vitamin E

[Guest guest]

> >

> > Having worked many years in a hospital I know how dangerous

seemingly

> > harmless supplements can be so when I saw all the info on Vitamin

E I

> > decided to talk to a couple of Pharmacists. Both of them strongly

> > recommended not giving it to my six year old. They felt it could

> > actually be harmful for children that young. I will be trying to

find

> > out more info but did want to caution others that they may want

to

> > look into it further as well before they give it to a child.

> >

>

[Guest guest]

Vitamin World has natural Vitamin E. Most health food stores do as

well. I'm lucky - I just give it to my 3 year old son with a spoon.

People are giving all sorts of different dosages of Pro-EFA and Vitamin

E. You just have to find what works best for your child.

There are no studies/articles re: the benefits of Vitamin E for

apraxia...yet. Literally, this message board is the only place where

you'll find people trying this (unless, of course, the word has spread

to other message boards by now). Dr. (pediatrician and

Mom of apraxic son), discovered this for her child and shared with the

rest of us. If you search the archives, you'll find a wealth of info

form and other for whom this has been helpful.

>

> I have just recently learned of the Vitamin E potentials and am

> wondering where everyone is getting the natural vitamin E, how much

> they are administering and how. I.e. I put the Pro EFA in my son's

> choc. milk. Also the ProEFA has some E in it, has anyone doubled their

> does of the ProEFA? I currently give the dose recommended on the

> bottle, which is 1/2 tsp.

> Any article references to Vit. E and Apraxia etc. would be great.

> Thanks

> Dana

>

[Guest guest]

I am hoping that someday I will be able to have a better answer this

question. Right now we don't know. I suspect like you have suggested,

that it is a combination of things, including genetics, environment,

our food supply and how we overprocess foods to make them preserved

for months, for starters.

It is true, however that there really is a rise in allergies and

allergic disease - across the country and in most westernized

countries. Again a long list of theories, but no one knows for sure

why that is. Probably a combination of factors. But asthma and

allergy is rising at an amazing pace. Our visits for asthma in my

emergency Dept have gone up by over 200% over a 5 year period, and

this trend is seen in ERs across the country. I am now seeing babies

(newborns less than 30 days) present to the emergency dept with

bloody diarrhea that ends up getting diagnosed as milk-protein

allergy...even in the breast-fed kids (ie allergens passing through

breastmilk). This was very uncommon 5 years ago. Something is up,

but I don't know what it is. -

> I'm not sure if this is yet a question anyone has thought of

> the answer to, but why do you suppose we all of a sudden have a

> rising group of children with these deficiency issues?

>

> I mean with fish/omega 3s and all -it's easier to understand. They

are

> lacking in diets today -especially children's diets. On top of the

> fact it's mostly MIA from the diet -whatever measly amount most

consume

> is compromised by the " bad " fats -the saturated and transfatty

acids.

>

> But E I find confusing because it's in whole grains such as

> wheat and oats and egg yolks...and the number one kid staple -peanut

> butter!

>

> Clearly if it ends up that the majority of apraxic or apraxic

> type children respond to E the way they have to the fish oil...what

> is creating the deficiency? Why is " apraxia " on the rise? Diet?

> Environmental? Viral? Genetic?

>

> Of course I still lean towards believing that whatever is causing

> this is triggered by environmental issues

> I suspect it's more than one culprit. Most today fixate on mainly

> either lead or mercury. While I wouldn't want to expose my children

> to either of the above -I still wonder about phenol mixed with some

> of the other toxins around today like the Polychlorinated

> Biphenyls/PCBs.

>

> There's a few references that PCBs 'cause' a vitamin E deficiency.

> " PDF] Effect of simultaneous administration of polychlorinated

> biphenyls ... - 8:36pmFile Format: PDF/Adobe Acrobat

> (3) PCB causes a nutritional deficiency, such as Vitamin E

> deficiency

> www.springerlink.com/index/U22VGQ767N303318.pdf "

> But when I clicked on the link - I was not able to read the entire

> article - I'm sure you could. Here's one I did find.

> http://cat.inist.fr/?aModele=afficheN & cpsidt=921166

>

> Around where we used to live if PCBs didn't cause this...what about:

> " phenol, cadmium, chromium and lead " (and PCBs too)

> http://www.cherab.org/news/Save.html

>

> I know that having clinical studies to validate what we are seeing

> as a group with our own children will help treat the rest of the

> children (in another group for example) -but I still want to find

> the cause so we can stop this from happening in the first place.

