New Member Question

[Guest guest]

I found paper to be a problem, they seemed to at the very least, provide a place in which the mites could breed and hide. May I suggest instead of the paper pellets, using cedar chips that they use in hamster cages. Make a mix of that and the paper pellets. the cedar would then help to repel bugs. I found daily replacement necessary as well. Seems like quite the expensive proposition with 50 show birds.

Listerine contains "thymol" in which is shown to have a high anti mite activity. I know Ray has used it on his person with success. This is why it works.

New member question

Does anyone have any suggestions that might help for someone who has pet birds and getting rid of them is not an option?

Kathy

[Guest guest]

Cedar is toxic to birds unfortunately.

Kathy

New member question

Does anyone have any suggestions that might help for someone who has pet birds and getting rid of them is not an option?

Kathy

[Guest guest]

Oh...I just remembered that another thing I have done is placed eucalyptus soaked cotton balls around the house and in the couch cushions etc.

Kathy

New member question

Does anyone have any suggestions that might help for someone who has pet birds and getting rid of them is not an option?

Kathy

[Guest guest]

I did not know that, thank you.

New member question

Does anyone have any suggestions that might help for someone who has pet birds and getting rid of them is not an option?

Kathy

[Guest guest]

Quarantine is probably your best bet along with Ivermectin and constant

cleaning. Isolating and only dealing with the ones present on the bird

might give you a better chance of keeping the bird. I think vets do

this. I've read two people on the forum who treated their animals and

I think one person who did their animal for a month got rid of them and

the other tried two weeks and had no success. This is only from

memory. I would search the forum for previous people with animals. It

is probably very expensive though.

>

> Does anyone have any suggestions that might help for someone who has

pet birds and getting rid of them is not an option?

>

>

> Kathy

>

[Guest guest]

>

> Oh...I just remembered that another thing I have done is placed

eucalyptus soaked cotton balls around the house and in the couch

cushions etc.

>

> Kathy

Kathy -

You didn't say (at least from what I saw!) whether these mites were

bothering you or anyone in your household, or just the birds.

I had nearly 50 birds myself until 6 months ago. I bred rare

mutations of parrotlets and tiels, and had Rosy Bourkes and some

wonderful budgies that were over 8 years old that I'd hand fed.

When I became so ill last fall that I could no longer really care for

myself I did what I had thought was the unthinkable. I called Parrot

Rescue and they took every one of my angels. I donated $3,000 to the

organization to be sure they were taken care of. I still cry to this

day over them.

Prior to reaching that stage, I had thought about downsizing a little

at a time and keeping maybe half a dozen. But I kept slipping

further and further away.

I am telling you this because you may want to consider downsizing

before the problem gets so out of hand that you lose all choice.

I know how incredibly painful this is to even think about. I got a

call from Bird Talk last week wanting to know if I'd like to put my

ad in their magazine (they'd seen it somewhere on the internet). I

cried for an hour after that call.

My best to you...

Bessie

[Guest guest]

I too, am a Kaiser member and after a heart attack @ 50 and a second

one @ 67 they are still on the cholesterol band wagon. With my

cholesterol never higher than 147 they still wanted me on a

statin....after three months of Lipitor and my muscles in a weakened

state and charlie horses in my legs and I couldn't turn my head side to

side...I said enough is enough and stopped taking the statin cold

turkey. Within a couple of weeks my body started to feel normal again.

Now I'm taking the smallest dose of CoReg that's made and an aspirin

twice per day. It's been a real fight with my Cardiologist, but I feel

I'm winning the battle. I keep emailing her the latest info on heart

conditions and solutions so she knows that I'm an active patient.

One has to take the position that its a team effort, you and the

doctor, but you have to do your research

Lee...

On 6/26/2010 5:00 AM, Jack wrote:

Hi, Everybody--

INTRODUCTION

I am 65, had a heart attack in Dec 2009, received two stents, and am on

statin meds as a 35-year Kaiser subscriber. I get exercise almost every day

(fast walking, yoga, treadmill in winter, occasional hikes), have 5-10

pounds to lose, and buy most of my food directly from farmers.

