actually I've decided to split up ALL of my foods and eat every 2 hours so I'm eating all day, no time to be hungry : ) it was VERY difficult yestarday at our bbq to be good. I did stay away from the baked beans, but did snub a bit of my husband's burger (small bit nothing on it, it was his first time ever grilling out) and I even bakes a cake and didn't snag a piece...deff hard. I've decided to fnish this month up and take a break because my dr does the 500 cal continuous for 2 months and I want to hike and things next month so I want the energy and right amount of caleries. I weighed myself this morning and lost 3lbs so YAY! 3 lbs in 4 days, not too bad> > > From: Payden <morganpayden@...>> Subject: New to Group> > Date: Friday, September 3, 2010, 3:50 PM> > > Â > > > > Hi Everyone! I'm new to the group. I'm on day 3, first cycle! Today was SOOO hard! I go through my local doctor and he is GREAT it was only $200 for everythiny...anyways, I'm on the injections and they aren't that bad. I thought I'd be scared but needles aren't as bad as they use to be. Anyways, the first two days were a breeze! I had to force myself to eat (well I did have to over eat too). Today was difficult. I spent half the day dizzy, tired, unable to focus as work. It scared me, how am I going to get past this. Then all of a sudden around 3ish when it was time for my afternoon snack, I got energy. Still have a minor headache, and have to spend extra time concentrating. I'm really really motivated! I have between 50-70lbs to loose. Anyone have suggestions how to cope? Also, the cookbook, does it work? I made the chicken chili last night for today and it was DELICIOUS I've never tasted healthy food so good! Even my husband grabbed it all up. > > I really would like all suggestions and tips as possible : ) OH and I'm doing GREAT with water! Around 3L a day but most of it does have the Walmart sweetner in it because too much water makes me queezy.> > Thanks everyone : )> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 maybe i should study that too,i need it From: willow <leslielea@...> Sent: Fri, September 10, 2010 1:29:28 PMSubject: New to groupHI everyone i am new to this group and wanted to introduce myselfI have 5 children 2 are still at home finishing up highschoolI am studying relaxation therapy i write poetry and i am joining a meditation group where i live. i hope to meet interesting people in this grouphope to hear from ya------------------------------------"Every day in every way,I'm getting better,better,better & better." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2010 Report Share Posted September 11, 2010 a bird is singing on such a sad day,i guess i should learn that too. it sounded so peaceful to just sit and listen to her/him From: willow <leslielea@...> Sent: Fri, September 10, 2010 1:29:28 PMSubject: New to groupHI everyone i am new to this group and wanted to introduce myselfI have 5 children 2 are still at home finishing up highschoolI am studying relaxation therapy i write poetry and i am joining a meditation group where i live. i hope to meet interesting people in this grouphope to hear from ya------------------------------------"Every day in every way,I'm getting better,better,better & better." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2010 Report Share Posted September 13, 2010 hi From: siobhan <greengoddess317@...>Subject: Re: New to group Date: Saturday, 11 September, 2010, 7:45 PM maybe i should study that too,i need it From: willow <leslielea@...> Sent: Fri, September 10, 2010 1:29:28 PMSubject: New to groupHI everyone i am new to this group and wanted to introduce myselfI have 5 children 2 are still at home finishing up highschoolI am studying relaxation therapy i write poetry and i am joining a meditation group where i live. i hope to meet interesting people in this grouphope to hear from ya------------------------------------"Every day in every way,I'm getting better,better,better & better." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2010 Report Share Posted October 5, 2010 Hello Lynn,Welcome to the group. You will find many resources available here that are generally not mentioned by doctors ; in particular, feel free to browse the message archive, where you will see that we have covered a great number of subjects these past years.If you worry about the membrane thickness, it probably means your fiance is contemplating an ethmoidectomy (= clearing the ethmoid sinuses, behind the top of the nose) or a sphenoidectomy (=clearing the sphenoid sinuses, further removed from the ethmoid sinuses). It is true that the bone separating the ethmoid sinus from the base of the skull is very thin, but unless the surgeon judges from a CT-scan that it is indeed too thin, or unless it has thinned unacceptably from lengthy steroid use (which is not likely if your fiance is young), there is a risk of complication, but definitely not a major risk. If your surgeon is skilled and is used to performing ethmoidectomies, there is no particular reason to worry that he will cause a leak (called in this case a CSF-leak = cerebrospinal fluid leak) or hurt the optical nerves (another possible complication).The only potential complicating factor in your fiance's case is how much the "landscape" has been modified by previous surgeries, and if these modifications may cause the surgeon to be disoriented due to lack of "landmarks". Note however that many members of this group have (unfortunately) had numerous surgeries but (luckily) without major complications ; risks however do exist and at least one member