> Besides -as I wrote in the link below -I see our children as the

> canaries in the coal mine -if there are lots of " apraxic " children

> around you there are probably more with cancer etc. -and you

> probably need to be on fish oil too. -vitamin E too? (I

> typically take whatever Tanner does -so yes I too am now on vitamin

> E!)

>

> =====

>

[Guest guest]

Thanks for the information. I have convinced our pediatrician (thanks

to information obtained by this board)to let us start my 4 year old on

400 IU of Vitamin e. We started her on the alpha 2 days ago and I am

anxiously waiting to see results. Before starting the vitamin e,

though, our pediatrician wanted to check blood levels for carnitine

and some other things. Haven't heard back from those yet. Our

daughter has also been taking 2 Pro EFA juniors a day for the past

year. Her progress has been very slow. I'm wondering if now that she

is on vitamin e if we should switch to Pro EFA and add the EPA. Any

suggestions?

>

> As I've stated before...the research dose not yet exist. This is a new

> discovery that occurred this past summer, quite by accident. You can

> check the archives for the details. Yes, there NEEDS to be a study,

> and with a little luck there will be one in the next few years. this

> doesn't seem to be a " vit E deficiency " as much as some abnormal

> processing of vit E. The symptoms of apraxia overlap those of a vit E

> deficiency...and those are the symptoms (speech, coordination, sensory

> issues, pain perception, muscle tone)...that improve on vit E + fish

> oil. In the meantime over 75 families have posted improvements since

> I posted my son's story in August. It seems to work for many children

> with apraxia. But since there is not literature to support this, just a

> growing number of anecdotal stories...everyone needs to make a decision

> for themselves. But vit E is safe in the doses we have discussed here.

> Motrin also causes bleeding, and tylenol causes liver damage over

> time...yet they are taken with little thought to complications. An in

> general...they are safe for the masses. There is no guarentee that

> there won't be someone out there that may have an adverse event. But in

> general...many medications given to our children are not tested for

> children, and everything medication has the potential for adverse

> events. My son was put on reglan for severe reflux and the neurological

> adverse events he experienced as a result were sufficient enough for me

> to never perscribe the drug to another child again, since there are

> better alternatives. There have been several deaths from the use of

> over the counter cold medicines in children (actually a practice I

> don't recommend - I can't tell you how many unhappy families I have

> worked with that get upset when I refuse to write a perscription for

> cold medicines - which don't really work, anyway). Perscriptions for

> ritalin are commonplace...yet eyebrows are raised at using fish oil for

> ADHD. (This is not to say there isn't a place for ritalin...it too has

> normalize the lives of many children with ADHD who really benefit from

> this intervention).

>

> It is a good thing for your pediatricians to question a treatment plan

> that is not yet studied in children. But if someone does there

> homework, and actually spends some time looking up the side effects of

> vit E etc...they will find like I did, that the " dangers " are a myth.

> Fortunately vit E and fish oil is very safe. But for us...it has become

> an essential treatment plan for my son...the alternative being a return

> of the apraxia - which we just saw with his stomach flu after just 2

> days off supplements. Now that we've seen what he is like without this

> disability...we will never go back. -claudia

> -------------------------------

> > Until reading the posts on this board, I had not heard anything about

> > the benefits of Vitamin E. I plan to talk to our pediatrician about

> > this. I know before she approves us giving our 4 yr old this

> > supplement, she's going to want to see research or some other

> > " official " literature about this. Does anyone have this research or

> > other literature about Vitamin E and apraxia or know where I could

> > find it?

> >

> > Thanks,

> > Ann

> >

>

[Guest guest]

> >

> > As I've stated before...the research dose not yet exist. This is

a new

> > discovery that occurred this past summer, quite by accident. You

can

> > check the archives for the details. Yes, there NEEDS to be a

study,

> > and with a little luck there will be one in the next few years.

this

> > doesn't seem to be a " vit E deficiency " as much as some abnormal

> > processing of vit E. The symptoms of apraxia overlap those of a

vit E

> > deficiency...and those are the symptoms (speech, coordination,

sensory

> > issues, pain perception, muscle tone)...that improve on vit E +

fish

> > oil. In the meantime over 75 families have posted improvements

since

> > I posted my son's story in August. It seems to work for many

children

> > with apraxia. But since there is not literature to support this,

just a

> > growing number of anecdotal stories...everyone needs to make a

decision

> > for themselves. But vit E is safe in the doses we have discussed

here.

