New to group

[Guest guest]

Hi Tammy,

Welcome to the group. Other than the hair loss, what other symptoms do you

have? Are you taking anything (medicines or supplements) other than the Erfa?

Are you familiar with the Stop the Thyroid Madness website?

http://www.stopthethyroidmadness.com/ It is a great resource about thyroid and

adrenal issues.

Does your cholesterol usually run this low? Even your HDL (the healthy

cholesterol) is quite low. What sort of diet do you eat?

Very low cholesterol can be associated with depression and anxiety, as well as

being a risk factor for heart disease. Cholesterol is important for many bodily

functions such as the manufacture of our sex hormones and the absorption of

vitamin D (of which yours could be higher - between 50-80 is recommended by the

Vitamin D Council who say low levels of Vit D are associated with:

osteoporosis, heart disease, hypertension, autoimmune diseases, certain cancers,

depression, chronic fatigue, and chronic pain.

I take 50 mg Iodoral along with the companion nutrients. I would eventually

like to go higher. First I need to work on liver cleansing, because when I have

gone higher than 50mg, I get bad acne breakouts. The liver is our main detox

organ, and if you are detoxing more than your liver can handle, the detox

symptoms can show up elsewhere, like the skin.

Sandy

>

>

> Hi My name is Tammy and I was diagnosed with hypo and adrenal fatigue 2

> years ago. Would love some help with things i need to correct or do

> better. I still don't feel as well as I would like to and I am still

> losing a lot of hair. Here are my new Test Results. I am currently

> taking 3 grains of ERFA thyroid.

>

>

>

> Cholesterol Total 89 Low (100-199) mg/dl

>

> HDL Cholesterol 25 Low (>39) mg/dl

>

> Testosterone, Serum 26 (6-82) ng/dl

>

> Free Testosterone 1.0 (0.0-2.2) pg/ml

>

> B12 365 (211-946) pg/ml * I am currently taking b12 shots once a

> month

>

> Folate Serum >19.9

>

> TPO Ab 7 (0-34) Iu/ml

>

> Antithyroglobulin AB <20 (0-40) iu/ml

>

> Free T4 0.85 (0.82-1.77) ng/dl

>

> Vitamin D 36.0 (32.0-100.0) ng/ml

>

> TSH 0.028 Low (0.450-4.500) uiu/ml

>

> Estradiol 84.5 Luteal phase (43.8-211.0) pg/ml

>

> Progesterone 6.2 Luteal phase (1.7-27.0) ng/ml

>

> Ferritin Serum 164 High (13-150) ng/ml

>

> Free T3 3.3 (2.0-4.4) pg/ml

>

> RBC Magnesium 6.0 (4.2-6.8) mg/dl

>

> Sex Horm Binding Glob, Serum 22.5 (26.1-110.0) nmol/l

>

[Guest guest]

Has he looked at Fungal sinustitus being the cause?

>

> Hello everyone. I am joing this group because my fiance' suffers from Samters

Triad. He is suffering with all of the same symptoms described by all here.

Mild asthma, aspirin & other NSAIDS allergies, severe nasal polyps and other

allergies.

>

> He has been through 2 surgeries, but the polyps keep returning. Right now he

is completely blocked, can't breath or sleep properly and has zero taste or

smell. He has been procrastinating a 3rd recommended surgery with aspirin

desensitization to follow.. in the meantime, dreading another round of

prednisone. I am pushing him to schedule ASAP.. He is very worried because the

membrane between the sinus cavity and the brain is very, very thin.

>

> In previous treatments, his sense of smell and taste returned, but only

temporarily. Now, nothing brings it back.. not even high doses of prednisone.

He (we) are both so worried that he will never enjoy those senses again.

>

> I am here to find as much information as possible and to gain some feedback on

the aspirin desens..

>

[Guest guest]

Hi Lynn. You're right we are all in the same boat as your fiance. What you've

described fits my exact situation minus the thin membrane. I am in the process

of scheduling my third polypectomy in ten years. My last two surgeries were in

2000-2001. Technology I guess has come a long way and now they are using an

automatic registration headset for image guided surgery by GE Healthcare.

I completed my aspirin desensitization program two years ago and still take a

maintenance dosage of 650 mg daily. The combination of medicines and aspirin

worked for about six months and then finally reverted. The only thing I haven't

tried yet (soon to be scheduled) is the sinus surgery and continuation of

current medication. From my perspective (the patient) it makes perfect sense to

have a surgery to start with a baseline. As it stands the medication is probably

not as effective. With all the polypy mucous and inflammation the medication may

only be 'maintaining' my symptoms. So in my mind it's not getting a good chance

to be effective enough. If this makes any sense.

Has he tried Zyflo? Again, it was not a long term solution for me. It's

frustrating to all of us. I wish you both the best of luck.

>

> Hello everyone. I am joing this group because my fiance' suffers from Samters

Triad. He is suffering with all of the same symptoms described by all here.

Mild asthma, aspirin & other NSAIDS allergies, severe nasal polyps and other

allergies.

>

> He has been through 2 surgeries, but the polyps keep returning. Right now he

is completely blocked, can't breath or sleep properly and has zero taste or

smell. He has been procrastinating a 3rd recommended surgery with aspirin

desensitization to follow.. in the meantime, dreading another round of

prednisone. I am pushing him to schedule ASAP.. He is very worried because the

membrane between the sinus cavity and the brain is very, very thin.

>

> In previous treatments, his sense of smell and taste returned, but only

temporarily. Now, nothing brings it back.. not even high doses of prednisone.

