Long time member but new sufferer.

[Guest guest]

Hello everyone, I have been a member and supporter of this group for a while

now. My husband was diagnosed with cholesteatoma years ago and has had several

surgeries and complications as well. Recently however, I myself was also

diagnosed with it and will have to undergo a procedure. It has already taken the

bone in my left ear canal. Unfortunately, I was informed that this is indeed a

somewhat hereditary condition and that 2 of my children may also be suffering

from it. I am devastated by this news as is my husband. The 1st surgery he had

was done by a doctor who was not thorough and who did not follow proper

procedure which resulted in permanent damage to him that could have been

avoided. The 2nd and 3rd operations were done by a very gifted individual who

not only successfully removed it but went over the previous surgery and

successfully removed and cleaned up what the other doctor didn't with no

complications. He is the specialist I will be entrusting myself and my children

to as well. I am grateful for this group and I thank you all for the input and

insight you have given to myself and my husband over the years.