I am not satisfied with Kaiser's treatment so far. The doctor is just a

statin-and-numbers guy and the nutritionist led a "heart-healthy" class with

information that might have been new in 1975. She carries with her to class

an old, beat-up cardboard box full of plastic props showing portion sizes

for skinless chicken breasts and green beans!! (You get the picture.)

So I am a captive of Kaiser, comfortable with all my years as a subscriber,

but not satisfied with treatment for my heart attack.

MY QUESTION:

What tests are there in the future to directly measure the extent to which

blockages are forming again?

Thanks,

Jack ------------------------------------

[Guest guest]

I'm also a longtime Kaiser patient, and had a heart attack in 2001 at

61 and cholesterol level about 182. They had me on mevacor, an an alpha

blocker (and something else I don't even recall now). After a couple of

years I had the classic statin side-effects--muscle pain, memory loss,

hand tremor and worsening cataract. I was dizzy and once even fell over

when I realized that it was the alpha blocker. I got off of them, told

my regular doctor, the last cardiac doctor they sent me to, and the

nurses that I had had horrible side effects, was not going to take the

stuff. Part of the trick with Kaiser is to find a doctor who listens,

there are some there. My longtime primary knows I don't take ANYthing

without checking it out thoroughly. I don't do cholesterol screenings

because I won't take anything anyway, and my brain needs cholesterol to

function. I am also a type II diabetic and they had me on metformin

and occasional insulin if required. I ran out about a year ago and did

not refill them; take lots of cinnamon and watch my diet, and my blood

sugar levels are as good as they were on the meds. I read someone

linked from Spacedoc.com recently that claims that cinnamon " is a

statin " . In a year I have had NONE of the statin sideeffects, which I

am way too familiar with. 

Linden 

 

Re: new member question 

 

 

 

I too, am a Kaiser member and after a heart attack @ 50 and a secondone

@ 67 they are still on the cholesterol band wagon. With mycholesterol

never higher than 147 they still wanted me on astatin....after three

months of Lipitor and my muscles in a weakenedstate and charlie horses

in my legs and I couldn't turn my head side toside...I said enough is

enough and stopped taking the statin coldturkey. Within a couple of

weeks my body started to feel normal again. 

 

Now I'm taking the smallest dose of CoReg that's made and an

aspirintwice per day. It's been a real fight with my Cardiologist, but

I feelI'm winning the battle. I keep emailing her the latest info on

heartconditions and solutions so she knows that I'm an active patient. 

 

One has to take the position that its a team effort, you and thedoctor,

but you have to do your research 

 

Lee...  

 

On 6/26/2010 5:00 AM, Jack wrote: 

 

Hi, Everybody-- 

 

INTRODUCTION 

 

I am 65, had a heart attack in Dec 2009, received two stents, and am on 

statin meds as a 35-year Kaiser subscriber. I get exercise almost

every day 

(fast walking, yoga, treadmill in winter, occasional hikes), have 5-10 

pounds to lose, and buy most of my food directly from farmers. 

 

I am not satisfied with Kaiser's treatment so far. The doctor is just

a 

statin-and-numbers guy and the nutritionist led a " heart-healthy " class

with 

information that might have been new in 1975. She carries with her to

class 

an old, beat-up cardboard box full of plastic props showing portion

sizes 

for skinless chicken breasts and green beans!! (You get the picture.) 

 

So I am a captive of Kaiser, comfortable with all my years as a

subscriber, 

but not satisfied with treatment for my heart attack. 

 

MY QUESTION: 

 

What tests are there in the future to directly measure the extent to

which 

blockages are forming again? 

 

Thanks, 

 

Jack 

 

 

 

------------------------------------ 

 

[Guest guest]

Jack:

One place to start is over at Dr, 's blog site.

http://heartscanblog.blogspot.com/

He wrote the book " Track Your Plaque " , he advocates coronary artery scans.

There is a ton of information over there ( you need to scroll down to see a list

of past postings). At the moment, he appears to be realy down on wheat.