He (we) are both so worried that he will never enjoy those senses again.

>

> I am here to find as much information as possible and to gain some feedback on

the aspirin desens..

>

[Guest guest]

Hi Sheila, have you had your thyroid and antibodies tests redone since September? and when you say, "normal', do you know the actual numbers? are you on any meds right now/

Konstantine

From: Concerned Parent <sheilad672@...>iodine Sent: Fri, November 5, 2010 12:34:30 PMSubject: New to Group

Hi, I'm new to the iodine group and could use a little advice. In early September I developed a goiter. I was also having many of the symptoms of hypothyroidism. I had blood tests, an ultrasound, and a fine needle aspiration done to determine the cause. Blood tests came back normal for all thyroid hormones and for antibodies. The ultrasound showed a complex cyst. The FNA came back benign with no sign of infection. So I started researching the causes of goiter and saw that most are caused by an iodine deficiency. I started eating more iodized salt and felt my hypo symptoms improve. Then I bought some kelp tablets and started taking them, increasing my dosage each day. I started to feel much better...more energetic and clear headed. My goiter was still there though. Then I purchased Iodoral and started taking it, quickly moving up over about a week or so to 50 mg per day. I started to feel terrible. My hypo symptoms returned and the nature of my

goiter changed. It had been soft but it got harder and started feeling achy like a bruise. I got scared because of all of the stuff on the Internet about how iodine can cause thyroid problems. I then reduced the dosage down to 1/2 tablet per day for about a week. Now I'm not feeling so horrible, just a little tired. My questions are, do you think the Iodoral could have worsened my thyroid or was that just the detox symptoms? Also, if I keep taking Iodoral and increase the dosage, will my goiter eventually go away? I feel really self conscious with a lump on the side of my neck. Also, it feels uncomfortable when I swallow, yawn or turn my head a certain way.I don't want to have my goiter removed or have to take thyroid meds for the rest of my life.Has anyone else had a goiter that improved with iodine?Thanks,Sheila

[Guest guest]

You can try taking the full protocol, which would also include support minerals such as, Zn, Fe, Se, vitamin C, E, and a good multivitamin minerals supplement by Tyler or Twin Labs.

You can also take Thyrotrophin by Standard Process. I think taking the amino acid Tyrosine and eating fiber and taking Omega 3-6-9 fatty acids complex can also help.

You probably have some other issues going on such as hormonal imbalance, or adrenal issues. I think if you can afford it, get a QXCI scan with at Innerfocus. You can do a Google search. I have done them, and she has recommended the appropriate supplements for me. This should help to take some of the guess work and "hit or miss" process out of this process.

I took therapeutic amounts of Iodoral and the support supplements for about a year, and later my small goiter seemed to go away, or to get a little smaller. I am no longer taking Iodoral. I stopped because of the excessive weight gain. Sometimes we just need to take supplements for a while in order to get our body back on track. I do take maintenance doses of multi- vitamin and mineral supplements, organic meal replacements, to make sure I am getting enough protein and such.

Jag

From: Concerned Parent <sheilad672@...>Subject: New to Groupiodine Date: Friday, November 5, 2010, 3:34 PM

Hi, I'm new to the iodine group and could use a little advice. In early September I developed a goiter. I was also having many of the symptoms of hypothyroidism. I had blood tests, an ultrasound, and a fine needle aspiration done to determine the cause. Blood tests came back normal for all thyroid hormones and for antibodies. The ultrasound showed a complex cyst. The FNA came back benign with no sign of infection. So I started researching the causes of goiter and saw that most are caused by an iodine deficiency. I started eating more iodized salt and felt my hypo symptoms improve. Then I bought some kelp tablets and started taking them, increasing my dosage each day. I started to feel much better...more energetic and clear headed. My goiter was still there though. Then I purchased Iodoral and started taking it, quickly moving up over about a week or so to 50 mg per day. I started to feel terrible. My hypo symptoms returned and

the nature of my goiter changed. It had been soft but it got harder and started feeling achy like a bruise. I got scared because of all of the stuff on the Internet about how iodine can cause thyroid problems. I then reduced the dosage down to 1/2 tablet per day for about a week. Now I'm not feeling so horrible, just a little tired. My questions are, do you think the Iodoral could have worsened my thyroid or was that just the detox symptoms? Also, if I keep taking Iodoral and increase the dosage, will my goiter eventually go away? I feel really self conscious with a lump on the side of my neck. Also, it feels uncomfortable when I swallow, yawn or turn my head a certain way.I don't want to have my goiter removed or have to take thyroid meds for the rest of my life.Has anyone else had a goiter that improved with iodine?Thanks,Sheila

[Guest guest]

Hi ,

No, I haven't had any new blood tests since 9/18. The level for TSH was 1.81.

T4 was 1.2. I don't seem to have T3 levels on the report. Thyroglobulin

antibodies were <20 and Thyroid peroxidate antibodies were 18.

These tests were done by my family doctor who has since referred me to an

endocrinologist. My endo appointment is 11/18 so I imagine I'll have more blood

work then.

I'm not on any meds except I've been taking Zyrtec pretty regularly to control

allergies/chronic sinusitus that I've had for years. I've also taken Ibuprofin

occasionally to deal with the discomfort of the goiter.

