Re: A delicate question

[Guest guest]

In a message dated 4/14/00 8:18:13 AM Eastern Daylight Time,

bulwinkl@... writes:

I will try to phrase this as nicely as possible so as not to offend

anyone. Please don't be offended, or if you are easily offended,

please delete this message.

****

I use a condom during menstration, just to be safe.

debmc

[Guest guest]

Best way to answer this is you should use a condom. Better to be safe than

sorry the saying goes!!!! Wish you all the luck, Irish

[Guest guest]

Colleen....

As far as I know, I contracted hepC in '85 from blood given during heart

surgery. It was not diagnosed until '94 (2nd time around on the heart

surgery). In the intervening years we had unprotected intercourse,

although for the most part not while I was menstruating. There is no

evidence that my husband has contracted hepC.

I am willing to talk about this subject openly, but if you have other

questions that you would like to ask privately, I would be glad to

answer them...

Merril

[Guest guest]

My husband and I have been together for about 25 years and married 15. He

was diagnosed about 3 years ago and has probably had the virus about 30

years. For a year, I have been carrying around a lab order to be tested

myself, and could never bring myself to do it until this morning. We were at

the lab for my husband to have pre-op tests, and I just went ahead and did

it. The receptionist laughed as she unfurled the worn papers. Should know

something in a couple of days. Yikes. I have no idea what I will do with

the information--positive or negative.

Tree

[Guest guest]

Colleen: I don't think I would take any chances. Tree

[Guest guest]

I know what you mean about having the referral and not doing anything with

it. I have mine since October99. Don't know if I ever will. We have been

together for 28 years and married for 26. I hear the chances are practically

null and void for my having it, but... Hope all goes well with your husband.

Irish

[Guest guest]

Colleen,

My husband and I were also intimate during " that time "

prior to my having a hysterectomy. Even though he

wasn't diagnosed for many years after the

hysterectomy, he was already infected. We spent many

years after the surgery never practicing " safe sex " as

we had no reason that we knew of. I have tested

negative.

My suggestion would be the same as deb's: use a

condom during " that time " just for safety sake. Our

doctors have told me that we do not have to use a

condom on a regular basis as they don't believe that

the chance of passing hepC through regular sex

warrants it.

I'm glad you felt free enough to ask your question.

That is how we all learn. Please feel free to ask us

anything. If someone is not comfortable with the

question they can delete and not respond.

Jeanie

--- Colleen Rundle <bulwinkl@...> wrote:

> I will try to phrase this as nicely as possible so

> as not to offend

> anyone. Please don't be offended, or if you are

> easily offended,

> please delete this message.

>

> First some background. My dh and I have been

> together for 10 years.

> I contracted hep c via blood transfusion during

> cancer treatment in

> 1987, but was not diagnosed until last year. So you

> can see that

> there were many years in between when we had

> unprotected " marital

> relations " since we didn't know of my infection. I

> have been nursing

> a baby and on Depo Provera since my diagnosis, but

> have ceased both

> and menstruation will soon begin again. My question

> is this - should

> we totally abstain during that time? Keep in mind

> there is blood

> invovled (duh, right?) and I do not want to put him

> at risk as he is

> uninfected. He says he is not concerned, but I

> can't help thinking

> that it's playing with fire. We were intimate many

> times during

> " that

> time " prior to my diagnosis and he was not infected,

> but now that I

> know, I am concerned.

>

> Once again, I hope I have not offended anyone.

> Please feel free to

> respond to me privately if you do not feel this

> topic is appropriate

> for others on the list.

>

> Thank you for your time.

>

> -Colleen

>

>

>

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[Guest guest]

My husband went to the DR.S for a pancreas test also. They found hep-c

instead. I find that strange, with your telling me about your husband too.

Guess we should be thankful either way. To know for you it isn't cancer and

for both of us what IT is. Irish

[Guest guest]

Thanks Carol. I'm just not going to worry about it (although it seems the

things I don't worry enough about turn out to be bad, and the things I

agonize over tend to be nothing). I don't have symptoms, but I know that

doesn't mean anything.

I was so busy talking about me, I forgot to mention that my husband's CT scan

results were good. The lesions that were present in last year's baseline CT

scan were not there this year! Do you suppose it was the milk thistle?

That's all he's taking (about 210 mg daily). Today's blood tests will give

us a better idea of where he stands with the virus.