Gayle

>

> Hi, Everybody--

>

> INTRODUCTION

>

> I am 65, had a heart attack in Dec 2009, received two stents, and am on

> statin meds as a 35-year Kaiser subscriber. I get exercise almost every day

> (fast walking, yoga, treadmill in winter, occasional hikes), have 5-10

> pounds to lose, and buy most of my food directly from farmers.

>

> I am not satisfied with Kaiser's treatment so far. The doctor is just a

> statin-and-numbers guy and the nutritionist led a " heart-healthy " class with

> information that might have been new in 1975. She carries with her to class

> an old, beat-up cardboard box full of plastic props showing portion sizes

> for skinless chicken breasts and green beans!! (You get the picture.)

>

> So I am a captive of Kaiser, comfortable with all my years as a subscriber,

> but not satisfied with treatment for my heart attack.

>

> MY QUESTION:

>

> What tests are there in the future to directly measure the extent to which

> blockages are forming again?

>

> Thanks,

>

> Jack

>

[Guest guest]

I take Serrapeptase to help keep my arteries clear. I had one stent in 2001 to open the central artery that was 70% blocked. I went through the statins and was laid out with nervous problems. Fired my cardiologist, it was a mutual separation.From: Jack <moore3@...>Subject: new member questionLipitor Date: Saturday, June 26, 2010, 8:00 PM

Hi, Everybody--

INTRODUCTION

I am 65, had a heart attack in Dec 2009, received two stents, and am on

statin meds as a 35-year Kaiser subscriber. I get exercise almost every day

(fast walking, yoga, treadmill in winter, occasional hikes), have 5-10

pounds to lose, and buy most of my food directly from farmers.

I am not satisfied with Kaiser's treatment so far. The doctor is just a

statin-and-numbers guy and the nutritionist led a "heart-healthy" class with

information that might have been new in 1975. She carries with her to class

an old, beat-up cardboard box full of plastic props showing portion sizes

for skinless chicken breasts and green beans!! (You get the picture.)

So I am a captive of Kaiser, comfortable with all my years as a subscriber,

but not satisfied with treatment for my heart attack.

MY QUESTION:

What tests are there in the future to directly measure the extent to which

blockages are forming again?

Thanks,

Jack

[Guest guest]

I take Serrapeptase to help keep my arteries clear. I had one stent in 2001 to open the central artery that was 70% blocked. I went through the statins and was laid out with nervous problems. Fired my cardiologist, it was a mutual separation.From: Jack <moore3@...>Subject: new member questionLipitor Date: Saturday, June 26, 2010, 8:00 PM

Hi, Everybody--

INTRODUCTION

I am 65, had a heart attack in Dec 2009, received two stents, and am on

statin meds as a 35-year Kaiser subscriber. I get exercise almost every day

(fast walking, yoga, treadmill in winter, occasional hikes), have 5-10

pounds to lose, and buy most of my food directly from farmers.

I am not satisfied with Kaiser's treatment so far. The doctor is just a

statin-and-numbers guy and the nutritionist led a "heart-healthy" class with

information that might have been new in 1975. She carries with her to class

an old, beat-up cardboard box full of plastic props showing portion sizes

for skinless chicken breasts and green beans!! (You get the picture.)

So I am a captive of Kaiser, comfortable with all my years as a subscriber,

but not satisfied with treatment for my heart attack.

MY QUESTION:

What tests are there in the future to directly measure the extent to which

blockages are forming again?

Thanks,

Jack

[Guest guest]

I've been taking Serrapeptase for over two years, since I dumped

Lipitor.

Three weeks ago I had a nuke scan in the old MRI scanner, received

the results from my Cardiologist, and she said what ever you're

doing, keep it up as no new plaque at all

Lee...

On 7/20/2010 8:22 PM, stephen ottridge wrote:

I take Serrapeptase

to help keep my arteries clear. I had one stent in 2001

to open the central artery that was 70% blocked. I went

through the statins and was laid out with nervous

problems. Fired my cardiologist, it was a mutual

separation.