Sheila

>

> Hi Sheila, have you had your thyroid and antibodies tests redone since

> September? and when you say, " normal', do you know the actual numbers? are

you

> on any meds right now/

>  

> Konstantine

>

>

>

>

> ________________________________

> From: Concerned Parent <sheilad672@...>

> iodine

> Sent: Fri, November 5, 2010 12:34:30 PM

> Subject: New to Group

>

>  

> Hi, I'm new to the iodine group and could use a little advice. In early

> September I developed a goiter. I was also having many of the symptoms of

> hypothyroidism. I had blood tests, an ultrasound, and a fine needle aspiration

> done to determine the cause. Blood tests came back normal for all thyroid

> hormones and for antibodies. The ultrasound showed a complex cyst. The FNA

came

> back benign with no sign of infection.

>

>

> So I started researching the causes of goiter and saw that most are caused by

an

> iodine deficiency. I started eating more iodized salt and felt my hypo

symptoms

> improve. Then I bought some kelp tablets and started taking them, increasing

my

> dosage each day. I started to feel much better...more energetic and clear

> headed. My goiter was still there though. Then I purchased Iodoral and started

> taking it, quickly moving up over about a week or so to 50 mg per day. I

started

> to feel terrible. My hypo symptoms returned and the nature of my goiter

changed.

> It had been soft but it got harder and started feeling achy like a bruise. I

got

> scared because of all of the stuff on the Internet about how iodine can cause

> thyroid problems. I then reduced the dosage down to 1/2 tablet per day for

about

> a week. Now I'm not feeling so horrible, just a little tired.

>

>

> My questions are, do you think the Iodoral could have worsened my thyroid or

was

> that just the detox symptoms? Also, if I keep taking Iodoral and increase the

> dosage, will my goiter eventually go away? I feel really self conscious with a

> lump on the side of my neck. Also, it feels uncomfortable when I swallow, yawn

> or turn my head a certain way.

>

> I don't want to have my goiter removed or have to take thyroid meds for the

rest

> of my life.

>

> Has anyone else had a goiter that improved with iodine?

>

> Thanks,

> Sheila

>

[Guest guest]

Hi Jag,

Thanks for the reply. I do take the support minerals you mention in the form of

a good multivitamin/mineral supplement as well as Fish oil.

I'm not familiar with QXCI but will search it. I'm glad to hear that a goiter

can get smaller using this protocol. Did yours go away completely?

Sheila

>

>

> From: Concerned Parent <sheilad672@...>

> Subject: New to Group

> iodine

> Date: Friday, November 5, 2010, 3:34 PM

>

>

>  

>

>

>

> Hi, I'm new to the iodine group and could use a little advice. In early

September I developed a goiter. I was also having many of the symptoms of

hypothyroidism. I had blood tests, an ultrasound, and a fine needle aspiration

done to determine the cause. Blood tests came back normal for all thyroid

hormones and for antibodies. The ultrasound showed a complex cyst. The FNA came

back benign with no sign of infection.

>

> So I started researching the causes of goiter and saw that most are caused by

an iodine deficiency. I started eating more iodized salt and felt my hypo

symptoms improve. Then I bought some kelp tablets and started taking them,

increasing my dosage each day. I started to feel much better...more energetic

and clear headed. My goiter was still there though. Then I purchased Iodoral and

started taking it, quickly moving up over about a week or so to 50 mg per day. I

started to feel terrible. My hypo symptoms returned and the nature of my goiter

changed. It had been soft but it got harder and started feeling achy like a

bruise. I got scared because of all of the stuff on the Internet about how

iodine can cause thyroid problems. I then reduced the dosage down to 1/2 tablet

per day for about a week. Now I'm not feeling so horrible, just a little tired.

>

> My questions are, do you think the Iodoral could have worsened my thyroid or

was that just the detox symptoms? Also, if I keep taking Iodoral and increase

the dosage, will my goiter eventually go away? I feel really self conscious with

a lump on the side of my neck. Also, it feels uncomfortable when I swallow, yawn

or turn my head a certain way.

>

> I don't want to have my goiter removed or have to take thyroid meds for the

rest of my life.

>

> Has anyone else had a goiter that improved with iodine?

>

> Thanks,

> Sheila

>

[Guest guest]

>

>My questions are, do you think the Iodoral could have worsened my thyroid

>or was that just the detox symptoms?

Iodine cannot have worsened your thyroid, the scare stories are a

myth. I've just been posting about this if you go to the group website

(button at the bottom for " visit your group " and search the messages for

Wolff-Chaikoff effect.

It's detox symptoms, very classic.

>Also, if I keep taking Iodoral and increase the dosage, will my goiter

>eventually go away? I feel really self conscious with a lump on the side

>of my neck. Also, it feels uncomfortable when I swallow, yawn or turn my

>head a certain way.

Iodine is THE treatment for goiter. Yes it will go away, but you'll need

to make sure your detox pathways are working correctly. That means doing

all the companion nutrients in the amounts specified, and it means looking

into other detox mechanisms (diet, infrared saunas, etc.) to help yourself.

>I don't want to have my goiter removed or have to take thyroid meds for

>the rest of my life.

YOu definitely don't want to have your goiter removed because that means

having your thyroid removed. However, you may not have a choice about

thyroid medicine. It's really not that big a deal, and I'd rather take the

meds than live again without thyroid function (I went undiagnosed for at

least 10 years). But you should take whole thyroid, not synthroid.

--

>Has anyone else had a goiter that improved with iodine?

>

>Thanks,

>Sheila

>

>

>

>

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

>I took therapeutic amounts of Iodoral and the support supplements for

>about a year, and later my small goiter seemed to go away, or to get a

>little smaller. I am no longer taking Iodoral. I stopped because of the

>excessive weight gain.