Tree

[Guest guest]

Thank you Irish. I don't know what got into me this morning. I told the

nurse to hurry up before I changed my mind. She laughed, but I meant it. (I

can live very nicely with my head in the sand, thank you.) Have a good

weekend.

Tree

[Guest guest]

This is a subject that has been studied by several institutions,

unfortunately, there is no conclusive evidence that you can transmit the

disease this way.

However, using caution is the best method in every aspect of a deadly virus.

To relay my own story,

It's likely that I have had HCV all my life. My mother died of it in 1988.

We may have gotten it at the same time or I could have picked it up later. I

have had 2 husbands and several lovers.

In the past, (before my diagnosis) the only time I wouldn't use a form of

contraception is when I was menstruating (with the husbands). Thinking,

heck, I can't get pregnant, so why bother. Sometimes intercourse can happen

when you are on your first day or last day when you think you are finished.

Both my husbands test negative for STD's and HIV and HCV.

There is some expert opinions that believe that only open sores and

contaminated blood will transmit HCV. So, if your husband has an open sore

and you have HCV you should refrain from unprotected sex.

If you husband has HCV and you have cervical sores, you should refrain from

unprotected sex.

In my years in research, I have talked with several hundred couples. It is

very rare to have 2 people within the couple test positive because of sexual

transmission. But it's more likely that because some couples share razors

and toothbrushes, HCV will be shared by the two.

Your safest advice is ALWAYS USE CAUTION

Sharon Nicholson

Hepatitis Education & Patient Coalition (H. E. P. C.)

Executive Director

<A HREF= " http://www.suite101.com/welcome.cfm/hepatitis_abc " >Hepatitis A, B,

C's - editor Suite101.com</A>

http://www.suite101.com/welcome.cfm/hepatitis_abc

Join our e-group mailing list online!

<A HREF= " /group/ArizonaHepatitis C " >eGroups :

ArizonaHepatitis C</A>

/group/ArizonaHepatitis C

[Guest guest]

Hi Tree,

It was somewhat the same for me. We've been married for 23 yrs. We found out

about my husband having hepc 3 yrs ago when he became very ill. He has

apparantly had it for a very long time. At first the Doctor told us that he

was sure it was pancreatice cancer. Then 2 days later after being

hospitalized and tests run the Dr. said it wasn't cancer but he thought it

was hepc. We were both so devastated with the original diagnosis that in

some ways the hepc diagnosis was a relief. My husband was very upset with

the possibility that he might have passed it to me. My test results came

back as neg. and we had all three children tested and they were negative

also. I know this doesn't make your wait any easier but thought I would let

you know I'll be thinking about you and will keep you in my prayers.

Carol

Re: A delicate question

My husband and I have been together for about 25 years and married 15. He

was diagnosed about 3 years ago and has probably had the virus about 30

years. For a year, I have been carrying around a lab order to be tested

myself, and could never bring myself to do it until this morning. We were

at

the lab for my husband to have pre-op tests, and I just went ahead and did

it. The receptionist laughed as she unfurled the worn papers. Should know

something in a couple of days. Yikes. I have no idea what I will do with

the information--positive or negative.

Tree

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[Guest guest]

I have chosen to abstain or use condoms during that time for precautions

also.

A delicate question

>I will try to phrase this as nicely as possible so as not to offend

>anyone. Please don't be offended, or if you are easily offended,

>please delete this message.

>

>First some background. My dh and I have been together for 10 years.

>I contracted hep c via blood transfusion during cancer treatment in

>1987, but was not diagnosed until last year. So you can see that

>there were many years in between when we had unprotected " marital

>relations " since we didn't know of my infection. I have been nursing

>a baby and on Depo Provera since my diagnosis, but have ceased both

>and menstruation will soon begin again. My question is this - should

>we totally abstain during that time? Keep in mind there is blood

>invovled (duh, right?) and I do not want to put him at risk as he is

>uninfected. He says he is not concerned, but I can't help thinking

>that it's playing with fire. We were intimate many times during

> " that

>time " prior to my diagnosis and he was not infected, but now that I

>know, I am concerned.

>

>Once again, I hope I have not offended anyone. Please feel free to

>respond to me privately if you do not feel this topic is appropriate

>for others on the list.

>

>Thank you for your time.

