Re: Re: Brittle Bone Syndrome

[Guest guest]

What builds collagen?

Vitamin C. In her case...massive doses! Probably could benefit from injections of it.

Gloria

[Guest guest]

I’ll just tell her to get EsterC 1000mg capsules and start taking one every hour to bowel tolerance. She can at least start doing that before looking into injections.

That was my second thought. She'll need mega-doses of it. It might be more economical for her to get a jar of powdered ester-C...3 grams in a tsp. The downside is that it tastes terrible. The injections would, of course, be optimal. I would highly suggest she try the C and pull no stops with dosage. She can't overdose on it and it can only help.

If you're familiar with Laurel Burch, the artist (her signature colorful cat drawings on her products are very familiar)...she has the same thing. Now in her sixties, I've heard she can now barely move and is severely disabled with brittle bone syndrome.

Gloria

[Guest guest]

It's not a calcium deficiency problem, . It's a lack of collagen or

breakdown of collagen that causes it. What builds collagen?

Also, in researching fluoridation in county water (our county is trying to

fluoridate our water and I'm trying to talk them out of it), I discovered

that fluoride breaks down collagen in the body. So I could at least tell

her not to drink fluoridated water.

Sharyn

-----Original Message-----

From: health

[mailto:health ] On Behalf Of deuteronomy2929

Sorry, this is probably a " duh " question, but would an increase in

calcium and Vit C be of benefit?

[Guest guest]

IF IT IS VITAMIN C THAT SHE NEEDS... start grinding up so lemon and grapefruit peels and making capsules...MorningGlory113@... wrote: What builds collagen?Vitamin C. In her case...massive doses! Probably could benefit from injections of it.Gloria

Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats __________________________________________________

[Guest guest]

I think Gloria’s probably right on

the injections. In any case, it would take many more peels than I can get my

hands on to create enough capsules for her. I think I’ll just tell her

to get EsterC 1000mg capsules and start taking one every hour to bowel

tolerance. She can at least start doing that before looking into injections.

Sharyn

From:

health

[mailto:health ] On Behalf Of Suzanne

Sent: Thursday, January 04, 2007

1:20 PM

To:

health

Subject: Re:

Re: Brittle Bone Syndrome

IF IT IS VITAMIN C THAT SHE NEEDS... start grinding up so lemon

and grapefruit peels and making capsules...

[Guest guest]

What about EmergenC? My young adult children like it. 1000 mg per packet and for them it takes the place of sodas. I've been known to down a couple in a day when I want something sweet.

Shari

[Guest guest]

"What builds collagen? Vitamin C. In her case...massive doses! Probably could benefit from injections of it."

Isn't it Vit C AND calcium?

Gayla Always Enough RanchAcampo, Californiahttp://bouncinghoofs.com/alwaysenough.htmlBill Barnhill is our Inspiration! Go Bill!!!aeranch@...

[Guest guest]

Isn't it Vit C AND calcium?

I'm sure calcium wouldn't hurt. Calcium needs and acid to properly be absorbed, so I usually take them together.

Gloria

[Guest guest]

Sure... alot of desserts use grated lemon and orange peels CHERYL D JONES <cctux@...> wrote: Hi Suzanne, Just curious about the lemon and grapefruit peel. I juice them all the time and wondered how to make more use of the dry pulp from the peelings. Currently I just use it for a face mask. Can you recommend something besides capsules? Do you think throwing a handful in a smoothie or even a glass of water is as effective? Thanks for your thoughts. Peace on earth. Cheryl Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats __________________________________________________

[Guest guest]

Yes it is but she also needs sufficient magnesium. Calcium and

magnesium work together. Calcium uptake is very minimal without

magnesium from what I recall.

I have, or should I say had, one side of my family suffered from this

affliction. It was genetic in them. The two girls of the family had it

and at least one of three sons. Quite debilitating and very little that

can be done for it. If born with it then the damage is already a done

deal. Not impossible to live a good life though if one is willing to

take the necessary steps to maintain an appropriate raw living foods

diet, plenty of sunlight, fresh air, exercise as capable and an ideal

lifestyle (no partying, smoking, drinking, carousing).

Lots of fresh tender leafy greens, green smoothies, blended salads,

etc. will go a long way to offering the body the necessary nutrients

utilized in maintaining and helping to rebuild.

Just my thoughts on it.

Don

Who has plenty more thoughts to offer.

=-O

Gayla wrote:

"What builds collagen?

Vitamin C. In her case...massive

doses! Probably could benefit from injections of it."

Isn't it Vit C AND calcium?

Gayla

Always Enough Ranch

Acampo, California

http://bouncinghoofs.com/alwaysenough.html

Bill Barnhill is our Inspiration! Go Bill!!!

aeranch@...

[Guest guest]

Calcium uptake is very minimal without magnesium from what I recall.

This is true. Calcium can form deposits in the bones and joints if there is not sufficient magesium. Then we have a whole other problem to contend with. There's a perfect ratio...half the amount of magnesium to calcium. So, if it's 500 mg. of calcium, there should be 250 mg. of magesium.

Gloria

[Guest guest]

No question is stupid. And the answer is

YES she should be taking a supplement with vitamins and minerals. She was

born with a faulty system of controls (gene defect) and needs to eat a good

diet and try to support her bones as much as possible externally because

internally she can’t. People with this disorder have very traumatic

childhoods. Many times the parents are looked at for child abuse early on

because the kids breaks bones constantly, which makes things emotionally

unstable until diagnosis as well. I think the best thing for this young

lady is a lot of positive support.

Janet

From:

health

[mailto:health ] On Behalf Of deuteronomy2929

Sent: Thursday, January 04, 2007

2:14 AM

To:

health

Subject:

Re: Brittle Bone Syndrome

Sorry, this is probably a " duh " question,

but would an increase in

calcium and Vit C be of benefit? I realize it is likely one of

those " stoopid " questions, but it is the first thing that popped into

my way too sleepy mind.

Excellent response, BYT, Janet

>

> Sharyn, osteogenesis imperfecta is caused by a faulty gene. In

some people

> the gene responsible for producing a collagen for bones and

connective

> tissue simply does not produce enough, in others it produces a poor

quality

> collagen. She will always be very fragile. Some patients improve

fracture

> rates sometime after puberty until their late 30's when normal bone

loss

> occurs and causes things to go downhill again. I think the best

thing you

> can encourage her to do is quit the bad habits and eat a healthy

diet.

>

>

>

> Janet

[Guest guest]

I take Cal mag.MorningGlory113@... wrote: Calcium uptake is very minimal without magnesium from what I recall. This is true. Calcium can form deposits in the bones and joints if there is not sufficient magesium. Then we have a whole other problem to contend with. There's a perfect ratio...half the amount of magnesium to calcium. So, if it's 500 mg. of calcium, there should be 250 mg. of magesium.Gloria __________________________________________________

[Guest guest]

Mine is liquid form.MorningGlory113@... wrote: I take Cal mag.Same here. I take CalMag made by the same guy who makes Natural Calm. Put the powder in some hot water, let it fizz and drink it down. Gloria Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats __________________________________________________

[Guest guest]

Interesting, how much were you taking? I take a tablespoon daily.. no problemsMorningGlory113@... wrote: Mine is liquid form.I used to take liquid but got terrible diarrhea every time. Doesn't happen with the powder.Gloria Suzi What is a weed? A plant whose virtues have not yet been discovered. health/ http://suziesgoats.wholefoodfarmacy.com/ http://360./suziesgoats __________________________________________________