Weight gain on iodine is because the detox pathways are not open. Our

bodies store toxins as fat, so if you're taking iodine and the detox

pathways are closed so the body can't get rid of the toxins being released,

the toxins will result in weight gain. The only answer is assiduous detox

regimens and supplementation.

I think I gained at the beginning with iodine but didn't care I felt so

much better. Now I'm losing weight very happily, just lost another 5 pounds.

best wishes,

--

>Sometimes we just need to take supplements for a while in order to get our

>body back on track. I do take maintenance doses of multi- vitamin and

>mineral supplements, organic meal replacements, to make sure I am getting

>enough protein and such.

>

>Jag

>

>

>

>From: Concerned Parent <sheilad672@...>

>Subject: New to Group

>iodine

>Date: Friday, November 5, 2010, 3:34 PM

>

>

>Hi, I'm new to the iodine group and could use a little advice. In early

>September I developed a goiter. I was also having many of the symptoms of

>hypothyroidism. I had blood tests, an ultrasound, and a fine needle

>aspiration done to determine the cause. Blood tests came back normal for

>all thyroid hormones and for antibodies. The ultrasound showed a complex

>cyst. The FNA came back benign with no sign of infection.

>

>So I started researching the causes of goiter and saw that most are caused

>by an iodine deficiency. I started eating more iodized salt and felt my

>hypo symptoms improve. Then I bought some kelp tablets and started taking

>them, increasing my dosage each day. I started to feel much better...more

>energetic and clear headed. My goiter was still there though. Then I

>purchased Iodoral and started taking it, quickly moving up over about a

>week or so to 50 mg per day. I started to feel terrible. My hypo symptoms

>returned and the nature of my goiter changed. It had been soft but it got

>harder and started feeling achy like a bruise. I got scared because of all

>of the stuff on the Internet about how iodine can cause thyroid problems.

>I then reduced the dosage down to 1/2 tablet per day for about a week. Now

>I'm not feeling so horrible, just a little tired.

>

>My questions are, do you think the Iodoral could have worsened my thyroid

>or was that just the detox symptoms? Also, if I keep taking Iodoral and

>increase the dosage, will my goiter eventually go away? I feel really self

>conscious with a lump on the side of my neck. Also, it feels uncomfortable

>when I swallow, yawn or turn my head a certain way.

>

>I don't want to have my goiter removed or have to take thyroid meds for

>the rest of my life.

>

>Has anyone else had a goiter that improved with iodine?

>

>Thanks,

>Sheila

>

>

>

>

>

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Hi ,

Thanks for your reassurance. It's hard to be confident in what I'm doing when I

have no support from a doctor and I feel terrible. When I brought up iodine

with my family doctor, he reacted with a very strong, " you're not deficient in

iodine! " It was weird that he wouldn't even consider it.

I saw the new member document link and just read it. I noticed that I can get

testing done for iodine and bromide levels. Does Hakala Research require a

physician to order? If not, I could go with FFP but they're more expensive.

We'll see if my endo will be okay with whole thyroid (is that Armour?) rather

than Synthroid.

Thanks,

Sheila

>

>

> >

> >My questions are, do you think the Iodoral could have worsened my thyroid

> >or was that just the detox symptoms?

>

> Iodine cannot have worsened your thyroid, the scare stories are a

> myth. I've just been posting about this if you go to the group website

> (button at the bottom for " visit your group " and search the messages for

> Wolff-Chaikoff effect.

>

> It's detox symptoms, very classic.

>

> >Also, if I keep taking Iodoral and increase the dosage, will my goiter

> >eventually go away? I feel really self conscious with a lump on the side

> >of my neck. Also, it feels uncomfortable when I swallow, yawn or turn my

> >head a certain way.

>

> Iodine is THE treatment for goiter. Yes it will go away, but you'll need

> to make sure your detox pathways are working correctly. That means doing

> all the companion nutrients in the amounts specified, and it means looking

> into other detox mechanisms (diet, infrared saunas, etc.) to help yourself.

>

> >I don't want to have my goiter removed or have to take thyroid meds for

> >the rest of my life.

>

> YOu definitely don't want to have your goiter removed because that means

> having your thyroid removed. However, you may not have a choice about

> thyroid medicine. It's really not that big a deal, and I'd rather take the

> meds than live again without thyroid function (I went undiagnosed for at

> least 10 years). But you should take whole thyroid, not synthroid.

>

> --

>

>

> >Has anyone else had a goiter that improved with iodine?

> >

> >Thanks,

> >Sheila

> >

> >

> >

> >

> >

>

>

> ~~~ There is no way to peace; peace is the way ~~~~

> --A.J. Muste

>

[Guest guest]

You really need Free T3 and Free T4 testing in order to get the

real picture of your thyroid function. However, many doctors and endos don’t do

them unless you really insist. Then get your own copies of the results so you

can see the ranges. Often doctors will say you are “normal” because you are

within the lower range, but that is only what will keep you alive, not what

will make you feel good, and feeling good is really our goal, not just to stay

alive! Most people don’t feel good until they are in the upper 1/3rd

of the range for Free T3 and Free T4. If you can’t get them to order those

tests, you can do it yourself at www.healthcheckusa.com.

They are really well priced. I did this, then took my results to the doctor

with me. Saved lots of time and money, because I didn’t have to go back to the

doctor for a second visit.