>

>-Colleen

>

>

>------------------------------------------------------------------------

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>Download one Today from Corbis.com

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>

>

>

[Guest guest]

Tree, can you ask your DR. if the Milk Thistle helped? My husband has to go

for a scan also in May, hope there is some good news but I hate this waiting.

Good news about your Hubby.

[Guest guest]

Irish. I did mention the milk thistle when we heard the good results, and

the doctor said it very well could have been responsible. He went on to say

that some serious studies have shown it to be effective in protecting the

liver. Althought he wasn't the one to bring it up, he did concur with my

husband taking it.

Maybe you and I ought to take it too.

Tree

[Guest guest]

Sounds good to me. At least he acknowledges the possibility. Some DR. S

including my Husbands do not believe in this. I am going to wait till his

scan is done and we get the results and depending on what is found and or

said I may bring it up one more time. Problem with going to a clinic is there

aren't to many other GI DR. S if any. Well, you have a good weekend and keep

in touch OK Irish.

[Guest guest]

Coleen-I think that was a legitimate concern. My basic belief is that your

blood must be mixed in some small infinate way with his. Now if he has a

cut, etc. and gets some of your blood in it.

I normally abstain from sex during my wifes menstrustion just because it was

considered unclean. Now that she is in menopause, we don't have that

concern. We have been married for over 23 years and didn't use any

protection and she never contacted Hep_C from me. Thank God.

That is my experience-hope it helps.

Bob Simons

bsimons@...

Royal Rangers

Outpost 48

Tucson, AZ.

A delicate question

>I will try to phrase this as nicely as possible so as not to offend

>anyone. Please don't be offended, or if you are easily offended,

>please delete this message.

>

>First some background. My dh and I have been together for 10 years.

>I contracted hep c via blood transfusion during cancer treatment in

>1987, but was not diagnosed until last year. So you can see that

>there were many years in between when we had unprotected " marital

>relations " since we didn't know of my infection. I have been nursing

>a baby and on Depo Provera since my diagnosis, but have ceased both

>and menstruation will soon begin again. My question is this - should

>we totally abstain during that time? Keep in mind there is blood

>invovled (duh, right?) and I do not want to put him at risk as he is

>uninfected. He says he is not concerned, but I can't help thinking

>that it's playing with fire. We were intimate many times during

> " that

>time " prior to my diagnosis and he was not infected, but now that I

>know, I am concerned.

>

>Once again, I hope I have not offended anyone. Please feel free to

>respond to me privately if you do not feel this topic is appropriate

>for others on the list.

>

>Thank you for your time.

>

>-Colleen

>

>

>------------------------------------------------------------------------

>1.6 Million Digital Images!

>Download one Today from Corbis.com

>1/3356/6/_/96144/_/955714617/

>------------------------------------------------------------------------

>

>

>

[Guest guest]

Everyone...this IS a delicate question in more ways than one, and while

this would have been much more suited for the Adult LP's Group, it

has already been carefully presented here, but opening up the potential

for some to be very graphic. Maybe not...but I must remind you: if your

reply IS graphic in ANY way, to please keep your responses private on this

topic. Also, please keep in mind, the Dwarfism Group has been listed in

's " Health and Wellness " section since we began, and we want to remain

there. Remember, parents who have just learned their baby or child has been

diagnosed with a form of dwarfism, begin their search HERE, seeking

information and support from us. When people go to LPA Online or enter

" dwarfism "

into their search engine, the Dwarfism Group is what comes up first, and I

can tell you we get new parents each day who do join to begin their

heartfelt journey of learning here. New parents are only part of who join this

group each day, all for various reasons...mostly very honorable, and some not

at all honorable. This is why certain rules were created and why we need

a moderator. Uh, by the way, when DO I get my raise, folks?!! ; )

Kidding. JUST KIDDING. Anyway, I am asking you to please keep these thoughts

in

mind when responding to this message.

In a message dated 3/29/11 4:13:07 A.M. Pacific Standard Time,

TwirlyGirly1@... writes:

I belong to several non-LP related groups. Recently, a member of one of

these groups wrote the following:

" f Herve Villachez (3 feet and change) were married to Shields

(6 feet plus), guess what....he would not be able to make her go " boom "

to save his life. "

Now I realize Hervé is no longer with us. But that's not the issue. It's

the size thing!