> > Motrin also causes bleeding, and tylenol causes liver damage over

> > time...yet they are taken with little thought to complications.

An in

> > general...they are safe for the masses. There is no guarentee

that

> > there won't be someone out there that may have an adverse event.

But in

> > general...many medications given to our children are not tested

for

> > children, and everything medication has the potential for adverse

> > events. My son was put on reglan for severe reflux and the

neurological

> > adverse events he experienced as a result were sufficient enough

for me

> > to never perscribe the drug to another child again, since there

are

> > better alternatives. There have been several deaths from the use

of

> > over the counter cold medicines in children (actually a practice

I

> > don't recommend - I can't tell you how many unhappy families I

have

> > worked with that get upset when I refuse to write a perscription

for

> > cold medicines - which don't really work, anyway).

Perscriptions for

> > ritalin are commonplace...yet eyebrows are raised at using fish

oil for

> > ADHD. (This is not to say there isn't a place for ritalin...it

too has

> > normalize the lives of many children with ADHD who really benefit

from

> > this intervention).

> >

> > It is a good thing for your pediatricians to question a treatment

plan

> > that is not yet studied in children. But if someone does there

> > homework, and actually spends some time looking up the side

effects of

> > vit E etc...they will find like I did, that the " dangers " are a

myth.

> > Fortunately vit E and fish oil is very safe. But for us...it has

become

> > an essential treatment plan for my son...the alternative being a

return

> > of the apraxia - which we just saw with his stomach flu after

just 2

> > days off supplements. Now that we've seen what he is like without

this

> > disability...we will never go back. -claudia

> > -------------------------------

> > > Until reading the posts on this board, I had not heard anything

about

> > > the benefits of Vitamin E. I plan to talk to our pediatrician

about

> > > this. I know before she approves us giving our 4 yr old this

> > > supplement, she's going to want to see research or some other

> > > " official " literature about this. Does anyone have this

research or

> > > other literature about Vitamin E and apraxia or know where I

could

> > > find it?

> > >

> > > Thanks,

> > > Ann

> > >

> >

>

[Guest guest]

Thanks, . I was thinking I should switch to the EFA and EPA.

I'll gradually increase her dosage. Hope it helps!!

> > >

> > > As I've stated before...the research dose not yet exist. This is

> a new

> > > discovery that occurred this past summer, quite by accident. You

> can

> > > check the archives for the details. Yes, there NEEDS to be a

> study,

> > > and with a little luck there will be one in the next few years.

> this

> > > doesn't seem to be a " vit E deficiency " as much as some abnormal

> > > processing of vit E. The symptoms of apraxia overlap those of a

> vit E

> > > deficiency...and those are the symptoms (speech, coordination,

> sensory

> > > issues, pain perception, muscle tone)...that improve on vit E +

> fish

> > > oil. In the meantime over 75 families have posted improvements

> since

> > > I posted my son's story in August. It seems to work for many

> children

> > > with apraxia. But since there is not literature to support this,

> just a

> > > growing number of anecdotal stories...everyone needs to make a

> decision

> > > for themselves. But vit E is safe in the doses we have discussed

> here.

> > > Motrin also causes bleeding, and tylenol causes liver damage over

> > > time...yet they are taken with little thought to complications.

> An in

> > > general...they are safe for the masses. There is no guarentee

> that

> > > there won't be someone out there that may have an adverse event.

> But in

> > > general...many medications given to our children are not tested

> for

> > > children, and everything medication has the potential for adverse

> > > events. My son was put on reglan for severe reflux and the

> neurological

> > > adverse events he experienced as a result were sufficient enough

> for me

> > > to never perscribe the drug to another child again, since there

> are

> > > better alternatives. There have been several deaths from the use

> of

> > > over the counter cold medicines in children (actually a practice

> I

> > > don't recommend - I can't tell you how many unhappy families I

> have

> > > worked with that get upset when I refuse to write a perscription

> for

> > > cold medicines - which don't really work, anyway).