Donna in IL

From:

iodine [mailto:iodine ] On Behalf Of Concerned

Parent

Sent: Friday, November 05, 2010 4:12 PM

iodine

Subject: Re: New to Group

Hi ,

No, I haven't had any new blood tests since 9/18. The level for TSH was 1.81.

T4 was 1.2. I don't seem to have T3 levels on the report. Thyroglobulin

antibodies were <20 and Thyroid peroxidate antibodies were 18.

These tests were done by my family doctor who has since referred me to an

endocrinologist. My endo appointment is 11/18 so I imagine I'll have more blood

work then.

I'm not on any meds except I've been taking Zyrtec pretty regularly to control

allergies/chronic sinusitus that I've had for years. I've also taken Ibuprofin

occasionally to deal with the discomfort of the goiter.

Sheila

>

> Hi Sheila, have you had your thyroid and antibodies tests redone since

> September? and when you say, " normal', do you know

the actual numbers? are you

> on any meds right now/

> Â

> Konstantine

>

>

>

>

> ________________________________

> From: Concerned Parent <sheilad672@...>

> iodine

> Sent: Fri, November 5, 2010 12:34:30 PM

> Subject: New to Group

>

> Â

> Hi, I'm new to the iodine group and could use a little advice. In early

> September I developed a goiter. I was also having many of the symptoms of

> hypothyroidism. I had blood tests, an ultrasound, and a fine needle

aspiration

> done to determine the cause. Blood tests came back normal for all thyroid

> hormones and for antibodies. The ultrasound showed a complex cyst. The FNA

came

> back benign with no sign of infection.

>

>

> So I started researching the causes of goiter and saw that most are caused

by an

> iodine deficiency. I started eating more iodized salt and felt my hypo

symptoms

> improve. Then I bought some kelp tablets and started taking them,

increasing my

> dosage each day. I started to feel much better...more energetic and clear

> headed. My goiter was still there though. Then I purchased Iodoral and

started

> taking it, quickly moving up over about a week or so to 50 mg per day. I

started

> to feel terrible. My hypo symptoms returned and the nature of my goiter

changed.

> It had been soft but it got harder and started feeling achy like a bruise.

I got

> scared because of all of the stuff on the Internet about how iodine can

cause

> thyroid problems. I then reduced the dosage down to 1/2 tablet per day for

about

> a week. Now I'm not feeling so horrible, just a little tired.

>

>

> My questions are, do you think the Iodoral could have worsened my thyroid

or was

> that just the detox symptoms? Also, if I keep taking Iodoral and increase

the

> dosage, will my goiter eventually go away? I feel really self conscious

with a

> lump on the side of my neck. Also, it feels uncomfortable when I swallow,

yawn

> or turn my head a certain way.

>

> I don't want to have my goiter removed or have to take thyroid meds for

the rest

> of my life.

>

> Has anyone else had a goiter that improved with iodine?

>

> Thanks,

> Sheila

>

[Guest guest]

From Hakala Labs Q & A:Q2. Do I need a prescription for the test?

The only state that requires a doctors prescription is California. Unfortunately, we are unable to sell test kits to anyone living in New York.JudyThey that trust in the LORD shall be as mount Zion, which cannot be removed, but abideth for ever. Ps. 124:1From: Baker <vbaker@...>Subject: Re: Re: New to Groupiodine Date: Saturday, November 6, 2010, 12:13 PM

Hi Sheila,

You're not alone in working by yourself without a doctor. It's not easy,

but that is better than being held back by a doctor. It's too bad about

your doc, but he was taught to fear iodine in med school, even though that

fear is completely irrational because it is based on fraudulent research. I

can't believe a doc could say that, though, in the face of a patient with

goiter. weird.

I do believe that Hakala requires a doctor's office. The following is

recommended:

<http://www.healthcheckusa.com>www.healthcheckusa.com

Be aware, though, that it is safe to assume you are iodine deficient, and

nothing in the iodine protocol will hurt you. So while it's nice to do the

testing to get baseline numbers for yourself, it isn't absolutely necessary.

Yes, whole thyroid is Armour or also NatureThroid.

best wishes,

--

>Hi ,

>

>Thanks for your reassurance. It's hard to be confident in what I'm doing

>when I have no support from a doctor and I feel terrible. When I brought

>up iodine with my family doctor, he reacted with a very strong, "you're

>not deficient in iodine!" It was weird that he wouldn't even consider it.

>

>I saw the new member document link and just read it. I noticed that I can

>get testing done for iodine and bromide levels. Does Hakala Research

>require a physician to order? If not, I could go with FFP but they're

>more expensive.

>

>We'll see if my endo will be okay with whole thyroid (is that Armour?)

>rather than Synthroid.

>

>Thanks,

>Sheila

>

>

> >

> >

> > >

> > >My questions are, do you think the Iodoral could have worsened my thyroid

> > >or was that just the detox symptoms?

> >

> > Iodine cannot have worsened your thyroid, the scare stories are a

> > myth. I've just been posting about this if you go to the group website

> > (button at the bottom for "visit your group" and search the messages for

> > Wolff-Chaikoff effect.

> >

> > It's detox symptoms, very classic.

> >

> > >Also, if I keep taking Iodoral and increase the dosage, will my goiter

> > >eventually go away? I feel really self conscious with a lump on the side

> > >of my neck. Also, it feels uncomfortable when I swallow, yawn or turn my

> > >head a certain way.

> >

> > Iodine is THE treatment for goiter. Yes it will go away, but you'll need

> > to make sure your detox pathways are working correctly. That means doing

> > all the companion nutrients in the amounts specified, and it means looking

> > into other detox mechanisms (diet, infrared saunas, etc.) to help yourself.