Being that I have no personal experience in this area (have only dated

AP's), I need some help with this. I think I remember reading somewhere

that the " boy parts " of LP men are generally NOT affected by whatever

type of dwarfism they have, meaning their " boy parts " are in the same

size range as an AP's " boy parts " (although I assume they might appear

*larger* in comparison to the rest of their body - which I think would

be a plus psychologically!!) If this is generally true, does it differ

depending upon the type of dwarfism?

As I am always trying to correct misconceptions whenever they occur (see

my sig line), I would appreciate clarification of this issue!

Thanks a lot!

TG

--

Twirly Girly: Champion of the Misquoted and Misunderstood (cape not

included)

THIS message and any attachments are CONFIDENTIAL and may be privileged.

They are intended ONLY for the individual or entity named.

Copying or forwarding this message, or the thoughts contained herein, in

whole or in part to any other mailbox - without permission of the author -

is forbidden.

[Guest guest]

Hello List,

There have been no documented studies on this and I'm sure there will not

be. I will keep this to a simple science I believe that would probably

make sense to people. There are some dwarfisms that are proportional and

some that are not. In proportional dwarfism, the entire person is smaller.

Examples of this and correct me here if I am wrong are s Syndrome and

and Folks with GH deficiency. Dwarfisms such as Achondroplasia and

Diastrophic (did I spell that right) are not proportional dwarfisms. The

limbs and skeletal systems are affected. Seeing as the area we are refering

to in not part of the skeletal system, I would guess that it may not be

affected. This is my complete unprofessional advice. Feel free to chime

in here anywhere where I might have gotten it wrong. I tried to answer this

as if a teenager had asked me.

-Casey Hubelbank

On Tue, Mar 29, 2011 at 1:51 PM, <BASHUM7894@...> wrote:

>

>

> Everyone...this IS a delicate question in more ways than one, and while

> this would have been much more suited for the Adult LP's Group, it

> has already been carefully presented here, but opening up the potential

> for some to be very graphic. Maybe not...but I must remind you: if your

> reply IS graphic in ANY way, to please keep your responses private on this

> topic. Also, please keep in mind, the Dwarfism Group has been listed in

> 's " Health and Wellness " section since we began, and we want to remain

>

> there. Remember, parents who have just learned their baby or child has been

>

> diagnosed with a form of dwarfism, begin their search HERE, seeking

> information and support from us. When people go to LPA Online or enter

> " dwarfism "

> into their search engine, the Dwarfism Group is what comes up first, and I

> can tell you we get new parents each day who do join to begin their

> heartfelt journey of learning here. New parents are only part of who join

> this

> group each day, all for various reasons...mostly very honorable, and some

> not

> at all honorable. This is why certain rules were created and why we need

> a moderator. Uh, by the way, when DO I get my raise, folks?!! ; )

> Kidding. JUST KIDDING. Anyway, I am asking you to please keep these

> thoughts in

> mind when responding to this message.

>

>

> In a message dated 3/29/11 4:13:07 A.M. Pacific Standard Time,

> TwirlyGirly1@... writes:

>

> I belong to several non-LP related groups. Recently, a member of one of

> these groups wrote the following:

>

> " f Herve Villachez (3 feet and change) were married to Shields

> (6 feet plus), guess what....he would not be able to make her go " boom "

> to save his life. "

>

> Now I realize Hervé is no longer with us. But that's not the issue. It's

> the size thing!

>

> Being that I have no personal experience in this area (have only dated

> AP's), I need some help with this. I think I remember reading somewhere

> that the " boy parts " of LP men are generally NOT affected by whatever

> type of dwarfism they have, meaning their " boy parts " are in the same

> size range as an AP's " boy parts " (although I assume they might appear

> *larger* in comparison to the rest of their body - which I think would

> be a plus psychologically!!) If this is generally true, does it differ

> depending upon the type of dwarfism?

>

> As I am always trying to correct misconceptions whenever they occur (see

> my sig line), I would appreciate clarification of this issue!

>

> Thanks a lot!

>

> TG

>

> --

> Twirly Girly: Champion of the Misquoted and Misunderstood (cape not

> included)

>

> THIS message and any attachments are CONFIDENTIAL and may be privileged.

> They are intended ONLY for the individual or entity named.

> Copying or forwarding this message, or the thoughts contained herein, in

> whole or in part to any other mailbox - without permission of the author -

> is forbidden.

>

>