> Perscriptions for

> > > ritalin are commonplace...yet eyebrows are raised at using fish

> oil for

> > > ADHD. (This is not to say there isn't a place for ritalin...it

> too has

> > > normalize the lives of many children with ADHD who really benefit

> from

> > > this intervention).

> > >

> > > It is a good thing for your pediatricians to question a treatment

> plan

> > > that is not yet studied in children. But if someone does there

> > > homework, and actually spends some time looking up the side

> effects of

> > > vit E etc...they will find like I did, that the " dangers " are a

> myth.

> > > Fortunately vit E and fish oil is very safe. But for us...it has

> become

> > > an essential treatment plan for my son...the alternative being a

> return

> > > of the apraxia - which we just saw with his stomach flu after

> just 2

> > > days off supplements. Now that we've seen what he is like without

> this

> > > disability...we will never go back. -claudia

> > > -------------------------------

> > > > Until reading the posts on this board, I had not heard anything

> about

> > > > the benefits of Vitamin E. I plan to talk to our pediatrician

> about

> > > > this. I know before she approves us giving our 4 yr old this

> > > > supplement, she's going to want to see research or some other

> > > > " official " literature about this. Does anyone have this

> research or

> > > > other literature about Vitamin E and apraxia or know where I

> could

> > > > find it?

> > > >

> > > > Thanks,

> > > > Ann

> > > >

> > >

> >

>

[Guest guest]

Additional info...on the Vitamin E.

Please see Gretchen's post #46550, items #5 & 7. (2/21/08 Integrated Neurology)

I'm a little behind on reading emails. Can't keep up actually, but glad I saw

this one!

Thanks so much for finding this information, Gretchen! It's a great list!!!!

I take 400 mgs of Vitamin E with no issues.

[Guest guest]

I have to hit " reply " to send a message. Don't know why just sending to

the group won't work but this is a message to all.

Another group (iodine) said Dr. Blaylock's newsletter said C & E should

be taken together. C is a problem without E and E can be a problem

also.

Has anyone information on this? I've been taking Red Palm Oil for it's

spectrum of E and not taking C because I ran out. I never bothered to

take it together anyway.

Any light?

Parashis

[Guest guest]

Vitamin C requirement is a complicated topic. As with many vitamins, there are

variety of factors that can raise or lower your requirement.

Here are just two studies that show the interaction of C & E:

http://www.springerlink.com/content/e0k8730x61362ur1/

http://jn.nutrition.org/cgi/content/abstract/132/4/748

Even macro nutrients can affect vitamin requirements. In the case of vitamin C,

carbs increase your requirement for vitamin C, vitamin C and glucose compete for

insulin in order to pass through cell membranes. However, glucose is favored so

that when you have chronically high blood sugar, vitamin C absorption efficiency

drops significantly. Vitamin C has a short life in the blood so if it's not

absorbed quickly, it breaks down. This is why white flour and sugar cause scurvy

without large amounts of vitamin C.

--- In , Parashis <artpages@...>

wrote:

>

> I have to hit " reply " to send a message. Don't know why just sending to

> the group won't work but this is a message to all.

>

> Another group (iodine) said Dr. Blaylock's newsletter said C & E should

> be taken together. C is a problem without E and E can be a problem

> also.

>

> Has anyone information on this? I've been taking Red Palm Oil for it's

> spectrum of E and not taking C because I ran out. I never bothered to

> take it together anyway.

>

> Any light?

>

> Parashis

>

[Guest guest]

That's really interesting! So the more carbs we eat the more vitamin C we need.

I wonder if fruit sugar affects its absorption the same way, since fruit is the

usual source of natural vitamin C (she said, popping another uncannily sweet

grape into her mouth).

> >

> > I have to hit " reply " to send a message. Don't know why just sending to

> > the group won't work but this is a message to all.

> >

> > Another group (iodine) said Dr. Blaylock's newsletter said C & E should

> > be taken together. C is a problem without E and E can be a problem

> > also.

> >

> > Has anyone information on this? I've been taking Red Palm Oil for it's

> > spectrum of E and not taking C because I ran out. I never bothered to

> > take it together anyway.

> >

> > Any light?

> >

> > Parashis

> >

>