> >

> > >I don't want to have my goiter removed or have to take thyroid meds for

> > >the rest of my life.

> >

> > YOu definitely don't want to have your goiter removed because that means

> > having your thyroid removed. However, you may not have a choice about

> > thyroid medicine. It's really not that big a deal, and I'd rather take

> the

> > meds than live again without thyroid function (I went undiagnosed for at

> > least 10 years). But you should take whole thyroid, not synthroid.

> >

> > --

> >

> >

> > >Has anyone else had a goiter that improved with iodine?

> > >

> > >Thanks,

> > >Sheila

> >

~~~ There is no way to peace; peace is the way ~~~~

--A.J. Muste

[Guest guest]

Go to the files of the group and there is a new member document. There is also a link at the bottom of this e-mail to the file.

Steph

New to group

Hello,I am having a hard time finding where I can properly dose the Lugols iodine I just bought. It is the 2% solution. Also, I understand I need to take celtic salt along with this, 1/2 to 1 tsp, is it once or twice a day? Is there anything else I should know before I start this? Thanks in advance.

[Guest guest]

Hi Beth:

The best sites are: The Scoliosis Association: http://www.scoliosis-assoc.org/,

the National Scoliosis Foundation: http://www.scoliosis.org/, and the Scoliosis

Research Society: http://www.srs.org/.

The Scoliosis Association and the National Scoliosis Foundation are non-medical

sites. Scoliosis Research Society members are orthopedic surgeons who

sub-specialize in the treatment of scoliosis (you can also locate orthopedic

surgeons in your area at that site).

Hope this helps!!

S.

New to group

I have a teen age boy who was suddenly/recently diagnosed with Scoliosis; T 30 &

L34. He has muscle hypotonia due to underlying genetic condition. We are just

beginning the process and want to know if there is a site which will present all

of the bracing and surgical options with pros and cons along with long-term pros

and cons. Thanks! --Beth

[Guest guest]

Beth,

I want to make one additional comment as you begin your research. This is in

regard to bracing. The current bracing standard for scoliosis treatment is the

Thoraco-Lumbo-Sacral-Orthosis (TLSO). It has been the standard since the late

1970's. It is often referred to as the " Boston Brace " .

Prior to the TLSO the standard bracing treatment was the Milwaukee Brace

(Cervico-Thoraco-Lumbo-Sacral-Orthosis). The Milwaukee Brace is still in use;

however, it is mainly used for very high thoracic curves. Compliance to

Milwaukee Brace treatment is often poor.

Another type of brace in use today is the ton Bending Brace. It is also

called a “nighttime†brace as it is only worn while sleeping.

One other type of brace you may hear of is the Spinecor Brace. Many have high

prays for this brace; however, some caution should be given before proceeding

with this brace as it is still considered experimental.

On a related topic. Stick with physicians (allopathic (M.D.) and osteopathic

(D.O.)) for any scoliosis treatment for your son. Caution should be given to any

scoliosis care performed by a chiropractor!!

Hope this helps!!

S.

New to group

I have a teen age boy who was suddenly/recently diagnosed with Scoliosis; T 30 &

L34. He has muscle hypotonia due to underlying genetic condition. We are just

beginning the process and want to know if there is a site which will present all

of the bracing and surgical options with pros and cons along with long-term pros

and cons. Thanks! --Beth

[Guest guest]

Although I do not know if 49 inches tall is considered as " normal " or " tall'

for your daughter's age. One condition that I've heard effects joint and often

includes scoliosis is Marfan Syndrome. Furthermore, those with Marfan Syndrome

tend to tall and have a thin body type, and have long arms and legs. You may

want to research Marfan Syndrome, and see if it applies to your daughter.

S.

New to Group

We have just gotten home from China with our newest daughter, Judy, and she has

scoliosis. The pediatrician today indicated at least a 60 degree curvature with

twisting and a few other situations. We are currently getting an appointment

with Dr. Lenke at the Childrens Hospital in St. Louis but wonder if there are

other suggestions within 5 or so hours driving of central Illinois. We have been

referred to him thru several other Dr's them saying he is the best.

Our daughter is 12, she is also double jointed at the elbows and shoulders, very

flexable fingers, etc. We understand there can be some syndromes also that go

hand in hand with these conditions. Any guidance that you have to offer me, even

if to another support group would be so welcome.

At this time we observe she is not indicating any pain, she keeps up with us

all, we did ask for a PE variance until she sees a spinal Dr. At 12 she is 49

inches tall and weights 62 pounds.

Any suggestions or questions are welcome. Ruthi Coats , mom to Judy

[Guest guest]

I have been told Washington Univ. Med. Center or it's Washington Univ. Center is

the top 8th medical hospital in the U.S. It is in St. Louis too. I was 52 when

they found out I had scoliosis, after getting Transverse Myelitis which left me

paralyzed but in severe nerve pain. Be very careful; if your child requires

surgery I would try to get a dr. who has done thousands of scoliosis surgery. I

live in Arkansas. In our capital city, Little Rock; there is a top children's

hospital, Arkansas Children's Hospital. M

>

>

> Although I do not know if 49 inches tall is considered as " normal " or " tall'

for your daughter's age. One condition that I've heard effects joint and often

includes scoliosis is Marfan Syndrome. Furthermore, those with Marfan Syndrome

tend to tall and have a thin body type, and have long arms and legs. You may

want to research Marfan Syndrome, and see if it applies to your daughter.

>

> S.

>

>

>

>

>

>

>

>

> New to Group

>

>

>

>

>

> We have just gotten home from China with our newest daughter, Judy, and she