From: Jack <moore3@...>

Subject: new member question

Lipitor

Date: Saturday, June 26, 2010, 8:00 PM

Hi, Everybody--

INTRODUCTION

I am 65, had a heart attack in Dec 2009, received

two stents, and am on

statin meds as a 35-year Kaiser subscriber. I get

exercise almost every day

(fast walking, yoga, treadmill in winter,

occasional hikes), have 5-10

pounds to lose, and buy most of my food directly

from farmers.

I am not satisfied with Kaiser's treatment so far.

The doctor is just a

statin-and-numbers guy and the nutritionist led a

"heart-healthy" class with

information that might have been new in 1975. She

carries with her to class

an old, beat-up cardboard box full of plastic

props showing portion sizes

for skinless chicken breasts and green beans!!

(You get the picture.)

So I am a captive of Kaiser, comfortable with all

my years as a subscriber,

but not satisfied with treatment for my heart

attack.

MY QUESTION:

What tests are there in the future to directly

measure the extent to which

blockages are forming again?

Thanks,

Jack

[Guest guest]

I've been taking Serrapeptase for over two years, since I dumped

Lipitor.

Three weeks ago I had a nuke scan in the old MRI scanner, received

the results from my Cardiologist, and she said what ever you're

doing, keep it up as no new plaque at all

Lee...

On 7/20/2010 8:22 PM, stephen ottridge wrote:

I take Serrapeptase

to help keep my arteries clear. I had one stent in 2001

to open the central artery that was 70% blocked. I went

through the statins and was laid out with nervous

problems. Fired my cardiologist, it was a mutual

separation.

From: Jack <moore3@...>

Subject: new member question

Lipitor

Date: Saturday, June 26, 2010, 8:00 PM

Hi, Everybody--

INTRODUCTION

I am 65, had a heart attack in Dec 2009, received

two stents, and am on

statin meds as a 35-year Kaiser subscriber. I get

exercise almost every day

(fast walking, yoga, treadmill in winter,

occasional hikes), have 5-10

pounds to lose, and buy most of my food directly

from farmers.

I am not satisfied with Kaiser's treatment so far.

The doctor is just a

statin-and-numbers guy and the nutritionist led a

"heart-healthy" class with

information that might have been new in 1975. She

carries with her to class

an old, beat-up cardboard box full of plastic

props showing portion sizes

for skinless chicken breasts and green beans!!

(You get the picture.)

So I am a captive of Kaiser, comfortable with all

my years as a subscriber,

but not satisfied with treatment for my heart

attack.

MY QUESTION:

What tests are there in the future to directly

measure the extent to which

blockages are forming again?

Thanks,

Jack

[Guest guest]

You could absolutely still do mehta casting he is past the age where they

ideally like to start but that doesn't exclude him from doing it at all. It is

much better than risser casting with fewer negative side effects. Rapid growth

is key to mehta casting and if he is likely to have rapid growth between 3 and 5

then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down

from 47, after 10 months in 5 casts

>

> Hi

> My son is 3 1/2. He was diagnosed with scoliosis a little over a year

ago. He is in his 3rd brace. The first was a bending brace wire only at night

since he started out w/ a curve on top. The he was put in a brace fthat he wears

all the time. He has an s shaped curve which is starting to rotate on the top

and bottom. He may also be developing an aditional curve on the top.... Hope

that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right

now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He

spoke about a cast I believe called a risser??? I asked about a mehta cast

instead. Is it too late for him to get one since he's 3 1/2? He also has sotos

syndrome which is partly characterized by low muscle tone and rapid growth

between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be

in his best interest. We r hoping when he is 5 his back will stabalize, but at

the moment it is haywire and progressively getting worse. The brace isn't

working and I am hoping we can try the cast. I guess I am looking for a bit of

direction. We live on Louisiana. Thanks! Tame

>

[Guest guest]

Good. I am really hoping it will be an option. When we first started treating

scoliosis I asked about it but our first doc wasn't into any kind of casting at

all. We have since switched pysicians. Our new ortho surgeon is very aggressive

and helpful. We spoke briefly of casting during our last visit since he feels we

may be heading in that direction he wanted to plant a seed for thought:) I think

based on shat I've read the Mehta sounds more user friendly in many aspects

We go back on October 14th, so I guess we will see what the x ray shows and

which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, " genericallyloud " <jennifer.leggett@...>

wrote:

You could absolutely still do mehta casting he is past the age where they

ideally like to start but that doesn't exclude him from doing it at all. It is

much better than risser casting with fewer negative side effects. Rapid growth

is key to mehta casting and if he is likely to have rapid growth between 3 and 5

then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down

from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year

ago. He is in his 3rd brace. The first was a bending brace wire only at night

since he started out w/ a curve on top. The he was put in a brace fthat he wears

all the time. He has an s shaped curve which is starting to rotate on the top

and bottom. He may also be developing an aditional curve on the top.... Hope

that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right

now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He

spoke about a cast I believe called a risser??? I asked about a mehta cast

instead. Is it too late for him to get one since he's 3 1/2? He also has sotos

syndrome which is partly characterized by low muscle tone and rapid growth

between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be

in his best interest. We r hoping when he is 5 his back will stabalize, but at

the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can

try the cast. I guess I am looking for a bit of direction. We live on Louisiana.

Thanks! Tame

------------------------------------

[Guest guest]

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

Tame, Where in LA do you live? We do casting in Birmingham so that might be an option for you unless Texas is closer.AlyssaSent from my iPhone 4On Aug 21, 2010, at 5:19 PM, NIck Guthe <nickguthe@...> wrote:

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

Hey! Everyone is right! It is not to late to do casting! We live on the alabama Gulf Coast! Our daughter Sierra was diagnosed with idiopathic progressive scoliosis in April of this year! She had 1st cast put on the day after she turned 12 mo. We are on her 3rd cast. She just got it July 12th. Sierra started with a 34 degree curve to the left. And a rvad of 25. We are now down to 17 degrees in cast! The cast his difficult at times b/c of the heat & humidity. Sierra does great! It is doable! We see Dr. ph Khoury at Children's hospital in Birmingham Alabama. There is also another family from Alabama that uses Dr. Khoury! He was trained by Dr. Mehta I believe. There is a video of him on you tube actually talking about Mehta casting & actually casting a child! I can get you all the info. You need on getting in contact with him. Welcome to C.A.S.T you are in the right place! We got in to see Dr. Khoury one week after we found out Sierra had this. Feel free to give me a call!Kristi Mommy to Sierra 16 mo. 3 rd cast 34 degrees down to 17 degrees in castHome 251-986-7022Cell 251-228-0431Sent From Kristi's i-PhoneOn Aug 21, 2010, at 1:23 PM, "Tame" <dazies2001@...> wrote:

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

Hi Tame,

I'm glad that you found us.... I'm not a doc and my first bit of advice would be to mail copies of your child's x-rays and medical info to several of the docs on our website. They will give you a recommendation free of charge over the phone. Call their care coordinators in advance to let them know that your information is coming and follow up with a phone call about a week later. Our docs realize that most of us travel great distances and they do try to make it as easy as they can on us when possible.

What struck me in your post is that you say your child will experience rapid growth spurts between the ages of 2-5. Growth spurts left untreated tend to accelerate the scoliotic curves, but harness those growth spurts with a cast that will guide your child's spine in the right direction is the goal of casting. With that in mind, you may get great results with casting even though your child is a bit older getting started.

Please let me know if you have any questions and keep me posted!- Noelle's mommy, 3 1/2 years oldRochester NYCasted 8 times for 1 1/2 years9 months in braceRegressed and currently in cast 9reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

From: Tame <dazies2001@...>Subject: New member questioninfantile scoliosis treatment Date: Saturday, August 21, 2010, 6:23 PM

HiMy son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is

haywire and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

We live on the louisiana gulf coast. We are about 7 hours from Birmingham via mapquest anyway : ) Tame Sent from my iPhoneOn Aug 21, 2010, at 6:00 PM, Kristi <kristij@...> wrote:

Hey! Everyone is right! It is not to late to do casting! We live on the alabama Gulf Coast! Our daughter Sierra was diagnosed with idiopathic progressive scoliosis in April of this year! She had 1st cast put on the day after she turned 12 mo. We are on her 3rd cast. She just got it July 12th. Sierra started with a 34 degree curve to the left. And a rvad of 25. We are now down to 17 degrees in cast! The cast his difficult at times b/c of the heat & humidity. Sierra does great! It is doable! We see Dr. ph Khoury at Children's hospital in Birmingham Alabama. There is also another family from Alabama that uses Dr. Khoury! He was trained by Dr. Mehta I believe. There is a video of him on you tube actually talking about Mehta casting & actually casting a child! I can get you all the info. You need on getting in contact with him. Welcome to C.A.S.T you are in the right place! We got in to see Dr. Khoury one week

after we found out Sierra had this. Feel free to give me a call!Kristi Mommy to Sierra 16 mo. 3 rd cast 34 degrees down to 17 degrees in castHome 251-986-7022Cell 251-228-0431Sent From Kristi's i-PhoneOn Aug 21, 2010, at 1:23 PM, "Tame" <dazies2001@...> wrote:

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

[Guest guest]

We live in st. Parish which is about as far south as LA goes. We are 1 1/2 hrs from New Orleans and an hour the other direction from Lafayette. What part of TX are the physicians in that do casting? I think we are about 7 hours from Birmingham. TameSent from my iPhoneOn Aug 21, 2010, at 5:57 PM, Alyssa <rogersalyssa12@...> wrote:

Tame, Where in LA do you live? We do casting in Birmingham so that might be an option for you unless Texas is closer.AlyssaSent from my iPhone 4On Aug 21, 2010, at 5:19 PM, NIck Guthe <nickguthe@...> wrote:

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

We live in st. Parish which is about as far south as LA goes. We are 1 1/2 hrs from New Orleans and an hour the other direction from Lafayette. What part of TX are the physicians in that do casting? I think we are about 7 hours from Birmingham. TameSent from my iPhoneOn Aug 21, 2010, at 5:57 PM, Alyssa <rogersalyssa12@...> wrote:

Tame, Where in LA do you live? We do casting in Birmingham so that might be an option for you unless Texas is closer.AlyssaSent from my iPhone 4On Aug 21, 2010, at 5:19 PM, NIck Guthe <nickguthe@...> wrote:

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

I'm not sure about Texas I just know that would be the next closest lace. I think I have read someone goes to ish-Rite in Texas but I don't know where that is, hopefully someone else will be able to fill you in on that. Good luck. Let me know if I can help with Birmingham.Alyssa Sent from my iPhone 4On Aug 21, 2010, at 6:53 PM, Tame Olson <dazies2001@...> wrote:

We live in st. Parish which is about as far south as LA goes. We are 1 1/2 hrs from New Orleans and an hour the other direction from Lafayette. What part of TX are the physicians in that do casting? I think we are about 7 hours from Birmingham. TameSent from my iPhoneOn Aug 21, 2010, at 5:57 PM, Alyssa <rogersalyssa12@...> wrote:

Tame, Where in LA do you live? We do casting in Birmingham so that might be an option for you unless Texas is closer.AlyssaSent from my iPhone 4On Aug 21, 2010, at 5:19 PM, NIck Guthe <nickguthe@...> wrote:

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

I think it's in Dallas which is about the same distance. Maybe I will look into both places and see what happens.TameSent from my iPhoneOn Aug 21, 2010, at 7:12 PM, Alyssa <rogersalyssa12@...> wrote:

I'm not sure about Texas I just know that would be the next closest lace. I think I have read someone goes to ish-Rite in Texas but I don't know where that is, hopefully someone else will be able to fill you in on that. Good luck. Let me know if I can help with Birmingham.Alyssa Sent from my iPhone 4On Aug 21, 2010, at 6:53 PM, Tame Olson <dazies2001@...> wrote:

We live in st. Parish which is about as far south as LA goes. We are 1 1/2 hrs from New Orleans and an hour the other direction from Lafayette. What part of TX are the physicians in that do casting? I think we are about 7 hours from Birmingham. TameSent from my iPhoneOn Aug 21, 2010, at 5:57 PM, Alyssa <rogersalyssa12@...> wrote:

Tame, Where in LA do you live? We do casting in Birmingham so that might be an option for you unless Texas is closer.AlyssaSent from my iPhone 4On Aug 21, 2010, at 5:19 PM, NIck Guthe <nickguthe@...> wrote:

Hello Tame,Yes, Jenn is absolutely right, you will want to find out who is the best Mehta trained doctor near you- who out there knows who that is?Welcome to CAST! Ask any and all questions you have of this great group! Heidi, Bexon's Mommy, (3 years old, in 8th cast from Salt Lake City Shriners, currently down from 62 degrees to 20 in cast)From: Tame Olson <dazies2001@...>"infantile scoliosis treatment " <infantile scoliosis treatment >Sent: Sat, August 21, 2010 2:22:09 PMSubject: Re: Re: New member question

Good. I am really hoping it will be an option. When we first started treating scoliosis I asked about it but our first doc wasn't into any kind of casting at all. We have since switched pysicians. Our new ortho surgeon is very aggressive and helpful. We spoke briefly of casting during our last visit since he feels we may be heading in that direction he wanted to plant a seed for thought:) I think based on shat I've read the Mehta sounds more user friendly in many aspects We go back on October 14th, so I guess we will see what the x ray shows and which path we need to take. I have a month and a half to research options.....

Thanks

Sent from my iPhone

On Aug 21, 2010, at 4:01 PM, "genericallyloud" <jennifer.leggett@...> wrote:

You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.

Jenn

Mommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts

Hi

My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire

and progressively getting worse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame

------------------------------------

[Guest guest]

IT IS NOT TO LATE! My daughter was casted at 3 1/2 yrs old. She started at 56* out of cast and we are currently at 14* in cast. This is her 5th cast and we are very pleased with the correction she is getting. We are in Va and travel to Shriners in Greenville Sc. I'm not sure where the closest Mehta Dr is for you but it is crucial that they be Mehta trained to get the proper cast. I know we have a list of Mehta trained Dr's on the site so definitely check it. I hope this helps.Amy J mom to Allie(4) in 5th cast down to 14* from 56*Sent from my Verizon Wireless BlackBerryFrom: "genericallyloud" <jennifer.leggett@...>Sender: infantile scoliosis treatment Date: Sat, 21 Aug 2010 21:01:26 +0000<infantile scoliosis treatment >Reply infantile scoliosis treatment Subject: Re: New member question You could absolutely still do mehta casting he is past the age where they ideally like to start but that doesn't exclude him from doing it at all. It is much better than risser casting with fewer negative side effects. Rapid growth is key to mehta casting and if he is likely to have rapid growth between 3 and 5 then Mehta casting may still get fantastic correction for him.JennMommy to Cole, 2.5 years old, 1st brace from rochester, 2 degrees in brace down from 47, after 10 months in 5 casts>> Hi> My son is 3 1/2. He was diagnosed with scoliosis a little over a year ago. He is in his 3rd brace. The first was a bending brace wire only at night since he started out w/ a curve on top. The he was put in a brace fthat he wears all the time. He has an s shaped curve which is starting to rotate on the top and bottom. He may also be developing an aditional curve on the top.... Hope that makes sense. His curvature IN the brace ranges from 28 - 38 degrees. Right now he's being x rayed every 4- 6 weeks. The doc mentioned casting this week. He spoke about a cast I believe called a risser??? I asked about a mehta cast instead. Is it too late for him to get one since he's 3 1/2? He also has sotos syndrome which is partly characterized by low muscle tone and rapid growth between ages 2 and 5. Since he has an overgrowth syndrome surgery would not be in his best interest. We r hoping when he is 5 his back will stabalize, but at the moment it is haywire and progressively gettingworse. The brace isn't working and I am hoping we can try the cast. I guess I am looking for a bit of direction. We live on Louisiana. Thanks! Tame>