believes that a former sugery has resulted in a CSF leak ; another has reported a facial nerve being hit by accident. But it is not simply because one has already had one or two surgeries that the risk of complications is major.Some surgeons use navigational aids (=a magnetic headset linked to a computer and to the endoscope showing the position of the endoscope in real time) to minimize risks. If your fiance is really afraid, he could have the procedure performed under computer-guided navigation. In this case, the surgeon cannot be fooled or disorientated even if the "landscape" has been modified by previous surgeries.Please read the message archive where we have discussed at length which pre-op and post-op measures can or should be taken to ensure that one make the best out of a surgery.Loss of Sense Of Smell is linked to inflammation of the olfactory area. If polyps block and inflame the area or its access, outside air cannot reach the olfactory bulb and/or the olfactory bulb nerves cannot function properly. This is generally thought to subside if the inflammation is stopped, which is why steroids help temporarily regain SOS. There is no way of really knowing, but if steroids help regain SOS when the polyp development is still low (ie when the olfactory area is not physically blocked by polyps), it means that the SOS is not permanently impaired.>> Hello everyone. I am joing this group because my fiance' suffers from Samters Triad. He is suffering with all of the same symptoms described by all here. Mild asthma, aspirin & other NSAIDS allergies, severe nasal polyps and other allergies. > > He has been through 2 surgeries, but the polyps keep returning. Right now he is completely blocked, can't breath or sleep properly and has zero taste or smell. He has been procrastinating a 3rd recommended surgery with aspirin desensitization to follow.. in the meantime, dreading another round of prednisone. I am pushing him to schedule ASAP.. He is very worried because the membrane between the sinus cavity and the brain is very, very thin. > > In previous treatments, his sense of smell and taste returned, but only temporarily. Now, nothing brings it back.. not even high doses of prednisone. He (we) are both so worried that he will never enjoy those senses again. > > I am here to find as much information as possible and to gain some feedback on the aspirin desens..> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 what do you do for the adrenal. from your ferritine you can see that there is inflamation somewhere probably On Tue, Oct 12, 2010 at 6:44 PM, tammy.green7120 <tammy.green7120@...> wrote: Â Hi My name is Tammy and I was diagnosed with hypo and adrenal fatigue 2years ago. Would love some help with things i need to correct or dobetter. I still don't feel as well as I would like to and I am still losing a lot of hair. Here are my new Test Results. I am currentlytaking 3 grains of ERFA thyroid.Cholesterol Total 89 Low (100-199) mg/dlHDL Cholesterol 25 Low (>39) mg/dlTestosterone, Serum 26 (6-82) ng/dl Free Testosterone 1.0 (0.0-2.2) pg/mlB12 365 (211-946) pg/ml * I am currently taking b12 shots once amonthFolate Serum >19.9TPO Ab 7 (0-34) Iu/mlAntithyroglobulin AB <20 (0-40) iu/ml Free T4 0.85 (0.82-1.77) ng/dlVitamin D 36.0 (32.0-100.0) ng/mlTSH 0.028 Low (0.450-4.500) uiu/mlEstradiol 84.5 Luteal phase (43.8-211.0) pg/mlProgesterone 6.2 Luteal phase (1.7-27.0) ng/ml Ferritin Serum 164 High (13-150) ng/mlFree T3 3.3 (2.0-4.4) pg/mlRBC Magnesium 6.0 (4.2-6.8) mg/dlSex Horm Binding Glob, Serum 22.5 (26.1-110.0) nmol/l Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2010 Report Share Posted October 12, 2010 Hi Tammy, ERFA thyroid contains a lot of T3 that floods the body (pituitary) quickly, then dissipates. The pituitary is responding by shutting off TSH production. But the the T3 dose doesn't last long, and when labs are drawn, it's already leaving the system (it can be gone within hours of ingestion). The low cholesterol is also indicative of hyperthyroid.This missing TSH is common in folks using natural (porcine) hormone replacement. But a pig makes much more T3 than T4, so often the hormone ratio is lopsided for humans.You might consider adding a T4-replacement hormone and cut your ERFA by a little bit. There are quite a few folks who take both - because they need T4 to raise a little more, but also need to maintain better T3 levels. hope this helps. Konstantine From: tammy.green7120 <tammy.green7120@...>iodine Sent: Tue, October 12, 2010 9:44:06 AMSubject: New to Group Hi My name is Tammy and I was diagnosed with hypo and adrenal fatigue 2years ago. Would love some help with things i need to correct or dobetter. I still don't feel as well as I would like to and I am stilllosing a lot of hair. Here are my new Test Results. I am currentlytaking 3 grains of ERFA thyroid.Cholesterol Total 89 Low (100-199) mg/dlHDL Cholesterol 25 Low (>39) mg/dlTestosterone, Serum 26 (6-82) ng/dlFree Testosterone 1.0 (0.0-2.2) pg/mlB12 365 (211-946) pg/ml * I am currently taking b12 shots once amonthFolate Serum >19.9TPO Ab 7 (0-34) Iu/mlAntithyroglobulin AB <20 (0-40) iu/mlFree T4 0.85 (0.82-1.77) ng/dlVitamin D 36.0 (32.0-100.0) ng/mlTSH 0.028 Low (0.450-4.500) uiu/mlEstradiol 84.5 Luteal phase (43.8-211.0) pg/mlProgesterone 6.2 Luteal phase (1.7-27.0) ng/mlFerritin Serum 164 High (13-150) ng/mlFree T3 3.3 (2.0-4.4) pg/mlRBC Magnesium 6.0 (4.2-6.8) mg/dlSex Horm Binding Glob, Serum 22.5 (26.1-110.0) nmol/l Quote Link to comment Share on other sites More sharing options...
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