has scoliosis. The pediatrician today indicated at least a 60 degree curvature

with twisting and a few other situations. We are currently getting an

appointment with Dr. Lenke at the Childrens Hospital in St. Louis but wonder if

there are other suggestions within 5 or so hours driving of central Illinois. We

have been referred to him thru several other Dr's them saying he is the best.

> Our daughter is 12, she is also double jointed at the elbows and shoulders,

very flexable fingers, etc. We understand there can be some syndromes also that

go hand in hand with these conditions. Any guidance that you have to offer me,

even if to another support group would be so welcome.

> At this time we observe she is not indicating any pain, she keeps up with us

all, we did ask for a PE variance until she sees a spinal Dr. At 12 she is 49

inches tall and weights 62 pounds.

> Any suggestions or questions are welcome. Ruthi Coats , mom to Judy

>

>

>

>

>

>

>

>

>

>

[Guest guest]

: St. Louis Children's Hospital is the pediatric teaching hospital for

Washington University med students. Dr. Lenke performs scoliosis surgery at

Children's and at , the adult hospital in the complex. He did our

daughter's surgery in 2003. Dr. Lenke is a recognized expert and he did a

beautiful job on our daughter (fused T2 - T12, titanium CD instrumentation) -

her scar is tiny and her posture today is beautiful. However, she had severe

post-surgery back pain which persists to this day, and Dr. Lenke and his staff

have been completely unhelpful. When she continued to complain about pain after

the first few months when it was to be expected, Dr. Lenke's comment was

" everything looks fine, I don't have any answers. " She has had several follow-up

appointments and he has essentially shrugged his shoulders each time. Once he

said " my patients don't have this. " Well, I'm sorry but this one does.

[Guest guest]

You need to take her to someone who will look at her with an open mind. I live

in NM, had 2 surgeries in AZ, after which I had a pain that just got worse. I

went to a dr. in TX, recommended by my surgeon, who simply said everything looks

good, I shouldn't be in so much pain. A yr and a half later I went to see my

surgeon from years earlier, in WI. He also said the surgeries done in AZ looked

good, but, a screw was buried extra deep, in the area I had the severe pain. He

told me to go see the dr. in AZ. But I went to San Franciso instead and there

the surgeon saw the problem and within a weeks' time I'd had the screw removed

and I was back home. Now, 18 months since removal of screw, I don't have that

horrible relentless pain anymore. I think maybe the original surgeon wouldn't

want to admit a mistake.

________________________________

From: buck <cathybuck@...>

Scoliosis Treatment

Sent: Fri, March 11, 2011 8:41:22 AM

Subject: Re: New to Group

 

: St. Louis Children's Hospital is the pediatric teaching hospital for

Washington University med students. Dr. Lenke performs scoliosis surgery at

Children's and at , the adult hospital in the complex. He did our

daughter's surgery in 2003. Dr. Lenke is a recognized expert and he did a

beautiful job on our daughter (fused T2 - T12, titanium CD instrumentation) -

her scar is tiny and her posture today is beautiful. However, she had severe

post-surgery back pain which persists to this day, and Dr. Lenke and his staff

have been completely unhelpful. When she continued to complain about pain after

the first few months when it was to be expected, Dr. Lenke's comment was

" everything looks fine, I don't have any answers. " She has had several follow-up

appointments and he has essentially shrugged his shoulders each time. Once he

said " my patients don't have this. " Well, I'm sorry but this one does.

[Guest guest]

Hello I am sorry that you have this disease.  I am glad that you have found us

here.  If you would like to talk to me I am willing to help out as best as I

can.  I have had the disease for about 20 years and have had everything done. 

You can call me any time I live in Georgia. 478-919-8813

 

<font face= " comic sans ms " color= " #ff0000 " size= " 5 " > in Georgia

</font><img src= " http://us.i1.yimg.com/us.yimg.com/i/mesg/tsmileys2/04.gif " >

From: shanachunt <shanachunt@...>

Subject: New to group

achalasia

Date: Wednesday, April 6, 2011, 10:07 AM

 

I was just diagnosed with achalasia. I am looking at options...surgery, the

balloon procedure or drugs. It sounds as if the surgery is not without

complications, nor is it a permanent fix. Any thoughts or suggestions? I have

also start looking for homeopathics in lieu surgery. Has anyone tried a natural

remedy?

[Guest guest]

Hello.

I had a heller myotomi in 2009. It was not a permanent fix. Previous to that I

had the stretching, which actually made my condition worse.

The surgery was a temporary fix, lasted about 2-3 months. Been all downhill

since.

I now see a different dr. And she has me on a full dose of Nifediac. Its a

muscle relaxer that targets the esophagous.

It worked well in the begining. But now seems to be all over the map and

unreliable. I am currently exploring botox injections, acupuncture, and stem

cell placement. Good luck to you.

Sent from my U.S. Cellular BlackBerry® smartphone

New to group

I was just diagnosed with achalasia. I am looking at options...surgery, the

balloon procedure or drugs. It sounds as if the surgery is not without

complications, nor is it a permanent fix. Any thoughts or suggestions? I have

also start looking for homeopathics in lieu surgery. Has anyone tried a natural

remedy?

[Guest guest]

I've had the botox injection. It is only a temporary solution and is not

effective for everyone. It is set to last at most 9 to 12 months. Mine has

started to revert after about 5 months. It's not as bad as it was before the

injection but I know it will get progressively worse. My doctor also told me

repeats of this procedure usually have an increased failure rate the more

you do.

-- New to group

I was just diagnosed with achalasia. I am looking at options...surgery, the

