Re: Hearing reconstruction

[Guest guest]

I have very limited knowledge in this however I would say from my own experience

any form of tinnitus ( such as hearing your own voice) is a good sign since you

are hearing something. It means even though your canal is not passing sound

right now due to your surgery, your nerves are still able to work and transmit

noises to you even if it is annoying! Lol.

I guess it just comes down to the irritating waiting game for everything to

heal.

All the best, Becca.

-- In cholesteatoma , " JimmyT " <jimmytudor91@...> wrote:

>

> Hi guys- I've got a question about hearing.

>

> I had inner ear mastoid surgery about 3 weeks ago. I think it's kind of a

typical story for people with cholesteatomas but when I was a kid I had two

surgeries- one to remove the growth and the next one to make sure the growth

hadn't come back and to try and get my hearing to work.

>

> The doc put a cadaver bone in there but the conduction never worked right so

for the last 20 years I've had about 20% hearing in that ear. Finally gathering

the courage (and insurance) I got a specialist and he was enthusiastic after

seeing the CT scan.

>

> I had the surgery about 3 weeks ago and doc put a titanium thing in there. He

said it could take 6 or more weeks before we can tell how improved my hearing

will be because of the packing they put in there needs to disolve.

>

> It's hard to find first hand accounts about how this process worked for folks

so I thought I'd ask if anyone here has any experience with this? Did hearing

improve? Any complications?

>

> Right now my ear is starting to feel much more normal. The swelling is down

and the only drainage is the dissolving packing doc put in the ear canal on the

outside of the ear drum. Doc also enlarged my ear hole opening and used soft

tissue to fill the cavity my last surgery left to help alleviate outer ear

infections. I can just barely hear a teeny bit out my ear right now. For a few

days this thing was happening where my own voice was really loud in my ear even

though I couldn't hear out of it. Doc said that was a good sign haha.

>

> Ok thanks guys and here's to good hearing!

>

> Jimmy

>

[Guest guest]

My son had a titanium rod placed in just over a year ago. This was the “second look” and the growth had not come back so that is why they went ahead with the rod (as an earbone). The year prior they put in a prosthetic eardrum (I am still not sure what that is made out of). They did not do a hearing test for at least three or four months later because that gel pack can take quite awhile to dissolve. He tested at a hearing level of 36; it was 56 prior to surgery. His good ear was at a 3. I would like to have another test conducted sometime soon because I recall that even more gunk came out of his ear after the post-surgery hearing test. Good luck! From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of JimmyTSent: Tuesday, January 18, 2011 12:13 PMcholesteatoma Subject: Hearing reconstruction Hi guys- I've got a question about hearing. I had inner ear mastoid surgery about 3 weeks ago. I think it's kind of a typical story for people with cholesteatomas but when I was a kid I had two surgeries- one to remove the growth and the next one to make sure the growth hadn't come back and to try and get my hearing to work.The doc put a cadaver bone in there but the conduction never worked right so for the last 20 years I've had about 20% hearing in that ear. Finally gathering the courage (and insurance) I got a specialist and he was enthusiastic after seeing the CT scan.I had the surgery about 3 weeks ago and doc put a titanium thing in there. He said it could take 6 or more weeks before we can tell how improved my hearing will be because of the packing they put in there needs to disolve.It's hard to find first hand accounts about how this process worked for folks so I thought I'd ask if anyone here has any experience with this? Did hearing improve? Any complications?Right now my ear is starting to feel much more normal. The swelling is down and the only drainage is the dissolving packing doc put in the ear canal on the outside of the ear drum. Doc also enlarged my ear hole opening and used soft tissue to fill the cavity my last surgery left to help alleviate outer ear infections. I can just barely hear a teeny bit out my ear right now. For a few days this thing was happening where my own voice was really loud in my ear even though I couldn't hear out of it. Doc said that was a good sign haha.Ok thanks guys and here's to good hearing!JimmyNo virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1191 / Virus Database: 1435/3388 - Release Date: 01/18/11

[Guest guest]

My daughter has had this done three times. It worked GREAT for her, but was twice displaced by regrowth of the ctoma. It seemed to take about 3 months for her hearing to get to " normal " , but it was obvious that she could hear after three or four weeks. The one she has now did not seat right as she also had a nearly complete regraft of the tympanic membrane, primarily made of cartilage to resist against another new ctoma forming.

 

We are willing to try again in the future, because it really was a great improvement to the quality of her life. We would like to get through at least one year without more cholesteatoma!

On Tue, Jan 18, 2011 at 4:05 PM, e Hammond <kristinehammond@...> wrote:

My son had a titanium rod placed in just over a year ago.  This was the “second look” and the growth had not come back so that is why they went ahead with the rod (as an earbone).  The year prior they put in a prosthetic eardrum (I am still not sure what that is made out of).  They did not do a hearing test for at least three or four months later because that gel pack can take quite awhile to dissolve.  He tested at a hearing level of 36; it was 56 prior to surgery.  His good ear was at a 3.  I would like to have another test conducted sometime soon because I recall that even more gunk came out of his ear after the post-surgery hearing test.

 

Good luck!

 

From: cholesteatoma [mailto:cholesteatoma ] On Behalf Of JimmyT

Sent: Tuesday, January 18, 2011 12:13 PMcholesteatoma Subject: Hearing reconstruction

 

 

Hi guys- I've got a question about hearing. I had inner ear mastoid surgery about 3 weeks ago. I think it's kind of a typical story for people with cholesteatomas but when I was a kid I had two surgeries- one to remove the growth and the next one to make sure the growth hadn't come back and to try and get my hearing to work.

The doc put a cadaver bone in there but the conduction never worked right so for the last 20 years I've had about 20% hearing in that ear. Finally gathering the courage (and insurance) I got a specialist and he was enthusiastic after seeing the CT scan.

I had the surgery about 3 weeks ago and doc put a titanium thing in there. He said it could take 6 or more weeks before we can tell how improved my hearing will be because of the packing they put in there needs to disolve.

It's hard to find first hand accounts about how this process worked for folks so I thought I'd ask if anyone here has any experience with this? Did hearing improve? Any complications?Right now my ear is starting to feel much more normal. The swelling is down and the only drainage is the dissolving packing doc put in the ear canal on the outside of the ear drum. Doc also enlarged my ear hole opening and used soft tissue to fill the cavity my last surgery left to help alleviate outer ear infections. I can just barely hear a teeny bit out my ear right now. For a few days this thing was happening where my own voice was really loud in my ear even though I couldn't hear out of it. Doc said that was a good sign haha.

Ok thanks guys and here's to good hearing!Jimmy

No virus found in this message.Checked by AVG - www.avg.comVersion: 10.0.1191 / Virus Database: 1435/3388 - Release Date: 01/18/11

[Guest guest]

I am waiting for reconstruction surgery, too. But I don't know weather or not

they are going to use titanium or not. The surgion have told me that they will

do a skin transplantation and take some fat from my tummy to cover up my exposed

bones behind my ear. I had a large ctoma removed when I was 7 years old (30

years ago).

Right no I feel pretty awful. I have pain in my ear, i am dizzy all the time and

i have tinnitus all the time. Right no I have at least 4 different sounds and

they are loud.

I have been told that I have to wait until May before I have a surgery. So until

then I am taking a lot of painkillers, I can't manage to work and I can't drive.

i have tried some very easy exersice (pilates), but it is making me very dizzy

so I don't know weather or not it is a good idea.