balloon procedure or drugs. It sounds as if the surgery is not without

complications, nor is it a permanent fix. Any thoughts or suggestions? I

have also start looking for homeopathics in lieu surgery. Has anyone tried

a natural remedy?

[Guest guest]

That's great info to know . Thanks for posting.

Sent from my U.S. Cellular BlackBerry® smartphone

New to group

I was just diagnosed with achalasia. I am looking at options...surgery, the

balloon procedure or drugs. It sounds as if the surgery is not without

complications, nor is it a permanent fix. Any thoughts or suggestions? I

have also start looking for homeopathics in lieu surgery. Has anyone tried

a natural remedy?

[Guest guest]

Welcome to our Group!

Sorry to hear that you have been diagnosed with Achalasia.  I have had

achalasia

for over 22yrs.  I went undiagnosed for most of that time and suffered through

it.  If you could tell us a little more info about your situation, like how

long

have you had it and in what area you live? 

Everyone is different.  I was extremely scared about having the myotomy

surgery,

but towards the last few years, I was barely able to keep things down.  This

group taught me to remember that surgery is mostly successful if you can find

the best of the best doctors, who KNOW ACHALASIA and have done MANY of these

surgerys. 

Having a top surgeron is vital to the outcome, and also you must take into

consideration of where you are at in this condition.  I had surgery last

August,

I have had great success and no regrets.  My surgeon feels that I am fixed for

a

very long time, perhaps the rest of  my life.  I sure hope she is right.  I

feel

so much better and can finally eat almost like a normal person. 

I had a myotomy with Dor fundo.  You must do your research and then make your

decision on whats best for you.  I was debating on either surgery or balloon

dilation.  I finally picked surgery because it seems to be the most lasting

treatment, I read the research, the success rate was 90%. 

Please keep us posted and tell us more about yourself. 

Julee So Calif.

________________________________

From: shanachunt <shanachunt@...>

achalasia

Sent: Wed, April 6, 2011 7:07:35 AM

Subject: New to group

 

I was just diagnosed with achalasia. I am looking at options...surgery, the

balloon procedure or drugs. It sounds as if the surgery is not without

complications, nor is it a permanent fix. Any thoughts or suggestions? I have

also start looking for homeopathics in lieu surgery. Has anyone tried a natural

remedy?

[Guest guest]

I recently joined the group to learn what I could from others diagnosed with

A in an effort to help my Dad.  I would agree with - make sure you

research and find a doctor who knows what they are doing and also understand the

procedures well as well as the outcome expectations.

My Dad has had A for many years and went through several balloon dilations which

would last maybe a year or so. He finally had the myotomy in 2005 and then had

to go through repeats of balloon dilations when he started having a lot of

problems again.  He had surgery in May 2009 to remove his esophagus (made a

tube

with stomatch and attached his stomach at his throat) and his health has gone

downhill from there.  He currently is not doing well, cannot keep much food

down

(much worse than before the surgery!) and has lost so much weight he is

malnourished.  We are now looking into alternatives - a nutritionist and maybe

alternative medicine as well.  He seems depressed, has been out of work for

almost a year, and generally seems to have had some personality changes, perhaps

from the medication they are giving him.

We haven't given up hope and we are working to find other options/ways to help

him get better but in hindsight, I would encourage you to fully research your

doctor before having surgery and make sure that the procedure they plan to do is

up to date and that they have experience because it's terrible to go through

something to get better and find that it makes you worse, especially for your

family.

Dana n, NC.

________________________________

From: Montoya <medhelpinfo@...>

achalasia

Sent: Wed, April 6, 2011 3:35:03 PM

Subject: Re: New to group

 

Welcome to our Group!

Sorry to hear that you have been diagnosed with Achalasia.  I have had

achalasia

for over 22yrs.  I went undiagnosed for most of that time and suffered through

it.  If you could tell us a little more info about your situation, like how

long

have you had it and in what area you live? 

Everyone is different.  I was extremely scared about having the myotomy

surgery,

but towards the last few years, I was barely able to keep things down.  This

group taught me to remember that surgery is mostly successful if you can find

the best of the best doctors, who KNOW ACHALASIA and have done MANY of these

surgerys. 

Having a top surgeron is vital to the outcome, and also you must take into

consideration of where you are at in this condition.  I had surgery last

August,

I have had great success and no regrets.  My surgeon feels that I am fixed for

a

very long time, perhaps the rest of  my life.  I sure hope she is right.  I

feel

so much better and can finally eat almost like a normal person. 

I had a myotomy with Dor fundo.  You must do your research and then make your

decision on whats best for you.  I was debating on either surgery or balloon

dilation.  I finally picked surgery because it seems to be the most lasting

treatment, I read the research, the success rate was 90%. 

Please keep us posted and tell us more about yourself. 

Julee So Calif.

________________________________

From: shanachunt <shanachunt@...>

achalasia

Sent: Wed, April 6, 2011 7:07:35 AM

Subject: New to group

 

I was just diagnosed with achalasia. I am looking at options...surgery, the

balloon procedure or drugs. It sounds as if the surgery is not without

complications, nor is it a permanent fix. Any thoughts or suggestions? I have

also start looking for homeopathics in lieu surgery. Has anyone tried a natural

remedy?